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Post by guest on Oct 20, 2005 21:17:07 GMT -5
Sue, Have you tried Dr. Swartz yet? Email me at asrug7777@ cs.com if you want to contact him.
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Post by to Sue L on Oct 20, 2005 21:24:08 GMT -5
Sue,
in Southwest Florida we have "All Childrens Hospital" in St. Petersburg they have an ER and worldclass hospital.
What state are you in?
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Post by Orion*** on Oct 21, 2005 6:18:58 GMT -5
OMG!I would be in the psyc ward if that happened to me. There just HAS to be a solution. Jody asked about cholesterol, which reminded me of the post regarding the "ice cream diet".Has anyone purchased that person's suggestions and tried the diet he recommended? I'd really like to know. God bless you and I hope someone finds the cure soon! GRSue _++ I have some good info on cholesterol and what lyme does to it--why cholesterol is so vital to your body -indocrin and nervous system--cholesterol IS a good thing so dont try to get rid of it. BUT, I imphasize But--It strongly depends on what kind of cholesterol you have. It is the ratio of HDL & LDL that is important and the way to get that balance is to eat the correct fats--FAT is cood for you--you get sick without it The good fats are --Flaxseed oil-coconut oil-codliver oil-fish oil by Carlsons only-walcool(LOL W_A_L_N_U_T_S)--sunflower-vergin olive oil. The regular cooking oils are all processed and change molecular structor when heated--canola oil is very bad for you. All hydroginated oils are death in disguise. "Margeine"--Butter is 1000 times better than its substatute. Dont let monsanto fool you , A gread deseption has taken place in America. I say--eat all the good oils that you can hold.Eat two table spoons full of unprocessed coconut oil a day. It melts in your mouth and does not taste greasy at all. Ice cream is ok if it is made with butter fat cream..It is hard to find good ice cream any more , (read the labels.)--unless you ate an ice cream cone in the 30s you ain't had ice cream. Like if you never have had a raised dognut out of the 30s 40s --all cooked in lard then you have missed a delight -the same goes for potatoe chips---These suckers have runed my goodies--just as they did cokacola when they switched from sugar to corn sugar or syrupe. Corn oil and corn sweeteners are all monsanto and conagra---now you see why your being slowly poisoned..insult to ingery is GM crops. The food we now eat has been monkeyed with so much that it is no longer fit to consume. Also the reason that we are an obese nation--why diabetes is rampant as is thyroid problems--I almost said disease , its a symptom. Insulin resistence diabetes is also a symptom of a lipid problem with your cell membranes--this is where EFAs come into play. Fast food places are run by big conglomerates that feed you their bad oils and sugars..Mac's--Tacobenders--etc. Wise up America or die of desiesas caused by bad diets. I'll be back with the cholesterol article.so be sure to visit this thread again. Now what does this have to do with morge? Proper food equals a good immune system--you won't kick it with out it. Think about it.
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Post by Orion*** on Oct 21, 2005 6:23:56 GMT -5
CHOLESTEROL::: :::Bb consumes your cholesterol This avid consumption of cholesterol may also contribute to the endocrine dysfunction seen in ALS because it decreases the amount of cholesterol available to produce estrogen, testosterone, progesterone, hydrocortisone, and aldosterone. Patients with ALS, fibromyalgia, and chronic fatigue syndrome often have hypothalamic dysfunction which may result in adrenal insufficiency, hypothyroidism, and gonadal failure. -=-=-=-snip=-= These neurotoxins probably act at specific sites such as neuro-transmitters-pre and post synaptic membranes, altering dopamine, serotonin, GABA, and acetylcholine molecules, thereby blocking surface membrane receptors of various kinds which would interfere with the proper action of enzymes, coenzymes and hormones. This is only one of the damaging mechanisms of action of the neurotoxins =-=-=-snip=-=-=-=
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Post by Orion*** on Oct 21, 2005 7:03:07 GMT -5
hey Everyone, Thanks much. We got a MRI two days ago on Josh's brain and in the space where we should only have spinal fluid is with out a doubt a WORM. Some please tell me who to seen this too. I'm sure the dr will make up some off the wall DOP reason why it's there. They said the tumor has not grown this month but that chemo has not made it shrink. My child is sick and my heart tells me he did this chemo. in the first place because he knows my heart will completely break and crumble if he has to leave me. I'm 100% sure that this tumor is caused by fibers, yes 100%. Even his poor nose has started to twist on his face. The ENT had a MRI done and said he has a deviated septum. She told me that he was born with it (NO) or that he'd had a injury to his nose (NO). I told her look at it you can clearly see two worms in the MRI. She said I shouldn't mix my problems with his (DOP) I got a copy of that MRI too. I'm sick to death of begging these people to have an open mind. The dr. at NIH said yes some cancers are caused by parasites, his is not. BULLLLLLLLLLLLLLLLLLLLLLL. My child started having seizures at age 6 and migraines at age 8 then on to brain cancer at age 17. I know it's from this horror disease. I' sure I passed this on to him when pregnant. I'm so mad I want to scream and bit something so hard till it bleeds, like a few dr's who are not men of medicine but money makers. Someone please tell me who I can take these MRI's to. I got Helga Clark's book for cancer, the card saying it was in came yesterday. My husband is picking it up today. I told the dr last week that I'm getting him off this NON working chemo. and doing whatever she (Helga) says to do. His reply in front of my child is please don't do that you could kill him. Just two days later he tells my husband on the phone that he thinks Josh has three weeks or less left to live. Someone please tell me who I can call. Love and peace to all of you and thank you from the bottom of my heart for your prayers ................................Sue P.S. I've tried many times to register and I never can get it done, can anyone help, Patti, Kerry, thanks ====Worms in the brain--MRI--chemo for it like in cancer or is it an antiparasitic? DOP? DR? where do you live? I sure don't need medical care there. Get him to a childerns hospital--lots of them around--your on the internet and you can't find out where to go or the resources available to you? Something wrong here--it don't click with me. The boy is as sick as you say then whats the delay? Do you live in New Orlines LA>? I don't mean to be unkind but the boy needs all the help he can get. It don't seem to be there for him--Why not? Sorry--things like this upset me. Where ignorance prevails, bring knowledge in to fill the void. Now I wonder who said that? Oh I know. it was me.LOL
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Post by SueL on Oct 21, 2005 10:31:20 GMT -5
Tis OK Orion, love the way you speak and to the point. Josh got stage 2 brain cancer in 1999, surgery and radiation worked wonderful. Dr's told us Oligo's come back, had almost 5 years of all clear. This past March it came back with a furry at stage 4 Blastoma. We have done every good hospital and tried 4 chemo protocols that have not stopped the growth. I've begged dr's to treat it as a parasite at this point I feel it's all we have left. The chemo just breaks down his poor body and gives him no immune system to fight this hell. dr's tell me that I'm DOP and so my kid can't have this horror I tell them about. He has had the very best they can offer. We live in Maryland and have even tried NIH's new protocol for Blastoma. The dr told my husband that we just need to except that he is dying now. Can't and won't do that...
P.S. I wish I had a better understanding of you post about Cholesterol. Mine has gone up and down for years. But my interest is this. Ten years ago I got a very big goiter on my thyroid. Had very bad Hypothyroidism and was put on Synthroid. I stopped taking the Synthroid this year because the Goiter just disappeared as many lumps in my body previously diagnosed a scar tissue. My new primary care Dr. is very stumped by all this. He tells me over and over that I'm his "most bazaar case of a life time" and he tries so hard to figure this fiber crap out. I had to go out of state and find a small country Doctor willing to look at this stuff with my digi blue. He talks with Swartz and has had me on the hold at bay """"""only""""" Septra/ Avelox and he also talks with a nurse out in California who knows about Morgellons. I'm going to print out your post and take it to him. Thank everyone, love and good health...Sue
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Post by SueL on Oct 21, 2005 10:46:19 GMT -5
Everyone thanks for all the help. We've been to NIH, Children's, Washington Hospital Center and no one at this point will offer any hope. I'm angry that they won't treat this cancer as a parasite at this point. This is why I got in Helga Clark's book yesterday and made order for all the stuff needed for her protocol. I'm sure I'll be told yet again that I'm DOP when we see the dr. Tues. I have this MRI in my hands and wonder what answer he will try to give me for this very real worm in my child's head. MRI can't be DOP can they? The surgeon, back in March for some reason did believe me or pretended too and he put Josh on the Septra/Avelox that I was on at the time. Oncologist said we had to get him off it to do the chemo. Thanks everyone for all the help.
Just fighting here to try anything that might work. Please pray that Josh will get the energy to make this appt. on Tues. It will most likely be the call of his home nurse. If he is to weak, I'll go but may end up in jail as the dr's and I buck heads so badly.
Love and good health..Sue
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Post by southerndrawl on Oct 21, 2005 12:43:09 GMT -5
ORION - you are so right - you HAVE to eat good oils and fats - your body is like a car, it needs oil to run on. if you put crap in, how can you expect it to run as an efficient machine?
the closest thing i can relate this to (when trying to explain it to my family) is SHOP THE PERIMETER of the grocery store, just think about your buggy/cart as if you were living in the 1900's - what is available that you haven't grown yourself? NOTHING - so buy the things that you would have had on your own damn farm.
veggies, meats, oils, nuts, fruits. things that can go bad were made into BOXED and packaged items so that people could have CONVENIENCE. they have traded TIME for their HEALTH
more later, someone at the door.
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Post by jody on Oct 21, 2005 19:19:39 GMT -5
sue have you been to fairfax hospital in fairfax va?they have some good drs.just trying to help you.i will pray for you and your baby josh.just don't let him see this,my son is 30.now but i still see him as my baby ;D
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Fighorfly
Full Member
One Small Light riding a Big Dark Horse
Posts: 228
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Post by Fighorfly on Oct 24, 2005 1:46:15 GMT -5
Dearest Sue and Flutterby,
Of all I am routing for you two and yours with my heart.
Protein, loves it, loves to break it down it seems.. jumps on to my chops while in the pan... so I fry em.
Batsrds.
Septum... last growth spot?? Maybe some stemcell-likes?? Hmm... Joints... we make red blood cells in our marrow??, if I remember Bio 101, would the cells 'exit the bone' at its end (in the joint)?.. or the end of the bone is softer there and they fish for incomplete stem-ish red blood cells using that portal?.. or red blood cells are merely convenient packets... no, blood supply is easier than bone route....... newest or incomplete cells preferred mebbe.
Sorry I ramble... again.
To reiterate,
Sue and Flutter,
If for anyone, for you.
- Fly
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Post by ebgbglenda on Oct 24, 2005 10:09:30 GMT -5
Isn't this amazing? This crap is to the point u never know what to expect. I wanted all to know I am a smoker and have experienced the same thing. Also, I noticed that when I feel more contagious the ashes go everywhere and start growing before my eyes. Skin melting into counters and floors etc. I fear so much for my six yr old and my husband, my son is in tune w/ his body and knows if he sees someone else w/ this at store or where ever. My husband is still clueless as to everyone getting sick around us etc. his own symptoms. He has agreed w/ the diagnose of Morg. but is in denial. Everyone handles this different. To all of you we can pray together and stay together until an answer is found. I love the brave people I have gotten to know here.
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Post by bannanny on Oct 24, 2005 22:11:11 GMT -5
Flutterby, I have the same problems as you, and no one I know understands (like I do??) how this crap gets into canned stuff, especially my dog food....but it does. I've been leaving my cigs in a ziploc in the freezer, but guess what? Yep, you got it, the a- holes are even in the freezer and, of course, the frig. I've lost 20 lbs. since this started and I'm sure to lose more now because of the contamination in my food and even dishes! I don't even smoke much anymore. And it's a real big problem with paper towels, etc. So, I know the zones you speak of that are so beyond the twilight ones!
And Sue, my prayers are there with you and your son. Have you tried just e-mailing as many professionals you can find on the web for some kind of help? Really......Mayo Clinic, St. Joseph's Children's Hospital, Professors in parasitology, etc? Why don't you try giving it a shot, and if there is any way I can help you with these thousands of e-mails that would be possible to try, please let me know if you want to do something like this, ok? You can e-mail me with any info. I would need and we'll get it out there!! My e-mail is goodgiegrl@aol.com. Jesus will keep you strong....just let Him do His job for you! Love to all of ya's ~~ bannanny
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Fighorfly
Full Member
One Small Light riding a Big Dark Horse
Posts: 228
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Post by Fighorfly on Oct 25, 2005 8:14:35 GMT -5
Depends on how long the cans are here in the house for me. I huck the ones that smell of oxidized can.
Oxidation is usually exothermic (?) and produces a wee bit o nummy energy.... well nummy for some.... seems.
Did you know that a neutron can pass unhindered all the way through the earth, as 'matter' is not as solid as it may feel or look.
(off topic cause I ramble)
Cliff mentioned (and I have seen much evidence myself) of it 'saddling' up to a hair and then. after time, taking over.. replacing. On the molecular level, if it lay along an amino acid, or a poly peptide or protien.. then 'remembered' its shape, or 'got between' interactive (ionic?) particles, etc. it could exploit biological activity and/or steal the energy transfer meant for that specific function.
Ima rambler,
Because I can,
- Fly.
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Post by Southern Drawl on Oct 25, 2005 12:09:27 GMT -5
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Post by flutterby on May 23, 2006 15:49:47 GMT -5
Hello My Friends, Has this ever happened to any of you? This is an eerie & frightening experience I had on Friday. I experienced my most severe outbreak since my onset of Morgellons. My entire body, every pore, head to toe was either weeping, producing hairs that just would not stop, worms emerging from my lips, my knees swollen, purple & showing white bumps on the skin surface. Some weeping fluid crystalized on my skin & seemed similar to the white granules of the sand-like substance. Hair even grew from my nipple. That was enough to deal with & remain sane. But when I went to grab a snack, I was blown away. I took from the fridge a jar of peanut butter & jar of jelly, grabbed a paper plate & scooped out a spoon of jelly, then a spoon of peanut butter. In front of my eyes, worms began to slither out of the jelly & peanut butter on the paper plate. I threw both jars out & my unappetizing wormy snack. I took out a brand new unopened & sealed peanut butter & new vacuum sealed glass jar of jelly. I opened the jelly, and before I scooped any out I just observed the new, untouched jar of jelly. Soon, little bubbles began to form on the top of the jelly & then came the worms. I did the same with the peanut butter, and again, worms began to emerge from the untouched new jar. I trashed another 2 jars of sealed, untouched food. I merely touched the outside of the jars. How could worms contaminate this food? I gave up on the peanut butter and jelly and decided to open a "can" of soup. I pulled off the aluminum lid from the can of soup & low and behold, the top surface was spewing worms. By then I lost my appetite & was afraid to touch anything. I have had worms start to grow from my dinner plate before, however, my mouth is just full of eggs & I believe with my first couple of bites, I probably picked up some eggs on my eating utensils & unknowingly, using that same utensil, planted the eggs right in my dinner. In minutes, worms began to grow from my the food on my plate. That I could understand, cross contamination. But.............the unopened, untouched jars, I cannot explain............. I asked my husband to please drive down the street to pick up some "LIQUID NUTRITION" Boost or Ensure, something I could gulp. I could not eat solid food. SOMETHING ELSE HAPPENED, MORE BIZARE THAN WORMS IN MY FOOD .................................................... I went to have a cigarette and I could not believe my eyes. I lit the cigarette and guess what appeared, worms. As the cigarette burned, the cigarette paper began to split in several places. To my amazment, charred worms were falling from the ash. When I tapped off the ash, exposing the red hot burning center of the cig, I looked straight into the end of the red burning tobacco & I could see the worms emerging from the hot center. The tip of the cig was full. Right down to the filter, worms. Are you ready for this? "THEY ROSE FROM THE ASHES" I grabbed my magnifying glass & examined the ashes to see the worms were not finished with their dirty work yet. I observed a clump of ash with an emerging yellow=orange sac, from which tiny black worms started to poke through. I gathered up the ashes, placed them in a glass container & in a short time, from the ash at the bottom of the glass container, black little things began to creep up the glass to the top & there was life at the bottom of the container. THEY DON'T DIE. I am hypoglycemic & changing to diabetic so when I checked my blood sugar I squeezed out a drop of blood & placed it inside the glass & kept the blood specimen to the top. A charred clump made it's way to the blood drop & appeared to feed on the blood. The blood stain became transparant with small round dots. A continuous red blood outlne of the specimen remained. I fear, if they can continue to live after being burned at the stake, so to speak, how can we ever stop them? I am just a baffled little flutterby. God Bless us All and Please Help Us! Sincerely, flutterby
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Post by flutterby on May 23, 2006 15:51:10 GMT -5
Hello My Friends, Has this ever happened to any of you? This is an eerie & frightening experience I had on Friday. I experienced my most severe outbreak since my onset of Morgellons. My entire body, every pore, head to toe was either weeping, producing hairs that just would not stop, worms emerging from my lips, my knees swollen, purple & showing white bumps on the skin surface. Some weeping fluid crystalized on my skin & seemed similar to the white granules of the sand-like substance. Hair even grew from my nipple. That was enough to deal with & remain sane. But when I went to grab a snack, I was blown away. I took from the fridge a jar of peanut butter & jar of jelly, grabbed a paper plate & scooped out a spoon of jelly, then a spoon of peanut butter. In front of my eyes, worms began to slither out of the jelly & peanut butter on the paper plate. I threw both jars out & my unappetizing wormy snack. I took out a brand new unopened & sealed peanut butter & new vacuum sealed glass jar of jelly. I opened the jelly, and before I scooped any out I just observed the new, untouched jar of jelly. Soon, little bubbles began to form on the top of the jelly & then came the worms. I did the same with the peanut butter, and again, worms began to emerge from the untouched new jar. I trashed another 2 jars of sealed, untouched food. I merely touched the outside of the jars. How could worms contaminate this food? I gave up on the peanut butter and jelly and decided to open a "can" of soup. I pulled off the aluminum lid from the can of soup & low and behold, the top surface was spewing worms. By then I lost my appetite & was afraid to touch anything. I have had worms start to grow from my dinner plate before, however, my mouth is just full of eggs & I believe with my first couple of bites, I probably picked up some eggs on my eating utensils & unknowingly, using that same utensil, planted the eggs right in my dinner. In minutes, worms began to grow from my the food on my plate. That I could understand, cross contamination. But.............the unopened, untouched jars, I cannot explain............. I asked my husband to please drive down the street to pick up some "LIQUID NUTRITION" Boost or Ensure, something I could gulp. I could not eat solid food. SOMETHING ELSE HAPPENED, MORE BIZARE THAN WORMS IN MY FOOD .................................................... I went to have a cigarette and I could not believe my eyes. I lit the cigarette and guess what appeared, worms. As the cigarette burned, the cigarette paper began to split in several places. To my amazment, charred worms were falling from the ash. When I tapped off the ash, exposing the red hot burning center of the cig, I looked straight into the end of the red burning tobacco & I could see the worms emerging from the hot center. The tip of the cig was full. Right down to the filter, worms. Are you ready for this? "THEY ROSE FROM THE ASHES" I grabbed my magnifying glass & examined the ashes to see the worms were not finished with their dirty work yet. I observed a clump of ash with an emerging yellow=orange sac, from which tiny black worms started to poke through. I gathered up the ashes, placed them in a glass container & in a short time, from the ash at the bottom of the glass container, black little things began to creep up the glass to the top & there was life at the bottom of the container. THEY DON'T DIE. I am hypoglycemic & changing to diabetic so when I checked my blood sugar I squeezed out a drop of blood & placed it inside the glass & kept the blood specimen to the top. A charred clump made it's way to the blood drop & appeared to feed on the blood. The blood stain became transparant with small round dots. A continuous red blood outlne of the specimen remained. I fear, if they can continue to live after being burned at the stake, so to speak, how can we ever stop them? I am just a baffled little flutterby. God Bless us All and Please Help Us! Sincerely, flutterby
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Post by flutterby on May 23, 2006 15:59:49 GMT -5
HELLO MY FRIENDS, SORRY ABOUT THE THREAD TRANSFER, I WAS TRYING TO ATTACH MY POST "EVERYTHING I TOUCHED TURNED TO WORMS," SORRY, THE ENTIRE THREAD CAME THROUGH.
ANYWAY, I ACTUALLY WANTED TO RESPOND TO THE THREAD TOPIC,"CONTAMINATED FOOD." AS YOU CAN SEE, I HAD THE SAME EXPERIENCE.
IT STILL HAPPENS TO ME. SOMETIMES, I'M JUST SO TURNED OFF TO FOOD, I CANNOT EVEN LOOK AT IT.
I ALWAYS KEEP SOME NUTRITIONAL DRINKS ON HAND. ENSURE OR BOOST, SOMETHING I CAN GULP DOWN FAST, DURING THE TIMES I CANNOT EAT FOOD.
IT'S VERY DIFFICULT TO DEAL WITH. SOMETIMES I FEEL SO HUNGRY, SURVEY THE FRIDGE AND DON'T WANT TO TOUCH ANYTHING. I'LL GRAB A DRINK.
I HAVE A MAJOR POPULATION OF LARVAE AND EGGS GALORE IN MY MOUTH. I THINK, IN MY CASE, ONCE I DIP MY FORK INTO MY FOOD AND EAT IT, THE FORK WHILE IN MY MOUTH, PICKS UP EGGS. THEN WHEN I TOUCH THE FOOD ON MY PLATE WITH THE SAME FORK, PERHAPS EGGS ARE LEFT ON THE FOOD AND THAT'S WHEN WORMS BEGIN TO EMERGE FROM THE FOOD.
IT'S DISGUSTING
GOD BLESS, LOVE YOU GUYS, FLUTTERBY
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Post by VG on May 23, 2006 18:36:59 GMT -5
Sounds like this bug loves MEAT - typical p@rasite tastes.
Wouldn't going vegetarian make more sense, then?
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Post by Lazy Carrie on May 23, 2006 19:23:35 GMT -5
Sorry Flutterby, sorry you are having that experience.
They live off everything...it doesn't matter.
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Post by ebgbgms on May 23, 2006 23:39:59 GMT -5
Flutterby, I too am sorry to hear U are having to deal with this crap. I have these symptoms too and it was very hard to deal. We all love U you know that, I am glad U are drinking the boost, we have to get our nutrition and sleep to make it. Much Love, ebgb To any non believers out there this is very real .These things do happen, no one would rather believe it didn't then us on this board. But, we have had to learn and try to understand as much as we can, because it is real
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