Post by bb on Jul 22, 2005 16:49:03 GMT -5
I posted this on the General Health board too. I didn't take the time to find the thread where we were talking about Oprah (who never called), and Rosie, and Montel but posted my letter here instead.
You can write him also. Click on this link.
www.montelshow.com/show/tell.htm
Then select "Your Story in the News" if you will and type him a letter. The more the better, folks!
Montel,
Morgellons has been in the news often lately, but it's like no one is hearing what we are saying because it's just too sci-fi.
Thousands of people in America are coming down with a new, undiagnosed disease. We all share the same symptoms of intense itching, skin nodules, feeling like bugs are biting and crawling around in or on our skin. We suffer many physical symptoms like fatigue, brain-fog, anorexia, cough, and many more. Most people with these symptoms have skin lesions that are very difficult to heal.
The problem really begins when we seek help from our family doctor. After several visits you figure out he/she is not going to help you. Then the suicidal thoughts set in. You feel you have to end your life to stop the torture that is 24/7. People are killing themselves. The torture is too much, and the hopelessness is caused by the lack of our doctor's concern. If you manage to pull through the initial suicidal stage, then you go on to see other doctors, and more doctors, until you are broke and still haven't received one bit of help. Not one of seven doctors have done so much as a skin scraping for me. I have begged for referrals, but I only got sent to the shrink, as many of us sufferers are.
We are living in daily hell-on-earth. Worse than that is it intensifies at night. Sleep is impossible without sleep medication. Most of us have lost our jobs. Most of us are extremely ill. There are whole families that have it. My heart goes out to the children who's little lives have been destroyed by this. They have to rely solely on their parents to pull them through, when the parents don't know the first thing to do. We are all trying to figure out what works, what products on our skin, or what taken orally to kill internal parasites will help. We desperately try one thing after another, some help and some don't.
When Morgellons hits the news I thought it would be big news, huge. But it was barely a bleep on the screen. No one can believe it if the doctors don't.
Ginger Savely, a Nurse Practioner in Austin, Texas, is finding some 10% of her Lyme Disease patients have this condition that is being called Morgellons. No one knows what the connection is, but she is trying to help us. The last I heard she had some 36 patients with Morgellons.
I have learned that Lyme is the new imitator. Anyone diagnosed with MS, or Lupus, or Fibermyalgia should be tested for Lyme. The rest of that story is it is hard to get an accurate test for Lyme due to the government guidelines being ridiculous and outdated. Also, so many doctors "don't believe" Lyme is in their part of the woods. Excuse me, that is just a stupid statement. How can an educated person be so dumb.
I strongly suspect that the medical profession is being run strictly as a business. The almighty dollar is the bottom line. Our health comes dead last. How can it be possible that people all across America are going to doctors with these symptoms and all getting the same diagnosis that we are either mentally ill, or it's just scabies, or it's absolutely NOTHING! They can see physical evidence of the person's unhealthy skin, the person is unhealthy in general, but they pronounce you fine. What's going on here? Even when you send them information ahead of your appointment, they will still see you, take your money, and then do nothing to help you. After 11 months of researching parasites I have come to the conclusion that parasites are making us all ill and making doctors rich. They know this. It is their big secret.
I'm not asking you to do a show on medical conspiracy (unless you want to). I'm asking that you do a show with a morgie or two, and maybe Ginger Savely as the expert. You could even have some opposing opinions, and there are lots of them I'm sure. I think whoever went on TV defending the medical communities stance that we are all just a bunch of nuts, will look like an absolute fool. It would be great.
Would you please help us? Even the CDC has turned their backs to us. They send form letters in reply to our requests for help.
And please be tested for Lyme since you have been diagnosed with MS. It's very important.
You can write him also. Click on this link.
www.montelshow.com/show/tell.htm
Then select "Your Story in the News" if you will and type him a letter. The more the better, folks!
Montel,
Morgellons has been in the news often lately, but it's like no one is hearing what we are saying because it's just too sci-fi.
Thousands of people in America are coming down with a new, undiagnosed disease. We all share the same symptoms of intense itching, skin nodules, feeling like bugs are biting and crawling around in or on our skin. We suffer many physical symptoms like fatigue, brain-fog, anorexia, cough, and many more. Most people with these symptoms have skin lesions that are very difficult to heal.
The problem really begins when we seek help from our family doctor. After several visits you figure out he/she is not going to help you. Then the suicidal thoughts set in. You feel you have to end your life to stop the torture that is 24/7. People are killing themselves. The torture is too much, and the hopelessness is caused by the lack of our doctor's concern. If you manage to pull through the initial suicidal stage, then you go on to see other doctors, and more doctors, until you are broke and still haven't received one bit of help. Not one of seven doctors have done so much as a skin scraping for me. I have begged for referrals, but I only got sent to the shrink, as many of us sufferers are.
We are living in daily hell-on-earth. Worse than that is it intensifies at night. Sleep is impossible without sleep medication. Most of us have lost our jobs. Most of us are extremely ill. There are whole families that have it. My heart goes out to the children who's little lives have been destroyed by this. They have to rely solely on their parents to pull them through, when the parents don't know the first thing to do. We are all trying to figure out what works, what products on our skin, or what taken orally to kill internal parasites will help. We desperately try one thing after another, some help and some don't.
When Morgellons hits the news I thought it would be big news, huge. But it was barely a bleep on the screen. No one can believe it if the doctors don't.
Ginger Savely, a Nurse Practioner in Austin, Texas, is finding some 10% of her Lyme Disease patients have this condition that is being called Morgellons. No one knows what the connection is, but she is trying to help us. The last I heard she had some 36 patients with Morgellons.
I have learned that Lyme is the new imitator. Anyone diagnosed with MS, or Lupus, or Fibermyalgia should be tested for Lyme. The rest of that story is it is hard to get an accurate test for Lyme due to the government guidelines being ridiculous and outdated. Also, so many doctors "don't believe" Lyme is in their part of the woods. Excuse me, that is just a stupid statement. How can an educated person be so dumb.
I strongly suspect that the medical profession is being run strictly as a business. The almighty dollar is the bottom line. Our health comes dead last. How can it be possible that people all across America are going to doctors with these symptoms and all getting the same diagnosis that we are either mentally ill, or it's just scabies, or it's absolutely NOTHING! They can see physical evidence of the person's unhealthy skin, the person is unhealthy in general, but they pronounce you fine. What's going on here? Even when you send them information ahead of your appointment, they will still see you, take your money, and then do nothing to help you. After 11 months of researching parasites I have come to the conclusion that parasites are making us all ill and making doctors rich. They know this. It is their big secret.
I'm not asking you to do a show on medical conspiracy (unless you want to). I'm asking that you do a show with a morgie or two, and maybe Ginger Savely as the expert. You could even have some opposing opinions, and there are lots of them I'm sure. I think whoever went on TV defending the medical communities stance that we are all just a bunch of nuts, will look like an absolute fool. It would be great.
Would you please help us? Even the CDC has turned their backs to us. They send form letters in reply to our requests for help.
And please be tested for Lyme since you have been diagnosed with MS. It's very important.