|
Post by overandover on Sept 15, 2009 18:12:40 GMT -5
I'm so freaked out about this thing, there's more then one. My right ear has been giving me a fit, it hurts and the movement is driving me insane. Every week or so I go in there with my needle nose tweezers and clean out a very big lesion deep in my ear, I'm very careful as it's so close to my ear drum and believe me if you ever so lightly touch your eardrum you get one hell of a ouchhhhhhhhhhhhhhh I always get the normal morgie looking stuff out of the lesion but it aways starts bugging me again. Yesterday it was driving me nuts with the movement feelings, like a crawling and whipping feeling. When i got in the I felt something sticking out of the lesion so I pulled and as God is my witness, IT PULLED BACK, so I pulled harder and got a worm looking thing out. Within seconds i felt pressure in my ear and I thought, oh no and you went and did it. God knows I don't need a diagnosis of a cutter, isn't that what they call folks that hurt themselves, lol I went in again and felt something real big so again I pulled on it and got out a very large blood clot, about 3/4 inches long. I dropped the clot in a little cap of alcohol and left it over night. Today I can see where it fell apart and there is stuff that came out of the clot and it's not just blood. This thing has teeth like thingies on it, looks like there is 3 more like this one in the cap, 2 of them have "a arm" like thing, all have these teeth like things. It took me forever to get this one posted as I keep forgetting how too, sorry Toni (my pic posting teacher) Bless your heart you showed me right but my morg brain is well a morg brain, I try. I just had to show this to you all and will try to get more done tomorrow, i can't wait to hear what you all think it is. Honest they have "teeth like thingies' How do I even begin to show this to a doctor. And would he even look? Love to all xoxoxoxox Suebe
|
|
|
Post by overandover on Sept 15, 2009 18:26:39 GMT -5
|
|
|
Post by overandover on Sept 15, 2009 18:28:36 GMT -5
I'm still trying to get the picture here on the board, all i get is that This is the link Help me please, thanks and my love to all, xoxoxosuebe
|
|
|
Post by toni on Sept 15, 2009 19:10:18 GMT -5
Suebe you got it, as big as life here! You did GREAT!!!! At getting that sucker out, and posting the picture. ;D ;D And this is definately and OMG!!! Oh...that thing is horrid. Thank God you got that out. And you've been feeling this sucker in your ear all this time. UGH I've got serious shivers just looking at it with it's arm thing hanging there. Oh, if only you could find someone to take a look at that. Can you give us an approx size of this thing? Would you say it's about the size of a penny? Or half the size...or is it smaller? Just trying to get an idea of that part (the size). Are the teeth "on the left" side of it? Thank you Suebe, this is a great picture of ( IT ).
|
|
|
Post by toni on Sept 15, 2009 19:13:06 GMT -5
Suebe's specimen from ear It was pictured there in your post, but now it's gone. The link is still there, but not the actual pic in your post. OH, I see what happened, it was too many pixels (too large) so I rescaled it for you. Your link will still have the picture (just a larger pic of it)
|
|
|
Post by bannanny on Sept 15, 2009 19:57:57 GMT -5
Now that's one ugly blob of gel suebe! I'm so sorry you had to experience that one! I don't doubt it pulled back from you either... I've had the same thing happen to me. This stuff can anchor itself into anything and seems to have so much elasticity and strength, I'm surprised you were even able to get it out! Of course you know me and the gel thing... which I think's what that is. It looks like it's creating a very large strand. I'd like to know the size of the thing too if you can give us an idea. Please be careful putting tweezers into your ear sweetie. I've just scratched an eardrum before and the pain was outrageous. love you lots ~~ bannanny
|
|
|
Post by imblownaway on Sept 16, 2009 10:24:05 GMT -5
It looks like a fish. a fish with teeth. eeew one of Arnies pictures look just like a fish too. so weird these things do feel like leeches. Its so confusing because these things look like they are mad up of our skin. this stuff is so confusing .
|
|
|
Post by kammy on Sept 16, 2009 11:32:09 GMT -5
Hi Suebe,
I'm another Morgie with bad ears, mine - left outer ear, and I feel like what is a fish bone in there... hmm... I wonder if what I'm feeling is in the top part of your photo?
And, yes, we have another 'fish'... what's up with the fish? It must be scary for this to be going on so close to your ear drum?
|
|
|
Post by mfromcanada on Sept 16, 2009 14:17:30 GMT -5
overandover/suebe, I am soo glad you got those suckers out. My gd, those are ugly. I wonder if some sort of saline solution would be okay to put in the ears. The only thing I have use so far is hyrdogen peroxide on a cue tip. I use it when I get the really itchiness inside and it seems to help. I hope you can get rid of these in the ears before your hearing is harmed. I have already lost some hearing in my left ear.
|
|
|
Post by ctbarb on Sept 16, 2009 14:35:36 GMT -5
Here's Suebe's 'ear monster' in a negative format! This sucker is UGLY!!! Good thing you got those out of your ear, Honey! That is just too nasty! I know we're all looking to see if we can find what this is! Hugs to you! ctbarb Attachments:
|
|
|
Post by dkushner on Sept 16, 2009 17:54:30 GMT -5
overandover, I have had Morgellons for 6 years. The first 2 years I experienced problems with both ears but mainly with my left ear. I had all sorts of material developing in my ear and on occasion coming out of my ear. There were many instances where there were large pieces of material that I could not get out. I had many instances of feeling something moving in my ear that were really irritating and frightening. There were even occasions where this feeling caused me to use two mirrors and a flash light to look deep in my ear only to see wormlike parasites moving around. The reason I'm telling you this is so that you realize you are not alone and also so that you know that it has been several years since I have experienced these symptoms. Occasioanlly I still experience slight irritation in my left ear but nothing like before.
I have tried to keep my health strong with eating right and taking vitamins. Sleep helps too. Also, I flush my ear with an ear syringe a couple times a week. I don't know if this all helped but the fact is that it is much much better. I got no medical help at all, doctors simply didn't beleive me even though I showed them the material coming out and had photos of parasites in my ears. I hope you can find an open minded doctor, but it's a longshot.
- Daniel
|
|
|
Post by bannanny on Sept 16, 2009 20:54:44 GMT -5
Oh it even looks worse in the negative! I can see the teethy lookin things better too. I always pour a little drop of peroxide right into the cap, lean my head over and pour it in. It fizzles like craaazy too. I just keep my head bent over for awhile and then bend it over the other way to let it drain out. It works pretty good.
hugs ~~ bannanny
|
|
|
Post by overandover on Sept 17, 2009 9:49:06 GMT -5
;Thanks everyone for your comments and thanks Toni Sue for putting the picture on here for me. I still have several samples I want to show you all, there were many in that blood clot, they are very small, this one is about the size of 2 grains of salt, the blood clot was about 3/4 inches long but as it broke down over night is when all these little suckers came out of the clot. It's like I got a nest of what ever it is, out. Now I kinda understand why, when ever I clean out a lesion with in 11 or 12 hours I'll find another morgie thingy in it, maybe they grow in nest, Lord i hope not. My blood is very bad right now, I've had 2 transfusions in the past 11 days and one unit of platelets, blood work still coming back bad. But for the first time in almost 5 years I'm finding puss in my lesions and they are getting real red, hot and inflamed. And I'm so confused because my blood is so bad right now, you'd think I don't have enough white cells to come to my defense. Thats the one thing that always made my neurologist believe me. He has always said if this was "just you" picking at your skin then you would have all kinds of infections because we all have bacteria on our skin. So what is it? ?? Is Morgellons something our bodies don't recognize as a invader? Dose it eat our bacteria? Is it made of us "our own tissue" just growing out of wack like cancer? Then where do the bugs come into it? Is the gel like our lymph gel? And most important what are those damn fibers? I cleaned out a lesion on my arm last night and I'd swear it looks like ants forming, just like how are babies look when they are forming inside us. I'm so sick of being sick with this, so sick of the weakness I feel. Now cramping has become part of my horror, I wake up several times a night with cramps in my legs, arms, belly and it hurts so bad I have to use every ounce of my energy to get out of the bed. It may be a side effect of the chemo, most likely, but the morgellons and cancer mix makes me all the more confused as to whats what. I just want me back so badly or I want the hell out of here. Billi Sue's baby boy is due the first of December, they are naming him Mason Joshua, I have to hang in here and hold him in my arms. I don't fear passing this on to him because every time I go out to visit them I see the black specks and fibers everywhere. I want to scream my head off because i see this horror in my child's house, but I have to keep my mouth shut because it would offend them and make her angry, she tells me she knows Morgellons is real, but she just can't get her mind wrapped around how bad it is, no one can till they feel it as in full blown. My wonderful sweet son in law has the fiber cuts all over his fingers and lesions on his scalp all the time, he calls them bug bites and says bugs come after him, I know the feeling, well. Sorry for my little vent there, today is a bad day. But I still say Morgellons is 100 times worse then cancer. It just blows my mind how the doctors work so damn hard to help me with the side effects of Chemo., radiation, cancer pain, it's OH how many pain pills would you like dear, you can have as many as you want. I'm taking the best nausea meds in the world. But yet, mention Morgellons and they get angry like you've wasted their time, get out. If they only understood the pain and suffering of Morgellons is a million times worse. Why can't they see it? Why don't they even look? I will try and post so more pictures later today. By the way my ear is feeling much better the pass two days. I'm hoping I put a end to that one, for good, now on to the next. ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D Toni what size should I use for my pictures, thank you for all your help my dear friends. xoxoxoxoxoxo Suebe
|
|
|
Post by ruth on Sept 17, 2009 10:04:02 GMT -5
sue, your post has made me cry. i am so sorry for all of us. that it never ends........
with all the chemo and radiation and the morgs still thrive. how is this possible?
|
|
|
Post by toni on Sept 17, 2009 10:52:15 GMT -5
Suebe,
Gosh, here's what I did with your orginal picture.
I first uploaded your picture into my 'computer's pictures'.
I took and "on the computer in pictures, right clicked the mouse and then it displayed - EDIT".
Then the little drop down box drops, and click on Stretch and Skew.
I then saw the measurements being at 100X100, and I just changed those numbers to 80X80.
That makes the picture smaller.
It will ask you if you want to save changes, and just click on "yes".
And then go to Devcan.com or Tinypic.com or any one of your choice to upload the picture (from your picture in your computer) and then it will give you the link to bring back for your post.
|
|
|
Post by kammy on Sept 17, 2009 16:22:10 GMT -5
Hi Suebe,
For those of us that aren't aware, what's your cancer diagnosis? Bless your heart.
|
|
|
Post by imblownaway on Sept 17, 2009 16:47:10 GMT -5
We love you Suebe All we can do is keep trying Bless you
|
|
|
Post by glennb on Sept 17, 2009 23:09:06 GMT -5
I also have ear problems with intermittent loss of hearing. Seems like these things move in the way of my ear drums and then I can't hear. Drives me nuts!~ Also at night sometimes when I lay on my side with my ear close to the pillow I can hear movement. Scritching around noises like insects moving around. Plus lately I have started hearing short burst of very high pitched noises coming from the ear/ jaw bone area.
I am too chicken to go digging around in my ears with tweezers. I do use a suction bulb after bathing and that seems to help. In the past I have poured capfuls of hydrogen peroxide in my ears and that has been helpful. I always try to direct the warm air flow from my hairdryer so the ear canal gets dried out after washing my hair.
Also I used to have some ear oil that I got at the health food store and the lthingies didn't like it, it helped keep my ears reasonably free from this stuff.
|
|
|
Post by bannanny on Sept 18, 2009 21:14:07 GMT -5
I'd take all the pain you've had away from you right now if I could suebe... you've had far too much for one person to have to deal with. You have to be one of the most kind, caring, brave, strong kind of person, and the most beautiful woman I've ever known. Why does all of this have to happen to you? It's so not fair and it angers me inside. I just want to come to you and take care of you... then bring you back here with me to sit on the porch and watch the sunset. You with your coffee in hand and me with my whatever... probably whiskey! We'll look forward to doing that one day ok?
I'm happy to hear your ear feels better tho... now to get the rest of you feeling better.
I love you big bunches ~~ bannanny
P.S. Suebe has lung cancer kammy.
|
|
|
Post by cyn on Sept 19, 2009 7:54:34 GMT -5
Hi Dear Sue,
What a nightmare you are living. I too have the ear problems, with hearing loss. However, mine are not as severe. I often feel something moving through the ear canal, feels just like a long worm squirming through. I know it is probably just a new solid type fiber moving through there and that thought makes it easier to deal with. I was unaware persons were seeing worms in their ears. I sure would like to see pics or a description of color and size, etc...
Yes, keep the ears dry, but its not a good idea to remove the natural wax that is in there. Atleast this is what I have been told by ENT's. I cover my ears when in the shower and this seemed to help the most. Funny though, I still soak my entire head under Eco Vie bath water, and have never had a negative effect from this.
No, I do not think any doc would believe the gel specimen came from your ears. They would have to find it themselves in your ear, and then you would probably get balled out for sticking it in there!!!
I'd give much to ease your discomfort right now. I hope the chemo is over soon, that is the last thing (I feel) a Morgie needs. Your fatigue must be an incredible challenge now. I hope you are still taking quantities of magnesium with zinc. I take the product called ZMA, and when I miss a day, the cramping is very bothersome. So far I take the suggested amount of 2 a day, but "us Morgies" could probably use more as symptoms increase.
I wonder if M's is using our white cells in the replication of red cells, if that can be done. This gel is so amazing, I do not doubt it. Sure looks like the blood on your specimen is the pseudo blood from M's. I retrieved a 1 inch blood clot (of replicated blood) from my chest. But I did not see any gel inside when I opened it. Remember though, that blood clots are usually found close to specimens that M's is making from scratch. I'm sure you have seen my pics in the past.
If you go to a ENT just talk about the horrible symptoms, and let the doc find the problem. Its the only way to begin. I wish you luck in this matter.
We will all look forward to hearing of Mason Joshua. Mainly cuz we know he will brighten your days.
love ya Sue, cyn
|
|