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Post by zabrubon on Aug 20, 2009 18:53:01 GMT -5
Any one here ever have an EMB test / Electromyograhy? Or NCV test/ Nerve conduction Velocity? I have constant muscle twitching and I can actually watch it wave under my skin makes me believe i have some nerves that are fighting for their lives. Couple that with pains in my feet and loss of feelings in my hands, I would say Morgellons is killing my sense of touch, feeling etc. www.ninds.nih.gov/index.htmC:\Peripheral Neuropathy Fact Sheet National Institute of Neurological Disorders and Stroke (NINDS).mht
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Post by zabrubon on Aug 20, 2009 23:07:46 GMT -5
Kmarie, that was a great video, thank you. I am thinking of having this test done. I believe i have something going on with my muscles. I wonder if it's expensive. Hope not. Maybe my insurance will pay for this. We shall see. I fell twice in the last few weeks and think it's because of my muscles and nerves in my feet. Got me a black eye with the first fall. Surpringly it didn't hurt. Now that is an issue right? Thanks again and good talking with you as ususal. Blessings, CB
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Post by friskers on Aug 21, 2009 0:15:35 GMT -5
Bonnie what comes to mind is lack of magnesium can cause muscle twitching and also occurs with lyme as mentioned www.ctds.info/5_13_magnesium.htmlalthough that wouldnt explain the loss of feeling. I dont unfortunetly know anything aout the test
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Post by violet on Aug 21, 2009 12:28:22 GMT -5
Any one here ever have an EMB test / Electromyograhy? Or NCV test/ Nerve conduction Velocity? I have constant muscle twitching and I can actually watch it wave under my skin makes me believe i have some nerves that are fighting for their lives. Couple that with pains in my feet and loss of feelings in my hands, I would say Morgellons is killing my sense of touch, feeling etc. www.ninds.nih.gov/index.htmC:\Peripheral Neuropathy Fact Sheet National Institute of Neurological Disorders and Stroke (NINDS).mht Hi, sweet Bonnie. I don't want to scare you, but just wonder if you have been tested for schleroderma? It's doubtful that is what is going on, but there are some symptoms of it that you might just want to investigate to rule it out...
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Post by bannanny on Aug 21, 2009 19:22:49 GMT -5
I believe it's due to morgellons cuz I have the same thing goin on CB. I'm goin thru another very bad stage and when I sit at my puter my legs twitch and cramp up. My fingers and toes cramp up real bad too. But worse than that... every single night when I get into bed, the skin in my legs starts to bounce up and down. It feels just like there's water boiling and bubbling beneath the surface. I can even hear a slight vibrating sound and feel it going thru my bed... it feels very electrical too. Is that what's happening to you too?
You might wanna get some "Calm Magnesium"... I started on it per Grady's protocol. It seems to help, course when you go thru the real bad times nothing seems to make sense or help much. I keep trying to believe it's another major herx instead of it just getting worse. If I don't think that way I'll surely lose it. I think you should try the calm mag tho... it's pretty good stuff. You can get it at whole foods or any health food store.
Let us know if you get the test ok?
love you ~~ bannanny
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Post by zabrubon on Aug 22, 2009 1:02:32 GMT -5
What are the symptoms of peripheral nerve damage?
Symptoms are related to the type of affected nerve and may be seen over a period of days, weeks, or years. Muscle weakness is the most common symptom of motor nerve damage. Other symptoms may include painful cramps and fasciculations (uncontrolled muscle twitching visible under the skin), muscle loss, bone degeneration, and changes in the skin, hair, and nails. These more general degenerative changes also can result from sensory or autonomic nerve fiber loss.
Sensory nerve damage causes a more complex range of symptoms because sensory nerves have a wider, more highly specialized range of functions. Larger sensory fibers enclosed in myelin (a fatty protein that coats and insulates many nerves) register vibration, light touch, and position sense. Damage to large sensory fibers lessens the ability to feel vibrations and touch, resulting in a general sense of numbness, especially in the hands and feet. People may feel as if they are wearing gloves and stockings even when they are not. Many patients cannot recognize by touch alone the shapes of small objects or distinguish between different shapes. This damage to sensory fibers may contribute to the loss of reflexes (as can motor nerve damage). Loss of position sense often makes people unable to coordinate complex movements like walking or fastening buttons, or to maintain their balance when their eyes are shut. Neuropathic pain is difficult to control and can seriously affect emotional well-being and overall quality of life. Neuropathic pain is often worse at night, seriously disrupting sleep and adding to the emotional burden of sensory nerve damage.
Smaller sensory fibers without myelin sheaths transmit pain and temperature sensations. Damage to these fibers can interfere with the ability to feel pain or changes in temperature. People may fail to sense that they have been injured from a cut or that a wound is becoming infected. Others may not detect pains that warn of impending heart attack or other acute conditions. (Loss of pain sensation is a particularly serious problem for people with diabetes, contributing to the high rate of lower limb amputations among this population.) Pain receptors in the skin can also become oversensitized, so that people may feel severe pain (allodynia) from stimuli that are normally painless (for example, some may experience pain from bed sheets draped lightly over the body).
Symptoms of autonomic nerve damage are diverse and depend upon which organs or glands are affected. Autonomic nerve dysfunction can become life threatening and may require emergency medical care in cases when breathing becomes impaired or when the heart begins beating irregularly. Common symptoms of autonomic nerve damage include an inability to sweat normally, which may lead to heat intolerance; a loss of bladder control, which may cause infection or incontinence; and an inability to control muscles that expand or contract blood vessels to maintain safe blood pressure levels. A loss of control over blood pressure can cause dizziness, lightheadedness, or even fainting when a person moves suddenly from a seated to a standing position (a condition known as postural or orthostatic hypotension).
Gastrointestinal symptoms frequently accompany autonomic neuropathy. Nerves controlling intestinal muscle contractions often malfunction, leading to diarrhea, constipation, or incontinence. Many people also have problems eating or swallowing if certain autonomic nerves are affected.
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Post by zabrubon on Aug 22, 2009 1:06:07 GMT -5
Violet, thank you for that info, I will be sure to read up on it when I am finished here. I definetly will rule nothing out. I just want to be sure that I can help counter this disease as much as possible. I got so depressed last night thinking I am dying earlier than my family. Saddens me much. But then today came and I was ok. Seems like when I am alone at night that it is the toughest to fathom. God Help US and may we at least get an answer to this disease before long. God Bless, CB
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Post by zabrubon on Aug 22, 2009 1:16:09 GMT -5
KMarie, I don't think I have tried the Mag. I am seeing my doctor soon so I will ask him about it too. Yeah, I get the muscle twitching so bad I can actually see it. I like the way you said how it bubbles under the skin. Yep, exactly. Sometimes I am sleeping and I hear in my head a sound like slaming a door. I wake up and I realize it was something in my hear that made the noise. Cause all is calm and quite in my place. This happens every six months or so. Do you suppose it is something dying in my ears. Or perhaps the synaptic knobs dying? Ya know the ones that allow the electrical information to tranfer cross the channels and is responsible for memory and responses and feeling? Perhaps? I sometimes choke on my own saliva too. Very rare, but I never used to be like that? I will actually choke like the saliva went down the wrong pipe and I choke for a few mintues. I am sad about it as I talk about it. Then the next day with a beautful sunrise, I forget it all and I am happy again. I guess we all have to go someday so well, at least we can all here on this board appreciate our lives where so many others take it for granted. Let us all here live and let live and enjoy what time we have left weather its days, months or many years. My husband passed away at 57 and I will turn that next year. One of my prayers is from now on going to be that if a scientist and big money is behind all this, that God Almighty will cut these people down who caused such horrific disease on innocent people. And if it is a plague because of mankinds sinful ungodly lifestyles, then let us learn that and turn away so that others may live. God be with us all and God help us all. Let the be joy in the morning with it's glorious sunlight and rays of hope. Blessings, CB
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Post by zabrubon on Aug 22, 2009 1:34:34 GMT -5
Violet, I looked that up and you may have something here. I emailed my doctor and told him I wanted to discuss this when I come to see him. Thanks a bunch. CB
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