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Post by kiki on Apr 16, 2010 16:38:16 GMT -5
Gosh I have so much to say my mind is reeling trying to organize my thoughts! I'll start with my last dr appt (it was on Tues). This was with my primary dr, not Dr Shoemaker (LOTS on him in separate thread). I have a lymphocutaneous? infection. I'm sorry I did'nt write it down cause I knew it would be on the copy I get of bill sent to insurance co. which is also a summary of what was discussed but must have left it on the counter. She did say it is rare. Anyway, maybe you can help me figure out what it is by the med prescribed? I started to search for it but I just can't concentrate and read the same paragraph over and over and STILL don't comprehend what I read... as in... I read what I see, but do I see what I read??! I'm still taking the meds from Dr Shoemaker but added SSKI (potassium iodide). I have no idea if all my symptoms are from this but would be shocked, shocked! I say, if it were that easy. It's way too much to think just one thing could cause so much hoopla. My next appt is on 4/29 and should have more test results by then. btw-- what exactly is a lesion? Does it appear on it's own? Is it considered a lesion if I caused it? I'm pretty good about forcing myself not to pick at skin EXCEPT when I feel something under my skin that does'nt go away. I fixate on it and guess I go into a trance cause Iv'e tweezed bloody HOLES on my eyebrow and don't realize I've mutilated myself till it's too late. Is that a lesion?(or just self abuse ) Can anyone answer questions about haplotypes? love- Kiki
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oneder
Full Member
hope works
Posts: 201
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Post by oneder on Apr 16, 2010 17:35:16 GMT -5
i have done the same with my eyebrows. it is real. prayer works. dr bonners pepperment shampoo straight on the skin massaged in with water is stopping my lession. not a cure but i have had sores on my face for over five years. ninety percent healed and getting better. not a cure but i am glad for this....
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Post by Jill on Apr 16, 2010 17:50:52 GMT -5
Agree oneder, the Lord hears our prayers and answers the Faithful! Kiki, RE: your SSKI (potassium iodide) www.nukepills.com/potassium-iodide.htmFDA Approved Potassium Iodide Blocks the thyroid's absorption of cancer-causing radioactive iodine released from a nuclear reactor or nuclear bomb ThyroShield™ Potassium Iodide *** Unlikely your doctor is treating radioactive iodine from nuclear reactors. Ok, we can eliminate that.... www.earthclinic.com/Remedies/potassium-iodide.htmlTestimonials at the above link for potassium-iodied curing everything from ovarian cysts to sinus infectionsScroll down towards the bottom of the page for this: Fair use Excerpt: 10/22/2009: Bill Jencks from San Fernando, Philippines replies: "To answer Anonymous's question above: The Doctor who successfully used SSKI against Candida in his story was Dr Orian Truss I think."end excerpt Most likely your doctor is treating yeast/fungal infection. More here: www.fungusfocus.com/yeast/ycandida_info2.htmWe have a great discussion going on about yeast, which turns fungal here: lymebusters.proboards.com/index.cgi?board=rash&action=display&thread=13762&page=5 Jill
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Post by ruth on Apr 16, 2010 19:05:23 GMT -5
good to hear from you kiki. i wondered when you would come back. can't wait to read your thread re shoemaker. does he use antifungals? these anti fungals diets SUCK
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Post by Jill on Apr 16, 2010 21:57:41 GMT -5
I am so glad that you reported back with your diagnosis Kiki. Found this: www.aafp.org/afp/2001/0115/p326.htmlSporotrichoid Lymphocutaneous Infections: Etiology, Diagnosis and Therapy You sound perky- how you feeling?
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Post by kiki on Apr 16, 2010 22:52:52 GMT -5
Mr Kiki remembers her saying it's a rare form of a sporotrichoid syndrome-- 1-2 cases per million population. He also remembered that it's radiology (sp?) indistinguishable from tuberculosus and histoplasmosis. I don't get lesions but I do have tiny red pin-prick spots and very flat, smooth growths. I never had a wart and assumed that's what they were. Most are so small you have to really look for them- and even then the light has to be right to see them. This kind can affect central nervous system, lungs, heart as well as skin and lymph nodes. Teeth and gums too. It does'nt respond to first line drugs but treatment with potassium iodide has been successful. I'm not on antibiotics anymore. As crazy as it sounds, my dr told me to take lemon balm herbal extract (35 drops 2-3 x a day, and grapefruit seed extract (1 capsule 3x a day). Was also told to take at least 100 drops of chamomile a day- I make tea but only drink it at night cause it helps me fall asleep. I am doing a zillion times better and everyday I feel better than the day before. The first 3-4 months on Dr Shoemaker's protocol was like a Steven King novel on LSD. My weight is becoming an issue though. I lost 9 more lbs but the welchol may be contributing to that since it binds to fat cells.
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Post by Jill on Apr 16, 2010 23:38:50 GMT -5
So good to read that you are doing so much better Kiki! Looks like Dr Shoemaker was the right choice for you. Wish there were a few more like him around- or that he had another office.. or two.
Jill
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Post by jeany on Apr 17, 2010 7:05:03 GMT -5
Hello Kiki, I'm glad you're doing better. I was curious to find out a little bit more about sporotrichoid syndrome and looked it up. Especially I found this interesting: ....The “sporotrichoid” disease begins at a site of distal inoculation and leads to the development of nodular lymphangitis.... Organisms That Cause Nodular Lymphangitis Common causes Sporotrichosis schenckii Nocardia brasiliensis Mycobacterium marinum Leishmania brasiliensis Uncommon causes Nocardia asteroides Atypical mycobacteria Francisella tularensis Blastomyces dermatitidisCoccidioides immitis Cryptococcus neoformansHistoplasma capsulatumStreptococcus pyogenes Staphylococcus aureus Pseudomonas pseudomallei Bacillus anthracis Cowpox virus www.aafp.org/afp/2001/0115/p326.htmlJeany
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Post by friskers on Apr 17, 2010 13:38:05 GMT -5
Lovely to hear from you KIKI! Thanks for sharing and so happy your doing better
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Post by bannanny on Apr 17, 2010 19:07:04 GMT -5
Is your doc thinking this sporotrichoid is morgellons? Either way... I'm just really happy to hear you're feeling and doing better!! Keep us updated as you go ok? I've never had lesions either but do have the same red bumps, whitish looking growths, and wart looking things on me too. Yours sound identical to mine actually. Wonder if I should try some potassium iodide as well?
big hugs ~~ bannanny
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Post by toni on Apr 18, 2010 11:30:41 GMT -5
heheh Bannanny (there's your post in the background of my holding the bottle of my Potassium Iodide) I just now took this pic in front of my computer as I was reading the posts. I've been *trying this* Potassium Iodide topically with my mix too lately. I've not tried it internally though. Here's alittle something about it too. ( NEVER use this in the ears) I've read where there's been irreversible damage done by that type of application. www.ehow.com/list_6152558_bactericidal-effects-potassium-iodide.html
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Post by toni on Apr 18, 2010 12:24:13 GMT -5
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Post by Sidney on Apr 18, 2010 17:08:02 GMT -5
Toni-Sue, when I called our nearby pharmacy to ask if they stock Lugol's they told me no, but they'd be happy to order it for me. Price? $40.00 plus tax. Same size, same brand, etc. I said thanks, but no thanks.
I remember a few years ago people were buying Lugol's and adding a bit to their washing machine when doing laundry.
For thos of us who take replacement Thyroid, (Synthroid, in my case) I would be afraid to take it internally.
Thanks for the good news from Swanson's. Old, reliable, and they stock so many brands in addition to their own.
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Post by bannanny on Apr 18, 2010 17:16:32 GMT -5
Thanks tonio! Love that kitty cat in the background! Do you know what exactly it's for if taken internally? Nevermind, duh! I can look it up silly me!
love ya ~~ bannanny
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Post by toni on Apr 18, 2010 17:50:53 GMT -5
Wow Sid, that's expensive. It may have been a higher strength too of PI. I sound always like I'm pushing Swansons, (I'm not) it's just a place to get EVERY brand on the market (but costs less) because they have a warehouse, and not independent "stores" so that overhead is cut off (and we benefit) from that shaved off cost. Bannanny, yeah...your kitty you painted sure is precious. I had this link in the post where I'm holding the bottle of Potassium Iodide, (it's the benefits-link below) in this article of using this product, (but remember it's not to be used in the ears). I've read a few medical articles where it literally destroyed parts of the inner ear. www.ehow.com/list_6152558_bactericidal-effects-potassium-iodide.html
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Post by kiki on Apr 19, 2010 17:45:25 GMT -5
I didn't know you could get it OTC. Mine says SSKI- oral solution. Wonder if it's the same stuff as for topical use?
I just lost a reallllly long post when I went to send it. Why is it always a post with lots of details that took forevver to do? That seriously chaps my tush. Hopefully I will have the energy to try and recreate it after I have dinner. If not, I will do it first thing tomorrow. The potassium iodide is sucking the energy right out of me.
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