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Post by overandover on Jun 30, 2009 20:40:53 GMT -5
I posted a few pictures on the Picture Board here at Lymebusters, I had posted one on the Morgellons at last at CDC site thread last night.
I thought I'd better use the Picture Board because of space. Please go have a look, I was so shocked to have so many come out of my hair because I don't even feel movement there anymore.
I also have several lesions on my head after my hair came out.
I hope I'm killing this off and not making them angry.
I love you all, Goodnight, xoxoxo Suebe
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Post by bannanny on Jun 30, 2009 21:41:40 GMT -5
I'll go look... you're so brave suebe. You won't use any space up here tho sweetie. That's what we're here for and we'll always have more than enough space for you.
I love you ~~ bannanny
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lamb
Junior Member
Posts: 63
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Post by lamb on Jun 30, 2009 22:06:06 GMT -5
WOW! I knew those little b**turds were in the mix! You are a brave and amazing woman, God Bless you and keep you safe. The Good Lord will hear from me tonight, I can assure you. Sleep well.
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Post by bannanny on Jun 30, 2009 22:13:50 GMT -5
I guess it must be my computer since I'm having problems with it, but I couldn't see most of the pics. What I did see tho was incredible. I'm praying that the chemo is ridding them and your cancer from your body forever suebe.
I love you ~~ bannanny
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Post by toni on Jul 1, 2009 7:34:11 GMT -5
Suebe,
You sure are brave and strong! And I'm so glad those suckers let go of you. (it looks like those critters got what they deserve)
I'm sure praying too for you, and that you'll get completely better.
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Post by justhanginin on Jul 1, 2009 8:04:18 GMT -5
I am at a loss for words, Suebe. The fact that it is taking chemo and radiation to finally rid your body of these beasts is truly frightening, but at least they have finally gotten what they deserve.
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Post by Jill on Jul 1, 2009 10:00:43 GMT -5
Suebe, thank you for posting the photos- and my prayers for your complete recovery!
Jill
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Post by imblownaway on Jul 1, 2009 11:03:11 GMT -5
Whooooa Suebee I must have missed a thread here somewhere! You are having chemo? Do you have cancer? OMG This is very startling. Well I am no scientist but ah.. those are definitely bugs. And please forgive the question Suebee but didn't Josh have chemo too. I have so many questions. Bless you Suebee After going through all that you found the strength and the energy to post those pictures. You are a true fighter. Your pictures are worth a million words. This should have health professionals and other researchers asking a million questions. Love and prayers your way
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Post by friskers on Jul 1, 2009 11:58:35 GMT -5
Sue im so sorry you have to go through chemo on top of having Morgs. that just sucks! Thanks for posting the pics. I still pray for you every day Love,Friskers
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Post by ruth on Jul 1, 2009 17:10:50 GMT -5
i know the horror of bugs exiting my body. i am so sorry you know this, too. i put out a variety of hymenoptera and diptera ( 2 vials full for dr. omar amin) it makes sense to me that micro insects nest within the lichen in/on my skin. it is the only explanation i am able to live with.
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Post by kiki on Jul 1, 2009 17:25:11 GMT -5
Way to go Suebe!!! Three cheers for fried morgellons! ;D
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Post by suebe on Jul 1, 2009 22:18:57 GMT -5
Thanks so much everyone, your support and strength keep me going. I hope it's the Chemo/Radiation killing these suckers, makes it worth it.
Yes Josh did have Chemo/Radiation, Josh had a Glioblastoma Brain Cancer. As most of you know he lost his Morgellons/Cancer battle Feb.17, 2006, without you I'd be 6 feet under because I so wanted to die when I lost my son. It takes every ounce of our faith to keep going with this disease, BUT I won't leave this world to join my baby boy until we find answers to this horror. Also I have a grand baby due in Dec. and I will hold that child in my arms. I'm a mean old goat and will hit it as hard as I can.
Sorry I miss letting some know I do have Small Cell Lung Cancer. I call it Morgellons'Cancer and will continue to believe there is a link. We have to find answers and we will, it will be us, we live it, we fight it, we will answer it.
I've always said WE ARE THE STRONGEST OF THE STRONG.
I love you all so much and will try harder to keep you up dated with the treatment I'm doing.
May God Bless Us All.
And may I continue to feel the peace of "frying the little b*st@rds".
Good night. Love, Suebe
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Post by mrcommonsense on Jul 2, 2009 13:26:27 GMT -5
Suebe, I sent you a PM ...
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Post by jj on Jul 2, 2009 13:50:00 GMT -5
Suebee,
Really hope you are doing well going through all you are right now. Thank you for sharing as you do so unselfishly. You are some Lady and your strength & beauty resonates.
Bless you.
JJ
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Post by Jill on Jul 2, 2009 14:04:24 GMT -5
Sue, I see a common factor in Josh's cancer you mention above and my family member's cancer ALL- Leukemia. emedicine.medscape.com/article/1156220-overview at the bottom- under 'Causes' - seems one common cause could be: An association exists between ionizing radiation and astrocytomas. I won't post about this here- but I have been doing some research that has lead me to ionizing radiation. Somehow- some way- we need to find answers. Hugs, Jill
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Post by mrcommonsense on Jul 2, 2009 14:41:14 GMT -5
Jill, I think there is also a lot of evidence linking Leukemia to fungus in fact isn't there?
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Post by Jill on Jul 2, 2009 16:39:52 GMT -5
Hi Grady,
What they tell you at The Cleveland Clinic per the book that they hand you on the topic of the particular type of cancer your loved one was diagnosed with is this:
All - Acute lymphocytic leukemia is primarily thought to be cause by:
Benzene poisoning or
Radiation
A nurse at the Clinic that I talked to on the subject told me that an entire family had been in her unit- that was the Leukemia Unit- oncology- and all 4 men were involved in a family related business. The 4 were diagnosed with ALL in the same time frame and all 4 were patients at the clinic. Her patients.
These men owned a family business- an auto repair shop and had been in business together for many years. All of a sudden, all of them get Cancer. The symptoms of ALL, unlike other cancers, come on quickly according to professionals that deal with it on a daily basis.
I was told by numerous specialists (Doctors) in the Leukemia wing of the Oncology Department that the exposure to the ALL (Leukemia) causing element would have caused the cancer in a period of 2 weeks or less.
(what changed in the above mentioned auto repair shop- for the 4 men- family- working there?- experts state there is a 2 week window- exposure to cancer for Benzene poisoning)
So I need to determine the source of this cancer.
Obviously a young person with an otherwise strong immune system would have no problem with short term exposure to either the Benzene or the Radiation. The other 'factor' here is Lyme disease- but I will put that on the back burner for now.
Because I have a friend at my previous employment who had a similar experience with 'Benzene Poisoning', I had focused on that aspect up until a month ago (MTBE/TBA/BTEX & remediation of same)
Her story was about her husbands' brother. He worked at the airport- was a cement finisher. Did patching work on the runways. He was hospitalized last summer and diagnosed with Benzene Poisoning- ie: cancer. While there, his wife befriended other families and learned that there were 3 or 4 other men there at the same time who were also diagnosed with Benzene poisoning.
That hospital is in the same city as the Clinic- so that makes about 10 people in a short time span- all diagnosed with Benzene poisoning that I am aware of. Certainly there are many others.
I have a few sources of Benzene exposure to look at- one of which is the fact that an older car was being used prior to the cancer. I've read that older vehicles cause Benzene exposure- from the dashboard. Snopes verfied that this is a possible cause. Need to find a way to gauge/test that theory (on the vehicle).
So the other option is Radiation poisoning.
Lately I've been learning there are many sources for the Radiation (poisoning). Ionizing radiation. You may have read some of the threads?
AS to the theory about Fungus as relates to Cancer- I've read the info- Dr Tullio Sinoncini of Italy and watched the videos. I don't see any mention of Leukemia specifically- just a general statement that Cancer is caused by fungus.
And while the Clinic does use some of the techniques and meds that he mentions- it's not 100 % Fungal based in theory (The Clinics' treatment approach). Also, the protocol varies greatly per the type of cancer. In fact, they administer antibiotics with various protocols so I would have to say there is an obvious bacterial presence as well.
I would say comfortably that Fungal infections exacerbate cancer. Not sure it would cause cancer, as Hulda Clark and others have stated.
But I would not discard the theory either.
I mention the 2 types of cancer and the CAUSE of both being Radiation- (ionizing radiation) being a bingo, because I believe, as many others, that this condition leads to Cancer- & it's important for us to look hard at that possibility as well as the treatment options.
We need to find the source and quit waiting on someone to say "I found it!" because that is not going to happen.
Jill
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Post by overandover on Jul 2, 2009 18:14:02 GMT -5
Jill, Sure sounds like your on the right track to me. Josh was first diagnosed at age 17, hospital lab at Suburban Hospital in Bethesda MD said it was a grade 2 Oligo/Astrocytoma. When I heard the word cancer I went into NO YOUR WRONG and had the hospital send the slides to Sloan Kettering in New York. They said it was a grade 2 with a 3 center Astrosytoma. So then I was angry and still in denial because two places saw "different". So then I had them send it to the ARMY at Walter Reed in DC. They also said it was a grade 2 with a 3 center Astrosytoma. After surgery and a 30 day radiation he was clean with no tumor left. He was in remission for 5 years, we were planning his 5th year cancer survival party when it came back with a vengeance within a month of full blown Morgellons. It was then a Glioblastoma stage 4 and then they tried the chemo. study at NIH, after 3 treatments the Morgellons crawling did stop, he stopped feeling them, however the lesions and black specks continued till he died. Even after his death he got a few new lesions on his forehead. Thats when I decided to have my baby cremated. I had to kill the fibers, bugs, all of this horror disease. I would have never put my beautiful child in the ground with this horror still using his poor body. It gives me comfort to have Josh next to me at my bedside. When I'm gone I will be cremated and we both will go to St. Croix, in the sea, our ashes forever on vacation. That thought gives me peace. But I won't leave this world until I get to hold my Dec. grandbaby and UNTIL I have answers to take to my child and the others who Morgellons has taken from us. Thanks for calling me brave for sharing you guys. Really I'm not so brave. But talking to you all and having your love and strength and a place to share what this horror had taken from my family. That makes me feel brave. I thank you all for giving me that. I love you all with all of my heart and soul. xoxox :-*Suebe
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Post by Jill on Jul 2, 2009 18:41:20 GMT -5
Hi Sue,
No one could know the heartache of cancer until they have been there with someone they love dearly. You are one brave person and I know you will hold that new Grandbaby in your arms and spoil him/her from day 1!
I truly think that we are so close on the 'answer'. It has to be radiation related. How else would/could fibers move? Bt just doesn't explain how a fiber could bore through the skin. PCBs/radiation and cloracne explains most all of the symptoms. The rest is secondary, opportunistic and/or environmental (fungus etc), IMO.
Thank you for sharing Suebe. You have one big heart. I'm hoping and praying for answers too.
Love you, Jill
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Post by bannanny on Jul 5, 2009 23:08:36 GMT -5
You give me life suebe... the strength you have inside of you fuels mine every time you speak. You're one beautiful lady and I love you A L O T! I'm lookin forward to seein you and your new grandbaby in Santa hats too... Mrs. Claus and her new elf! Now about this Benzene... it's funny it came up cuz I just got an email about Benzene today. It was one of those ongoing forwarding emails. Might just have some meaning here tho... Car A/C (Air Conditioning) Please do NOT turn on A/C as soon as you enter the car. Open the windows after you enter your car and turn ON the air-conditioning after a couple of minutes. Here's why: According to a research, the car dashboard, sofa, air freshener, emit Benzene, a Cancer causing toxin (carcinogen - take time to observe the smell of heated plastic in your car). In addition to causing cancer, Benzene poisons your bones, causes anemia and reduces white blood cells.. Prolonged exposure will cause Leukemia, increasing the risk of cancer. May also cause miscarriage. Acceptable Benzene level indoors is 50 mg per sq. ft. A car parked indoors with windows closed will contain 400-800 mg of Benzene. If parked outdoors under the sun at a temperature above 60 degrees F, the Benzene level goes up to 2000-4000 mg, 40 times the acceptable level... People who get into the car, keeping windows closed will inevitably inhale, in quick succession excessive amounts of the toxin. Benzene is a toxin that affects your kidney and liver. What's worse, it is extremely difficult for your body to expel this toxic stuff. So friends, please open the windows and door of your car - give time for interior to air out -dispel the deadly stuff - before you enter. Funny thing is I can't roll my windows down. The power motors for both of them went out and I haven't been able to afford getting them fixed. But I also have a leak in my air conditioning line, so I have to keep adding freon to it. That leaves me with either breathing in too much benzene from the A/C or dying in a hot box if I don't use it! hugs ~~ bannanny
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