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Post by psychologist on Feb 24, 2006 11:16:02 GMT -5
I intend to elicit sufficient interest in mutual cooperation to produce a study which would lend reason and coherence to a body of literature currently devoid of both. Somewhere, perhaps on Oprah people who should behave professionally heard of Delusions of Parasitosis and now have the delusion that they are seeing it in patients. Now if Oprah would just give me eqal time as a psychologist to go on her show and promote my book I am sure this could all be straightened out.
For now I would appreciate feedback on this question: Has anyone noticed a sensation like tiny spider bites anywhere on their back and found the back of their shirt spotted and stained with blood? Please post reply and I will assemble data. In Friendship I salute You. Psychologist
PS: Please remember Sgt Friday, "Just the facts..." anything ancillary can be posted apart from this very specific reply. We are following the sine qua non of the scientific method: observation, prediction and control. For now we simply record our observations, adding nothing. Again, Thank You, Psychologist
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Post by questionhair1 on Feb 24, 2006 12:13:40 GMT -5
I'm sorry that you haven't found what you wanted here. Have you seen these websites? www.dpref.com/and www.lymephotos.com/index.shtmlI checked with one website and they don't know the person at the other website. Please notice the star-shaped item both have found. On the first website, you'll to look deeply and click inside a page to get another series of photos. (I think it was within the Grain of Sand page that you get more Star photos) If your study is about delusions or the labeling of people who have parasites or are infected by something, here is a tangible starting point. Also, there is at the first website a very good history of DOP. Note, one of the authors (Hinkle) of the DOP studies is not a psychologist or medical doctor, but is a veterinary entomologist who discusses DOP and people who "believe" they are infested with parasites. A veterinary entomologist's usual area of expertise is the spread of disease via insect vectors. Example: Studying the transmission and spread of West Nile Virus. What is the "science" behind the DOP articles and studies? The photos of matching star-shaped items found on two different websites are provided by people who don't know each other. There's a starting point for you. Surely there's something definitive for you to work with. There are the DOP studies. And, there are the photos. QH
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Post by guest on Feb 24, 2006 12:29:12 GMT -5
Has anyone noticed a sensation like tiny spider bites anywhere on their back and found the back of their shirt spotted and stained with blood? Yes, same as on my stomach where this first started. I have tiny bite marks that coincide with the blood spots. Either something going in, coming out, or both. When I feel the itch sensation, a wet paper towel always brings a microscopic fiber, usually black (no matter what color shirt I'm wearing). When permethrin or tea tree oil are applied to the area, the sensation stops. Definitely a clue.
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Post by psychologist on Mar 19, 2006 19:50:10 GMT -5
To anyone out there. If you wish to remain anonymous, that's fine. It is extremely painful to discuss involuntary mental hospitalization: especially when you were sick, seeking medical assistance and no threat to anyone, kidnapped and held prisoner, belittled, humiliated and forced to take powerful, potentially harmful drugs. Having acknowledged those facts, if anyone wants the world to know about a psychiatric assault committed upon them, please describe what prompted you to seek medical intervention and what happened. Where possible, quote the words of family, friends, professionals, anyone who stands out in your memory as helpful or hurtful. Please do not attempt to record and post this trauma until you are certain that a sufficient network of support and plan of action for keeeping yourself safe is standing by, readily available. I cannot caution too strongly (as Kerry's Story points out) against the real and imminent danger of attempting to deal with intense trauma all alone, unprepared, without support. It is best to discuss this first with your primary support person or therapist and be sure you are not alone when at risk for reliving such trauma. PSYCHOLOGIST
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Post by ruth on Mar 20, 2006 11:21:44 GMT -5
check out the archives of www.skinparasites.comour story began there and is continued here. it's the cdc that needs to step up now. they have the resources to now identify the bio pathogens.
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Post by junebook on Mar 20, 2006 21:04:14 GMT -5
For now I would appreciate feedback on this question: Has anyone noticed a sensation like tiny spider bites anywhere on their back and found the back of their shirt spotted and stained with blood? Psychologist. * * * Indeed I have, many many times every single day. I have countless white tee shirts and I change them twice, sometimes three times a day. Not only because of the numerous blood specks that appear on my teeshirts, but because small, curved comets of blood also pop up all over the place--including my front. I see corresponding little bite marks on my skin. I once captured a biter. Under the 100X scope the biters it was an undefined cluster of crystal-like fibers, The reason I can't find the other 99% is that they don't reside on the inside of the t-shirt or on the outside. They hide in the very middle of the threads--or in my nose, mouth, ears, and every cavity south. Surely to God there is someone somewhere
Regarding copyrights--as a published author, I learned many years ago that formal copywriting is not necessary. Reputable publishers, editors, and printers have no desire to steal or sell. They suggest we safely copyright manuscripts, articles, and How to books by mailing them to ourselves, and keeping your receipt. One day, God willing, a single pill or shot will make Morgellons (or whatever this horrific thing is) a very rare condition, but
I've been sitting here too long. Better get up before I get stuck in this position. I wish every one of you a good night.
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Post by guest on Mar 25, 2006 21:07:47 GMT -5
"Psychologist", could you please explain under what circumstances a person can be committed against their will to a lockdown mental health facility? Thank You
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Post by guest on Mar 25, 2006 21:28:06 GMT -5
I'm just kidding, of course, and pardon my intrusion. What I'm really interested in knowing, is the motivation for your comment --> "It is extremely painful to discuss involuntary mental hospitalization: especially when you were sick, seeking medical assistance and no threat to anyone, kidnapped and held prisoner, belittled, humiliated and forced to take powerful, potentially harmful drugs. Having acknowledged those facts, if anyone wants the world to know about a psychiatric assault committed upon them, please describe what prompted you to seek medical intervention and what happened." ...because as a "psychologist", you know a person can ONLY be committed if they are considered to be threat to themselves, or others.
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Post by B Ross on Mar 26, 2006 0:28:38 GMT -5
Little spots of blood on tee shirt from back-- Yes, this has happened to me. It happened a couple of times at least. Ususally there were a few black specks on the shirt, too. Would throw the shirt away and put sulfur cream on the back. A related incident was perceiving discomfort on my back and finding little brownish darts sticking in the fabrick of my brand new pajama top. I took the PJ top to the dermatologist appointment. He was interested and dismayed but didn't know what to do about it except prescribe an ointment for my back. (The darts were about 3 to 5 months after onset. The same is true for the blood spots.)
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Post by psychologist on Mar 26, 2006 2:15:54 GMT -5
To Guest: Legally only those expressing suicidal or homicidal ideation, those who pose threat to self, others, property can be hospitalized involuntarily. This terminology "involuntary hospitalization" is a euphemism for assault, kidnap, forced detention and myriad resultant iatrogenic effects stemming from such abuse masquerading as treatment. Case in point: 56 year old grandmother, more than 30 years background in healthcare and mental health profession. Registered psychology assistant since 1987, licensed psychologist since 1993, presents at major university hospital ER with florid symptoms from recent tick bite. Follows CDC guidelines, brings tick in alcohol, other samples which she believes will be helpful in identifying pathogenic agent. Family member speaks privately with PA on duty. Family member has vested interest (usurpation of family business), extensive monetary and other incentives for wanting patient locked up. Patient waits to see infectious disease doctor and finds self surrounded....does not escape lockup. Well, could this really happen? Is this a text book example, a real patient? Is this impossible due to rigid adherence to ethics code? Some stories from those who are expert because it has happened to them may be most elucidating. Psychologist
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Post by psychologist on Mar 26, 2006 3:06:37 GMT -5
Dear B Ross, Thank you so much for taking time to describe what your experience has been with unexplained bleeding. Sores that do not heal, bacterial infection of unknown etiology, other recurrent symptoms, are recorded for patients around this country. Serious illness is written off as self-mutilation, psychotic, DOP, or some such mumbo jumbo with seemingly no effort to do the hard science required to arrive at factual data.
My intention is to individually thank each and every respondent who is taking the time to faithfully report signs and symptoms. You deserve authorship credit. You must be recognized as well as Skytroll and others who are delving into the medical literature to see what signs these symptoms may be pointing us toward.
It is only the patient's responsibility to report his (I'll get politically correct when they get ethically correct) symptoms (subjective). The clinician's responsibility is to LISTEN (his patient is telling him the diagnosis) and follow these symptoms to signs (objective), rule in or rule out, arrive at accurate diagnosis, if not possible then working hypothesis, failing that, as the great Dr. Wagner puts it, "When you don't know, say you don't know." So, B Ross this takes us full circle and we arrive back at any willing provider.
Again I pose the question: Does a suffering patient have the right to seek medical help from you and the others who are actually doing what our diagnostically challenged clinicians are failing to do and charging for no less? For my money I'd sooner walk into a clinic where Sunny, Mari, Ant, Skytroll and the others among you are putting forth their best effort than risk my health and well-being with some of these little caricatures, cardboard cutouts running around in labcoats playing doctor who are now soaking the insurance companies and patients with exorbitant bills.
I stand by this statement for any presenting problem which requires diagnostic/clinical skills. What use is a healthcare provider who can only record diagnoses by history and has no clinical skills? London said something about a willingness to engage in the struggle (necessary but not sufficient, other necessary elements will emerge as function of this struggle) which will in the end suffice to turn this around. What I mean by "this" comes under a much broader category than DOP which, incidentally is not even in the Diagnostic and Statistical Manual of Mental Disorders.
I refer you to Thomas Szasz. It seems it was in his The Manufacture of Madness (which would be required reading for all if it were within my power), 1970 that he eluded to our greatest challenge as what we are pleased to call the human race (how about a little more show of humanity please?). I believe that you, my dear Dr. Ross may relate to this.
He said something like the greatest challenge of our time is to raise a generation of children who have no need or wish to scapegoat anyone. I am paraphrasing, going way past far back in my memory bank. I trust that one of you careful clinicians out there will find and post Szasz' eloquent statement exactly as he said it. In the struggle. Psychologist
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Post by guest Sandra on Mar 26, 2006 10:40:47 GMT -5
Hello, Yes I too have many tiny blood specs where the bio pathegenic nematode goes in and later when it comes out for air. First the sting then the burrowing bites. Blood specs to large blood spots and not just on my back, my tummy was the first bite mark. Thank you for your research , but unless you are a qualified blood Dr who can look at this under a microscope , I feel you are not the person to aid any help to us who are suffering. Your comments seem genuious but as for as I know it only reveals itself in our blood and spitum and urine comes out of us and returns inward ,lives in our moisture, etc. I don't think our minds are affected , to require this kind of study. Sorry I know I speak the truth and my mind . I am a 58 year old female who has had this for 11 years and don't get the gist of your study, please explain. Thanks guest Sandra
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Post by Administration on Mar 31, 2006 11:58:48 GMT -5
Yes...to the blood spots. Right in the very beginning when the biting first began.. Couldnt find any kind of bug.. but every so often I would find a tiny blood mark under where I slept... along with the salt like granules. My first thought was actually bed bugs.. thats when I first heard they were making a comeback and I ran with that idea. However, exterminators were here and could find nothing. As a matter of fact.. I had them here at least twice a week looking for the culprit. This went on for maybe 4 to 6 weeks? I made them spray with the strongest stuff which they do use for bed bugs.. Still, nothing helped... However.. you mention spiders. After months on the Lyme abx when the Morgellon symptoms stopped for me.. I did see what looked like a clear spider.. I mean spider body, very tiny, but see thru legs and body, come from the tub faucet.. Again.. this was a long time after my symptoms were gone... so I have no idea of its relevant. I know one thing.. that spider thing I saw... it was no kind of tick. Hope that helps you... Kerry
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Post by Patti on Mar 31, 2006 12:17:49 GMT -5
Kerry, I saw something just like that only it was running down my left arm, and it happened again a couple days later so there were at least two of them. It was moving so fast I couldn't get the first one and the second one I slapped, which pretty much squished all the "evidence". An entomologist friend of mine said it appeared to be a spider in some ways, but then again........
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Post by jwf on Mar 31, 2006 14:06:13 GMT -5
Hi folks, I did notice translucent spiders (difficult to see) and small red bite marks around my neck, back when I had the Morgellon symptoms. They don't seem to like the Weitech ultrasonic pest repeller that I plugged in at the head of the bed. Bought it at Lowe's Hardware for about $15.00. Haven't seen any spiders since.
Blue Skies.............John
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Post by to jwf on Mar 31, 2006 15:53:55 GMT -5
Dear John,
Just curious...did you also have the white floaters in your environment? Guest
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Post by Patti on Mar 31, 2006 18:07:22 GMT -5
John, I was given two of the Sunbeam repellers and I've noticed that they really appear to be working also. I have to say, though, that in Googling the model number (SB101) just now I see that you can buy 3 for a little over $12......seems that would be a bit cheap but I sure think they work. To the previous guest, I can tell you that I still have the white floaties. My guess is they are a number of things.....tiny specks of dead skin from the "fibers" exiting our body; tiny pieces of clothing from the same "fibers" moving through it (and making minuscule holes which get dispersed as we move around); perhaps even tinier pieces of the "gel-like" substance that hardens as the fibers punch through it to exit our skin; and then the mostly microscopic "fibers" themselves. Of course I'm just guessing from personal observations but these have been ongoing observations for many years now. You will notice that when wiping up this "white dust" with a damp cloth, it appears to be more like dryer lint than regular dust....that is why I'm sure that bits and pieces of our clothing are involved, and it does make sense. As these things move in and out of what we're wearing they have to be making holes in it, which is why we notice so many of "our" garments wear out faster.
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Post by psychologist on Apr 3, 2006 18:43:27 GMT -5
My original purpose in attempting a study was to look at common iatrogenic effects and other variables which emerge in collection of data involving attempts to obtain competent medical diagnosis and treatment. Prior to Sunny's compassionate effort to help me with a debilitating health problem I had posted that rather serious health problems precluded my collection and assembling of data at this time. Because I believe that threads of commonality run through the experiences of all who come to the Lymebusters and related websites, I would like to postulate the following, however improbable, simply as a hypothetical construct and would be very interested in any feedback which might be generated.
The patient is infected with a parasite which manifests as a cross between a guinea worm and a smaller nematode or trematode, whipworm, fluke or other flagella. Something emerges from lesions which may look like a long clumpish string of white dental floss or a short black pencil led. All efforts to obtain medical workup appear futile. Is this impossible, possible? Has anyone a personal experience to support or refute such theory of infestation and report of diagnosis/treatment seeking? Any and all weighing in with facts or opinion is most welcome. Thanks, psychologist
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Post by To jwf from Guest on Apr 7, 2006 3:47:53 GMT -5
John,
Just curious...did you also have the white floaters in your environment? Guest
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Post by jwf on Apr 7, 2006 22:41:16 GMT -5
No, no floaters. Could have been my imagination, but dust seemed to build up very fast. Certain rooms got itchy very fast soon after vacuum- ing, but the menthol dispersed with a diffuser always calmed things down- which led us to believe that whatever was bothering us had at least some resemblance to a fungus.
Blue Skies............John
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