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Post by gradysghostii on Dec 11, 2008 10:06:18 GMT -5
This stuff is killing me folks, I'm becoming disabled. The fibromyalgia is killing me, pain in my head, back, chest, arms everywhere, fatigue, just ache'ness, what can I do to make this go away? Does anyone else suffer with soreness, fatigue, shortness of breath and such ... ? I've had tons of heart tests, found nothing, but the pain is just dragging me down. I'm able to hold my job down but just barely, my wife is worried to no end.
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Post by toni on Dec 11, 2008 10:44:05 GMT -5
Gosh Grady, that's terrible, I'm sorry to hear this too. MSM "might" be a good supplement to take, ( it's not MMS ) which the two can be mixed up easily. Lack of enzymes in the body occur because of Fibromyalgia (sulfur) ...but read about this. Which is why this MSM "may" help. Lot's of people with fibromyalgia pain have reported improvement by taking MSM. It works synergistically with free form amino acids and is most beneficial when they are taken together. www.articlesbase.com/supplements-and-vitamins-articles/fibromyalgia-amino-acids-msm-and-enzymes-149096.html
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Post by jj on Dec 11, 2008 11:31:02 GMT -5
Grady,
Sorry your in so much pain. Can you share what all you are doing and taking? Are you going through a detox process? Have you concidered accupunture? Do you have access to a far infrared sauna?
JJ
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Post by silverangel on Dec 11, 2008 12:20:09 GMT -5
grady,
i have read about people having good results with msm and dmso combined for fibromyalgia. i don't know too much about it, you'll have to do your own research.
have u ever had your thyroid levels checked?
r u diabetic?
have u ever considered seeing a naturopath? they will be able to do a biofeedback screening to find out exactly what is wrong with u. unfortunately, u will have to pay out of your own pocket, insurance won't cover "alternative treatment".
gentle hugs, silverangel
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Post by silverangel on Dec 11, 2008 12:24:42 GMT -5
also, grady,
silver will boost your immune system. it will also kill off any pathogens, mold, fungus, parasites, that might be lurking around in your body, exacerbating your problems.
jmho, silverangel
(disclaimer, i do not sell, endorse or advertise silver or any other products, LOL)
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Post by felixwillford on Dec 11, 2008 12:58:54 GMT -5
Grady, likewise this is just terrible that you feel so bad. We are all too young to be "aging" so fast.
I take an aspirin everyday and that seems to help with inflammation and somewhat cuts down on the pain.
You will certainly be in my prayers.
I am going to start Cat's claw for Lyme and hopefully as it kills the spirochette, I am hoping some of the aches and pains will go away.
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Post by felixwillford on Dec 11, 2008 13:31:47 GMT -5
Dr. Oz on "the view" just recommended RIBOSE? Never heard of that before.
I never realized it but, Dr. Oz talks so fast. I mean so so so fast like he is in a rush or something. Or maybe he is just "EXCITED" all the time?
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Post by gradysghostii on Dec 11, 2008 13:32:40 GMT -5
Thankyou all very much for you ideas, I will incorporate some of them. I have done the tread mill, and echo-cardio gram, the the MRI that checks for calcium deposits in your heart, all checkout okay. I have Costcochondritis (so they say) but the pain feels so much like it's in my heart, and I do get winded, but they say you subcontiously hold your breath because exhaling is painful (and it is). My doctor said I can do the "nuke" test where you walk on the tread mill will a nuclear drip in so they can see you viens and stuff, what do you guys think, would you do that? I know you're not doctors just need advice ...
Also, have any of you ever taken L-Arginine?
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Post by toni on Dec 11, 2008 14:30:33 GMT -5
Just took a pic of my L-Arginine. I take it, but I don't know if it's helped or not. I think it helps the body rid "ammonia"?
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Post by mfromcanada on Dec 11, 2008 18:21:39 GMT -5
GradysGhostII, the gave me the fibromyalgia diagnosis for the pain symptom too. It is my belief that its all from Morgellons. Can't say its going to get better though. I am on tylenol #3 now. My bad pain started in the year 2000 and yes I am disabled by pain. I hope you get relief and that it doesn't disable you, but if I were you I would start putting everything in a binder because it takes a long time to get disability and you must prove it.
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Post by felixwillford on Dec 11, 2008 21:26:43 GMT -5
mfromcanada,
Do you think the chronic pain part might be from the Lyme? Just my feeling is that Morgellons is more of a horrible skin symptom of the more chronic long term illness of Lyme.
The reason I say this is because in those Morgellons publications, it is stated that 94% of morgellons people test positive for Lyme. Given that the blood test for Lyme disease is NOT 100 percent effective in detecting Lyme, it might be all 100% would have tested POSITIVE if the blood test was better at detecting Lyme.
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Post by Carrie♥ on Dec 11, 2008 21:55:50 GMT -5
That's the only symptom I've got anymore. I'm even coming out of the "CFS" that wasn't really severe CFS but damn if it didn't feel like it sometimes. I've been zapping more, as often as possible and notice I don't quite have as much pain. That is a brutal reality for me and this disease, the after effects of the bizarre onset that is a scary, debilitating reality that I've had to fight hard to over come. If the momma pillar crashes, the whole house comes down. I don't have a choice, which has in turn been a good thing 'cause I've had to get over Morgs and get on with life. I'm sorry you're going through that Grady...I think that's totally bacterial related. Don't you take oregano oil?
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Post by ctbarb on Dec 11, 2008 23:19:22 GMT -5
Dear Grady,
I have fibromyalgia (at least that's what the rheumatologist said) and I was on Remicade for 2 years...I have the severe muscle pain, cramping and pain around my thoracic area so bad sometimes, that I thought I was having a heart attack. How high is your blood pressure? Mine is so low, even with the pain, 90/54 this AM, that I can hardly feel my heart beating. Even the pulse rate was only 77. Do you get severe chills, so much so that your teeth chatter? Does it take you a long while to get warm again if this happens? Just before I am about to have a siege of dispelling organisms, this happens to me. My abdomen will swell 4-6" in a matter of minutes and be painful. Also, the right upper quadrant is more tender than usual. Any of these symptoms sound familiar?
I have found nothing that rids me of this pain...when it gets so bad, I will resort to oxycodone (prescribed), but only when I just can't stand it another second! Nothing seems to work, and most times the oxy doesn't do much except take the edge off the pain, but it's still there.
I'm sorry that I'm not much help here...I truly do know how you're feeling...I'm there with you. Stress will make my pain worse, and so will lack of sleep. Please try to relax if you can, I know, easier said than done.
Please hang in there Grady, we will win this miserable battle!
Hugs to you,
ctbarb
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Post by sammy on Dec 12, 2008 1:56:11 GMT -5
What works the best is a muscle relaxer such as Lortab or naprosyn. For a woman, even midol works really well. The darts are into nerve endings & cause the pain & the parasites into the muscle tissue also causes a lot of pain. If you use Motrin it must be 800 MG. Inflamation also needs to be kept in check.
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Post by bannanny on Dec 12, 2008 4:55:12 GMT -5
I was diagnosed with fibro too (years before I got morgs) and can't even remember now what they had me on for that. But morgs will cause everything you're feeling too Grady....... I think anyway. Right now it's causing me to wanna give up....... it's become incredibly overwhelming in just the past 2 weeks.
Have you ever used damp heat for your muscle and joint pain? You can buy a hydrocolator at any medical supply store....... they work really well cuz the heat goes all the way down to the muscles unlike a heating pad which only actually heats the skin. Hope you get to feelin better.......
love ya's ~~ bannanny
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Post by ANTHILL on Dec 12, 2008 8:37:32 GMT -5
Hey Grady My sister suffered from fibromyalgia really bad and was in a bad way she went to all sorts of doctors who mostly had there heads up their you know whatie's --This was back when fibromyalgia was not recognized by the medical community so much "sounds familiar don't it" Anyway I had a friend that had fibromyalgia and I new that my sis had beat it so I told that friend that I would ask my sis what she did to beat the fibromyalgia I was blown away by my sisters answer when I ask her She had taken an over the counter medication called Guaifenesin better known as Mucinex and avoided salicylates I think she said the avoidance of salicylates was essentail for the Guaifenesin Protocol to work I could not believe that as bad as she was that all it took for her to get better was a over the counter decongestant anyway here is the website my sis gave me to give to my friend hope it might be of some help to you The Guaifenesin Protocol www.fibromyalgiatreatment.com/GuaiProtocol.htmsalicylate FAQ_ www.fibromyalgiatreatment.com/FAQ_salicylate.html
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Post by Carrie♥ on Dec 12, 2008 12:24:38 GMT -5
Yeah yeah Daryl you had a friend name Carrie that you asked your sister about! Ha...you're so funny. Didn't she also remove all her mouth metals?
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Post by jj on Dec 12, 2008 12:42:31 GMT -5
Our pain & fatigue is no doubt 'two' of the most 'life' inhibiting symptoms we have to deal with. It's obviously one of the most confusing for docs to put a finger on (to say it mildly). We all fall somewhere within a bell curve as far as the degree of pain or fatigue we experience. RSD being the most extreme on the curve for pain. An interesting discussion took place between two authorities in different areas. The MD strongly feels 'something' is interfering with how the body feels or transmits 'the feeling' of pain. In the case of RSD this transmission is extremely disrupted therefore they FEEL MORE. I tend to agree with this. I also thing this may be where some of the crawling sensations come into the picture as well Good site explaining pain & how you feel it. Pain & How You Sense Itwww.mydr.com.au/pain/pain-and-how-you-sense-itOne roadblock in this area is the approach termed Psychogenic pain. Disregarding other approaches and letting a diagnosis 'fall' in this realm is ................... inhibitive in the least and more than likely will cause more 'problems' resulting in and causing a psychological LABELED response. Their basically making an infertile chicken lay eggs when before the psychobabble they would not have. Does that make sense? "Psychogenic pain. This type of pain is caused or worsened by psychological factors. Often the pain has a physical cause, but the degree of pain and disability are out of proportion to what would be experienced by most people with a similar disorder. This does not mean that the pain is not real, even if a physical cause cannot be found. Any kind of pain can be complicated by psychological factors."In all honesty, personally I see how one can drown in it all and themselves exasperate the pain they feel. But this should be viewed and approached differently and NOT BE LABELED. I myself am lucky in the pain area I guess. Fatigue is an issue but not to an extreme. My body clearly does not 'transmit' the way it used too or should because I become fatigued much easier but have found that I can pinpoint, monitor and push past it (so to speak) to a more manageable level. Starting a workout schedule was hell with major fatigue and some pain. If choosing to wimp out and say "I can't deal with this" and giving in to the fatigue I have to start all over again. But sticking to it and pushing past it I can become so much stronger and resilient. Therefore less fatigue and less pain and a stronger healthier body. Here's how I think the transmission thing is screwed up in my case. If I push my self TO HARD and don't work gradually up to it I do get extremely fatigued and feel like I have the flu. Same thing happens if getting OVER emotional or stressed .......... exactly the same. But, if I monitor stress, extreme emotion and exercise, keep working out and slowly increase exercise I FEEL GREAT. Diet is important too. Sorry about all the babble but in a nutshell; I think we all are capable of working past alot of this at our own levels and see incredible results. We have to gently shock the body into repair and get it past those difficult times so it is more able to repair itself and become a more balanced, strong, healthy body more able to fight off .......... invaders. JJ
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Post by mfromcanada on Dec 12, 2008 14:35:07 GMT -5
kmarie and all,
I first became ill with chronic fatigue and a rash which was misdiagnosed as lichen planus ,from a mosquitoe bite at Emerald Lake in Saskatchewan, Canada in the early 80's. At the time they never even believed there could be lyme disease in Saskatchewan due to the severe cold in the winters.
I became seriously ill , but not disabled, in the mid 90s when neurological, sleep problems began.
Then I became disabled by Morgellons, it started in late 1999 and early 2000 when I was walking to work with chemtrail rain falling on my head for months at a time. This was in Victoria, BC. I was tested for lyme disease, just the old test, here in BC, Canada where they do have lyme disease, however this test was done in around 2002. It came back negative.
Rather, I believe that Lyme disease, like Morgellons, what created in some mad scientists' laboratory and injected into insects. I don't know why they let the insects escape, but I believe they did. One of those insects was the mosquitoe that bit me. The other insect was the tick that bit you. All and all, I guess I don't think there is much difference. We are all victims of someones experiment and I never agreed to be a test subject, I never got pain to be one either, I never agreed to lose my life, for science....
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Post by belindadillon1 on Dec 12, 2008 19:28:22 GMT -5
Grady, Have you tried guafenesian 400mg (mucinex)? It takes lactic acid out of the muscles, it helps me tolerate all the aches in joints ,cartilage, and muscle. I know exactly how you feel. I don't have any energy either. Fortunately, I don't have a rash or lesions. I have been taking a mixture of muscle relaxants, mucinex, narcotics and ibuprofen...Sounds terrible, I know. Don't know what else to do...and get this..no drowsiness. fatigue...
Belinda
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