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Post by toni on Aug 17, 2008 12:08:38 GMT -5
Hi fam! ;D
Wow, what trip I was just on the last several days, but thank goodness that part is over (I think, I hope).
I've not even looked at the board really well yet, but I sure will.
I want to thank you all so much for all your caring loving calls and emails and prayers!
I received them all, and felt them all, cause today I'm feeling so much better and seriously feel like I'm on the right road of recovering from that horrid ordeal that landed me on my back in the hospital.
Come next week I should be getting lots more results of all the "sampling" of blood, urine, specimens etc that was done.
The only thing I know that the docs said, which all of us seem to have the same thing was, my white cell count was up, (no fever at all from the temperature readings-a million of those and blood drawings, oh yeah and blood pressure was normal well, one time 116 over 44), but from the CT scan that my colon was severely inflamed which was the real bad problem.
They did an ultra sound in my stomach area too, but saw nothing abnormal, as it was really the colon area that seems messed up. The weird part was, it happened about 2 am Tuesday night while I was sleeping, the pain hit right out of no where.
But compared to "then" and now/today, I feel a million times better.
They said in the blood work that they're testing is for all kinds of bacterial pathogens, one that stuck out - and that I remembered was Yersinia Pestis, which I thought odd, but I'm glad.
I still don't know (as they didn't either) about the orange (don't mean to be gross) but the pumpkin colored vomit that hit me hard too, but that's over with also. Had lots of rectal bleeding for a couple of days which was the first time ever in life, and I don't have hemoroids(sp?). It was the colon bleeding badly.
I never mentioned the Morgellons word, as I wanted to see or be treated normally (which is ashame) to feel I'd be incriminated if I did mention it.
But I'll sure let you know anything I learn from them in the next few days.
The only drug they gave me in my IV while I was there (besides fluids and anithistamines and antacids and morphine in the IV) was also Flagyl/Metronidazole, which they gave me a script for that too. Oh yeah, also potassium and magnesium, cause mine was very low after all that.
Thank God, and thank you ALL, and MAN AM I GLAD TO BE BACK HERE, AND HOME!!!
I love you guys, I REALLY do! And thank YOU so much because I truly believe everything that was done and your prayers and energy is what's turned this all around for the better.
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Post by angela on Aug 17, 2008 12:31:03 GMT -5
Welcome back toni. We love you and missed you very much. So glad you are recovering nicely. hugs, anj
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Post by Carrie♥ on Aug 17, 2008 15:04:58 GMT -5
Hey MommaSue! I'm so glad you're feeling better in your comfort zone. You had me hecka worried . I'm sorry about this (your below quote)...it really is sorta sad. I wonder how much further we would get if we didn't have to deal with this. So many would never be where we are, having had dealt with the tormented mental side of this. I'm glad you were wise enough not to add to your agony. I'm so glad you are home and feeling better. I didn't miss you...you weren't gone long enough but I was worried sick about you and realized how much I love you and how much you've really, in all those back stage passes have touched my life. Thank you, so relieved you're home and feeling better.
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Post by toni on Aug 17, 2008 15:24:39 GMT -5
Awwww....now I'm going to start crying again-loving content tears in knowing you guys are there, which feels so good, because me too....I felt like part of me was missing too not being here. It's a cold cold world out there, and scary too - and the world out there has no idea in the bond that we all share, which really is the absolute truth and care.
Thank you Angela, and thank you Carrie.
Carrie, I know what you mean, cause you're forever my baby girl.
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josej
Full Member
Posts: 140
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Post by josej on Aug 17, 2008 15:35:42 GMT -5
Hey Suz, so glad you're back in your home! Gotta keep this short because right now I'm seriously considering taking KJ to the ER. It's a double-edged sword 'cause she may get worse if I don't take her.... on the other hand we're petrified of hospitals (for good reason). Anyway, I'm happy for you. Said a lotta prayers and kept in constant touch with Sid about you. I'll keep you posted. In the meantime, you relax and get healthy. Blessings.
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Post by toni on Aug 17, 2008 15:55:51 GMT -5
Jose,
Thank you for your loving call too, I'll write. I appreciated all you said more than I can begin to say.
I am with all my heart so sorry that Kathy is in such serious way because of this devil morgellons.
And I sure know what you mean about hospitals. Frank brought Walgreens Instant Spray hand sanitizer with him, and everything we touched, the phone, the bed rails, the bathroom doors, (everything) we used it on, and our hands. We were like a couple of clean freaks because we were afraid of getting MRSA and whatever else might be in there too.
My prayers and thoughts are with you both. Please take care, and we're all going to be praying for you and thinking the best for you and KJ.
Hugs and love.
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Post by liatris on Aug 17, 2008 16:25:26 GMT -5
Toni-Sue, Sooo glad you are home and are on the upswing !!! Many hugs !!! Nothin' like gettin' better !!!! . Now I have to ask this - they did not look for pathogens in the stool with what is obviously an intestinal problem ? They must supsect an intestinal "bug" or they would not be giving you Flagyl ! Clinical microbiology is SOO bad at growing things from the stool - but WAYYY more pathetic trying to grow and identify microbes in the blood. I was just reading how people with serious blood infections infecting the heart cannot rely on blood cultures to find what is in the blood. The important thing is that you are getting better - probably due to your good immune system - not the Flagyl which may or may not be the appropriate microbe killer. If you had Salmonella, for example, they test the stool (not the blood ) AND they are supposed to test it 5 times in a row because they know the test is that unreliable ("insensitive"). Most people get over Salmonella on their own - it is considered self-limiting. Please tell me that they at least did make a petty attempt to check your stool .... SO gald you are doing so well - considering. xxooxxoo, Liatris
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Post by freaky on Aug 17, 2008 16:40:12 GMT -5
You scared me to death. I'm so glad you're back . This disease has taken over my life, & brain, and I'm always late so I have to go get ready as always, & don't have time to write how much I love ya, etc. Just glad you're home. I just couldn't believe what happened to you.
Much love, freaky
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Post by friskers on Aug 17, 2008 17:00:59 GMT -5
Oh thank God your ok now Toni........I can be at peace now and stop checking the board a million times a day looking for a post from you too ;D Thats the best news ever! Take it easy though the next few days , your body had been through alot. Love you so much
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Post by kiki on Aug 17, 2008 17:01:32 GMT -5
Great to know you're feeling better. Your comment about shame hits close. When I say I live in a small town I mean Mayberry RFD small. My dr is an hr away. People knew I was sick but I never went into detail. My hubby knew I didnt want to broadcast it and came up with a funny but actually kinda fitting description. He says its like malaria with a "lyme" twist. salted rim suggested. But Fri my mom made an off-hand comment that a lady at hair salon was talking about parasites. It suddenly dawned on me that I had assumed I would have heard if anyone local had this. Well I typed my town and morgellons and lo and behold there was a post made on wrong diagnosis. She said shes sure she has morg but cant get dr to help. What she said next gave me chills. She said I am a nurse and I see so many people that have this and dont even know it. The post is 7 mo old and I wanted to reach her but pm was blocked. Then it hit me--she DIDNT WANT to be found. How sad that we dont dare tell whats realllly happening. Since when is illness a "dirty little secret"??
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Post by jj on Aug 17, 2008 17:09:06 GMT -5
SOOOOOOOOO thrilled your home and feeling better.
You are so loved and appreciated Toni .... missed the calming, supportive YOU. What you give of yourself here is clearly unselfish, unconditional support. Thank you for being you!
JJ
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Post by toni on Aug 17, 2008 17:51:08 GMT -5
Hi Liatris, and thank you for your care...Mr Toni never checks the messages, but I did when I came home Friday eve....and I just cried happy tears and sad tears too, cause you guys are the best of the BEST and everything was just insane, and unbelievable what all was going on.
(((And I just now saw the other posts everyone so I'm adding this in now.. and how can I even begin to tell you how much you all mean to me. I love you all so much and am so happy to be back here. And thank you so much.)))
I know it wasn't salmonella, cause we both ate the same things. But...the test results soon (real soon) should hopefully disclose anything found, hopefully.
Here's what the docs said, which I had 2 doctors seeing me 2X a day. One was a regular MD and the other was a Gastroenterologist. They said I have Colitis. And that Metronidazole is the drug used for that. I even "commented" to them when I heard they were hooking that up to my IV, and said, isn't that for parasitic problems??? Said it like I didn't know any better but like I did know that part. Hated playing dumb, cause I thought man, they have no clue, well...to the degree of what we all know about Morgellons.
I was willing though to do anything they suggested, because of the bleeding and pain, because the doc said, if it got worse, I could risk having a surgery because of a rupture and then wearing a bag the rest of my life. Oh....then they said they would give me STEROIDS. Well...that is where I flipped out. I said NO WAY do I want that in my body!!!! ((( I wasn't the best patient ))), because of my pent up frustration knowing darn well this probably wouldn't of ever happened if Morgellons wasn't the culprit.
They kept needling me about "why" I don't want steroids. I said I don't believe in putting that stuff in my body! They kept saying, have you ever had them, and did you have a reaction??? I said I DO NOT want them period.
(( just my belief about steroids and morgellons is that I truly feel, they may be harmful, and cause morgellons to run wild, more wild. I feel our immunes are helping us to different degrees, and to me....throwing a steroid into the mix, would only hamper the immune and cause morgellons to just go un-barred.))
So they had to get the last word in of course, and told me ( IF we need to save your life we are going to give them to you). So I said, okay, under those circumstances then fine.
And yes, they said they were going to look in the urine and the stool too for whatever they can find. They did do an extensive (( every 3 hours drawing blood, round the clock non stop, with stool, urine and blood samples)). That was constant from them, or rather from the nurses.
They wanted to see if there was any changes in anything every 3 hours, cause they said for this to occur so suddenly as it all did, wasn't normal. I agree.
I'll go into more detail now. ((( this is gross but possibly important to anyone experiencing this- and I'm sorry for the gross-ness.)))
And sorry this is sooooo long, but I'll try to keep it nutshelled as best I can and still relay everything.
I woke up at 2 am had the most pain I've ever experienced in my life in my guts, like I drank a bottle of drano or something, my guts were feeling like they were being eaten out with knives and acid. I ran to the bathroom and just had seriously severe diarreah and lots of blood.
Then the pumpkin colored vomit was projectiling out of me too, it was soooo bad and unreal.
We went downstairs, and I laid on the sofa, and just had to keep going to the bathroom to go (diarrhea) and vomit. The vomiting stopped, and I told Mr T that I'll be okay for him to go back upstairs to get some sleep.
Then morning came a few hours later, and I felt pressure on my chest like a ton of bricks were laid ontop me. I could hardly get my breath (forgot, they had me hooked up to a heart monitor the entire time too in the hospital). So much was going on, it's like I'm slowly remembering everything.
I went to stand up and I couldn't. My legs were just like jello, and all tingly like they were going to sleep. Like they fell asleep.
I knew I was in a serious way. To be brutally honest, I didn't think I was going to make it. All I could think was what a way to go, so painfully. But that's what I was thinking.
My chest was pressured inside like I've never felt, the pain in my guts was beyond anything ever, and I couldn't stand cause my legs were numbed out.
I grabbed my cell beside me, (I keep that close if I'm downstairs) because we have a house alarm and IF the alarm were to go off, it takes over the phone lines...(so I always have my cell) with me, and I kept calling the house phone in hopes that Mr Toni (upstairs) would pick up the phone next to the bed. But he was out like a log and didn't pick up after I called 100 times. So there I was.
I literally crawled over to the back door, (cause we have our alarm system on all the time) and I opened up the door, and all HELL broke loose cause the alarm system went off. I knew that would wake his butt up! ( It did ). Then he called the ambulance, cause he saw the condition I was in, it was bad. I don't know how I really got though all that. It was all so surreal because it was so intense and all happening so fast, my whole body was under exterme pain.
So that is why this all is so werid, cause here I am now, getting so much better...and God only knows what all that was really about, but I would safely assume, it's all Morgellons-cause everything rather quickly (over the last few days) is slowly resolving itself. No more poo's or blood, no vomiting, but my stomach/abdominal area is very very inflamed and puffed out and sore and I have to walk baby steps...but that will go away too I think cause each day is leaps and bounds in comparrison to this all hitting me on Tues night.
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Post by felixwillford on Aug 17, 2008 17:58:14 GMT -5
Our Sunshine has returned!
Love you,
Kmarie
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Post by toni on Aug 17, 2008 18:13:13 GMT -5
Awwwwwwwww that's so precious Kmarie. I feel like the luckiest person in the world to have friends like you. Thank you Kmarie and BEAR HUGGIES! Thanks you ALL for being on this earth! I'm blessed to know you.
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Post by friskers on Aug 18, 2008 2:42:22 GMT -5
You poor thing Toni that all sounds very traumatic what youve been through! You may want to get some slippery elm for your intestines although I dont know if you should mix meds with it . maybe after your done with the antibiotics? eatmoreherbs.com/zine/slippery_elm.htmlNow when are we going to celebrate your birthday!!?? I think you need a vacation and a party now!! ;D
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Post by cheetah on Aug 18, 2008 3:26:28 GMT -5
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Post by justhanginin on Aug 18, 2008 8:52:32 GMT -5
Toni-Sue, Kept checking the board to find out how things were with you. I'm glad to see you are back with all of us and feeling better.
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Post by toni on Aug 18, 2008 12:12:36 GMT -5
Thank you so much and my b-day celebration is knowing you're here, that is a comfort of the heart and the best birthday I could ever ever have! I have a song for you. I'll change the words a bit, Everynight in my dreams I know you, I feel you, you're in my heart. Far across the distance and spaces between us, near or far wherever you are, I believe our hearts go on. Once more you open the door and you're here in my heart, as always. www.youtube.com/watch?v=Nrq3DFa7AxE&feature=related
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Post by bannanny on Aug 19, 2008 1:03:48 GMT -5
I just got back online today and saw the post about you toni. It was the first one I read....... know that I would've been praying too if I had known what was goin on....... but I am now! I can't believe what all you've been thru. Sounds like a bad nightmare with everything hitting you so hard and fast like that. It made my heart hurt invisioning you being there downstairs all alone without being able to wake up Mr. T. What a terrible and alone place to be in with that kind of pain.
Well kiddo, like I said on the other thread, try to relax and let your body heal. As long as we know you're out of the hospital and getting better then everything's ok here. I know sitting at the computer for long makes my tum hurt a little so don't push yourself too soon by sitting at yours for long periods right now. Get the rest you need but let us know as soon as you hear any more from your test results, k?
big huge hugs ~~ bannanny
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Post by lilsissy on Aug 19, 2008 1:24:34 GMT -5
SO so happy your on the mend .
YES, YES sit back and take it easy for a while.
Bless you, Jennifer
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