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Post by KB on Oct 6, 2005 13:13:55 GMT -5
Don't forget the menthol, they do hate that. They hate salt, it dries them up, as does the menthol I think. The salt and c cure is at lymephotos.com, you have to take sodium chloride tablets with vitamin c at the same time and drink lots of water. Yes, Morgellons thickens the blood, I think they take our oxygen along with our nutrition?? Maybe they're swimming in it. They congregate in the body and like lymph nodes. There are alot of things that thin the blood and increase circulation. MSM, COq10 I think. Garlic, salt n c, cats claw, olive leaf and mineral ice along with essentials oils, oregano, rosemary, lavender, lemon balm/grass, anything piney or resiny and ammonia/borax have been very helpful. I alternate vicks, or mineral ice with capzacin creme. Burns but I hope gets em down where they live. They like petroleum though, so I try to minimize that. Keep nails short, don't bite and skin dry, although it's good to sweat them off or apply oils, but they seem to like a moist environment. They hate vinegar and weak acids like lime/lemon, and do a body shave. That helped alot. I think the hair color works because of the ammonia. Some people put a bit of ammonia in their shampoo or mist body with diluted bleach spray then rinse. Obviously not together or you will have noxious gas. Do one or other or alternate days. I have also put on a deep conditioning cap that attaches to a hair dryer and blown them off my head. Put on some big oversized nylon clothes and blown them off body. Temporary but let me get some sleep. Change bedding material frequently and spray with essential oils or diluted ammonia or bleach as frequently as you can. Wash all clothes in hot water with Borax/ammonia or borax/bleach. Dry for 60-70 mins. Bag clean clothes if you can. You have to treat from the inside out, topical alone will not work. One friend is getting great results with the nosquito (stingerproducts or doityourself.com) b/c they keep her from getting reinfected. Also she recommends liquid copper and/or silver from Kornax.com. If you are electrically minded you can get instructions on the net how to make your own at home (silver). Mop with ammonia and bathe with epsom salts to help loosen them out of your skin. Cover new wounds with neosporin + pain relief creme and a bandaid. They like to get in you that way. Make cayenne pepper your new best friend and bring his buddy garlic to every meal. You'll smell but get relief. Hydrogen peroxide seems to just make them mad, and I read they can survive alcohol. They are devious alright. I have wondered if it could be a wasp that brings it's own bacteria? Pomegranite caps with 40% ellagic acid is another herbal you can try. Take it with food, it can be hard on the tummy. I am hearing good things about Taurox and artemisinin not artemesia will try those when I can.
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To Chicago K and Husband
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Post by To Chicago K and Husband on Oct 6, 2005 14:19:40 GMT -5
Chicago K.---> "I have been diagnosed with Lupus and Mixed Connective Tissue Disease. My blood lab said my blood was 4x too thick." Favor yourself and get a referral to rheumatologist or immunologist. Learn about your legitimate diagnosis, and visit support message boards for that. If it will soothe your and your husband's minds, let the QUACKS that don't know you got that diagnosis...know that you have it now.
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Post by message error on Oct 6, 2005 14:45:47 GMT -5
You knew you had that all along and you and your husband don't know what it does. Get with it.
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Post by Shirl Leindl on Nov 28, 2005 1:15:19 GMT -5
Hi, I'm new to the board, but have been reading the posts for the past few weeks. Ive probably been through 4 "cycles" of this hideous phenomenon since May of this year. Seems it likes to appear about every 3 weeks. I've had outbreaks on my face, hands, under my fingernails, toes, toenails, forearms, legs, neck, mainly places without hair. I've suffered excruciating physical pain, emotional horror, and mental anguish because the medical community is unable to comprehend that such a condition exists. I was given a round of tetricycline for 30 days, which was good for my skin, but did not hlp with creature control in my body. It did wonders for my tan, though. In fact, I thought that staying in the sun all the time would eliminate these parasites, but it did not. At least the dark tan covers some of the ugly scars from the lesions. Lately, at work (I work in a hospital), I'v been noticing "hot spots", or areas where I am attacked again by these creatures. Certain patients' rooms are hot, and I could hardly bare to walk into those rooms without squirming. I would also see the white "flies" in those rooms, and on the patients. These were patients with very compromised immune systems. Could it be that they too are suffering this horrifying infestation also? Anyway-, I was working on Tuesday, and I had put on a mask, gloves, gown to enter an isolation room, which also happened to be one of the "hot" rooms, and I ran into the infectious disease Dr., he asked why I was wearing all that stuff, and I said it was just for my comfort and protection. Well, earlier in the day I had confided in one of the nurses about my skin lesions, and how i was afraid to tell any more doctors, since they recommended a psychiatric eval. when I tried to tell them about it. She beleived me, and suggested going to see a rhematologist to find out what was wrong with my immune system. When she saw this doctor come in, she grabbed him, and me, and pulled us aside, pulls down my pants in the back to show him the bites on my waistband, and tells him about my symptoms. He asked some pointed questions about the fibers, the stinging, etc, then gasped, oh my god, you have morgellans? Then he proceeded to show me a website of a Dr. out of California. He made a phone call, and then told me that his belief is that a defecit of Omega-3 fatty acids in my body was the reason I was under attack. He said to start on fish oil capsules, flax seed, and tonilate (sp?!) Said I could find the tonilate at Walmart. I will go tomorrow to look for it. In the mean time, I have been taking the fish oil capsules, and trying to eat more regularly, and sleep. The flax seed will need to be ground up, otherwise it passes through the body whole, without the benefit of the oil. The doc ran into me the next day at the hospital, and said I looked less red (my face lesions), so maybe this will help in some way. As for salt, I think it could probably deter this parasite, because for me, they seem to suck up all my body fluids, especially in my skin. They suck up infection, interstitial fluid, and are especially drawn to blood. I have experienced some things that I find hard to even think or talk about to another, and at times I feel this infestation will probably kill me, but I will try to remain optimistic, in the case that maybe there will be a way to getg rid of this. It sounds like maybe this doctor will be a good resource, but until I know for sure, i will remain skeptical. By the way, I am a female, in N.E. Florida, and "Life USED to be so good...." K.E.Y. in Jax
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Post by Shirl Leindl on Nov 28, 2005 1:17:48 GMT -5
Morgellons Disease: My sister name is Shirl Leindl She has this real bad. worms coming out of her body through sores,nose, ears and coughs them up . need help. Shes been to the emergency room 4 times 2 different hospitals, treated for scabies 2 times, one docter sent her to phyciatris and one said it was self inflicted. went to 2 skin specialists both said they were not nothing and sent to phyciatris by both. her regular doctor seen her and freaked out and sent her to one skin doctor. Her name is Shirl Leindl Illinois Its real bad and no doctors believe her. NEED HELP PLEASE buck19@frontiernet.net
email me
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Post by Administration on Nov 28, 2005 12:08:22 GMT -5
Please, at least see a lyme literate Dr.. Just because they deal with Lyme doesnt mean thats all they know. Yes.. you will probably pay out of pocket, but a Dr like this will spend hours with you and test you for everything.. The Lyme Dr I go to doesnt just treat people for Lyme, she also treats people for strange parasites, along with everything else that most Drs wont even consider. A couple I met there got something at a Mexican buffet, some strange parasite and my Dr treated them as well. At least a Lyme Dr will look and try.. its better than going from Dr to Dr and being told you are crazy. Plus Lyme Drs do know about the Morgellons Disease. Anyone of them who went to the conferences know all about it. No.. they dont quite know what it is.. but at least they will try.. At least you wont come out of a Drs office in tears after being told you are crazy.. To me.. that was priceless. Contact me for Lyme literate Drs closest to you. .................................... Kerry
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Post by ebgb on Dec 7, 2005 4:50:01 GMT -5
Just a thought, but I have been thinking ha ha when I can because I am so worried about my son's and the rest of us (family) What if, we approach this as it's own infectious disease? Bugs scare people, we know they r there but u have to admit that when we bring it up it's DOP right away in most cases. I think if we separate this from Lyme, and all our other theory's, we may make better head way. Spoon feed the docs and describe things such as brain and neuro problems, maybe skin, but if visible hopefully they will ask about it. This may sound crazy, but I am beginning to really consider it. This post may not explain what I mean well enough but I hope u get the general idea I have to do something different, I have no choice. If the CDC was bugged (ha) enough they would just finally through it in w/ Lyme and look how much trouble the Lyme community still has. It's a demon that has to be delt with, and quick. What do u guys think, do I make any since?
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Post by Newby on Dec 7, 2005 14:46:02 GMT -5
Shirl,
It is so sad that you are suffering so.
I too believe that ebgb's suggestion is the course of action one should take. Do not mention Morgellons, bugs, or even fibers coming from the body. Instead, talk about sores, fatigue, any gastrointestinal problems, etc. and let them do the digging. In my experience, suggestions to doctors makes them feel uncomfortable or maybe even threatened on a certain level. You may be tempted to take samples with you, but that just cements in most of their minds that DOP diagnosis There is a product called "Bug Out" which does just that. Is working pretty well for me. Two supplements which seem to be very effective, are Colloidal Silver and Artemisinin. ASAP-32 Silver is even better, but could be difficult to find outside of the INTERNET. Please drink lots of water, preferably distilled and make sure your bowels move regularly, at least once per day. This forum provides a wealth of information. You can start with the posts above. I sisncerelly hope you get at least some relief soon.
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Post by ebgbgms on Dec 7, 2005 23:51:08 GMT -5
Dear keynjex, I know life use to be so good. We probably didn't realize just how good. I am praying for u. pm me any time.
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Post by Bumping on Dec 16, 2005 2:24:09 GMT -5
keyngax, are u still hangin in there? Why don't u let us know how it's going? MOMO, what is the latest with what u have been doing? Update me.
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Post by Gary R on Jan 10, 2006 12:57:01 GMT -5
OK, Please only reply if you have symptoms of morgellons/ lyme. This is a theory, I am in the process of having some samples tested. When I have results I will post them. Please let me know if what I explain sounds realistic to those of you that have this. If you don't have this please don't reply. I only want want feedback from those who have symptoms, I have heard enough advise/ comments from people who don't have symptoms. STAGES:I think the undiagnosed disease we have is actually a mold/ parasite that is over 3500 years old. It can enter the skin with or without the aid of an open wound. It is a unbelievably fast spreading parasite that needs water/ moisture to sustain. There are four categories or stages of this. It starts with small black specs, usually invisible to the naked eye. I believe these are a mutated flea/ gnat. The hair like fibers are actually larva /eggs coming from the specs. Biologists have confirmed the fibers found on people are a form of protein, they just don't know where these proteins come from. The fibers have been reported as blue or green or red, this parasite can camouflage itself like no othe, blending with its surroundings. The colors of the fibers will vary with each individual. The eggs are on the top of your skin but beneath a thin layer formed by the parasite which is not your skin. It is generally very very soft. like a baby's butt! The next stage are the worms. The final stage is a gnat/ flea, just as the first but on a much larger scale, totally visible to the naked eye. This flea/ gnat can fly but also has no problem submerged in water. It closes its wings and forms a cocoon like shell protecting itself. When threatened it reproduces, the number of eggs produced at a time is literally unbelievable. I think the final stage is only reached by some people due to diet and absorption of certain foods. HELPFUL INFO:If you work in a nursery or are around plant food or areas with a lot of moisture your symptoms will increase much faster then if you were in a dry cool environment. If you have this getting rid of it is definitely difficult, but it is possible. *First and foremost you need to be able to absorb foods/ vitamins properly. You can take all the vitamins in the world but if your intestines are infested with this parasite the lining of your intestines is blocked and therefore the vitamins cant be absorbed, so they will do no good. Liquid vitamins is a good way to start. There is a product made my medagenics called ultrainflamx which is very helpful in repairing the walls of your intestines. Its a powder, I mix one scoop with a little juice and add water so its not to chalky. Be sure to store it in the freezer between uses. I always add ice!! *Salt is your new best friend. This parasite cant live in a salty environment. But don't go take a salt water bath, just yet. You need to have salt in your system before you bathe in it. If you don't a salt water bath will only make the parasite go deeper into your system. A wide variety of msm vitamins are on the market. In addition to MSM I am taking a homeopathic remedy, (sulfur in a 6x) If you choose to do this consult a homeopath or the pharmacist where you buy it as to the dose. Whole foods has sulfur. It is in a small tube similar to chop-stick, by twisting the top pills come out. Take 4 or 5 at a time. There are salt shampoos/ lotions and soaps that are excellent and help soooo much. * Calendula is also amazing against this little creature. You can get it in lotions, soaps and shampoos. It also comes in a floral water. This is great to add to your drinks/ or food or just under your tongue. I add about 20- 40 drops in water and drink it. Cold drinks for me are much better than warm ones. Please think of this like a mold in your system warm dark places will be the worst. Behind the knees, ankles and so on get sunlight but try not to sweat keep a fan on you. *You are also going to NEED good bacteria! And lots of it. Medagenics also carries different types and they are delivered refrigerated. I use medagenics because of the consistency in the product. They don't test there product for quality assurance an outside company not owned by them does. Try and stay out of dark humid environments. Don't leave any cups or things that have moisture in them laying around. Open the blinds, get fresh air. There are sulfur bombs (like a bug bomb) that are great for a car or bedroom. just don't be in the room when you use it even though your might want to be. **The last thing sounds strange but if you have this disease I bet you'll do it. Spend $10 and buy a small fountain at bed bath and beyond or k-mart. Put salt water in it. If you have an air conditioner stand as close as you can to it and put the fountain about 10 feet away. Feet closest to the fountain. If you are infested, you will feel a rush. Its creepy but relieving at the same time. You can use whatever products you like, these brands just happen to work for me. While going to school for homeopathy my teacher used them and highly recommended them. I stopped studying homeopathy 2 years ago because I wasn't making ends meet while practicing it. This disease has opened my eyes to what is important, health. I am selling my business and going back to studying homeopathy. I hope this is useful info and I wish you all good health. Were not crazy, this parasite is!!! Please let me know if this sounds accurate or not. Any additional info is appreciated. Thanks, Maureen
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Post by Gary R on Jan 10, 2006 13:44:04 GMT -5
:)After reading all of your post on this subject and this terrible disease my heart goes out for all of you suffering. Reading about options I can tell you that my suggestions are not a cure all but I do know that based on learning and comments about airborne there are sources to help. One is technology that was developed by NASA to kill airborne pathogens and is used today in space flights. It uses a UV-X bulb (above the uv spectrum, below the xray spectrum)RCI (Radiant Catalytic Ionization) and uses a matrix of rare & noble metals that acts a photo catalyst to supercharge the particles that creates a purifying plasma. Originally developed to kill pathogens on food, then discovered to kill airborne and some surfaces as well. These units also use several other technologies to get log kill rates of 99.9% on many bacteria, viruses and fungi for home, office or work environment. Also there are personal units that use a different technology that can be carried with you that have 13 peered reviewed studies that show when you do walk into different environments you can help control your exposure to what is in the air and what enters your eyes, nose or mouth around 80% of the time. Yes, I know of these products because I first tried the home unit on a free trial and my issue was taken care of. I believe so much in the product now I market these, if you want a free trial to see if this unit can help you we would love the opportunity to see if we can bring you some relief. Our Fresh Air technology works. China recently purchased for all federal buildings in Beijing and the subway system to kill the S.A.R.S virus. Disney placed an order for the cruise ship to help fight on going problems. I have never posted to a site like this not sure of the protocol or if I can list my email. Here it is gary@livinghealthytech.com Let's see if we can help. Thanks , Gary
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Post by victoreah on Jan 10, 2006 21:41:13 GMT -5
Gary, Hi, As an owner and user of a Fresh Air unit AND a Fresh Air To Go unit for my office at work - I would like to say I am a firm believer in the technology and it has made a big difference in the quality of the air in our home for sure. My husband is a smoker and people comment on the fact that our home has NO odor - unlike other's homes where people smoke. We also have an indoor dog and there is no "pet smell" either - since getting the unit. We bought the unit right after I first became ill. It is hard to say whether or not having the unit has helped my illness. Who knows? I could have been much sicker than I was if we had not started using it - but I do have to be honest and tell you I am not out of the woods. We even moved to a new house. I became symptom free for a short while after being on lots of antibiotics and glyconutrients - BUT alas - I had a bit of a relapse recently. (Overworked, overstressed.) I am very pleased with my Fresh Air unit, but I can't honestly say that it helped my Lyme/Morgellons situation - and on the other hand - I can't say that it didn't!
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