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Post by bannanny on Oct 23, 2010 12:21:40 GMT -5
Some of us are aware of something that's been said on the "Guns drawn over milk" thread... which is little blows against the CDC. So I just wanna say that I for one also think the CDC SUCKS!! They've handled morgs so very wrong from the get go that it makes my blood boil... and if I can't say what I think about them and their ways on this board then go ahead and ban me too. Too many of our friends here are either being warned or have been banned from LB for simply speaking their mind. Why does that have to happen is what I wanna know? I could give a rat's a*s if someone doesn't wanna see the reality, but that's not gonna stop me from seeing what I see and saying what I feel... besides the fact that it's obvious the CDC is jerking us around. Any other disease that supposedly never existed before (like the bird flu and swine flu) are put out on the news as tho we've just been nuked. It's made into a huge ordeal, even when the flu has been around for years as we all know. But do they put morgs on the news or create a vaccine for it? Noooooooo (and btw, that would be a vaccine that became so readily available in a short period of time that it alone has to make you wonder if it was all in their plan to begin with.) Did they even listen to any of the hundreds of calls being made to them in the beginning when this monster reared its ugly head? Noooooooo! A few calls about a flu got their attention tho didn't it? So why did it take us having to contact senators and congressmen for them to be forced into studying what WE'RE suffering from? Why has their report been delayed and brushed under the rug with their ridiculous excuses time and time again. Why won't they talk to US? Why, why, why? Becuz they're just as afraid of this mess as we are... yet they have the ability to actually try and do something about it. But will they let it be known they're even attempting to do something about it? Obviously not. Am I angry right now? You betcha I'm angry... and even moreso than usual becuz of this ugly cycle I'm going thru once again. But can I get any help? Noooooooo! Even the doctor I found who believed this is real has been sanctioned by the medical board to NO LONGER TREAT ANYONE WITH MORGELLONS!! Just in the same way Dr. John Martin had his licensse revoked and his research shut down when he was trying so hard to find the answers (and the doctor who btw diagnosed me with morgellons 5-6 yrs. ago.) Tell me what the fu*k that's all about and why it continues to happen to just about every single doctor or researcher studying this disease who are simply trying to help us? Does any of this make any sense to you whatsoever? It doesn't to me. So yeah... I for one don't trust the CDC and don't expect any real help from them either. They've told us NOTHING and they've had more than enough time to do so. Even it it's just telling us what WE'VE already had to learn on our own. It's a mess out there my friends... unfortunately I've come to accept that too. But just becuz I have doesn't mean I'll stop fighting... just as I'll fight to always be able to say what I feel here on this board, as long as what I say doesn't hurt anyone in a personal manner. So tell me now if I'm not able to speak my mind about the CDC and their so called study... and if I and others here are gonna be told we can't, then I'll have to pack my bags and leave as well. That would break my heart apart too... but we need to be able to voice what we're feeling and this board is the best place I know to do that from. Please don't take that right away from us. People read here... people who need to listen to what we have to say and people who need to know the truth. much love ~~ bannanny
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Post by friskers on Oct 23, 2010 12:27:45 GMT -5
Oh dear I havent been reading much here and dont know everythings that taken place but Bannans relax OK your not going to leave :'(that would make us all cry
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Post by bannanny on Oct 23, 2010 13:10:12 GMT -5
Nothing's really taken place friskers... I'm just finding that we all get warnings from time to time for speaking badly about the CDC and I'm tired of it. I don't support what they've been doing with their so called study and I think what I and others feel about it needs to be heard. Maybe it'll eventually reach someones ears who can actually do something to get the dam ball rolling ya know? But it's just been festering up in me for awhile and that's why I finally decided to say what I think about it all. Other than that... everything's good here!
love ya ~~ bannanny
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Post by kammy on Oct 23, 2010 16:32:30 GMT -5
Hi Banny, my take on it was that there was some sort of misunderstanding yesterday. Kitkat was riled up and made a couple of mis-statements or unverifiable comments about the CDC and another morgellons site on her Lyme doc thread. She was asking that people to join together to initiate a class action lawsuit, etc. She then carried that energy over to the milk thread, I was over there going back and forth with her posting, not realizing she'd made such a post - she was excited and venting, which is normal and I realized that she is frustrated and wants some action, etc. and was trying to calm her down.
We all have spoken at one time or another about our discontent about the way the CDC has not handled our disease in a timely manner, this is pretty much the way everyone feels, I think? That's not the issue here. The issue is that she was making mis-statements and trying to incite people. I think JJ handled it very well, under the circumstances.
My take on this is - the CDC operates with military personnel, our disease is under military control and they take their orders/ques from the top down - not the bottom up. We're the bottom, btw.
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Post by rhorn2006 on Oct 23, 2010 18:05:28 GMT -5
I think we are all forgetting that Kitkat "just recently" experienced her morgellons onset. Like the rest of us have done "freaking-out" is a normal reaction to the onset of it, then becoming even more desperate and freaked-out, finding that not only will doctors refuse to help you, they will brand you with a DOP diagnoses just for coming in and wasting there time!! After having this nightmare for a while and learning that there is no help for us, most of us calm down and just try our best to live with it, and do all we can to help ourselves.. Back when most of us got this and were going through our freaking-out period "just as Kat is now" we quickly realized that, even if they were willing to help us "no one knew anything about what it was, or how to treat it" with that knowledge we have sit, waited, and watched, as information has slowly begin to arise that is helping us to get an idea of what is going on and a possible means of treating the condition.. As bad as our situation was, after the onset of morgellons effected us, we had no where to turn for help because even the CDC said we were delusional. Now look at the situation years later, from Kat's prospective.. She has just recently come down with a medical condition straight out of the "Twilight-Zone" and cant get a doctor to help her,, even though the condition is very well known throughout the medical community, she is refused help because the CDC has not done there job, as directed or as promised!! If I, or any one of you, had just come down with morgellons, and could possibly be cured before it takes over the entire body, and learned that the CDC was paid "with thousands of our tax dollars" to conduct a medical research study in order to provide answers and a possible treatment,, the study "we paid for" has sense been long concluded,, but they have chosen to let us continue suffering from it by refusing to tell us the results of it "THE RESULTS WE PAID THEM TO GET FOR US"!! If any one of us had just recently come down with morgellons and learned that the CDC had information that would help us, but they refuse to tell it,, we would be just as out-raged and vocal as Kat is being.. She paid the CDC "out of pocket" for help,, just like the rest of us have done.. I think anyone's "rage and foot-stomping" at the CDC "is justified" if they choose to do it..
Hey folks "WE PAID FOR THIS INFORMATION TO OBTAIN MEDICAL TREATMENT FOR MORGELLONS,, WITH OUR OWN MONEY! " not to provide for the government, not political interests, not the Military, not Monsanto, not GMO Corps, not the Pharmaceutical Industries, not Black-Bag operations,,,, "NO ONE BUT US!"
If you hired a contractor to remodel your bathroom, paid him thousands of dollars "up-front" he calls with an empty promise every year or two "just to pacify you" but it's been several years, he has your money, and hasn't actually bothered to shown up yet!! Would you be screaming about him and threatening legal action,, or just let it go on that way forever?
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Post by kammy on Oct 24, 2010 7:29:10 GMT -5
This plumber analogy reminds me of a story I heard once, it goes something like this:
"Once upon a time, I stopped by the plumber's office and arranged for him to come over to my house to fix my leaking main water pipe that was leaking pretty good in my basement. I had just gotten back my income tax money so I paid him in advance because I am a spendaholic and was afraid I wouldn't have the money later. He said he'd be over shortly, but never came. I kept calling him and each time, he said... 'I'll be over there shortly.' The last time I called him, he said he'd contracted out my work to another plumber and that plumber was analyzing my problem. The next time I called he said, this subcontractor had resub-contracted this sub-contract to another contractor and they were the tops in the business and they'd be with me shortly.
Well, I get fed up waiting and I go by this original plumber's office, the one that already had my money, to tell him what I thought of his so-called 'service'. I go into his office and there sits his secretary who is gaged with his hands tied behind his back. I take the tape off his mouth and ask him, 'What's going on and where's the head guy?' He gasps for breath and says, "Our records show you never did really pay for our service, that money never was your money to begin with." I look at him thinking he's been hit on the head, he then nods in the direction of the main office. I barge in there and the head guy is sitting stripped in his chair, with brand marks on his body, gagged and with his hands tied behind his back. I ask him, 'What's going on here and why is my house flooding?' He says, "Aliens from outer space have infiltrated all the plumber's offices around the country and that no plumber is now allowed to fix a leaky pipe. This is a secret alien operation and now that you know, you must die". Sure enough, a group of aliens appeared in the doorway and shot me dead with their laser guns and my leaky pipe amounted to nothing in the long run, except my early death. The leaky pipe was eventually fixed after my death and my house was then owned by the aliens and everyone, but me, lived happily ever after."
;D
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Post by bannanny on Oct 24, 2010 11:36:54 GMT -5
You said it better than I did rhorn... and it's why I got so upset to begin with. Kat's new to this... she's scared, she's alone and she just wants support, love, and answers. I remember being right where she is now and for her to be given warnings ALREADY just isn't right as far as I'm concerned. She finally found a place where she thought she could say what she wanted... even if she didn't have the right information. We're all here to unravel everything we can, support each other and DISCUSS what is and isn't factual as of yet. So for her to be treated as she was simply isn't something I can understand. I think kat's an asset to this forum too... she has the fight in her to try and DO something and was only asking for our help. Where's the wrong in that? I know I've become lax these days and lost the fight she has in her... so I welcome her spirit to this group. We need to stand up and join together in this mess just like she's asking us to do instead of sitting here going from this and that trying to figure it all out. Don't you see all of that doesn't matter anymore? We can research till we're blue in the face but until the CDC does something, we might as well flush all our own research right down the toilet. It's up to us to make them realize it's up to them to give us answers... cuz no one's gonna listen to what we have to say. They will however listen to the freakin CDC... so they're who we need to be researching, not morgellons itself anymore. I don't mean to sound so upset about what's happened, but like I said... kat's new to this. Give the girl a break and give her what we're supposed to be here for. Support, welcome arms, and love... the same and only thing that got me thru my initial years of this nightmare. We owe her that... we should be able to understand it all by now too. We've been there and if nothing else... we know that love and support is what's needed by any newbie more than anything else is. We have to see their heart... not what they're in a frenzy about. Not what they're seeing or not seeing... but what they need from us the most. I might not be saying this right or making alot of sense... but I think you get my drift. Let's find the love again... after all that's really all there is and what matters most. I love you all ~~ bannanny
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Post by kammy on Oct 24, 2010 11:58:11 GMT -5
Yes, of course, Banny. Maybe she will come back soon and join us again?
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Post by bannanny on Oct 25, 2010 11:24:11 GMT -5
I hope so.. but it doesn't look good.
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Post by rhorn2006 on Oct 25, 2010 16:08:10 GMT -5
I hope so.. but it doesn't look good. Her name is still in yellow, so I guess she did not cancel her membership,, though I don't know what color it would be if she had been banned.. Her last log-in was on the 23rd when she posted the "good by" thread... I also hope she comes back.. Though she is a little intense and quick to react right now, it's understandable because of her recent onset. She is just now starting to find out about all the DOP mess, the CDC's stalling, and that doctors wont help her.. We have all gone through that "freak-out" stage, in the beginning when we first got it.. Kat seems to be a "digger" and could most likely provide a lot of good information here later on,, when she calms down a little, just as we all have had to do...
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Post by bannanny on Oct 25, 2010 17:37:45 GMT -5
Kat told me her account has been suspended until late November and I see now that JJ's signing in as a guest. I don't know any more than that... but if you read the thread I just posted about needing your prayers, it will make us remember these squabbles hold no meaning and can be resolved. I'll see you next week...
love ~~ bannanny
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Post by rhorn2006 on Oct 25, 2010 18:53:52 GMT -5
Kat told me her account has been suspended until late November and I see now that JJ's signing in as a guest. I don't know any more than that... but if you read the thread I just posted about needing your prayers, it will make us remember these squabbles hold no meaning and can be resolved. I'll see you next week... love ~~ bannanny I haven't seen any squabbling, just questions about what actually constitutes a "valid" ban warning notice, and what does not.. That's something that we all need to know....
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Post by ANTHILL on Oct 25, 2010 22:10:26 GMT -5
It is true that JJ has quit as mod its something that she has been thinking about for some time She is putting back the peaces of her life and being the bad guy is just not her --Being a mod has been hard for her because of that I am pretty sure she had made the decision way before Kitkat even came on the board so wishing JJ a happy life and lots of thanks for her help with this board
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Post by ctbarb on Oct 25, 2010 22:45:26 GMT -5
Good luck JJ and peace be with you whatever you do...there is more to life than Morgellons! Kitkat, you will find as time goes by, that your frustration with this disease will lessen with knowledge....We've all been there, and most of us have survived and have faced he reality that no one at the CDC is about to help us anytime soon. They've broken their promises to us, over and over again! I can remember waiting all day and night waiting for their announcement that never came... Research and learn as much as you can - just like the rest of us have...it will bring you some measure of acceptance to go on and live the best life that you can. They may sound like empty words, but they come from the heart...and that is definitely not empty! This board has love and comfort to share and give freely...you will need both to continue with your life and Morgellons. Blessings, CTBarb
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Post by ed on Oct 26, 2010 6:11:17 GMT -5
ah........ kitkat, microdot, kat, sabrina.......Ed
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Post by chelsea on Oct 26, 2010 8:08:37 GMT -5
well I for one am gonna miss JJ BUT I am glad she is gonna take a break.. she deserves it. What most people dont realize is that Mods are usually knee deep in cow patties trying to ensure that everyone plays fair. JJ has had to maintain on a "whats best for the board" approach even while under personal attack over the years. There is a big picture and a lot of BS behind the scenes can keep your focus off of it. Mods try to keep the posting field safe for you.. At the same time some people are just just stuck in an I ME MINE or a I NEED I WANT or just a GEE LOOKIE phase This disease sucks THERE IS NO CALVARY just the keystone cops so grab your bootstraps its a rough ride. Find your path and help each other.Get some cheese to go with that whine Quit shopping at baby gap for swimsuits ,put on your big girl panties and trust that the mods are not trying to take your blankie away NOTE TO JJ ((( A MILLION THANKS CHICK )))
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Post by ed on Oct 26, 2010 9:04:54 GMT -5
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Post by Jill on Oct 26, 2010 9:16:11 GMT -5
oh Ed- you are Hopeless !
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Post by fritolay66 on Oct 26, 2010 9:24:42 GMT -5
We should all be Hope-less. Look at the dates folks.
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Post by ANTHILL on Oct 26, 2010 9:35:00 GMT -5
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