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Post by ibzahp on Feb 23, 2009 17:50:41 GMT -5
what is helping people to combat the terrible fatigue and brain fog? Wondering what is helping others to increase stamina. The weakness and fatigue are really socking it to me!
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Post by mfromcanada on Feb 23, 2009 18:39:42 GMT -5
Miracle Mineral Supplement really helps with both of those symptoms. I used to use liquid magnesium but the MMS is much better. You will notice your mind clearer right away and it helps with fatigue of the muscles...
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Post by robertalouise26 on Feb 23, 2009 20:27:41 GMT -5
Dear girl I wish that I had a awnser to this also as with the rheumatoid arthritis I am so tired and apart from my hands and arms my legs are playing up. They are very heavy like lead and in the middle of the night they have waking me up with a lot of pain. I use Voltaren gel lotion and rub it into the skin and it does help. But if this continues I won't be able to walk my dog anymore. Which worries me. I most sincerely believe that this rheumatoid athritis is connected to Morgellons. Love and best wishes. Roberta. I apologise for any typing errors.
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Post by ibzahp on Feb 23, 2009 21:19:10 GMT -5
Roberta I think you are probably right about the connection of the rheumatoid arthritis and morgellons. Morgellons imo amplifies other health conditions and it sure makes me tired as poop.
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Post by fritolay66 on Feb 24, 2009 9:08:05 GMT -5
When working with HS in California, she had me with this combo. Just a year ago, I could not function at all, 17 hours a day of sleep was not enough and I was seriously worried I was narcoleptic.
B vitamins seperately, instead of the B complex. Esp. B2, B6, B12, B15, B51. I am having some memory problems so I know there is a couple I left out. Bessie would know.
Acetyl-Carnitine, Cysteine, Lysine, 2x/day@500 each, fatigue Taurine for 1 week, many uses Lecithin, I use Egg due to the GMO's, 3x/day@1200 for brain fog COQ10, many uses including fatigue Bilberry for eye trouble
Other things known to help with fatigue could include: Boneset Lugol's instead of kelp Siberian Ginseng Sea Salt for Adrenal fatigue issues Glucosomine and Chondrotin for joints and arthritic pain
I have never tried the boneset but I think Ms. Toni Sue has. Hope this helps somewhat.
Frito
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Post by toni on Feb 24, 2009 10:24:55 GMT -5
B-Complex is great with added B-12. One of the supplements that's most consistently recommended by doctors, researchers and patients is vitamin B, and especially vitamin B12. B vitamins are essential for energy production, and some research shows that the majority of people with FMS & ME/CFS are low in B12. tinyurl.com/dmmnby
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Post by ibzahp on Feb 24, 2009 13:34:24 GMT -5
yes this does help and I take some biotin as well
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Post by ibzahp on Feb 24, 2009 13:39:59 GMT -5
Frito, what is Lugols?
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Post by mfromcanada on Feb 24, 2009 13:55:32 GMT -5
I have been tested for rheumatoid arthritis and it was negative. I personally have zero inflamation. I can't say that morgellons is related to this in any way. Perhaps it effects some people differently than others.
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Post by fritolay66 on Feb 24, 2009 17:07:38 GMT -5
Ibz, Lugol's is a liquid iodine that comes in 2.5 or 5% and is another option to replace kelp. tinyurl.com/2z5bxfThis place also has some great herbs and stuff. Check it out. Frito
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Post by ibzahp on Feb 24, 2009 17:51:21 GMT -5
cool, they do have some nice herbs. I was taking this supplement W/msn and algae in it that helped but I quit because i sense algae and spirulina could aggravate the biofilm problem.
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Post by ANTHILL on Feb 24, 2009 23:29:28 GMT -5
Hi when I am feeling run down I put some salt some vinigar and 6 drops of 2% Iodine in a glass of water about once a week it peps me up strait away I was dignosed by a doctor as havin hyper thyriod and was prescribed sinthroid ---The Iodine gives me the same kind of boost as the sinthroid did when I was taking it I get my Iodine from Jcrows also some info on Iodine scroll down past the bottles www.jcrows.com/iodine.html
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Post by ibzahp on Feb 25, 2009 0:08:56 GMT -5
funny Ant -I think you mean hypothyroid, I was diagnosed with it and prescribed the same stuff. I wonder how many people had hypothyroidism pre-morgellons? It could be a factor in aquiring this monster?
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Post by ANTHILL on Feb 25, 2009 0:24:11 GMT -5
funny Ant -I think you mean hypothyroid, I was diagnosed with it and prescribed the same stuff. I wonder how many people had hypothyroidism pre-morgellons? It could be a factor in aquiring this monster? Ya' thats what I mean darn my spelling skills they just suck somtimes ---Thats a vary interesting question your posing I wonder that too?
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Post by fritolay66 on Feb 25, 2009 9:04:37 GMT -5
Ooo..yes. The salt, vinegar, and iodine. I forgot to say something about that. Ant, I take it everyday...?? I use the 5% Lugols, and ibz, if you or anyone else do order the 5%, you can only purchase one at a time. The 2.5%, there is no limit. I don't find the limit to be "limiting", because the 5% bottle lasts quite a long time.
I don't know if it could be a factor in acquiring so much as a result there of. I do know, those with chronic systemic infections affect the immune system and it switches through differing phases of immune response. I had someone explain it to me a long time ago, the adrenals and thyroid are like the third tier of the immune system. During a chronic systemic infection, your immune system attacks it and the longer it fights, moves through these tiers. So a long term infection would eventually affect the adrenals resulting in adrenal fatigue and thyroid resulting in abnormal thyroid hormones. One of the things I have been noticing about some of us is the depletion of testosterone. Although androgenic, everybody uses testosterone to synthesize hormones, one of those being thyroid.
Hope this helps.....Frito
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billie
Junior Member
Posts: 98
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Post by billie on Feb 25, 2009 20:58:42 GMT -5
I HAD THYROID PROBLEMS FOR YEARS AND THEN SUDDENLY II HAD CANCER OF THYROID. I HAD TO GET IT OUT AND GET TREATMENT AND STILL GET TESTS EVERY 6 MONTHS. MAYBE THYROID DOES HAVE TO DO WITH MORGELLONS, OR MORGELLONS JUST EATS AT ALL OF OUR ORGANS.
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Post by fritolay66 on Feb 26, 2009 9:14:07 GMT -5
Also, testosterone is a precursor for us females to synthesize estrogen. An enzyme called aromatase converts testosterone produced in the ovary to estradiol, one of the most potent endogenous forms of estrogen. This is part of the basis of the HRT that was so big in the eighties and early nineties before the correlation to breast cancer hit. This conversion takes place in the adrenals!! Good thyroid hormone activity is necessary for testicular steroid hormone production - e.g. testosterone production. Low thyroid hormone activity often results in insulin resistance and insulin resistance is another factor that reduces testosterone production. It interferes with LH production. The bests tests for available thyroid hormone activity are: Free T3, Free T4, and TSH. The free T3 is the most important of the three since it measures the most active thyroid hormone. T3 is about 4 to 10 times more active than T4. It is what the brain measures to determine how much TSH to release. The body uses T4 to make T3, and I have heard from a few Lymies, that their T3 levels had to be supplemented by compounding pharmacies. There seems to be some process in which the body "forgets" how to make T3 from T4 in the Lyme disease process. I do not have a specific reference, this is just from talking with some fellow sufferer's within the community. The effects are then similar to Wilson's Disease. See the following link for more information on Wilson's Disease. www.wilsonsdisease.org/content.asp@CAT_ID=14.htmlSynthroid (T4) is not as effective in treating hypothyroidism as a combination of T4 and T3 such as Armour Thyroid. In studies comparing T4 versus T4+T3, patients strongly preferred T4+T3 even if there were no difference in the lab levels. They simply felt better. Armour Thyroid is safer to use versus the available T4+T3 combinations since the thyroid hormone in Armour Thyroid is bound to thyroid binding globulin, and is then slowly released into the body when it is absorbed. Thus Armour Thyroid is a long-acting version of thyroid hormone. This is in contrast to the other T4+T3 combinations or T3 (Cytomel) itself. The problem is the sudden rise in T3 from these has a higher risk of causing problems including cardiac arrhythmias. I would then also assume that lack of T3 levels may also do the same. It is technically more difficult and requires closer physician monitoring to use other T4+T3 combinations and T3 in treating hypothyroidism. A good starting point is that a person may often show signs and symptoms of hypothyroidism when the free T3 is less than 310 pg/dL. More important than blood levels of thyroid hormone is whether or not there are still signs and symptoms of hypothyroidism with treatment. There are a large number of people with normal thyroid hormone levels (normal free T3, free T4, TSH), yet who still have signs and symptoms of hypothyroidism. These people have thyroid hormone resistance and need extra thyroid hormone treatment. Hope this helps explain the connection.....Frito
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