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Post by zabrubon on Mar 9, 2010 20:44:59 GMT -5
Oh no, I am starting to get the crawly feeling on my chin and itchy feeling in my nose. I have started to cough more too. Now what? Just as my hair was all grown back in and curly again, I have to go on the strong meds again? I dread it. Next, I suppose I will get the stiff neck feeling. AWH! Just not fair. I have not clue how to treat this without medication. I have some abendezole left over from last year. Guess I will take it. I sure hope we get answer soon for the reason for this disease. And why does the abendezole work?
CB
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Post by bannanny on Mar 9, 2010 21:28:17 GMT -5
Seems like some people get results from taking any of the "azole" medicines. Like I've said before, it's probably cuz morgs is such an a-hole itself! Anyway, I know Itraconazole is used as a treatment for certain mold infections in people, so that's probably why we see results with those particular antibiotics. I'll be asking a doc for some myself once I find another one.
My entire face is bad right now too bonnie... I wish I could tell you what to do for it but I haven't found anything that works all that well on it either. However I do clean it thruout the day with "Clean and Clear" deep cleaning astringent. It has salicylic acid in it, which morgs don't seem to like all that well. I know mfromcanada puts a dropper of peroxide up her nose which she says works very well. So maybe try those and see if you get any relief ok? Sorry I can't tell you what to do to make it all go away bonnie.
love you ~~ bannanny
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Post by zabrubon on Mar 9, 2010 21:40:37 GMT -5
Bannanny, I think you are right the ozole meds do work. I think I will take a half a pill every other day and see how that works. I need to get a new doctor too. This doctor I go to is ok, but he says I have lyme. I don't have lyme. He doesn't believe in Morgelllons. I want a doctor who believes this exists. I use that salicyic acid wash on my face. Works good. You are so right, the little fibers don't like it. The peroxide up the nose has to hurt. Ouch! But it's worth the try. Does she dilute it? I would think so. I am tired tonight and i am going to bed. Later and thank you so much for your help. Love ya too. CB
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Post by bannanny on Mar 9, 2010 21:57:05 GMT -5
Well if you have a doc who can treat you for Lyme CB, let him treat you for Lyme. It's comparable to morgs and most with morgs actually do have Lyme as well. Even if it doesn't show up on a Lyme test... it doesn't most times. You know how hard it is to find a doctor who will tell you morgs exists, so I'd let the doc you have treat you for Lyme whether you think you have it or not. It could very well help your morg situation. I wish I could find an LLMD, but the closest one to me is 150 miles away.
I don't think mfc dillutes the peroxide, but I'm sure she'll chime in here and let you know. Get some rest now... I hope you enjoyed your birthday today sweetie.
hugs ~~ bannanny
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Post by toni on Mar 10, 2010 10:23:28 GMT -5
Hi CB, Sorry to hear you're getting those horrid crawlies.
A milk wash? Or a milk and plain yogurt (mixed together) will help possibly. I know it sure does help me.
Something about taking any meds (azoles) or anything really.
Just wanted to share something you can ask your doc too.
You'd mentioned taking 1/2 of one every other day.
Meds (will be useless/wasted if taken that way). The "germs" will adapt extremely easily when meds aren't taken to "knock them out" right up front. That's why the 'milligrams' are specific on for example (antibiotics). So many milligrams are needed to attack a particular strain. If a lesser dose were taken (another example) those germs would easily adapt and basically become immune to the meds.
That's why the "duration of the med taken too are important" actually just as much as the milligrams".
I'm only trying to help, as it took a doctor explaining this years ago to me (when I'd save meds) after I felt better. I figured I felt better, so I could stop the script, and save the rest for another time.
But from what I learned, we either must "use them to their fullest" - like attack full force for the time specified (usually a week) minimum or not take them at all. Or they'll just be wasted basically, and create our "germs" to be immune to them.
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Post by justhanginin on Mar 10, 2010 15:28:38 GMT -5
Bonnie, Try covering the area with Vick's Vaporub. It has always worked well for me. Brings things out of the pores and or follicles like crazy, and stops the crawly/itchy feeling dead.
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Post by zabrubon on Mar 11, 2010 1:45:13 GMT -5
Oh, thank you so much for the ideas. I will try them all. My throat is hot all the time now too. Like I have heart burn, but it's not heart burn. I am starting to cough a lot too and I have sinus drainage starting up, like I had six years ago. That is how it all started. The cough, the drainage. The only thing different is the burning in the lower part of my throat. Ugh! Well, I suppose if the yogart helps the outside, it will help the inside too. Right? Vicks i can't eat. ha, although I may get desperate and try. Ha. Toni, my doctor told me to start taking the antibiotics every other day. That's what I have been doing now for almost a year. Only recently now I am taking them every day. I am gettting desperate. I think I will take the abendezole start it this weekend, full force. Well, there goes my hair. Oh how awful is that? I just got it back. Oh, well, what can I say.
Thanks everyone for your pointers. Going to bed now, very tired.
ChicagoBonnie
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Post by toni on Mar 11, 2010 8:26:37 GMT -5
Bonnie,
Something else too. (besides the Albendazole so you don't have hair loss) is:
Stromectol (by script from your doc) might give you more relief from the crawlies than anything - and it won't cause you hair loss like the Albendazole.
And if you only take it (at the beginning of each month for just a few days, like 3 in a row) and then stop - and then the middle of the month take it again for just another few days in a row (that too might give you total relief) and then you're not taking any meds (for long stretched out durations) and you're getting the full benefit of no crawlies.
The only reason I'm suggesting this (is because it might be worth a try) so you can keep your hair, and it's an "easy dosing" method to keep your body from being hammered by meds too, and it really "might" give you total relief without having to take so much other stuff.
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Post by bannanny on Mar 11, 2010 20:11:00 GMT -5
Do all the azoles cause hair loss or just the Albendazole? I'm already losing my hair agian for the third time and I've never even taken any azoles before. Makes me wonder what I AM taking that's causing it... probably just morgs tho. That's where it all started for me anyway, in my hair.
Sure hope you can find something to make it stop CB... still got you in my prayers girl.
love ~~ bannanny
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Post by zabrubon on Mar 12, 2010 0:56:10 GMT -5
Toni, the stromect, where do I get that? Can you PM me an let me know? I know my doctor won't give me. He wants me off everything. But you see, now I am beginning to suffer.
I think a lot of medication will make you lose your hair. I know the Abendezole did. But now my hair is growing in so curly, just like it used to be when i was young. Nanney's what are you taking? What does the side effects say?
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Post by toni on Mar 12, 2010 8:42:07 GMT -5
Albendazole Less serious side effects may include: stomach pain; nausea, vomiting; headache, dizziness; or temporary hair loss. Many meds probably could cause hair loss, but I've not seen any (except this med) list it on their "side effects".www.drugs.com/mtm/albendazole.htmlCB, I guess I was under the impression your doc would write you a script if you asked, which is why Ivermectin came to mind, as it's a med many of us have had prescribed, and many have had "relief" from it-and without noticible side effects. Bannanny, I don't really know what could be causing your hair loss, (things that come to mind) are hormones need checked or thyroid (possibly)? That's got to be hard having that too added to the mix of Morgs. But these are two (usual causes). Also, I don't know if you take DHEA, or Vit A that too can cause hair loss.
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Post by justhanginin on Mar 12, 2010 9:58:44 GMT -5
Bonnie, No you can't eat Vick's, but putting a teaspoon or so into a bowl of hot water and inhaling the vapors might be a plan.It helps for the congestion of colds and flu and like I said the Morgs absolutely hate it.
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Post by bannanny on Mar 12, 2010 20:22:16 GMT -5
What I'm taking now is NAC, 2 1000 mg. of Vit C with bioflavinoids, Buffer ph, Folic acid, 2 cups of Calm Magnesium 2x a day, and liquid Chlorophyll. I just added the Chlorophyll and started the buffer ph and folic acid again but I've been taking the others for quite a while now. No hair loss side effects that I can find in any of those tho. Think I'll just shave my head and buy a good wig and forget about it all! Every time my hair grows back, it's not hair anyway anymore, so I could care less about it... altho I sure do miss the long hair I used to have when I came down with this mess.
When I find a new doc, I'll get a referral to a GYN... haven't been in years so guess I should do that and have my old hormones checked!
Inhaling the Vick's vapors like you said jh is really great. I do that sometimes... did it the other night cuz my lungs have been hurting so bad lately. It makes you feel fresh anyway... and clears your head too!
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