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Post by chaosonline on Sept 27, 2009 5:22:42 GMT -5
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Post by chaosonline on Jun 17, 2009 19:41:20 GMT -5
Gwen,
I had a MRI done at University of Michigan when I became seriously ill with Lyme Disease . Mine also showed lesions in the white matter of the brian. The lesions were explained to be possible Lyme Disease. I have the written results but am trying to remember if I have the original CD. Maybe I could order it.
Give me some direction and I'll try to help.
Karen
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Post by chaosonline on May 26, 2009 16:38:13 GMT -5
Bannanny, I was reading about the terrible gel problems you are having. I have only had a few experiences wherein I was astonished by a gel-like substance that raised right up through the pores of the tops of my hands. It was a fairly thick amber colored gel. Anyhow I was wondering if you have tried one of those vibrating foot baths. I remember the article I posted about bio-films said that sound (sonication) could break down the bio-film to some degree. Sound & vibrations are the same thing right??? Well it might be worth a try especially since it would not be a harsh procedure for what must be already tender skin. Maybe also add some Hibiclens or as Toni says milk & yogurt to the water. You could have a reaction (herx) if this works at all. I think the article also said that about 50% of each individual bio-film's bacteria or spirochetes are released when sonication is used. It might also be a good idea to take something to kill any bacteria that might be released. I alternate between Doxy and grape seed extract but I'm sure you probably have something in your morg-med stash that will handle that. Here's a quote: "Sonication of the biofilm will disrupt the integrity of the biofilm and release the micro-organisms, providing an opportunity for culture and treatment by conventional methods." Here's the thread: lymebusters.proboards.com/index.cgi?action=display&board=rash&thread=12235&page=1Karen
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Post by chaosonline on May 11, 2009 8:28:28 GMT -5
I have been suffering terribly with chest pain & pressure and abdominal pain for over a month now. Low & behold I have found out why simple aspirin seems to give me relief. I belong to The Michigan Lyme Support group and today read a few posts about hypercoagulation. Most were about head & muscle pain but a few mentioned chest, abdominal, irritable bowel and digestive issues. Anyhow I googled it and to my surprise found out that doctors say 90% of Lyme patients have or go on to develop this condition! I bet this fits more than a few here so here are some links: tinyurl.com/osxfk9tinyurl.com/ogly7rwww.anapsid.org/cnd/diffdx/hypercoagulation.htmlaltmedicine.about.com/cs/herbsvitaminsa1/a/Bromelain.htmKaren
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Post by chaosonline on May 11, 2009 8:16:21 GMT -5
Barb,
Have you tried Artemisinin? My Lyme/Heart doctor started me on it and I had an initial herx for about a week. The first 24 hours was the worst. The brand he recommended was made by the Allergy Research Group.
You might want to do a search on the product as it has some interesting background. It is widely used for malaria.
Karen
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Post by chaosonline on Apr 30, 2009 17:40:08 GMT -5
All I can say is that of this thing they are calling swine flu involves extreme stomach & chest pain then I have and have had it for a while. One daughter and one granddaughter also have it. All 3 of us have fevers and joint pain. I have had the flu years ago but don't remember this odd stomach & chestpain. Within an hour of eating anything, even chicken soup, the pain is unreal.
Karen
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Post by chaosonline on Apr 29, 2009 23:10:33 GMT -5
Thanks for the prayers & good info. My temp is staying at about the 100 mark, same for my granddaughter. I am so glad that they closed the entire public school system here. Just announced at 10 PM and will be closed at least until Monday. Found out my Granddaughter sits next to one of the suspect cases.
On the news they showed a few local businesses like gas stations & party stores and they are wearing masks & gloves! Yikes.
I have been having fairly severe Lyme symptoms and some weird stomach-gut pain for about 3 or 4 weeks now. I am cycling between being on & off of my Lyme meds because the herxing is at it's worst ever. As of Tuesday afternoon I noticed the fever and today I am having a few new symptoms like chills, weakness and diarrhea. Lots of joint pain but that is also a Lyme symptom. I slept most of the late afternoon and early evening which is unusual. I was only able to open a few cans of chicken soup for super but since we are all sick everyone was OK with that. I'll keep on top of this.
Bannanny, yeah that is a real low temp but is now my normal. It is common for Lyme to cause a low body temp but I never thought about it being life threatening. It's been at 96.4 for about 3 years.
....Oh my now I see what I did, I just reread my post! I typed that my normal temp is 106.4 when I meant to say my normal temp is 96.4. Sorry...wow that would be life threatening...I think I would have to have died long ago. I bet that temp would kill the little Blastard Morgs.
At least I'm getting a chuckle out of my own stupidity.
Karen
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Post by chaosonline on Apr 29, 2009 15:19:50 GMT -5
I'm still kickin....but yes my Grandkids' school has a case of possible swine flu after high school kids returned from a Cancun vacation. Five of my Grandkids attend these schools. Two are in the High School, one in middle school and one in elementary. One lives with me and the other four are here every day anyhow! One of the older girls stayed here last night and she was feeling ill with a fever and rather severe stomach pain so I let her stay home today...in the meantime I am on day 2 of a 100 degree fever...imagine that...I haven't had a fever or been ill, other than Lyme related, since I was bit by a tick 3 years ago...in fact my normal temp has been 106.4 since the Lyme Disease.
I just found out at noon today about the local school possibly having a case of the swine flu but yesterday one of my older Grandkids said over 40 kids had called in sick and I knew several had recently returned from Cancun so the thought did cross my mind.
I think this might be interesting as long as I'm not too sick to be interested! I am worried about my husband because he became quite ill this morning. Time alone will tell if this is the swine flu.
I think if I remember right fever can cause massive spirochete die-off. Wonder if it does the same to any element of Morgellons? I'll try to keep you posted.
Karen
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Post by chaosonline on Apr 27, 2009 8:21:13 GMT -5
Most definitely Lyme.
If left untreated this can progress to where you can't walk due to tremors. That's what happened to me. The vibrating (some call electrical sensations) started in my arms, sometimes my eyes would feel like they were shaking, I had it initially in my knees. Also an odd electrical feeling circling my knee caps and in my stomach. Even after almost 2 years of treatment I still get the stomach thing every time I start to fall asleep!
I thought I was getting Parkinson's as it runs in my family. But when I awoke one morning and couldn't walk due to severe tremors I was really frightened and went to the hospital. It still took many months for the Lyme diagnosis. Doxycycline put me on my feet again, with severe knee pain mind you, but still I was able to walk.
Lyme Disease left untreated can cause severe shaking of the eyes also know as nystagmus. In it's worst stages this can be seen by others.
I have heard this sensation described in a number of ways: electrical, buzzing, tremors, shaking, vibrating. It's just that folks use different words but no mistake about it this is Lyme related.
Later I will try to post some links about the reason for this Lyme symptom.
Karen
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Post by chaosonline on Apr 25, 2009 20:22:23 GMT -5
perplexed,
The electrical feelings are Lyme disease related for sure. These were one of my first symptoms. The jabbing is also Lyme related. Have either of you ever been bitten by a tick? Tested for Lyme?
Your "eruptions" sound similar to mine. I have had a few deep lesions but for the most part they are pimply raised spots, usually three or more in a small area. These do itch a bit especially when first forming. I am covered with the tiny red spots, especially my chest and feet. I recall reading that the tiny red spots are parasite related.
The lines you speak of sound like what I would call fibers....so my opinion...for what it means...is yes you probably both have Morgellons, and Lyme Disease.
Welcome to you both. Sorry for the circumstances and I wish I could have answered your questions differently!
Karen
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Post by chaosonline on Apr 25, 2009 16:53:15 GMT -5
Yeah Bannanny I seem to remember you mentioning that surgery. I wonder if that is why you have such a problem with the goo.
I have had a few surgeries, one unusual and very involved surgery about 30 years ago for a 9" cervical rib removal. This left me with such bad internal and skin scarring that when my thyroid was removed (maybe 8 months after my tick bite but before I realized I had Lyme) the surgeon had a devil of a time due her having to remove the scarred tissue to get my thyroid. This additional surgery caused the procedure to almost triple in duration.
I am curious how many others here have severe scarring or any kind of medical implants. I am thinking now about the problem ctbarb had with her dental implant posts. I wonder if biofilm could have anything to do with that.
I do think about my chip-like hexagon but lately I really try to separate it from Morgellons. It is so unusual that I am fearful it will side-rail the Morgellons research. But in answer to your question yes I have had many surgeries during which it could have been implanted. The thought has crossed my mind.
Karen
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Post by chaosonline on Apr 25, 2009 16:36:21 GMT -5
Thanks so much Kammy for taking the time to respond to my post. I'm sure the info you posted will help me get a grasp of this thread.
Karen
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Post by chaosonline on Apr 25, 2009 16:19:22 GMT -5
Kammy,
I have been trying to understand your theories but am struggling with serious brain fog lately. Could you summarize, maybe in a list, what you have found, so far, that is implicated in Morgellons?
Thanks Tons, Karen
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Post by chaosonline on Apr 25, 2009 15:33:09 GMT -5
As much as I hate to I'm going to forge ahead and post this picture and corresponding link. The chaeteognath found in the Bering Sea (a few millimeters in size) From here (scroll almost to the bottom of the page): www.pmel.noaa.gov/foci/ice07/FOCI_Ice2007_log.html"The scariest looking organism - so far - is the chaetognath, also known as the arrow worm (see photo). Even though they are invertebrates, chaeteognaths are not worms at all. They have a distinct head, trunk and tail. They are rather peculiar, with all species being hermaphroditic and carrying both eggs and sperm. Thus, they belong to a phylum of their own (chaetognatha). Chaetognaths are a major component of the plankton world-wide. Most live in the water column and are transparent or translucent and torpedo shaped. However, about 20% of the known species are benthic and can attach to algae or rocks. They have fins and a pair of hooked, grasping spines on each side of their heads that they use for hunting. These voracious predators cruise the water column searching for copepods. Fortunately for us, they are only a few millimeters in size. Hey, its friday 13th after all!!!" Karen
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Post by chaosonline on Apr 25, 2009 14:53:38 GMT -5
There is merit to both sides of this issue. Curiousity is an inate and valuable human trait as is overcoming obstacles. Also the David & Golith scenario comes to mind. But there are some of us who are hesitant to explore what may turn out to be beyond our own endurance.
Many are the times that I find I am not able to endure any further and must back off.
Karen
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Post by chaosonline on Apr 25, 2009 14:44:02 GMT -5
This thread is for the Visitors to our forum.
I would imagine reading about Morgellons for the first time is pretty creepy. You are probably stuck somewhere between disbelief and sympathy right now. On one hand happy you don't have this hideous condition and somewhat worried about the possibility of someday having to cope with it yourself. Is it contagious you might wonder. Could I have it and not know it? Yep, you sure could! If you're game to find out here are 2 simple home tests:
You will need:
Antibiotic Ointment
Liquid Capsaicin (I used Cura-Heat liquid Capsaicin)
A magnifying Glass
First apply the antibiotic ointment to knees or The palms of your hands, wait about 15 minutes then apply the Capsaicin, wait an additional 10+ minutes and carefully inspect the area for fibers (colored, white or clear) lifting up through your skin pores.
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There is also Clifford E Carnicom's red wine swish test which I have never tried but many others say it works: 'Red Wine Spit Test': Materials and Procedure
Materials:
Plastic bathroom cups
3% H2O2 (Hydrogen Peroxide)
Merlot Red Wine (use approx a $10 bottle)
Measuring spoons
Toothbrush/toothpaste
Watch or clock
Procedure:
1) Brush teeth very well. 2) Rinse mouth with water thoroughly. 3) Mix 2tsp (10mL) of Merlot Red Wine with 1tsp (5mL) Hydrogen Peroxide in a plastic cup. 4) Use the red wine / peroxide solution as a mouth rinse; Rinse mouth *vigorously* with the wine/peroxide solution for exactly five minutes. Make sure to swish it in your cheeks+gums, etc for the full 5 mins. 5) Now spit all the rinse into a bathroom cup. 6) Carefully examine the rinse for fibers. They are invariably present, and should look somewhat like wet chewing tobacco, or little pieces of wood, you may need a magnifying glass to see them, have one ready, Prepare to be shocked and upset. These are components of nanotech pathogens which we have all been infected with, most likely via chemtrails.
Optional 7) You can add 91% or higher IPA (Isopropyl Alcohol) to the precipitated fibers to remove the red pigment caused by the wine. The fibers generally float like a jellyfish on top of the IPA.
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It would be great if you would take the time to let us know your results. Also I for one would be grateful if you would mention if you have, or suspect you have, Lyme Disease. I encourage the posting of pictures if you happen to have any.
Thanks, Karen
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Post by chaosonline on Apr 25, 2009 11:24:44 GMT -5
From what I've read about biofilms so far I have would have to say that those with any kind of foreign material in their bodies would be at greater risk of heavy loads of biofilm formations.
Dental implants, hip & other joint replacements, metal rods, plates & screws, stents etc. Any hard surface foreign material is sought out by bacteria for biofilm formation. I actually started this link while I was surfing for information regarding surgical glue (surgical adhesives; surgical cements; bioglue; bioadhesives) being a possible link to Morgellons. I came across a lot of interesting stuff about surgical glue. For instance:
I was amazed that both human blood components & Bovine Serum Albumin is used in the stuff!
It is possible to get HIV from surgical glue!
There have even been cases of contaminated surgical glue!
Surgical glue was approved for use in the USA in 1998, (however it was used on our troops in 1966 in Vietnam).
There is so much more but I am still checking it all out.
Karen
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Post by chaosonline on Apr 23, 2009 14:23:25 GMT -5
I have to reply Grady,
I have Lyme Disease. I knew I had a insect in my ear and a few weeks later I found the tick on a Qtip. Within 4 to 6 weeks I had Bells Palsy and now about 3 years later I have gone through a bevy of Lyme symptoms, doctors and treatments. I have late stage chronic Lyme. My Morgellons became apparent during this time.
Now when I speak about Lyme Disease I have a firm belief that the type of Lyme Disease I have was created on Plum Island and is a man-made bio-weapon. I continue to refer to it as Lyme Disease but I believe those in the know probably refer to it by another name. I realize this is a conspiracy theory for sure but after much personal research I have begrudgingly accepted this theory. I do not welcome the thought of being involved in a conspiracy theory but that is precisely where I find myself.
I don't believe a tick bite it is necessary for one to have Lyme Disease as I did. I believe Lyme has somehow mutated to be spread in a variety of ways. I also do not know whether this bioweapon was released on purpose or by accident.
I do agree that it is not good news for the Morgellons Community to have a Lyme linked diagnosis nevertheless I believe there is one. Is that connection immune based, nanotech, GMO, Lyme coinfection, insecticides, glycols, or what? That is where I am unsure.
So Grady we have a difference of opinion...that's a good thing...differing opinions & open discourse will be the intermediate result and hopefully the ultimate answer will surface.
I for one actully hope I am wrong and will breath a sigh of relief if there is no connection but for now, as uncomfortable as it is, I have to honestly face what I believe.
Karen
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Post by chaosonline on Apr 23, 2009 13:29:34 GMT -5
Anyone have any ideas on how the current Lyme Guideline controversy timeline might affect the Morgellons CDC announcement timeline?
I would think there would be a direct correlation. Neils you would probably have a thought or two on this.
Karen
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Post by chaosonline on Apr 22, 2009 21:25:34 GMT -5
Thanks K-Marie,
I thought I had seen all of Dr MacDonald's pics but I had not seen the Biofilm/borrelia slide show. This was really interesting stuff.
Karen
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