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Post by felixwillford on Feb 11, 2009 0:29:51 GMT -5
mfromcanada,
How long did you have the mottling on your thighs now?
Is the mottling a come and go symptom or was it constant until the MMS treatment?
So if you are saying the MMS helped the mottling go away... then that is really good.
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Post by mfromcanada on Feb 11, 2009 15:19:39 GMT -5
kmarie, I have had the mottling for several years now and it was permanent until I started taking the MMS. When I stop taking the MMS the mottling comes back. In reality, the MMS is definately helping the mottling and I think my circulation because my muscles are a lot more limber when taking the MMS. Feb 10th I took 28 drops. Still having loose bm. Feel like something inside me on right side near my thing, like a hernia. I have had this horrible symptom ever since my prolapse surgery. I have a hard white thing just inside my lip on the bottom. I keep trying to get it out, think that I have, then it reappears a little while later. I hate the feel of my mouth inside with this morgellons. I keep rinsing with cold water to get rid of the slime.
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Post by mfromcanada on Feb 12, 2009 14:12:01 GMT -5
Feb 11th I took 28 drops. I have lots of hard things in my skin inside my lips between my lips and my teeth. I have lots forming inside my fingers on the palm side near the hand. My fingers hurt like crazy. My knees hurt badly today and my right leg from the knee down. The hard things appear white and very deep in the skin. The fingers appear bigger but they are not swollen with inflation but because of these hard white things. My lower lips still requires the peroxide/vaseline daily because as soon as I remove a coat of the yellowy film a new one is forming. My eyes are clear today as is my mind. I feel quite sharp in my mind today. My cheeks seem hollow today.
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Post by mfromcanada on Feb 13, 2009 13:50:56 GMT -5
Feb 12th I took 28 drops. My right leg from knee down hurts very very badly, right to the bone. My knee hurts bad too. Had a loose bm and it looks rather toxic I must say. My right wrist hurt like carpal tunnel syndrome too. My base of my fingers is also hurting like crazy. Pain is the key word.
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Post by mfromcanada on Feb 15, 2009 1:04:34 GMT -5
Feb 13th I took 28 drops. Very sore left eye. Feels dry too. Drops make it hurt even more. Itchy around face today. Lower lip is being treated with mix of vaseline and peroxide and it is like peeling off an onion layer by layer. I believe there has been swelling above and below my lips from the inside of my lips. I think it is the gel stuff, some of it seems hard. I think it is quite like amyloidosis only with morgellons instead of amyloid. Not in too much pain today. My mind is very clear today. I still use peroxide daily inside my nose. I notice the brown spots on my arms again a little bit and I think that the concentrated green tea sprayed on and rubbed in is helping this film come off. My entire skin seems to be covered in a yellow coating of some type. My forehead is this colour and I can't stand it. I had a long fiber leap towards my hoody every time it got so near, rather like static electricity but without the static, no spark. The long fiber was clear and was about 10 inches long. It looked like a hair but I don't know for sure.
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Post by mtnblue on Feb 15, 2009 11:34:51 GMT -5
Hi M from Canada....
I think you are on to something with the MMS, but I think you only have a part of the solution. MMS works, but it needs other things to compliment it to do so. Grady posted a link to a friend of mine's website (I won't include that link unless you ask, because I don't want it to look like I am trying to steer traffic there- I just want to give you some advice to add something else to your regimen). My friend has cured himself of Morgellons and he too used MMS, but he also says he used: Bactrim, Limbrel, and a colloidal silver product called Molecula Silver.
My friend, Mel has been in contact with Hilde, and a bunch of other researchers and he told them about his find, but no one was interested to hear anything about it. He feels that since the other researchers have so much time and energy invested in the search, that maybe they are looking for something that they can patent and make their money back. And in all honesty, who can blame them... everyone's got to make a living and they have been working on this thing for years and have never been paid for their research.
Mel is a friend of mine, but Mel is a little on the anal retentive side-- which makes for a good non-scientific scientist's mind (but kind of irritating for those around him). He has recorded everything he has taken (and their results to his body) for the last 4 years (not to mention literally thousands of little baggies of pieces of skin, hairs and scabs taken off his body).
So, with the help of friends and acquaintances he has come up with a protocol that works. Mel says that the protocol takes about a month before you start to see results, but after 3 months, M is pretty much gone- and all that is left are white spots where the wounds were (I assume that they will eventually regain their original color). Mel isn't terribly computer literate- (typically when I visit him I am the typist who takes dictation and responds to questions asked on his site) - and his computer illiteracy is why no one has ever seen posts from him on any Morgellons sites. It just takes him too much time to figure out how to find these boards, and then to type anything up.
I would consider trying those other products along with the MMS and I think you will find that within a month everything will start turning around. Mel has been working with a bunch of other M sufferers in the region and a bunch of them are in the process of trying his protocol. Just the other day, a woman who is a registered nurse who has M responded on his forum and was happy as could be because she was starting to see changes happening for the positive.
The Reno Gazzette Journal investigative reporter came out about a month ago and did an article on Mel, but as of this morning, it hasn't hit the paper yet. The reporter has told us on several occasions that will will come out as the front page lead story, but as of yet, nothing has happened. The reporter called Mel the other day and told him that most likely it will be the lead story in this coming Tuesday's edition-- but he has told us that before a couple of times and it never showed up in the paper-- so who knows what is happening with the editorial board there.
Mel isn't about making any money off his protocol. He figures it costs about $50 a month to take and he doesn't sell any of the ingredients. He is available to ask questions to-- but you may have to wait until I visit him again to get a typewritten response.
Good luck with whatever you try.
Rick
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Post by bessie on Feb 15, 2009 12:01:32 GMT -5
mtnblue - Clearly your friend is not trying to make $ - his protocol consists of rx meds & MMS - someone else's product! His motive for sharing his experience I'm sure is pure. The most maddening thing about Morgellons is how one thing will help one person, and make things worse for another. I've read of several approaches resulting in at least near remission or 100% symptom reduction - including jwf's protocol. There tends to be so much difference from one to another it makes your head spin! Some of the researchers have found protocols that have led to 100% symptom reduction, and I believe they are more interested in "tweaking" their own protocols so that a higher percentage of their clients achieve success than they are in abandoning them. You really can't blame them if they have been developing them for years and having success. Bessie
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Post by mtnblue on Feb 15, 2009 16:05:10 GMT -5
Good points, Bessie.
I dabble with a lot of alternative medical devices (colloidal silver, Scenars, QXCI, cold laser, Beck Protocols, Eagle Research Homeopathic Imprinter, etc....) and none of which did anything for Mel's Morgellons, by the way), and it is true-- some things work great for some people and don't work at all for others. And another good point about the researchers trying to find something that works the best for the larger group.
Something else I am reading as I go through these boards is apparently M has a tendency to go latent for long periods of time. So, perhaps a "cure" may just be the bugs laying low to get away from the onslaught. Scary stuff.
This stuff sucks. Whoever thought this stuff up out to be shot.
Thanks for bringing this to my attention.
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Post by mfromcanada on Feb 15, 2009 18:39:39 GMT -5
Feb 14th I took 28 drops. mtnblue and bessie, I think your friends site has already been posted and I had a look at it. One thing I know for certain and that is if your white spots are not gone, you are not healed. The white spots are a mix, some are scars, some are depigmentation and others are hard material or fungus under the skin. Be very very careful about these white marks as they are not a sign of a cure but a sign that this contamination is in every crevace of your body and it is looking for a way out. I have had several of these white marks break through the surface only to reveal tons of little seed looking things. Thanks for the suggestions. It is all trial and error and for my part the most sucessful things I have used are: MMS, hyrdogen peroxide, ozone dead sea bath salts, concentrated green tea.. Thanks for the comments.
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Post by mtnblue on Feb 15, 2009 22:19:55 GMT -5
Friskers- "The nurses email has the same IP # as the mms.drcom registerer. the site that sells MMS I looked them both up. tricky sales people I say" I know for a fact that the nurse is legit. I'm not sure why she supposedly has that email address. Mel has been working with her for over a year now. You have enough info to track her down. Call her and ask her yourself. I can understand why you don't trust anyone- this whole thing could be a scammers paradise.
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Post by bessie on Feb 15, 2009 22:44:50 GMT -5
mfromcanada - Thanks for bringing that up. I have had almost no symptoms for almost a year, but recently started getting that mottled look, with tiny white patches on arms and legs. The last few days I've had a couple of spots where something tiny is pushing through. I never had anything like this at the height of my nightmare (summer/fall of 2007). Honestly, I really don't care much because I really don't think anyone ever completely gets rid of it. I think the best we can do is to get as comfortable as possible and learn to live with it. As far as being everywhere in my body, I knew that at the beginning. I felt it moving in the roots of my molars and in my brain. When I figured out ways to purge my skin, I was so astounded at the amount, depth, and variety of crap in me I'm surprised my head didn't explode. And, of course, what came out of my digestive tract when I did an aggressive cleanse. So at least I am comfortable (physically) now. As far as the gentleman with the site, I hope that he has a very long period of feeling like he's beat it. I wouldn't mind a little bit of that relief (denial?) myself. John (jwf) does seem about as close to it as I've ever heard...although I have heard of 5 yr periods of seemingly spontaneous remission, only to return again. Any break is welcomed. Bessie
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Post by mfromcanada on Feb 16, 2009 16:19:44 GMT -5
Feb 15th I took 28 drops. That is 7 days. I think I will do another 7 days and then take a break.
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Post by friskers on Feb 16, 2009 19:02:43 GMT -5
""I know for a fact that the nurse is legit. I'm not sure why she supposedly has that email address. Mel has been working with her for over a year now. You have enough info to track her down. Call her and ask her yourself. I can understand why you don't trust anyone- this whole thing could be a scammers paradise. "" mntblue quote ------------------------------------------------ Im sorry Mntblue i deleted my post( but you must have copied it before I had time )because I jumped the gun and do apologize. If you want to talk about it more PM me .
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Post by mercury on Feb 16, 2009 19:06:23 GMT -5
Hi M, I've really appreciated the several months of posting on MMS use you have done here. Thank you so much for your diligent work here. Am 21 days into an MMS trial (have been taking 30 drops for several days now but decreased to 26 drops due to nausea) and have also noticed some increase in mental clarity and some increase in energy. I've also noticed that there is less dizziness when getting up from a sitting, lying or crouching position. Have been needing more sleep including afternoon naps. Have also noticed some unusual recessed lines outlining under skin while areas that come and go. Have also had more parasitic looking matter in my stool (some mucous "clouds" with tentacles and some other stuff) . I'll post here occasionally as seems pertinent. Thanks again! Merc
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Post by mtnblue on Feb 17, 2009 10:00:29 GMT -5
Out of curiosity, what is jwf's protocol? I tried to look it up but couldn't find it.
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Post by mtnblue on Feb 17, 2009 10:02:41 GMT -5
Friskers-
I hate to sound really dumb here... but how do I PM you? I don't see any window that allows me to do so.
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Post by friskers on Feb 17, 2009 12:30:12 GMT -5
Mntblue Just click on my name and at the very top click on"send personal message" not a dumb question!
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Post by mfromcanada on Feb 17, 2009 15:05:59 GMT -5
merc, thanks for posting as I love to compare my results to others. Feb 16th I took 28 drops. I had the liquid bowel movements this am and bad cramping in my stomach. I know its killing stuff in my gut. I don't feel too bad today..
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Post by mfromcanada on Feb 18, 2009 4:31:30 GMT -5
Feb 17th I did 14 drops. I had a really good flushing out so I am going to take another break. I had quite bad stomach cramps but no vomiting.
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Post by mtnblue on Feb 18, 2009 14:41:00 GMT -5
Friskers-
I don't know what to say.... I cannot find anywhere on the page or by clicking on your name- a way to PM you. It must be really easy, because I have looked and looked to no avail.
My email address is mtnblue@exwire.com - email me and I will respond.
Rick
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