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Post by freaky on Jul 28, 2009 3:43:51 GMT -5
Well, who would know it? I either have pre-cancerous ovary, or I gots the Big C. I'm sure they'll know for sure if I get a mammogram. I knew my husband opened up a can of worms when he asked my doc, isn't bleeding a sign of cancer, and she said, well, let's just see. We'll give her a blood test. I said"Is this a general blood test?", and she said yes. Scuse my punctuation. It's bedtime, but I needed to get this written. She gave me a CA-125, and the result was 49.2. That was high for the reference range of 1.1 - 38,0.
Plot thickens..........Went to have a cat scan. My ovary was slightly enlarged. I see the Dr. Wednesday, who plans to cut it out. My pregnant daughter will be on her way home next week to have her baby. She got an excellent dr. she allowed me to use for a 2nd opinion Thursday. My doc, who I like very much is going to give me a name for a 3rd opinion, as he wanted me to get the opinion of the ovary cancer specialist here in Austin, but hasn't done so yet. My morgs are going to have the field day of their life.They do the procedure by lazer, with 4 tiny incisions. It takes them 45 minutes, & up, & adom you go home. Not after a huge shot of heavy duty pain medication, or they'll have to roll me out, & put me in the street. It's the FMS that gets in the way of me acting civil when I'm in pain.
They called my doc to find out why she gave me that specific blood test. Lord knows why. We tend to think it was the only on her quality Infusion Care Lav knew how to do. She happens to own it. I'm beating my head, & feet against the floor. I want my ovaries, & they want me. Boo Hoo. But, I'm happy. I'm lucky if it is actually a Big C threat that I caught it in time.
Honestly, I think the morgs are eating me up, The cat scan revealed also, that I have diverticulosis disease, and small calcified gall stones, that I do want out, ASAP. I wish they could do them together.
Everything else was normal, cept my brain which was unremarkable., for my age, so supposedly , it's normal. Sure. Oh, my right ovary measures 2.4x2.2 cm. It is slightly prominent., Well, I jusk knocked my drink over.
If anyone notices anything suspicious about this, and thinks I should get a 4th opinion, please let me know. You never can be too sure. ha ha.
Honestly, I'm more upset about my diverticulosis.. i'm not into pain.
Love to you all, freaky
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Post by 2.99(plus~tax) on Jul 28, 2009 8:51:38 GMT -5
I'm sorry love. if there is anything I can do.....just call. Ali
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Post by toni on Jul 28, 2009 8:55:23 GMT -5
Freaky, www.monitor.net/ovarian/ca125.htmlI don't know much about this test, but it seems there's another one too that maybe you should ask about also? I'm so sorry you're going though ALL this hell. Take one step at a time, and conquer. Otherwise this can really overload you out too. It seems the morgs run more rampant because of stress, more than anything, because we need our immune to keep it all together - and everything roots from there, our state of mind controls it all, it really does. Not that "your thoughts rid anything"...but, your thoughts WILL enable your body to keep strong. I wish I knew what the answers were, and I'm sure hoping the best and saying prayers for you. This is all so frightening, and keep yourself heathy, and believe in strength and this is the hardest thing in the world to do, but keep positive. Know in your mind, that no matter what you're up against, YOU can treat each thing as it comes, and you've got so much going for you, and that determination of conquering each problem is what this all IS going to take from you. Keeping positive means in your mind *you CAN and WILL* get through all this, but one step at a time. Slowly, precisely, and assuredly...this is the must have mind set. We love you, and this is just unreal this is happening.
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Post by mrcommonsense on Jul 28, 2009 9:14:10 GMT -5
I will pray for you Freaky, I think we have seen time and time again Cancer is the end result of Morgellons (I'm not saying you're in deep trouble or anything Freaky) and that we have to be ever vigilent, I cannot say enough about PH and keeping it good shape, this is done easily with CALM Magnesium and drinking two glasses of OJ every day (for potassium). Calcification happens when Mag is low (look it up) Magnesium is a wonder mineral, I would start taking it Freaky, CALM Magnesium (ya, seems to simple I know) but I'm symptom free and was very bad at one time. I will keep you in my thoughts ... When PH is acidic, oxygen is low, when oxygen is low, cancer thrives, when PH is low, acid loving, oxygen hating, bacteria also thrive ...
Can you cure disease without using things that kill germs? The answer is yes.
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Post by jj on Jul 28, 2009 13:49:33 GMT -5
Sorry Freaky
Your in my thoughts with lots of positive vibes.
JJ
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Post by Carrie♥ on Jul 28, 2009 16:57:18 GMT -5
Awe Freaky...I love you and am sorry you're going thru all this.
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Post by bannanny on Jul 28, 2009 18:19:48 GMT -5
I agree with toni... stay positive. Course I know it's hard to do and I'm not a good example of it... but I know it works to help kick the things out into space that we don't want in our bods. Get as many opinions as you can I say... it sure isn't gonna hurt, so go for it my sweet friend. I feel so bad and I wish there were something I could do... I can tho, I can pray, and I am.
I love you ~~ smackers, smackers, smackers ~~ bannanny
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Post by ctbarb on Jul 28, 2009 23:31:00 GMT -5
Dear Freaky, Sorry that you're going through all of this! Yes, the CA-125 blood test is the gold standard for ovarian issues. You are so lucky to have found out that something is wrong early on...my best friend who was an Oncology RN, and treated patients with ovarian cancer, didn't notice that she had symptoms! By the time she was diagnosed, she was too far along. The same will NOT happen to you, my dear! The prayers are flowing your way with all positive thoughts!!! You WILL beat this, just like everything else you've beaten in your lifetime...I just know it!!! Please let us know how you are doing...we love you and care so very deeply about you! You keep us on our toes!!! With much love and prayers, ctbarb
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Post by freaky on Jul 29, 2009 13:56:22 GMT -5
All I need to get through this is having friends like you. You all are such wonderful special people, I feel truly blessed, so I could never let you down. Ali, I am so happy you're back. We all missed you so much. Toni, you're a doll for researching these things for us. I hadn't even attempted to do it yet. Thanks so much for doing that. I learned a lot. It changed my outlook on things to find out ovarian cancer is the #1 leading killer of women. Grady, thanks so much for that information. Without a doubt, you are the nicest, most considerate man I have ever met. I'm going to call you Saint Grady. We oftentimes don't know someone was a saint until after their death, but you shine so much, and I've never known you to say anything without your love radiating from it. JJ, how did you know what I needed? At the right time too. Thanks Sweetie. Carrie, you pop up when I least expect you. Thanks so much for thinking of me. I've been thinking of you, & your kids hoping things are OK. Smackers back to ya Bannannay. I love you so much, you make me want to sing, Banana nana bo bama, fi fi fo a wama ... ctbarb, you are special. Thanks so much. I will keep you informed. I wanted to write this last night, but since I spilled my drink on my keyboard, it quit typing. Going to see my GYN in an hour. Hope I make it. Suebe, I''m following in your footsteps. When I found out what was going on, I said to myself, Suebe is doing the right thing, I know, because she's a strong person, and did a lot of thinking to end up doing what she's doing. I have so much respect for you, & I promised myself, if anything bad happens to me, I'm going to laugh my way through it, & not be a whiner. That will be a first. ha ha My heart goes out to you, my special friend. Bet you didn't know, you're so strong, I've been holding on to you. Don't shake me off. ;D Thanks again, freaky
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Post by bannanny on Jul 29, 2009 22:55:03 GMT -5
How did it go freakers? Please let us know sweetie... and I love you very much too.
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Post by lilsissy on Jul 29, 2009 23:33:49 GMT -5
IN MY THOUGHTS AND PRAYERS
JEN
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Post by freaky on Jul 30, 2009 0:25:34 GMT -5
HEY HAPPY FAMILY, I KNOW I CAN BE BOREING, BUT WILL YOU PLEASE READ THIS,& GIVE ME YOUR EXPERT OPINION, & IF PER CHANCE THERE IS AN EXPERT OUT THERE, YOU MAY NOT KNOW IT, BUT i KNOW WHO YOU ARE. DUM DA DUM DUM - DUM DA DUM DUM - DUMMMM Gez Nanners, I"m confused as hell. Went to my GYN today. He's very sweet, & believes in morgellons. But..., that's no reason to let him take out my ovary. I want my ovary. My concerns are these: 1. Before they take out my ovary, not knowing if it is cancer, & I I don'[t especially believe in preventative body cuttings, shouldn't I have more tests preformed? I've had the general GYN yearly check-up. I've had the CA-125 Blood Test - Last night I wasn't seeing straight. Maybe I had put my antibiotic ointment in my eye, but anyway...the reference Range of the test was 0.0-35.0, & my result was 49.2 so 49.2 minus 35.0 = 4.2? That doesn't sound too serious. 2. Is the ovary biopsy able? Is it possible to take a biopsy of the ovary, instead of cutting the ovary out first? They will examine the ovary, & if it's cancerous, they will do a total hysterectomy which I don't want. I would be wicked to know they did if I wasn't trying to be suebe's copy cat. 3. Doesn't morgellons cause false positives in testing? 4. All they are going by is the CA-125, & the fact that one of my ovaries was enlarged a little, not a lot. It was inflamed. What would you expect? I got diverticulosis because of the fricken morgs, & there was probably a big fat one doing his business on my ovary, then went on his merry way. My bleeding doesn't count because it was morg blood, full of morgs. I have pics for proof. Does this sound like a reasonable thing to do to chop out my ovary. One report, possibly not valid states: The rate of false positives with CA-125 makes it inadequate for use BY ITSELF for screening of high-risk women; it should be supplemented with transvaginal sonography, and a rectovaginal pelvic exam all done at the same time. Well, they were unable to do the transvaginal sono on me I think, cause the instrument didn't fit. They didn't have x-small. But, they could do aultra-sound on me. True Negative - repeating the CA-125 is impt. as part of a regimen that includes the 2 tests I just discussed. Consumers often have to ask their docs to do this. I didn't Family history doesn't indicate this cancer. This report I'm giving this info. from says CA-125 ("first generation") test kits are no longer sold to labs. It is believed that few if any old plain CA-125 tests are being given in the US as of Nov. 1996. But, my doc is cheap, owns her own lab, & I can see her scrounging around to get these old tests at a discount. Now they have the new CA 125II, a new assay that has less variation from day to day. Didn't discuss this. Tomorrow though, I'll be going to Kim's new GYN who has fantastic credentials, & actually talked to me in person on the phone. I have to be there by 10:30 . I get up at that time 5 x's a year. Suebe wouldn't have a problem making it on time to her appointment, so neither will I. cough cough - if I get to bed. There are 2 manufactures of the 125 test, & one is not good. I need to clarify this. So, Thurs., & Fri. I wait for the ovarian cancer specialists to call, & schedule my appt. with them. Is there such a thing as ovarian cancer specialists? Maybe uterine cancer specialists, but questionable ovary ones. If anyone knows anything to help me over this hump, I'd be most obliged. Be sure to go to Grady's Ghost Site, St. Grady. It's awesome, & more than helpful. I have to get much shut eye now so I'll be sparkling in the morning. My Grandma name is Sparkles. I have to live up to it. Course I could always change my name before baby gets delivered. Please God, let them figure it out before, Please God, give someone the curiosity to read this part of my thread, as I sure could use some input. Thank God, 2nd opinion is tomorrow though. Should I just blow off mammogram till after ovaries? That really is a lot of added stress I thought up on my own. Night all, & to all a good night with much delight . Maybe someone has clean sheets tonight. ;D Love all, especially if anyone responded. You may find this to be good future info. though, & someday you might be thanking me. LOL.
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Post by mercury on Jul 30, 2009 13:42:59 GMT -5
Hang in there Freaky. I love you and pray for the best outcome from your treatments. I think Grady makes a good case for the role of PH in all this. I'm going to start on the CALM Magnesium. Lots of Love and Prayers, Merc
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Post by bannanny on Jul 30, 2009 18:29:02 GMT -5
I'm praying you got your second opinion today... I think it's very important freakers. If you overslept I'm gonna have to take you over my knee ya know. Course, I haven't been to the GYN in years... had a mamo which resulted in my having to get an MRI cuz it was abnormal (like me) but it turned out ok. But being I don't know anything at all about the CA125 deal and I haven't been to the GYN in so very long, I guess it's hypocritical of me to say I'll take you over my knee and give you a good spanking if you didn't make your appt. Then again, you HAD an appt. and it's nothing to sneeze at. So now... tell me what they said today ok? If you can't, then bend over and get ready!
I love you so much ~~ bannanny
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Post by ctbarb on Jul 31, 2009 0:10:33 GMT -5
Dear Freaky, Did anyone check to see whether or not it could be a cystic ovary? I had one many moons ago, it was quite large and it enlarged the ovary considerably. It's painful as I remember...you don't forget those happenings! My GYN did an ultra sound (abdominal) and it showed there was enlargement of the ovary too. Cysts on ovaries can burst...mine did before they had the chance to remove it. They still had to go in and remove all the debris and check to be sure that it was not infected too. Having a Board Certified GYN check you over, do the latest tests, and an ultra sound, is a good thing. Get more than one opinion, be certain before you let them take your body parts. But, in case of a cystic ovary, do not let it go. Yes there are Ovarian Cancer Specialists...my best friend saw one who treated her ovarian cancer. Good luck with your tests, Freakers, I'll be praying for you and the doctors that are treating you! Just take it easy, relax, and take a pad and pen with you and take notes! That lets them know that you are involved in your care and want the info straight up! Good luck my dear, sweet thoughts and prayers are coming your way! Luvu, ctbarb
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Post by freaky on Jul 31, 2009 0:12:50 GMT -5
I got hung up in my closet for twenty minutes, & missed the appointment. I called them from the garage parking lot, & they said I couldn't come, so I drove around the block, & decided to go back, & see if I could find the place. Finally I did, & I got the papers to fill out, but it looks like this doc is going to be way too busy to see me again. I left, & as I was wandering around the halls, this hippie man asked me if he could help me. I told him I didn't know how to get out of the hospital, & didn't know where my car was. He proceeded to escort me for the next hour, and finally we found my car in the central garage, cause it wasn't in the east one, or the west one. I was so distraught, I went to Neiman Marcus, and bought some more clothes. Only got about 4 hours of sleep last night, but I cleaned my clothes lying in the computer room with a friend today. Yeah. Tonight I think I got a columbola off the kitchen table. I took lots of pics of him. They're soft, & easy to squish, right?? How gross. It probably fell off me. Much lub, freaky PS. Thank you lilsissy, & mercury
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Post by justhanginin on Jul 31, 2009 8:47:58 GMT -5
Freaky , please get that ovary removed. It is not going to have a major impact on your femininity to lose one ovary. Those numbers on the blood work don't sound goodI Better to do it while this problem is in it's early stages. I have a sister-in- law who had six kids on one ovary. Hers was removed when she was sixteen. BTW, the standard gyn exam does not pick up ovarian issues. The blood test and an intra-vaginal sono will. As for your gallstones , if you have not had a gall bladder attack yet don't be in a hurry to have it removed.
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Post by bannanny on Jul 31, 2009 16:05:56 GMT -5
You love doing this to me don't you? I've got my paddle in hand... bend over girl! Then you'd better get to a doctor and soon... please. I only have one ovary and no tubes... and I'm still a girl. I still even looked like one when I was bald!
big hugs ~~ bannanny
P.S. I'm gonna be gone for a few days... I hope when I get back you'll have some good news my friend.
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Post by freaky on Jul 31, 2009 16:31:31 GMT -5
I would like to discuss any imparement of sexual urges. Even if you are momentarily not interested, I would like to know the full spectrum of concequences. What was your experience my sweetest Bannanny, wild woman of the west.
Thank you. You didn't even tell me you only had one. I best be calling you soon.
Even though cancer of the ovary is the most aggressive, unless I'm wrong, I have an appointment with my 2nd opinion that my dr. recommended in 3 weeks.
Love ya, freaky
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Post by zabrubon on Jul 31, 2009 23:47:51 GMT -5
Freakyyyyyyyyyyy great you have that second appointment scheduled. Keep those doctors honest. I pray for you to get the best doctor and he is wise with his diagnosis. God be with you, CBonnie
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