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Post by glennb on Nov 3, 2010 20:00:16 GMT -5
This is something new.
About 15 minutes ago I started getting this spasm in the arch of my right foot, towards the inside edge and back towards the heel. It feels like a charley horse coming and going ,or like something is being driven into the bone. A friend of mine who is here just tried to help me by stretching the foot and putting pressure with her thumbs directly over the affected area. First things she said was " I can feel it moving"
So what the F is this? This really hurts and so far it has not abated.
I restarted on the DCA this week and have been taking it every day for the last four days. Maybe that is what is causing the pain in my foot as DCA causes apoptos in cancer cells and other abnormal cells in the body (like sarcoidosis) by changing the way the mitachondria metabolizes sugar. There is some evidence now that DCA is also helpful to diabetics and those with certain heart problems.
Maybe Morgellons has cell abnormalities that might be affected by DCA? I do think it has similarities to sarcoidosis and cancer.
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Post by toni on Nov 3, 2010 21:35:27 GMT -5
Sorry to hear you're experiencing that foot pain.
I "think" I might know what you mean. I'll get (out of no where) the most horrific pain in the (top of my foot) like someone smacked it with an ax, and it stops me right in my tracks!
It comes and goes. It doesn't happen often, but, I never know "why it happens, as there's no reason" for it to do that. Except that I have morgs. It's not like a horse jumped on it, (which that too is what it feels like).
Mr Toni also gets the same thing, "on and off".
The best thing we've found, is just baby it, keeping off of it, and a heating pad too works wonders, and ours (the pain when we get that axed feeling, or the horse with shoes jumping on our foot) usually lasts for a few hrs, then it goes till the next time, which might be a month or many months. There's just no rhyme or reason to it...well, that we know "yet".
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Post by zabrubon on Nov 3, 2010 23:56:11 GMT -5
Hello Glenn, yes, matter of fact, i have had that problem(pain in the arch of my right foot) for about four months. It was soooo bad that even lying in a supine position was no relief. I started to wrap it up in hot towel. Then I would wrap it firmly with a pair of panty whose(could use bandages purchased from store but I wanted to save money)
I was getting concerned because it wasn't going away. I went to library and researched about feet. I learned quite a bit. In fact if a person does not walk correctly, their feet will not only ache but it will also affect their knees and back. But I think mine was from the Morgellons weakining the muscles of my foot.
From the research I gleaned information about the importance of inserts. I tried putting inserts purchased from the shoe store(not walmart or pharmacy) and it helped tremendously..... However if you have the extra bucks,see a podiatrist. They will prescribe you the correct fit.
Just a fyi about me. When my Morgellons was at its worst, my right foot would drag(footdrop)and make me stumble. I read where inactive muscles could cause y muscles to atrophy.
I am not saying this will work for you but it sure did for me. I am now mostly pain free in that right foot arch.
Hope you get some relief. Take care, ChicagoBonnie
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Post by glennb on Nov 4, 2010 1:16:00 GMT -5
I have had the foot dragging and the stumbling and other funny looking walking problems.. Ages ago before I new what was going on with my body My left toe would catch every once and awhile when I was walking. During my first huge flare-up of this Lyme/.Morgellons stuff I think I also had a weakened muscle as I developed trigger toe and it has never gone away. Also developed trigger finger. One night while I was cleaning up my finger suddenly just spasmed into the curled up position and I couldn't get it to straighten out. It was painful so I ended up going to the hospital. They gave me muscle relaxers and after a while it straightened out again.
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Post by kammy on Nov 4, 2010 3:30:02 GMT -5
Hi Glenn, sorry to hear about the 'alien' in your foot... not making fun - it's like, what the heck is next with this disease and is anything too far out? I don't think so. Anyway, I was wondering about the DCA... is this a doctor's prescription?
Take care of it and keep us posted...
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Post by bb on Nov 4, 2010 8:23:09 GMT -5
I had the pain at the arch of my foot off and on for years. Using an ankle wrap helps tremedously because it supports the arch. Also, at times my toes would spasm so bad it felt like they were bending upward, standing on my feet helped. I never saw a doctor and have no idea what was causing it.
Then last spring I began a walking program because over the winter I put on a few yucky pounds. I didn't have good shoes and caused myself to get plantars fasciitis (self diagnosed). Plantars means bottom of the foot and fasciitis is inflammation of tendons. The bottoms of my feet hurt when I first get up in the mornings or when I get up from sitting for a while. The ankle wrap, stretching and even walking helps.
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Post by glennb on Nov 4, 2010 16:31:14 GMT -5
I am taking the DCA on my own for non-hodgkins lymphoma. The doctors were pretty insistent that I go through chemo and radiation. I even went to a doctor at UCSF who is reputed to be the worlds leading specialst on NHL. He said do the chemo and radiation. At first he was very dismissive about DCA, he had never heard of it. Amazing, since in other countries like Canada DCA is being reported as a wonder drug for cancer. When I pointed out that clinical trials were being done at UCSF for DCA & breast cancer it piqued his interest a little.
I think that the FDA may have banned DCA for cancer in this country, not sure if that is true but it sure wouldn't surprise me as cancer is the number one cash cow for the medical community affecting everyone financially from pharmaceutical companies, hospitals, research & grant funding,lab technicians, medical equipment manufacturers, medical schools and of course doctors. My expenses just for the staging of my cancer were in excess of 60,000. If I had opted to do the chemo/radiation it would have run another 80,000-100.000 dollars with only a 50% chance of survival . Chemo could have caused other extensive damage such as damage to my heart, brain ,liver and the susceptibility to other future cancers.
From what I have read DCA is more effective than chemo against NHL. And it only cost about 20.00 per month.
So why would any one choose to accept a toxic treatment like chemo and risk heart damage, intellectual impairment liver damage, possible serious medical problems on down the road plus have all your hair, even eyelashes and eyebrows fall out plus feel completley sick and horrible, depressed, no energy while receiving treatments and on top of all that spend around 100,0000..... when one could just spend 20.00/month on DCA and risk a little nueropathy?
Hard decision??? Once enough people wake up to the DCA option and opt out of chemo I am sure there will be a huge reaction against it from the medical community & the FDA, AMA, etc. cause they can't make any real money off of DCA as it has been around for over 30 years.
DCA is almost completely nontoxic, can cause reversible nueropathy. Biggest danger is that it will kill off the cancer cells too fast causing tumor lysis (like a super-herx response for cancer) I was told over a year ago that the type of NHL I have is very aggressive. So far a year has passed and I am free from any re-occurrence. I attribute this mainly to the DCA plus other supplements and herbal tea I am using.
If you have cancer or know someone who does I highly recommend checking out the info on the DCA page.
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Post by toni on Nov 4, 2010 16:49:58 GMT -5
Wow Glenn, that IS amazing - and thank you for sharing that valuable information!
And thank goodness you're doing so well as far as the NHL. Hallelujah, I mean that is remarkable.
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