|
Post by glennb on Feb 10, 2010 18:00:51 GMT -5
Has anyone with Morgellons been through Chemotherapy and experienced a reduction in their Morgellons symptoms. What effect does Chemo have on Morgellons?
I would appreciate any info on this topic that could be provided.
Thanks, glenn
|
|
|
Post by Sidney on Feb 10, 2010 18:54:14 GMT -5
Has anyone with Morgellons been through Chemotherapy and experienced a reduction in their Morgellons symptoms. What effect does Chemo have on Morgellons? I would appreciate any info on this topic that could be provided. Thanks, glenn Someone among us had Chemo...well, for one, Suebe had Chemo...lots of it and still combed living and dead Collembola from her scalp. Someone else had Chemo treatments and posted that the Chemo did NOT kill "Morgs." Could that have been Abby Normal? Speaking of Abby Normal, I wish she would post. I miss her! Maybe someone will remember who the person was, but I distinctly recall the female poster was undergoing Chemotherapy treatments and made a point of saying the treatments had no effect on the "Morgs." May God help us all. This is absolutely unbelievable. HELP, Someone!
|
|
|
Post by bannanny on Feb 10, 2010 19:09:09 GMT -5
Yeah Sid... it was Abbie who said that. If I remember right, pamca (Pam) said the same thing. Both of them went thru chemo for brest cancer. Makes you wonder if anything can rid this thing from our bodies if chemo won't do it... altho Sue did say her symptoms seemed to lessen a little after her chemo.
Sorry I can't offer you anything more than that glenn... maybe if our bodies could withstand chemo over and over and over again, it might eventually do the trick. But the chemo in itself would end up killin us too.
Just gotta keep praying guys...
love ya's ~~ bannanny
|
|
|
Post by lilsissy on Feb 11, 2010 9:23:49 GMT -5
-------------------------------------------------------------------------------- A letter I just sent to CDC:
Dear Sirs, I have recently been diagnosed with small cell Lung Cancer, have had Morgellons 4 1/2 years. I had a son Joshua who died Feb.17, 2006 from a Glioblastoma Brain Cancer and he was also a victim of Morgellons Syndrome. My son's suffering from the two horrors was beyond anything any human or creature should suffer. Back then most of the doctors called Morgellons DOP, so the suffering was even more profound for my child to be told he was crazy rather then very ill. I don't think anyone could ever understand the suffering he went through, now I walk the path of Cancer/Morgellons but my doctors so far have put a diagnosis of Morgellons rather then crazy to ease a bit of my pain. They seem to believe me but yet I think I may have a post traumatic stress disorder from the treatment I received from my doctors 4 years ago and I don't feel at ease discussing Morgellons with them. My hair just fell out from Chemotherapy. 2 days ago, all at once, with it came the millions of red, blue, black and clear-white fibers and springtail's, spiders, ants, dog scabies, human or dog lice we, with Morgellons, have come to know. I know losing hair for a woman or man is very tough during chemotherapy and radiation which I start on June 30th along with more chemotherapy, but to have the bugs and fibers coming out of your scalp is a torture beyond words. My beautiful child lived this torture, he did not deserve this pain, there are many children out there with this un-known horror, trying to come to grasp with the disease, parents that don't understand and doctors who still carry the stigma of (It's all in your head) and dump drugs in their poor broken bodies. I have no doubt that Autism, All of the Hyper-Active Disorders and yes now Cancer has something to do with Morgellons, as I'm sure you folks at CDC have by now heard many people with Morgellons are being diagnosed with cancer. Many of us have Chronic Fatigue, Chronic Pain disorder from Neuropathy, MS, and many disorders where we were told by you from CDC through Mr. Dan Rutz were conditions that would not kill us, so maybe you felt no rush to get answers for us.
WE are dying now, please help us I beg you. I have lost so many friends from Morgellons Syndrome, I've lost my son, a young man who could have giving so very much love and kindness to mankind is gone.
I beg you, help us, please tell us what was found in your study, you promised answers for us, now I feel you have really let us down. It was not just a way to keep us quiet for a while was it? Please don't let us down. Thank you for providing this e-mail address for us, please let us know what you have found. Sincerely, Sheila Sue Laws, Gaithersburg, MD
I love you guys, Suebe
|
|
|
Post by mfromcanada on Feb 11, 2010 13:33:17 GMT -5
thanks so much for writing and posting this letter. It makes me so sad to hear of your suffering and your late sons. Recently one of my neighbours came down with morgellons as a result of chemotherapy. She went back to doctor and was told she had blood poisoning. I thought chemo was poison. She was also told to get the H1N1 shot, after all that chemo, as her immune system was low. She got every single side effect from the vaccine. She looked like she was a walking dead person. I wish chemo would kill morgellons before we all get cancer and die. I got Melanoma in 2002 and I got morgellons in 2000. I am afraid of lung/pancreatic cancer. I hope you get better from this cancer. My thoughts are with you.
|
|
|
Post by Sidney on Feb 11, 2010 14:35:07 GMT -5
Were the above copied and pasted from old posts?
Suebe's letter was a real heartbreaking-gut-wrenching brief account of her suffering and the suffering of Josh, but both these posts are confusing to me.
Thanks in advance for your replies.
|
|
|
Post by Sidney on Feb 11, 2010 14:40:26 GMT -5
|
|
|
Post by abbienormal on Feb 11, 2010 17:12:47 GMT -5
Hi Sidney, ask and you shall receive. Thanks for missing me. I miss you guys too since I started keeping a low profile. I hope that you are feeling well, Sid. I hope that everyone is doing as well as can be under these bizarre circumstances.
I think it was Pamca who said the chemo didn't kill her morgs. I didn't have chemo but I had radiation and that didn't kill them either. Actually my morgs are worse in that breast since just prior to the radiation.
I now have a raised huge hive, I don't know what to call it, but there is a patch of skin on my breast about 3x3 which is almost always raised like a huge mosquito bite but it doesn't itch. If any material touches my breast skin the hive expands.
If I wear a button down pajama top to bed (which I no longer do) I have deep creases and raised skin all over that breast from the material but the other breast looks absolutely normal.
(I told the radiologist about the raised skin before she started zapping me because I was afraid that I had that horrid inflammatory breast cancer. She looked at it and said she didn't know what it was that perhaps I had come in contact with something. So the raised skin started just before radiation in june 2008 and has not stopped since )
The last time I took artemisinin I had quite a bit of morg debris come out of my nipple.
I fear for my breast but am happy to report I no longer have the knifing shooting stabbing pain in my breast that I did previous to surgery. (and the pain was not in the area that the cancer was in) I think the abx killed the pain in my breast.
Love and strength to each and every one of you, Abbie
|
|
|
Post by Sidney on Feb 11, 2010 19:47:33 GMT -5
Hi Sidney, ask and you shall receive. Thanks for missing me. I miss you guys too since I started keeping a low profile. I hope that you are feeling well, Sid. I hope that everyone is doing as well as can be under these bizarre circumstances. Hi Abbie Normal, and wonderful to hear from you after your very long absence. We have truly missed you and so good to see you here again. Much like most here, I'm hanging in, here for the long haul I guess, but it's a miserable experience and existence as you know.I think it was Pamca who said the chemo didn't kill her morgs. I didn't have chemo but I had radiation and that didn't kill them either. Actually my morgs are worse in that breast since just prior to the radiation. Thanks for clearing that question up. I now have a raised huge hive, I don't know what to call it, but there is a patch of skin on my breast about 3x3 which is almost always raised like a huge mosquito bite but it doesn't itch. If any material touches my breast skin the hive expands. To me, 3 x 3 is huge, miserable, but I'm glad it doesn't itch. What baffles me is WHY? Not why it doesn't itch, but WHY is it there and WHY isn't someone thoroughly investigating its presence?If I wear a button down pajama top to bed (which I no longer do) I have deep creases and raised skin all over that breast from the material but the other breast looks absolutely normal. Is the skin rough, red, irritated appearing? (I told the radiologist about the raised skin before she started zapping me because I was afraid that I had that horrid inflammatory breast cancer. She looked at it and said she didn't know what it was that perhaps I had come in contact with something. So the raised skin started just before radiation in june 2008 and has not stopped since ) It probably does appear to be a "contact" allergic reaction, but one would think someone would want to know wht it looks the way it looks. The last time I took artemisinin I had quite a bit of morg debris come out of my nipple. I've never taken artemisinin, but maybe that would be a good thing to take. Anything that makes the debris emerge should be beneficial unless more is being created all the time. A friend in Iowa had black fibers coming out both breasts in the early years of her disease. Unfortunately, she was breast feeding a newborn at that time, and continued to do so.I fear for my breast but am happy to report I no longer have the knifing shooting stabbing pain in my breast that I did previous to surgery. (and the pain was not in the area that the cancer was in) I think the abx killed the pain in my breast. Of course you fear for your breast! Any breast pain is scary to me! It's so great to see you here again. Please come back often and join in if you feel up to it. I know so many here have missed you.[/color
Love and strength to each and every one of you, Abbie Thank you and the same to you and the Mister!
|
|
|
Post by glennb on Feb 11, 2010 21:32:03 GMT -5
It doesn't surprise me that the Center for Disease Creation is doing nothing about the Morgellons situation. Looks like it is time to start writing letters and making phone calls (again) to all the gov. representatives.
Maybe the CDC is hopeless. After all it is an agency that is under the jurisdiciton of the Dept. of Defense and since Morgellons is deliberately being spread through the chemtrails sprayed by USA identified military aircraft I don't know how logical it is to think we will ever get any real help from the CDC.
Financially supporting independent researchers like Clifford Carnicom, Dr. Staninger and Jan Smith may be a more fruitful option.
Dr. Hausckas Neem Hair Lotion seems to do a pretty good job of keeping Morg stuff out of the scalp. My scalp does way better when I am using it on a regular basis.
|
|
|
Post by lilsissy on Feb 11, 2010 21:38:27 GMT -5
I am going to try the neem oil.
Jen
|
|
|
Post by chaosonline on Feb 12, 2010 2:09:18 GMT -5
I've been wondering the same thing. I did my first low-dose chemo on Tuesday and despite what I was told about having little or no side effects I suffered a great numbers of those listed plus a few others. I doubt chemo has much of an effect on Lyme spirochetes even though spirochetes can lye dormant in our cells. But I think the chemo is effecting some of the spirochetes, perhaps not necessarily killing them but triggering them to throw off toxins as they stealthy morph to hide while being attacked by the chemo. Some of my side-effect symptoms reminded me of a lyme herx.
As far as Morgellons goes I have not noticed any increase in Morgellon symptoms or particulate. I am watching though and will let you know.
I could probably trigger a response with either the horsey sauce of antibiotic ointment followed by liquid capsacin. Maybe I'll do this when I feel a bit stronger.
Love, Karen
|
|
|
Post by abbienormal on Feb 12, 2010 11:55:26 GMT -5
To me, 3 x 3 is huge, miserable, but I'm glad it doesn't itch. What baffles me is WHY? Not why it doesn't itch, but WHY is it there and WHY isn't someone thoroughly investigating its presence?
The humongous hive does not make me feel miserable physically because it has no symptoms but it freaks me mentally. The radiologist is the only one who looked at it. My Lyme doctors only wrote notes about it, never asked to see it. I have yet to say anything to my surgeon and oncologist. I was so afraid that if I went down the Morgellons road with them, they wouldn't treat me which I knew then and now that was a totally irrational fear but cancer, lyme and morgellons will make you irrationally fearful. I just wanted the cancer out of my breast. In follow up visits, of course I was asked to disrobe, and by the time the doctors actually came in the office, the huge hive went down. (It is only raised and thick looking while material is touching it, i.e, bra or pajama tops.) After I disrobe the swelling or whatever it is, goes down. The next time I am not going to take my bra off and wait for the doctor and show him. So this hive-like thing showed up after surgery and before radiation. It is located a few inches from where the cancer was.
Is the skin rough, red, irritated appearing?
The skin is not rough, red or irritated. It just looks like thickened skin which is raised like a hive without all of the hive symptoms. Sometimes I think that when they cut the cancer out, the morgs in that area moved to where the hive is and the hive is actually all of the morgs rising to the surface of the skin when fabric is on the skin so that they can pull fibers from my bra or pajama tops. Don't know, just guessin.
I will come back now and then but I feel such despair at times between what has happened to our world, or planet and what has happened to us that it is all just too much to bear. This disease is so insane and weird that based on its extreme bizarreness at times I am able to convince myself that I don't have it. Or sometimes I just feel like I am in a movie.
I just start to feel a little sad when I come on the board. Maybe I will get over it in time.
Love to everyone and keep fighting the good fight, AbbieN
|
|
|
Post by toni on Feb 12, 2010 12:41:13 GMT -5
Hi Abbie,
I can relate about the area that's raised up higher than the rest of the skin. It's like another level and the "area" in which is raised, is like a hive would do...or many that would group together and form a "plaque", I guess it's called.
I had one of those "areas" about a nickle size on my face. I daily (for a couple of weeks) put my mix (yog and 2%milk) on it...and allowed that to just dry on undisturbed (every single) day, not knowing IF that would work or not, and it went away.
I never let that area be without the mix on it, unless I was in the shower. That's the only time that spot on my face got to see the light of day (as a matter of speaking).
When that first happened to me...I thought OMG now what the H is this...and why, and what's under there (the skin) that's making it do that.
The same as you, it didn't itch, nothing, it was just there. And it seemed to "flare up" or do the rising thing arbitrarily...(didn't know the reason)...it just did it for whatever reason it decided it was going to do it.
Well..I didn't mess with it, just globbed on the mix, and viola~! Gone.
I can take apart the milk and wonder "which property" of the milk causes such great relief and healing to "my" morgs weird events, but....there's no way to prove "why" at this point. Don't have the capacity of "lab testing".
I will say (that IF) there is a bacterial component to Morgs, (which without factual knowledge) I do believe there is. And that too is only based on "experiments" here at home without any medical or scientific equipment - it's all based on what I see of course.
And to reiterate about those milk "scientific articles"...milk was used on "hanging raw meat" ( sprayed on ) because it killed microbes. Listeria, staph, gosh, about 5 different bacterial pathogens. Don't know if you remember those articles, but somewhere here they are. I bring that up because I know "simple" milk seems like "how could it help"....but it does.
The plain yogurt is only mixed with the milk to "thicken it"... otherwise the milk is too thin of couse to stay "on thick like".
Why it (milk) and plain yogurt seem to help so much I can't tell you why. I don't know. But because I had the same raised plaque ...and believe I know exactly what you mean, how it comes and goes, (just a specific) area, over and over without pain or itching, (it's just there) and flat, but raised up above the rest of the skin surrounding it....I wanted to share this.
|
|
|
Post by abbienormal on Feb 12, 2010 14:16:21 GMT -5
Hi Toni,
Nice to hear from you. I hope that you are doing well under the weirdo circumstances.
I read some flyer on successfully growing tomatoes and it suggested pouring dried milk in the hole where you plant the tomato. It was dried milk and something else which I can't remember now but the dried milk was used to keep away fungus. Maybe there's a connection.
Thanks for sharing. Love to you and Mister Toni.
AbbieN
|
|
|
Post by toni on Feb 12, 2010 16:20:09 GMT -5
Thank you Abbie I got real curious after you said that about milk for treating fungus, and yeah...that's pretty neato! Thanks for mentioning that. I found this just now (Popular Mechanics). From article: Milk makes a first-rate fungicide. Peter Crisp made the discovery while testing traditional plant disease remedies for his doctoral research at the University of Adelaide in Australia. He found that bathing grape leaves in a weak dilution of water and milk is as effective as using sulfur-based fungicides, which he estimates currently costs the Australian wine industry about $30 million a year. Several organic wineries are testing the treatment. www.popularmechanics.com/technology/industry/1285296.htmlWell....hahaha Peter Crisp here doesn't know about Toni and Morgellons, hahaha ;D
|
|
|
Post by Sidney on Feb 12, 2010 17:20:28 GMT -5
Abbie Normal, thank you for returning to the Board to reply to my questions. I certainly agree that fighting Lyme, Morgellons AND Cancer would create fears multiple fears, and I don't consider them irrational at all. Thank you so much. We do miss you and hope you will come back from time to time when you feel like coping with ALL of us and this hateful disease.
I'm so glad you posted about the powdered milk in holes for planting tomatoes. Since Toni-Sue swears by the Milk and Yogurt mixture it caused her to do some searching and the results of her search are phenomenal. Plenty of information out there, crazy as it sounds, yet there must be something to this and I am thrilled.
My face hasn't been this "bad" in years, and I'd like to cut chunks out of it!
On another note, I spoke with a friend last night who has had fungus/mold confirmed by one of her doctors. This is not one of the people who sent a petri dish for observation of fungal growth.
Today I spoke with another woman, again, in another state whose doctor has confirmed the presence of mold/fungus and is treating her with Sporonox and something topical.
Another person I know is using Nystatin and believes it is helping her face somewhat.
I am certainly willing to try the milk myself, and as Toni-Sue has said many times she adds the Yogurt to make the milk adhere.
Thank you Abbie Normal and Toni!
|
|
|
Post by abbienormal on Feb 13, 2010 11:58:53 GMT -5
Here is what the flyer reads: (my dogs chewed it so there are some areas that are blank and a good guess)
Tomatoes need to be grown in an area that gets lots of sunshine, in fluffy, fertile soil with a pH ________to 7.0. Soil tends to become low in pH with time so you probably should add lime to help raise the soil pH. High calcium lime is best as the calcium helps reduce blossom end rot. Try to dig in plenty of compsted manure and chopped leaves (but not from walnut trees) in the fall where you will grow them. If you wait until spring, add lots of compost before planting. In each planting hole blend in the following with the compost: one (teaspoon or tablespoon, can't tell, it was chewed on) of sugar, 1/2 cup of epsom salts, 1 tablespoon of baking soad and 1/2 cup of powdered milk. ___________ helps to cut down disease and in particular fungal types such as blights. Fungus loves sugar and acid. Doing this lets fungus feed from the additives instead of robbing sugar and nutrients from the plants. Baking soda and powdered milk helps kill the fungus.
Happy Tomatoes!
Love, Abbie
|
|
|
Post by bannanny on Feb 13, 2010 17:10:00 GMT -5
Hi abs! It's so good to hear from you girl! But I completely understand your feelings about not coming to the board. It's not a place that's full of positive things... but it's still good to know it's here eh? At least we've got the positivity of love and support goin for us! I have times when I don't even log in for weeks at a time myself... usually when I'm in a nightmare cycle and just don't wanna talk about it or read about it when I'm there. But these poor guys sure have a book to read everytime I do come back from one!
I related to your hive too, the minute you said it looks like thickened skin that's raised up without having hive symptoms. I have the exact same thing on my upper leg right where it meets my bum. Sure doesn't feel like skin anymore that's for sure. Only difference is mine never goes away... but maybe it will if I use milk on it.
I'm gonna try soaking my hands in it too, which our sweet Sid suggested I do! Might as well do my feet as well, since them and my hands both ooze goo all the time. Reading what you posted above too abbie, I'm gonna buy some powdered milk and add baking soda & water (should I add water?) then put the mix in a shampoo bottle for my head. Then again, it might not be a bad idea for us to just wash our skin off with it every day you guys... sounds like your milk idea was right from the very beginning toni! I did try it mixed with the yogurt tho and it never really did much for me. One question... do you think it matters whether or not we use 2% or whole milk?
Just curious Sid... do you know what species of mold was identified by either of your friend's doc?
Happy fungi free tomatoes to you too Abbie! I'm so glad you're doing better!
love ya's ~~ bannanny
|
|
|
Post by bannanny on Feb 13, 2010 17:17:25 GMT -5
Oooops, forgot to ask where you buy the Dr. Hausckas Neem Hair Lotion at glenn? I'm losing my hair again (for the third time) got none on top and alot off the sides. I'm a real site I tell ya! It's bandana's and ball caps for me once again... actually I should probably just shave it and start over. But I'd like to try the neem... hopefully they sell it in stores? I decided a long time ago not to keep credit cards anymore, so it's pretty much impossible to buy off the internet. I'll use mom's cards if I absolutely have to and pay her in cash, but I'd rather not do it that way. So if I can get something in a store, it just works better for me.
hugs ~~ bannanny
|
|