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Post by justhanginin on Jun 11, 2010 0:09:04 GMT -5
lostintime, check out fritolay's post and my reply on ctbarb's thread.This product may be a help for you. It did help me. I have had this condition over ten years now.
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Post by kammy on Jun 11, 2010 14:56:11 GMT -5
Hey Lost, I sent you a couple of emails... yes, we need to get more proactive however we have a major disaster happening in the gulf. I doubt much about Morgellons is going to get the attention by these 'powers that be' unless it is somehow related to how the oil is making our disease more obvious for them to see, is it going to make us sicker or more immune than others?... we need to tie this in... what about all the benzene?
Is the next generation of Morgellons about to be upon us, an oil-morphed one?...
Hang in there, Lost - this has been one long, hard fight to get medical attention, something has to give soon.
I'm still preparing the letter to the scientists on your behalf.
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Post by camv35s on Jun 12, 2010 0:01:03 GMT -5
Hello lost in time ,welcome to the club ,and if I may comment on your calling the CDC for help the only analogy I can think of would be if you were in a concentration camp and you called out to the tower guard for help ,and if he took pity on you, he would shoot you ,and put you out of your wretchedness of condition or circumstances kinda like the people in the gulf asking the epa ,for help on the oil spill or fema when katrina hit, the only help you will ever get for your condition is from your best friend (you) or from others on this board , you mentioned taking natural supplements,every one ever invented is here on this board with results but what helped me the most is not what I took ,but what I eliminated from my diet .I believe genitically modified High Fructose corn syrup found in all soda pop is one of the main players and the fake maple syrup which is 99 percent corn syrup and if you start looking at whats in what you eat you will be amazed also hydrogenated fat found in coffee mate is a death sentence also I drink over a gallon of spring water a day ,I'm not cured but I'm 99% better , best regards Camv.
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Post by bannanny on Jun 14, 2010 12:25:05 GMT -5
Unfortunately I have to agree with camv here... we've all written many a letter and continue to, but it's not what's gonna get you better sweetie. What's helped me more than anything is what I call my "shock and awe" protocol. I have sooooo many supplements in my cupboard I decided to make use of every single one. I started taking a particular combo for one week, then went off everything altogether the next week. The week after that I put an entitrely different combo together and took that, then off of everything again the next week, and so on and so on. It helped me more than any one protocol ever has. Of course now I'm trying a new doctors protocol but haven't been on it long enough to say anything yet. I'll certainly keep everyone posted tho as time goes by!
But I think what really started me on a better road to health was when I decided I was gonna start living my life again and take back the controls... I gave up looking under my scope and trying to figure this whole mess out too. Once my mental attitude became strong again, alot of good things started to happen for me... I even fell madly in love! You simply have to "rise above it" my friend and have faith. If you believe in God, give it to Him and truly believe in your heart that He WILL help you, and He will. I'm adding you to my prayers and hoping you find what will lead you onto a beautiful path again... it's out there too. You just have to open yourself up to it and leave this mess where it belongs, which is out of your mind. Life is still out there lostintime... as hard as it may seem to believe it is at times.
big big hugs ~~ bannanny
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