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Post by guest also on Jun 28, 2005 9:12:58 GMT -5
From what I understand that didn't happen until yesterday afternoon. This thread was started before that but it doesn't matter. I don't understand why people keep talking about a rift since this only tends to cause one. I have seen nothing here to indicate there are any more problems, I think both places are great and both were doing fine with no sign of a problem between them. Discussing it in length only tends to cause a problem where there was none. Perhaps that was the intent all along, maye it was or maybe it wasn't. But if we want both boards to stay operating we all should let this anger go and get on with our lives. I sure wouldn't put up with it if I had a message board that was dedicated to helping others. We might find ourselves without any place to gather if people keep trying to start things between both places.
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Post by guest 2 on Jun 28, 2005 10:35:43 GMT -5
Wonder why the spammer hasn't been on this board, or have they? The original question "Please share what you feel about Lois and the NUSPA board" on this thread looks real familiar. It's obviously someone trying to stir up trouble between the two groups, I honestly don't know how Lois has put up with all the crap all these years. I wouldn't blame her if she shut the board down entirely, no one should have to put up with what she has put up with, right? Lois if you are by any chance reading this post, why don't you just shut the board down and be done with it, I think you've given enough.
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Post by special guest star on Jun 28, 2005 14:38:50 GMT -5
The message board itself has just had an upgrade, maybe at the time you made the post it was still working out it's"bugs'? maybe so, it's not worth this much effort, really. thanks.
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Post by Administration on Jun 29, 2005 17:50:42 GMT -5
I dont know if the offender has been on here or not. Ive been given a description of what to look for and as of yet, havent seen it. I will spend tonight going thru all the posts I havent had a chance to check.. and also talk with the other moderators and ask them. If that person does show up here, which they may now that Lois is deleting that person.. We (Lymebusters) will do all we can to help her locate who this is. We have no bad feelings here about Nuspa and wil help them anyway we can.
Yes, Lois has given a lot. But I would still hate to see her shut down Nuspa over a spammer. For all we know this could be some kid on his Daddys computer.. I would hate to think she gave this all up over that. We have had a few trouble makers here too the last few days.. had to delete some posts. But none of the posts match what this person is posting on Nuspa. And the only posts we deleted were the ones that were personal attacks on other people here. I mean very bad posts.. But please, if you are on here reading and see anything that doesnt sound right.. always feel free to email one of us and let us know.. Im afraid to say with the new upgrade I dont get notified of replies to my posts anymore so I just dont get to everything.. Thank you Kerry
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Post by Administration on Jun 29, 2005 17:57:37 GMT -5
Also.. to answer the main question. No.. there is no rift between us and Nuspa. We are both peaceful boards trying to achieve the same thing. Some people still dont believe in chronic Lyme disease, and Im not saying thats what the problem is or was.. Im just saying the people who do have lyme needed a place to post themselves and discuss issues. Now they have that. But everyone is welcome here regardless.
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Post by special guest star on Jul 1, 2005 6:12:09 GMT -5
Hmmm...I made a post over at Skin Parasites about the nematomorph and it's gone. It's the same one I posted here. I have no idea why they deleted it, there were no other posts about it other than CLiff's fiber worm posts, which were somewhat different than what the folks at Lymephotos were theorizing. I dunno, I baffled, honestly. I don't have anything bad to say, but I'm just confused is all.
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Post by Administration on Jul 1, 2005 21:11:36 GMT -5
Perhaps your post just hasnt gone up yet over there. They have it set on moderation. So every post has to be looked at and approved before its posted. .. Kerry
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Post by special guest star on Jul 2, 2005 13:33:17 GMT -5
It was up for almost a week. I posted it the same day I posted the one here. I mean, I physically saw it and it even had one or two responses to it. Then poof. Maybe one of those people over there who get kind of riled up got in an argument with someone else and it just ahppened to be in my thread. I could see that happening. I've seen lots of little altercations on that board the first few days I was there.
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Post by special guest star on Jul 2, 2005 15:00:45 GMT -5
I'm not going to cause any problems, but I noticed another of my posts was deleted over there, so I'm no longer posting on that board. I'm sure it must have been an accident, but i see no point in offering opinions just to have them mysteriously disappear.
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Post by guest on Jul 2, 2005 17:04:53 GMT -5
How dare she delete anyone's post! Just who does she think she is anyway? What gives her the right to decide what should and should not be on the NUSPA board? A boycott of NUSPA is the only way!
After all, we're not responsible for the spammer, why should our posts be screened and links not posted to keep someone from emailing and spamming us? Does she think it's someone from this group who is doing the spamming. And look at the spam she's mad about anyway, what's wrong with it, so the spammer recommends drugs and alcohol together to treat this illness, does NUSPA have anything better to offer?
So what if she disagrees with the lyme diagnosis for everyone and posted about the the tests being skewed and not supported by major lyme groups, the NIH or the CDC, so what? It's none of her business, it's the doctors business which lab they want to use. So what if she was concerned about all the money people were spending and the mega doses of antibiotics they were taking, again it's none of her business.
A fight breaks out over there and she deletes the thread, bad language she removes it or edits the post, the most recent spammer appeared to be mocking Christ and she got really fed up. So what, everyone is not a Christian, what difference does that make? So what if she has spent thousands of dollars out of her own pocket to keep NUSPA online and open for everyone, that was her decision, no one else's. How dare she not agree with everyone all the time. Let's boycott, and get rid of NUSPA once and for all. Too many sites on the net now about this disease, we lose NUSPA it's no big deal. Boycott NUSPA, in no way should we support her efforts to find out who the spammer is, this is a great day for all NUSPA haters! Let's go for it!
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Post by ANTHILL on Jul 2, 2005 23:01:07 GMT -5
Let's Not!
Lois runs her board as she sees fit as does the administration on this board
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Post by re boycott nuspa on Jul 3, 2005 5:25:18 GMT -5
dear ant,
I think that last post was good cop/bad cop. Ie, dredging up sympathy for poor, honest Lois working tirelessly and honestly at nuspa.
key word: honest.
We aint that dumb. Transparency is, well...transparent.
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Post by special guest star on Jul 3, 2005 7:08:48 GMT -5
Let me add that I'm not trying to stoke any dort of rivalry, either. I stated the issue I have with that board and that's the end of it as far as I'm concerned.
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Post by guest on Jul 3, 2005 9:41:52 GMT -5
Most of us have issues with that board (which means Lois) which is why we know longer go there.
It is the colembola board and people are brutal their.
who is she anyway? anyone know who she really is?
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Post by jj on Jul 3, 2005 12:31:01 GMT -5
This is getting a bit old. We all have our goals in life and a path we choose to follow. Trying to discredit someone else because they have chosen a different path and have different beliefs doesn't help you reach your own goals or varify your own beliefs. It definately doesn't make you a stronger or better person either. Let lois run the board the way she see's fit. It is her right. That in itself should not prevent you from following your own path unless you are just looking for excuses for your own weekness and incapabiities.
Still hangin JJ
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Post by Administration on Jul 3, 2005 12:37:25 GMT -5
Amen JJ! This is rediculious already. Maybe we need to delete the words Nuspa and Lois from the message boards memory bank so no on can talk about it anymore. Lois provides an email so people can contact her. Why post stuff here if you have a beef with her.. why not just email her and ask her? .. Geez...
Kerry
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Post by Lisa on Jul 3, 2005 16:15:10 GMT -5
Special Guest Star, I just had to jump in and say that I'm sorry you got caught in the middle of this. There are people that get off on "playing" the boards and stirring up trouble. I may not understand Lois' motives, but I do appreciate that there's another board out there for people to come across when they're all alone and searching for answers. Maybe do what I do.... I occasionally will go over there and look to see if there's any new info we haven't heard about or if someone new from Texas has posted. I try not to get too involved. I know it's hard not to when you have info. (like the nematorph sp?) and you want to share it.
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Post by ANTHILL on Jul 3, 2005 22:47:04 GMT -5
Ya' Geez ----LOL"
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Post by mad46 on Jul 4, 2005 13:37:28 GMT -5
Does the bickering and fighting help anyone. Are you all not for the same goal, to find a cure , to get the medical help you need. Why don't use this bickering engery for fighting with the government to help ..
Kerry God love her is just fighting a Cause ..
This board was made to help people ..
lol I am the one with the power..
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Post by Administration on Jul 5, 2005 12:21:00 GMT -5
lol... yes, you are the all powerful one... The main thing I dont understand is that as far as I know, most of us have been treated so badly by Doctors. Others by our insurance companies as well. We all know the medical system just is a failure to all of us. Not one of us should have gone thru what we went thru. The same goes for all those people at Nuspa and Lois herself. None of us would be in this mess if Doctors listened to us in the first place. Not only that, but look at all of us who have contacted the CDC, our State Reps.. Senators, etc. I can go on forever about the people we should all have something against. If we are going to be angry, lets all get on the same page and be angry at the people who are really responsible instead of playing the blame game between the 2 boards. Think about it.. Not one person on either board is responsible for the mess we are in.. our illnesses...inability to work or function or get help. We all have every right to be angry about this.. lets just all make sure we are angry at the right people. The best part of having one board or the other is that sooner or later someone on these boards will find an answer.. which gives us double the chance here. Look how we have some people trying Swartz with results, others are on Lyme treatment with results, and yet others are on different types of parasite treatment with results. The information on both boards gives you all the chance to read, and try different things if you wish to. You have twice the chance of getting rid of this. If there was just one board.. that wouldnt be the case. Running a message board surely isnt easy, and you cant please everyone all of the time. But with the two boards, hey, if you dont like or agree with one, you have the other to use. Thats always a good thing. Regardless of things that happened at Nuspa or people being deleted, I do think we need Nuspa. I think if Lois needs our help in any way, we should give it to her. Nuspa was here long before Lymebusters when we were all lost and needed to find others experiencing the same things we were.. it helped many of us. I think we should do the same for them is all Im saying. Nuspa isnt the enemy here... we all have enough enemies with what we all have been thru. Lets instead unite and target this anger in the right places. On both boards we have been ignored by the medical system, treated like we were crazy. We are all in the same boat and we need to remember that. I will ask again, please no more personal attacks on Nuspa or Lois or anyone else. Lets all try and remain friends and get thru this together. Both boards were started with the intention of helping people and I think they both do that. In the end, thats all that counts.. Thank you.. Kerry
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