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Post by Carrie♥ on Apr 26, 2006 16:38:43 GMT -5
Leigh Ann...I'm so sorry about your sister. I wish I could say or do something more than extend my deepest sympathy.
Well...all my info is written out. I've finished typing up the first couple questions. I need to finish typing them up. I don't know where all of the pictures are, I don't have many. I was scared of the camera, ashamed of my body and what was happening to us. Still afraid that it was my fault or something that I had did. Talk about emotional abuse one must endure huh!?
Should I post it here? Has anyone else done that? There are a couple things in there that I've been afraid or reluctant to talk about you know. Scared to tell, never told. To unreal, no one would believe you, even your people. Do you want it that descriptive or do I need to keep it light so the non-believers don't think I'm nuts...delusional, obsessed, that it was all in my head or drug induced? I hate this disease...I hate being so personal with such nasty issues. I hate sharing my debilitating story but agree and feel it is necessary. It isn't easy to do...takes a lot of time and blowing up of the chest if you know what I mean. I can only do it because of where I am today. The people who knew me then would never have expected me to be where I am today. That, in itself has to say something. That, is the only reason I can tell it the way it happened. It's like pulling teeth though. I would dare any one of them today...any one of them...to tell me I didn't experience EXACTLY what I told them and am about to tell you that I experienced. The more I learn about my disease, the more I can say it with the confidence that I say...they are the ones that are crazy. And they are the educated well paid ones...that makes me crazy. We will have our day.
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Post by junebook on Apr 27, 2006 23:01:12 GMT -5
My deepest sympathies, Leighann, upon the death of your sister, Beth. You and your family are in my prayers, and Heaven is rejoicing. If Beth had what I and thousands of others have, I can only imagine the depth of her joy now that she is pain free, rested, healed, and in His presence.
I'm overwhelmed and excited by your ALABAMA ACTIVITY posts, Leighann. I cannot imagine how I missed much earlier ones. From the depths of my heart I thank you for taking on this cause. Many are desperate for even the tiniest portion of relief. In previous posts this week, I explained how a recent lesion had bled, and how, when I cleaned up the blood trickling down my leg, I could see small, solid 'things' on the wash cloth. Under the microscope I learned they were identical to those I find on and in my body, clothes, fridge, dishwasher (all appliances) in packaged foods, and on the rim and down into my coffee cup when I forget to cover it between sips. Two and a half years ago, life as I knew it, changed--for the worse. My health, my social life, my family life, even my talent (I'm an author with a number one New York City publisher). Deadlines have come and gone. Now, they graciously allow me to set my own deadlines. To say people with this despicable illness are suffering doesn't even come close. It could mean the difference between life and death.
Thank you again, Leighann.
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Post by Susan on Apr 28, 2006 12:19:36 GMT -5
Leigh Ann, I am so sorry about the loss of your Sister. You and your family are in my prayers. Your Friend in Tennessee Susan
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Post by flutterby on Apr 28, 2006 22:13:45 GMT -5
DEAR LEEANNE, MY PRAYERS ARE WITH YOU AND YOUR FAMILY. I AM SADDENED BY THE LOSS OF YOUR SISTER.
THE PASSING OF SOMEONE WE LOVE IS DIFFICULT, EVEN THE TIMES WE ARE EXPECTING A LOSS FROM ILLNESS. UNEXPECTED AND SUDDEN IS A SHOCK AND MY HEART GOES OUT TO YOU AND YOURS. MAY GOD KEEP YOU STRONG. SINCERE SYMPATHY, GOD BLESS, LOVE YOU ALL, FLUTTERBY
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leighann
Full Member
Morgellon's - The point where Nature and Man collide...
Posts: 158
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Post by leighann on Apr 29, 2006 14:43:39 GMT -5
Thank you all SO MUCH for your thoughts and prayers. I know without a doubt that she had a seizure because of this DAMN thing. When I get my head back on I'm going full speed ahead. I even tried to see if there were any portions of her skin that I could have them remove and test on, but she was burned too badly due to the car catching on fire.
Carrie, please send me your story via e-mail if you want to alparalegal1118@bellsouth.net or here on this site. However is most convenient for you is fine.
PLEASE, everyone, you have no idea how there will be little, if anything, that will seem too wierd to me. We are experiencing and finding items that seem "extra-terrestrial" for a lack of better description.
THANK YOU ALL AGAIN FOR YOUR THOUGHTS AND PRAYERS. Stay strong.
Love, Leigh Ann
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Post by betsy on Apr 29, 2006 20:42:15 GMT -5
Leighann- You must be devastated at the loss of your sister. I am truly sorry for your loss . My paryers are with you and your family.
Betsy
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leighann
Full Member
Morgellon's - The point where Nature and Man collide...
Posts: 158
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Post by leighann on May 23, 2006 10:51:13 GMT -5
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Post by questionhair on May 23, 2006 17:28:50 GMT -5
Hi Leigh Ann - thank you for your hard work and for doing this interview. I was able to read the article, however the video does not come up for me. I will try again later. I hope you are hanging in there and wish you well - QH
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Post by leighann as guest on May 24, 2006 1:08:20 GMT -5
If anyone else is having trouble the station's web site is www.wkrg.com. This interview was the top story for yesterday's stories. It aired Monday evening.
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leighann
Full Member
Morgellon's - The point where Nature and Man collide...
Posts: 158
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Post by leighann on May 26, 2006 22:44:35 GMT -5
PLEASE KEEP THE INFORMATION COMING!!!
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Post by guest millenium on May 27, 2006 9:31:20 GMT -5
Leighann,
I am so very sorry about your sister's death. I pray for your family's pain to be soothed.
regards, Millenium
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leighann
Full Member
Morgellon's - The point where Nature and Man collide...
Posts: 158
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Post by leighann on Jun 8, 2006 23:51:00 GMT -5
I received an e-mail from the Director of Alabama Watch and they have forwarded the TV interview with my family to their entire mailing list. Let me tell you, that is a HUGE bit of exposure..... !!! That is every lawyer in the state of Alabama!!!!!!!!!!!
Let's ROLL!!!!!!!!!!!!!!!!!
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Post by questionhair on Jun 9, 2006 0:49:15 GMT -5
I'm still not sure what the distinction is between Morgellons and Lyme, but here is some information on the Lyme aspect. It is presented with some anger and political comments at times, but there is a lot of history, statistics, and Lyme disease specific information: actionlyme.org/ICC_LYME_CRIME_BARDA_02_December_2005.htm ". . . What we learned from Lyme and the secrecy and the fraud, especially by sneeking into a conference given by Mark Klempner- who will now head a CDC Biohazard Level 4 Lab in Boston – and audiotaping him revealing that there is a genetic susceptibility to suffer more serious consequences of this fungal like OspA and mycobacterial exposures . . . Lyme patients are accused of everything, from hypochondria to Munchausen’s by Proxy (they literally have accused us of poisoning our kids) . . ." actionlyme.org/USDOJ_COMPLAINT_RICO.htm Has pictures of the tests and explanations of interpretation of test results. From American Journal of Clincial Dermatolgy, 2006 The Mystery of Morgellons Disease Virginia R. Savely, Mary M. Leitao and Raphael B. Stricker " . . . The first author now has more than 80 patients in her practice who fit the criteria for Morgellons disease . . . all but one of these patients have tested positive for Lyme borreliosis . . ." www.morgellons.org/AJCDerm1.pdf
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leighann
Full Member
Morgellon's - The point where Nature and Man collide...
Posts: 158
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Post by leighann on Jun 16, 2006 21:18:31 GMT -5
PLEASE CONTINUE TO CONTRIBUTE YOUR STORIES. There is no deadline at this point as I wanted mostly to get some information for the interview, however, the other people were not exposed as I intented, so I still am in the process of gathering the information. I am still compiling and organizing the data!
DON'T WORRY ABOUT WHEN OR LONG. One paragraph or however detailed you want is FINE. Continue to provide me with ammo to present. You can't deny the facts of all the similar symptoms and issues. From people who never knew each other!!!!!!!! How can it psyco-symatic then?
I am still fighting. Just working on my next move. Missin' my big sis Beth. Let's not let another one go before something is done. I don't want to prove my point based on mortality rates! I want to move of us who are suffering and can still get help!
LOVE TO ALL AND I AM STILL THINKING OF EVERYONE, EVERY DAY. LET'S KEEP UP THE GOOD WORK!!
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Post by cherry on Jun 23, 2008 8:58:09 GMT -5
Hi, Leighann. I am a new member and wonder how you are progressing, since the date of your last posting seems to be 2 years ago. What have you done with the information provided to you? Is there a research team behind you? Have you petitioned the AMA for exposure of physicians who have refused to help sufferers? I live in Minnesota and my whole family and scores of others I see in the public have "sores" or "bites." The medical community needs to be brought to task on this. I once spoke to a physician who told me she had seen a man who was so desperate he wanted her to cut out a part of his arm--yet she turned her back on him and on me. We need to let people all around the world know that this is happening and lend support to one another and demand help from those who profit from our monies yet deny us their assistance. Sincerely, Cherry
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Post by Administration on Jul 24, 2008 1:24:06 GMT -5
Hi Cherry, and welcome to the board. Unfortunately I don't think anyone has heard from Leighann for several months now. I noticed that her email isn't hidden so you might try writing to her, and if anyone knows how she's doing please let us know. Thanks!
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