Post by ruth on Oct 31, 2008 13:09:20 GMT -5
forgive if already posted:
Here is an email from Niels Mayer who is a very intelligent and well versed advocate for Lyme, Morgs and for many sufferers. Below is his article and above is my answer to him.
Trisha
Dear Niels,
It is always great to hear from you and recieve your words of wisdom and research.
I have been working with my Congresswoman Ginny Brown Waite who is very, vocal
in regard to Morgellons with the CDC, she is a huge advocate for Veterans rights and through her fight has opened up more care in Florida for the rights of Veterans.
I have been backing off somewhat here in order to figure out what the next step is needed
in order to move forward. There is much work to be done and it requires that I also maintain
a life of my own in order to move forward.
The more I find out the more I am seeing so many vector borne diseases, people with Bird Mites are exhibiting some of the same symptoms as GWI, they have insects in their homes, skin and many are seeing fibers and as they worsen the brain fog and same manifestations of Lyme and Morgellons etc. The interesting thing I am finding out with the
persons with Bird Mites, is that they are feeling the very same biting sensations as Morgellons often do, except the mites are clear and are much like noseums. When they are bit it apperars the mites inject something into their skin and they end up with the rashes, ulcerations ect.and these mites are reaking havoc on all the sufferers lives. There is absolutely NO PESTICIDE that are ridding these peoples living areas of this,
Many of these people do not own birds but when the birds nest the mites seem to be in the nest and some on the birds. These mites are reaking havoc on the affected peoples environments and now they are being called delusional. I was contacted by a man who was hit on the face by a dead bird and within 2 weeks he had ulcerations all over his body.
I am also in communication with Marcie Haskall Clark who is the head of a website advocating for the treatment and research for Leshmaniasis here in Florida. These guys are coming back in droves with this, it is rampant in hospitals and people are DYING from it.
I have forwarded this to Ginny and Marcie and some others who may be interested.
Marcies email is junglem@yahoo.com .
I am here, still fighting the fight but lying low for a while and trying to get up funding for a formal study.
Thank You my Friend for keeping us informed and I pray for the health and wellness for you and yours.
Your Friend,
Trisha Springstead RN
--- On Thu, 10/30/08, Niels Mayer <nielsmayer@gmail.com> wrote:
From: Niels Mayer <nielsmayer@gmail.com>
Subject: Sound Familiar? Why same denialism/cruelty for Gulf War Syndrome as Morgellons??
To: "morgellons" <Morgellons@yahoogroups.com>, advocacy@morgellons.org, morgellons@okstate.edu
Date: Thursday, October 30, 2008, 12:41 PM
Re: www.immed.org/GulfWarIllness/publications/ILLwind.pdf
does this scenario sound familiar??
.................................
Mind Games
Problems escalated as vets fell into the clutches of the psychiatric
industry. As is a routine failing in psychiatric diagnosis, proper and
full physical examinations were either not done or their results ignored.
Tests were performed that added confusion, their results failing to
describe any specific illness because the veterans had such a panoply of
symptoms.
According to William Baumzweiger, M.D., Gulf veterans he examined while
working at the VA from 1993 to 1997 exhibited conflicting and mutually
exclusive symptoms.
"Nobody asked how come they were showing so many contrary manifestations
all at once,"he said. VA psychiatrists and other doctors, he said, "threw
every diagnosis in the book at them, rather than get to the bottom of the
problem," adding that he believes that practice continues.
As a trained neurologist, he said, "I knew this didn't fit, and I said so
from 1994 on. I was told when at the VA center in West Los Angeles that it
was VA policy that there was no such thing as Gulf War Syndrome. It came
from the central VA in Washington. I was told [that] by Dr. Dean Norman,
who was the head of the hospital. I told him I didn't know that disease
had anything to do with administrative policies. He got mad at
me. ... These are political positions. It isn't real medicine."
Baumzweiger was ousted from his job, acknowledging that some of his VA
superiors were incensed at his actions on behalf of veterans, which
included testifying in September 1996 before a House subcommittee chaired
by Rep. Shays.
"They were so mad at me," Baumzweiger said. "But I don't care. I mean,
what I was saying was true. ... There were lives at stake. And these
people really were sick. They were horribly sick. They still are."Norman
failed to return calls made to his office.
According to Baumzweiger and others, the lives of many veterans fell apart
as they suffered brain damage and other physical effects and became
increasingly nonfunctional, undergoing divorce, losing jobs, turning to
street drugs and alcohol, having accidents, being arrested, ending up in
legal troubles and even prison or psychiatric institutions.
Leisure described one veteran who was bleeding internally, his spleen so
enlarged it had to be removed. "I found him in a psychiatric ward," she
said. "No wonder he was upset. He had so many medical problems that
weren't being dealt with. They ignored his blood count and his internal
bleeding. It was pathetic."
Arvid Brown was one of the many interviewed by Freedom who was told "it's
all in your head" when he turned to the VA for help. Cooperating at every
step with VA doctors, he accepted and took the psychotropic drugs
prescribed for him, including Depakote, Prozac and Elavil. After Brown
became so disoriented that he tried to step out of an upper-story window
and a moving car, Janyce took the pills away. He was put on Pamelor, which
made him hallucinate.
"When we complained that the drugs were making him hallucinate," said
Janyce, "they upped the dose." On another visit, a VA psychologist
persisted in demanding that Brown be treated for anxiety before anything
could be done for him.
Copies of medical records in Brown's possession confirm an effort by VA
doctors from the outset to label his symptoms "anxiety attacks"or
"post-traumatic stress syndrome" -- in other words, psychological in
nature -- and to pressure him into taking psychiatric drugs.
Brown alleged that the VA lost some of his records and falsified
others. And he was told that neither he, his wife nor his two children --
born after his Gulf service with serious birth defects -- would receive any
treatment until he and his wife submitted to psychiatric examinations.
Arvid received chemotherapy treatments at a civilian hospital and continues
to take antibiotics. Both he and Janyce believe their family's multiple
health problems stem from Arvid's exposure to chemical and biological
weapons and other toxins.
--------------------------
"What Were They Doing with These Insect Cages?"
Katherine Murray Leisure, M.D., worked at a VA medical facility in Lebanon,
Pennsylvania, and personally examined hundreds of Gulf War veterans. There
she observed an epidemic and listed symptoms that seemed common to all. Her
primary concern is the high rate of veterans who were burdened with
leishmaniasis. By her estimate, "onethird to one-half of seriously ailing
Gulf War veterans with 'unexplained illnesses' and the ... Desert Syndrome
we saw in the 1990s had one of several forms of leishmaniasis."16
Leisure,
a Harvard Medical School graduate and board-certified specialist in
internal medicine and infectious diseases, assembled a grant request to
study Gulf veterans from Pennsylvania and their spouses, as well as their
children born between 1990 and 1995. Expecting financing from Congress to
dig into leishmaniasis as she had proposed, she instead saw the VA redirect
the money to examine effects of Agent Orange in Vietnam veterans and their
children — a worthwhile purpose, but yet another case of Gulf veterans'
problems taking a back seat.
Others share Leisure's concern about leishmaniasis. "There are so many Gulf
War veterans that have this. It seems to be some aberrant form," said
Joyce Riley.
According to sources, leishmaniasis is far more prevalent among Gulf
veterans than has been admitted by the Defense Department — something
Riley said she confirmed in a conversation with one of the department's own
doctors.
Although it cannot yet be proven that Saddam's forces spread
disease-bearing sand flies in the path of advancing allied forces, the
possibility exists. According to Kirt Love, director of the Desert Storm
Battle Registry and a Gulf War veteran, such a biowarfare action "is not
out of the question at all."
In the 1950s, the U.S. Army demonstrated that insects could be bred and
spread on a massive scale when it released 600,000 Aedes aegypti mosquitoes
— the type capable of carrying yellow fever and dengue fever — at one
site in Florida, and more in Savannah, Georgia. The Army estimated in 1960
that it could produce 130 million mosquitoes a month.17
In 1998, Dr. Diane Seaman, a microbiologist who headed a United Nations
Special Commission team that inspected possible Iraqi biowarfare sites,
told the BBC, "We saw insect cages. What were they doing with these insect
cages? Insects can be used as vectors of disease, a means of transmitting
disease."18
----------------------------------------------------------------------------------
Comment:
In another movie about Gulf War Syndrome, note the interesting "skin rash" in
www.youtube.com/watch?v=KhZs1pfPkJI at 4'30''
doesn't look like leishmaniasis, looks like morgellons.
meanwhile... "Others share Leisure's concern about leishmaniasis. "There are so many Gulf
War veterans that have this. It seems to be some aberrant form," said
Joyce Riley."
What I'm getting at is that the timeline for the rise of morgellons is coincident w/ the timeline for gulf-war vets returning into society and spreading this disease as a result of bioweapons use against coalition forces. Certainly a rise in autism rates has been linked to this: www.immed.org/illness/gulfwar_illness_research.html...
In a blog entry, I used the timeline against another "fact" , but let's consider the "rise" of morgellons versus the end of the gulf war, and versus Saddam's use of bioweapons against Coalition forces as well as his own people in the subsequent years:
# 1995 - Approximate date that NPA started recording cases of "an
increasing number of individuals reporting lice or scabies but
describing symptoms inconsistent with either of these parasites."
# 1998, Dec - Oldest archived version of the NUSPA web site.
# 1999, Feb -Postings on parasite mailing list mention parasites that look like "lint" and "hairs". (Posts byJules and Curtis W. King.)
# 1999, Oct - Posting on "Elliot's Disease", mentions involvement with the NPA.
# 2000, Feb - NPA has a "Reporting Registry" for Elliot's Disease (or: "undetermined pathogens which may mimic lice and scabies")
# 2001, Summer, Mary Leitao finds fibers on her son's skin. She finds a "Scabies Forum" on the internet where people are discussing finding fibers.
# 2001, Nov - Neuro-cutaneous Syndrome (NCS): A New Disorder, published by Omar M. Amin in Discover Magazine.
# 2002, March - Morgellons.com and Morgellons.org domain names registered.
# 2002, July - Posting by Mary Leitao on medhelp.org mentions morgellons.org
# 2003, Jun - The Morgellons Foundation, first recorded web site on archive.org.
--
Niels
nielsmayer.com
Here is an email from Niels Mayer who is a very intelligent and well versed advocate for Lyme, Morgs and for many sufferers. Below is his article and above is my answer to him.
Trisha
Dear Niels,
It is always great to hear from you and recieve your words of wisdom and research.
I have been working with my Congresswoman Ginny Brown Waite who is very, vocal
in regard to Morgellons with the CDC, she is a huge advocate for Veterans rights and through her fight has opened up more care in Florida for the rights of Veterans.
I have been backing off somewhat here in order to figure out what the next step is needed
in order to move forward. There is much work to be done and it requires that I also maintain
a life of my own in order to move forward.
The more I find out the more I am seeing so many vector borne diseases, people with Bird Mites are exhibiting some of the same symptoms as GWI, they have insects in their homes, skin and many are seeing fibers and as they worsen the brain fog and same manifestations of Lyme and Morgellons etc. The interesting thing I am finding out with the
persons with Bird Mites, is that they are feeling the very same biting sensations as Morgellons often do, except the mites are clear and are much like noseums. When they are bit it apperars the mites inject something into their skin and they end up with the rashes, ulcerations ect.and these mites are reaking havoc on all the sufferers lives. There is absolutely NO PESTICIDE that are ridding these peoples living areas of this,
Many of these people do not own birds but when the birds nest the mites seem to be in the nest and some on the birds. These mites are reaking havoc on the affected peoples environments and now they are being called delusional. I was contacted by a man who was hit on the face by a dead bird and within 2 weeks he had ulcerations all over his body.
I am also in communication with Marcie Haskall Clark who is the head of a website advocating for the treatment and research for Leshmaniasis here in Florida. These guys are coming back in droves with this, it is rampant in hospitals and people are DYING from it.
I have forwarded this to Ginny and Marcie and some others who may be interested.
Marcies email is junglem@yahoo.com .
I am here, still fighting the fight but lying low for a while and trying to get up funding for a formal study.
Thank You my Friend for keeping us informed and I pray for the health and wellness for you and yours.
Your Friend,
Trisha Springstead RN
--- On Thu, 10/30/08, Niels Mayer <nielsmayer@gmail.com> wrote:
From: Niels Mayer <nielsmayer@gmail.com>
Subject: Sound Familiar? Why same denialism/cruelty for Gulf War Syndrome as Morgellons??
To: "morgellons" <Morgellons@yahoogroups.com>, advocacy@morgellons.org, morgellons@okstate.edu
Date: Thursday, October 30, 2008, 12:41 PM
Re: www.immed.org/GulfWarIllness/publications/ILLwind.pdf
does this scenario sound familiar??
.................................
Mind Games
Problems escalated as vets fell into the clutches of the psychiatric
industry. As is a routine failing in psychiatric diagnosis, proper and
full physical examinations were either not done or their results ignored.
Tests were performed that added confusion, their results failing to
describe any specific illness because the veterans had such a panoply of
symptoms.
According to William Baumzweiger, M.D., Gulf veterans he examined while
working at the VA from 1993 to 1997 exhibited conflicting and mutually
exclusive symptoms.
"Nobody asked how come they were showing so many contrary manifestations
all at once,"he said. VA psychiatrists and other doctors, he said, "threw
every diagnosis in the book at them, rather than get to the bottom of the
problem," adding that he believes that practice continues.
As a trained neurologist, he said, "I knew this didn't fit, and I said so
from 1994 on. I was told when at the VA center in West Los Angeles that it
was VA policy that there was no such thing as Gulf War Syndrome. It came
from the central VA in Washington. I was told [that] by Dr. Dean Norman,
who was the head of the hospital. I told him I didn't know that disease
had anything to do with administrative policies. He got mad at
me. ... These are political positions. It isn't real medicine."
Baumzweiger was ousted from his job, acknowledging that some of his VA
superiors were incensed at his actions on behalf of veterans, which
included testifying in September 1996 before a House subcommittee chaired
by Rep. Shays.
"They were so mad at me," Baumzweiger said. "But I don't care. I mean,
what I was saying was true. ... There were lives at stake. And these
people really were sick. They were horribly sick. They still are."Norman
failed to return calls made to his office.
According to Baumzweiger and others, the lives of many veterans fell apart
as they suffered brain damage and other physical effects and became
increasingly nonfunctional, undergoing divorce, losing jobs, turning to
street drugs and alcohol, having accidents, being arrested, ending up in
legal troubles and even prison or psychiatric institutions.
Leisure described one veteran who was bleeding internally, his spleen so
enlarged it had to be removed. "I found him in a psychiatric ward," she
said. "No wonder he was upset. He had so many medical problems that
weren't being dealt with. They ignored his blood count and his internal
bleeding. It was pathetic."
Arvid Brown was one of the many interviewed by Freedom who was told "it's
all in your head" when he turned to the VA for help. Cooperating at every
step with VA doctors, he accepted and took the psychotropic drugs
prescribed for him, including Depakote, Prozac and Elavil. After Brown
became so disoriented that he tried to step out of an upper-story window
and a moving car, Janyce took the pills away. He was put on Pamelor, which
made him hallucinate.
"When we complained that the drugs were making him hallucinate," said
Janyce, "they upped the dose." On another visit, a VA psychologist
persisted in demanding that Brown be treated for anxiety before anything
could be done for him.
Copies of medical records in Brown's possession confirm an effort by VA
doctors from the outset to label his symptoms "anxiety attacks"or
"post-traumatic stress syndrome" -- in other words, psychological in
nature -- and to pressure him into taking psychiatric drugs.
Brown alleged that the VA lost some of his records and falsified
others. And he was told that neither he, his wife nor his two children --
born after his Gulf service with serious birth defects -- would receive any
treatment until he and his wife submitted to psychiatric examinations.
Arvid received chemotherapy treatments at a civilian hospital and continues
to take antibiotics. Both he and Janyce believe their family's multiple
health problems stem from Arvid's exposure to chemical and biological
weapons and other toxins.
--------------------------
"What Were They Doing with These Insect Cages?"
Katherine Murray Leisure, M.D., worked at a VA medical facility in Lebanon,
Pennsylvania, and personally examined hundreds of Gulf War veterans. There
she observed an epidemic and listed symptoms that seemed common to all. Her
primary concern is the high rate of veterans who were burdened with
leishmaniasis. By her estimate, "onethird to one-half of seriously ailing
Gulf War veterans with 'unexplained illnesses' and the ... Desert Syndrome
we saw in the 1990s had one of several forms of leishmaniasis."16
Leisure,
a Harvard Medical School graduate and board-certified specialist in
internal medicine and infectious diseases, assembled a grant request to
study Gulf veterans from Pennsylvania and their spouses, as well as their
children born between 1990 and 1995. Expecting financing from Congress to
dig into leishmaniasis as she had proposed, she instead saw the VA redirect
the money to examine effects of Agent Orange in Vietnam veterans and their
children — a worthwhile purpose, but yet another case of Gulf veterans'
problems taking a back seat.
Others share Leisure's concern about leishmaniasis. "There are so many Gulf
War veterans that have this. It seems to be some aberrant form," said
Joyce Riley.
According to sources, leishmaniasis is far more prevalent among Gulf
veterans than has been admitted by the Defense Department — something
Riley said she confirmed in a conversation with one of the department's own
doctors.
Although it cannot yet be proven that Saddam's forces spread
disease-bearing sand flies in the path of advancing allied forces, the
possibility exists. According to Kirt Love, director of the Desert Storm
Battle Registry and a Gulf War veteran, such a biowarfare action "is not
out of the question at all."
In the 1950s, the U.S. Army demonstrated that insects could be bred and
spread on a massive scale when it released 600,000 Aedes aegypti mosquitoes
— the type capable of carrying yellow fever and dengue fever — at one
site in Florida, and more in Savannah, Georgia. The Army estimated in 1960
that it could produce 130 million mosquitoes a month.17
In 1998, Dr. Diane Seaman, a microbiologist who headed a United Nations
Special Commission team that inspected possible Iraqi biowarfare sites,
told the BBC, "We saw insect cages. What were they doing with these insect
cages? Insects can be used as vectors of disease, a means of transmitting
disease."18
----------------------------------------------------------------------------------
Comment:
In another movie about Gulf War Syndrome, note the interesting "skin rash" in
www.youtube.com/watch?v=KhZs1pfPkJI at 4'30''
doesn't look like leishmaniasis, looks like morgellons.
meanwhile... "Others share Leisure's concern about leishmaniasis. "There are so many Gulf
War veterans that have this. It seems to be some aberrant form," said
Joyce Riley."
What I'm getting at is that the timeline for the rise of morgellons is coincident w/ the timeline for gulf-war vets returning into society and spreading this disease as a result of bioweapons use against coalition forces. Certainly a rise in autism rates has been linked to this: www.immed.org/illness/gulfwar_illness_research.html...
In a blog entry, I used the timeline against another "fact" , but let's consider the "rise" of morgellons versus the end of the gulf war, and versus Saddam's use of bioweapons against Coalition forces as well as his own people in the subsequent years:
# 1995 - Approximate date that NPA started recording cases of "an
increasing number of individuals reporting lice or scabies but
describing symptoms inconsistent with either of these parasites."
# 1998, Dec - Oldest archived version of the NUSPA web site.
# 1999, Feb -Postings on parasite mailing list mention parasites that look like "lint" and "hairs". (Posts byJules and Curtis W. King.)
# 1999, Oct - Posting on "Elliot's Disease", mentions involvement with the NPA.
# 2000, Feb - NPA has a "Reporting Registry" for Elliot's Disease (or: "undetermined pathogens which may mimic lice and scabies")
# 2001, Summer, Mary Leitao finds fibers on her son's skin. She finds a "Scabies Forum" on the internet where people are discussing finding fibers.
# 2001, Nov - Neuro-cutaneous Syndrome (NCS): A New Disorder, published by Omar M. Amin in Discover Magazine.
# 2002, March - Morgellons.com and Morgellons.org domain names registered.
# 2002, July - Posting by Mary Leitao on medhelp.org mentions morgellons.org
# 2003, Jun - The Morgellons Foundation, first recorded web site on archive.org.
--
Niels
nielsmayer.com