|
Post by bessie on Sept 10, 2009 7:20:54 GMT -5
Hi, All -
PPY18 called and told me that the CDC is having two conferences coming up this month.
The first one is Sept 14-16 on Intestinal Parasites. The second one is a general Parasitology conference, and those dates are Sept 22-23.
Kelly is asking that anyone who can get to Atlanta at any point during those 5 days please come.
She is planning to be in front of the CDC handing out literature about Morgellons, and the more people who can be there the better.
She has also asked me to post her phone number, so I am complying:
(404) 936-3654.
If anyone can be there, please call Kelly so that she can coordinate with you and give you further details.
I understand Sidney has more details about these upcoming CDC activities.
Thanks.
Bessie
|
|
|
Post by Sidney on Sept 10, 2009 8:59:11 GMT -5
Bessie, I'm totally clueless (as usual) regarding CDC ANYTHING.
I knew Kelly was planning a "rally" of sorts during the month of September, and have actually recently wondered if the event was still on.
I do hope anyone able to make it to Atlanta during those time periods will give Kelly and anyone helping Kelly all the support they can muster.
Sounds like an ideal time to make a lot of Morgs noise. Thanks, Kelly and anyone working toward this goal.
Wonder where anyone got the idea I was involved?
|
|
|
Post by toni on Sept 10, 2009 11:33:46 GMT -5
Go Kelly Go!
This is great news!
Please anyone who lives close enough, help OUR cause and help out Kelly and others who are going to be out in front of CDC.
This is an opportunity for us to be heard.
I just called Kelly, and I'm going to "try" to drum up some media to be there.
WE MUST GET HEARD, OR WE'LL BE SWEPT UNDER THE RUG!
|
|
|
Post by Sidney on Sept 10, 2009 11:50:33 GMT -5
OK, to clear up the confusion likely caused by my above post.
I knew about the CDC Parasitology meetings that were scheduled, and yes, I sent that information on to PPY....Kelly...
However, it was my understanding from previous communications that Kelly and others were planning a sort of mini-sit in, or in this case, a "stand in" during the month of September, to further enlighten the CDC and others regarding this horrific disease.
That urgency is required is a given. We have absolutely no updates, nothing to comfort us, nothing to assure us that we are being heard and taken seriously.
Yes, we know a "study" has been undertaken, but we need updates! We need to reinforce the urgency of our situation and the impace this disease has on our lives.
If "Morgellons" were a "recognized-documented-accepterd-on the books" disease the situation would be far different. "We" aren't even entitled to have this scourge classified as an Orphan Disease until further studies are accomplished.
The CDC powers that be were receiving phone calls from many of us back in the early 1990's. We described our symptoms, sometimes tearfully, emotionally, and begged for help.
(Once again) Deborah Altschuler, NPA, visited CDC's Dr. Tom Navin in November of 1995 describing what she viewed as an emerging public health concern.
I am so sorry for any confusion I created by my previous post. I would love to be there, and will surely be there in spirit cheering for all who can attend. Thank you so much!
|
|