Post by Anne Dill on Jul 5, 2005 8:58:02 GMT -5
OK guys- here is my theory on transmit. My entire family began with a flu like illness around the same time ( 1 month after my parents moved in because of neuro problems with my dad) I went thru a year with the kids having CFS symptoms , headaches, few rashes, mostly stomach and fatigue/with low grade fevers. Meanwhile my husband slept for a year and turned kinda mean- he isolated himself because of cognitive decline. I was watching him turn into my Dad and no one would listen. Three years later my Dad and Husband have almost identical symptoms but with different diagnosis'. Hand atrophy, speech, swallowing, rash, vision, focal and memory, (blank stare) My Mom is the one with the numerous skin lesions but says it is only nerves because that is what the doctor said. My Dad also has the peeling around the ears and scalp- itching and skin doesnt heal. My head is a mess with these lesions and yes I have trouble leaving it alone. I want them gone. I am tired of being treated like the old catholic nuns yelling not to touch yourself or you will go to Hell. Really, what is up with that- Doctors love to humiliate you so they dont look so stupid!!!
Anyhow, (I ramble) I feel that this disease is passed thru body fluids- oral fecal or saliva. With four kids I can see how this could happen- and then there is autoinfection- low immunity can lead to that too. We all have symptoms- some worse than others but no one has gotton better and some are worse now. My biggest fear is that I am going to drop before we find some help. Yesterday I woke up with my entire face swollen- rash- (rubbery?) My husband now depends on me for everything and my parents have moved to a nursing facility. Still, no one will try to put it together. I am starting to feel so isolated and my heart breaks every time I look into my childrens eyes!! I feel so responsible because my husband took in my parents - remodeled his home- and is now loosing his life. He has always been the kind of person who would help anyone- coached the kids softball- loved everyone and now no one comes to see him- This is not fair and someone has to listen soon- Even the military get a leave from war- I am so ready for mine. Anne
Anyhow, (I ramble) I feel that this disease is passed thru body fluids- oral fecal or saliva. With four kids I can see how this could happen- and then there is autoinfection- low immunity can lead to that too. We all have symptoms- some worse than others but no one has gotton better and some are worse now. My biggest fear is that I am going to drop before we find some help. Yesterday I woke up with my entire face swollen- rash- (rubbery?) My husband now depends on me for everything and my parents have moved to a nursing facility. Still, no one will try to put it together. I am starting to feel so isolated and my heart breaks every time I look into my childrens eyes!! I feel so responsible because my husband took in my parents - remodeled his home- and is now loosing his life. He has always been the kind of person who would help anyone- coached the kids softball- loved everyone and now no one comes to see him- This is not fair and someone has to listen soon- Even the military get a leave from war- I am so ready for mine. Anne