|
Post by summer on Nov 15, 2010 16:37:45 GMT -5
Hi. I've lurked here, but I have never posted anything before. I'm new. I have this awful disease, affliction, whatever it is, and I feel very alone and sad. I am married. My husband does not have this, thank God.
I have tried many, many, many things over the years. Some have helped. Nothing has cured.
I need a friend who understands this. I don't talk to my husband about it.
Right now I am on salt, but not the Vitamin C. Everyone is different, and Vitamin C made me worse, not better. I take 9 or 10 grams of salt a day. I've been doing this 2 months. It's too soon to know if it's working. I've been very sick for a few days. I'm hoping it's a herx, but don't know.
Just need a friend.
|
|
|
Post by summer on Nov 15, 2010 16:48:17 GMT -5
By saying "I need a friend" I'm just hoping to join here and meet others who are in the same boat. I feel very alone.
|
|
|
Post by jeany on Nov 15, 2010 18:15:58 GMT -5
Hello summer, welcome to LB. If your looking for friends and people who are in the same boat..well..then you've found the right place! Please feel free to ask any questions, someone's always around.
Tell us a bit about yourself....
Jeany
ps: nice member name..btw
|
|
|
Post by summer on Nov 15, 2010 19:53:14 GMT -5
Hi, and thank you, Jeany and Lostintime. The worst thing about this disease is the isolation. Thank you for making me feel welcome.
About me? Well, I've had this illness for at least 5 years...maybe longer. I had leg problems for years that I think were Morgs, but no itching until about 5 years ago. Now the itching is gone, but has been replaced with pain and the feeling of cords jumping around in me. Hard to explain. Major brain fog all the time.
I don't have lesions. I don't know why. The fibers have become specs and things that look like small arrowheads now. Sometimes I'll get a whole spattering of them. Sometimes just one for the whole day. They go right through intact skin. I don't even feel it.
My husband does not have this. I take comfort in that and hope that others can, too. Maybe there are different strains of this, but my own strain doesn't seem overly contageous. Amazing, because it is so very strong.
I have been taking 9 to 10 grams of salt a day for about 2 months now. Until a few days ago, I was doing about ok with it, but got really sick a few days ago, like a severe flu.
I know that vitamin c helps many people, but not me. I eat fruit for vit c but never supplements anymore. I hit a really bad spot because of vitamin c and won't go back there again.
I don't know how I got this. Apparently some people think it's from genetically modified foods. I suppose that's possible, since I have no idea how I got it.
I have tried Fenben, baking soda, epsom salt, and too many herbs to list. I do internal treatments since I don't have lesions, but have this really bad internally. I have never tried silver. I have tried copper but didn't stay with it that long. Now, the salt.
My teeth have gotton very weak. I think I might lose them. I can only chew on one side now. The other side hurts too bad to use.
Would love to hear other people's stories and treatments...what has worked, what has not.
|
|
|
Post by toni on Nov 15, 2010 20:05:57 GMT -5
I wanted to say HI. And like Jeany said, you've sure come to the right place.
|
|
|
Post by ibzahp on Nov 15, 2010 20:28:20 GMT -5
Welcome here Summer This is a great board and you will find peple willing to go the extra mile. how is it going now? Ever notice this stuff cycles. feel free to pm me if you would like to talk via the phone ibzahp
|
|
|
Post by zabrubon on Nov 16, 2010 0:36:25 GMT -5
Welcome Summer time, sorry that livin aint easy.
I have had this disease for about ten years now.( Wow how time flys) Seems like yesterday when I started to search the net in hopes of finding a solution to my brain fog, pain all over my body and of course, the feeling of crawling on my face. I thought I would lose my mind. I thought I was in the twilite zone. I was wising I was crazy and that this was not real. I did not understand it and the doctors could find nothing wrong. Finally after finding this board(I was with NUSPA) prior to this board, started to get answers and help. I got a lyme doctor to help me. I got on antibiotics and had no more pain or crawlies. I went off the antibiotics and the pain and crawlies came back. Go figure. I went back on the antibiotics and have been there ever since. I think this disease is created from within, hence the different but similar symptoms in each of us. What ever it is is killing us. Kind of like a cancer or aids. I sure wish I knew what it was/is. Anyway, I have found relief from vitamines, antibiotics and Organic foods. I no longer eat red meat. Others on board here have different protocols that work for them. You just have to find the right one for you. There are so many great people here. Just reach out and one or all of us wil be ther for you. I hope we all can add to your life and make you feel lke this is is your second home. THere is a lot of love here and we welcome you with open arms. Best to you and see you around the board. ChicagoBonnie
|
|
|
Post by freaky on Nov 16, 2010 3:00:49 GMT -5
Hey Summer, glad your here. I have a suggestion for your teeth. Do you have a whole foods near you? They sell clay for facials. Comes in about a 4X4" plastic jar. You can do most everything with it, even eat it, & it's good to do that to rid parasites. Anyway, I have a bunch of info. I've been meaning to post about it, but one of the things they say is you can brush your teeth with it, & they get whiter within a week. I have some in a cup, & put the tooth paste on my brush, then get a glob of the clay on top. It cleans your teeth really well, & I bet you'd have some improvement if you wanted to give that a try. You got plenty of friends here.
Another friend, freaky
|
|
|
Post by kammy on Nov 16, 2010 3:13:58 GMT -5
Hi Summer, welcome to the group... just say whatever is on your mind - we're listening. Hugs.
|
|
|
Post by jeany on Nov 16, 2010 5:19:41 GMT -5
One of my most favorite songs and reminds me of this board and the wonderful people here...
Jeany
|
|
|
Post by summer on Nov 16, 2010 13:39:55 GMT -5
Thanks, everyone. I'd like to try the clay for my teeth. Is it "French Green Clay"?
Has anyone had success with taking salt internally, but not adding Vitamin C? Just pure salt long-term?
|
|
|
Post by bannanny on Nov 16, 2010 17:40:49 GMT -5
Hi summer... I'm so glad you decided to join us! I've been a member for 6 years... have had this mess for seven. I know if I hadn't decided to finally post way back when that I may not have made it... for years I posted some pretty srange stuff too. But these guys were (and still are) my lifeline and they're family to me now. You can say anything to us too, no matter how weird you think it sounds and we'll understand it 200%. We've all been there, done that... so never feel you can't say what you're goin thru no matter how bizarre it may sound! I've never had lesions either... it started in my hair. But I do have the white trails, red marks, and crystal-like bumps in my skin. I tend to think there's 2 strains of morgs... one that produces lesions and one that doesn't. Either that or it simply has to do with our chemical make-up as to why some break out in open sores and others don't. But either way, most all the other symptoms are felt by all of us... so we're all in this thing together, lesions or no lesions! I myself don't believe this is contagious... I believe some get it cuz we lack a certain gene that fight's off all these new environmental toxins. Toxins like chemtrails, GMO foods, mutated this and altered that from scientists trying to play God. It's documented fact tho that 30-40% of the population (worldwide) lack the particular gene needed to fight these things off. So it makes sense to me that the 30-40% of the population lacking that particular gene makes up us morgies. Morgs is everywhere and in everything now too... so everyone's exposed to it. But some people can fight it off while others (us morgies) lack that one dam gene enabling our bodies to do just that. Just my opinion tho! I've tried everything there is to try and never benefited from much of it... except to maybe lessen the symtpoms a bit. But now I don't take hardly anything... I found that fighting it with my mind is what's working for me. Seems the more I can ignore it and try to live my life the way I used to live it before this nightmare began... the weaker morgs becomes. It thrives on stress and fear just like any disease will... but it doesn't thrive well at all on love, peace within and happiness. I also think my body has a better chance of balancing itself out again without my putting this and that into it to try and make the nightmare stop. It just never worked for me... but rising above it does. It seems to be working for me anyway. Not that it's easy at times... but it sure is better than picking, pulling, looking and waiting for what it's gonna do next. Instead I stay in control and don't allow it to control me anymore... and my life has become so much easier to live. I know some may be gettin tired of me saying all that stuff lately... cuz it sounds like I'm full of sh*t. But taking back control and rising above it is what's helping me get thru it all. Even when I feel like I'm being electrocuted from the inside out like I just said on another post... if I stay calm and get my mind where I want it to be, I swear this thing becomes weaker and the symtoms eventually subside. Unfortunately tho, my upper teeth were lost to morgs. But I still got my bottom ones and I use Ayurvedic (licorice) toothpaste on them. I really like it alot... it's all natural and it makes your mouth feel pretty good. I have alot of movement in my mouth too, so for it to stop that sensation means to me it's something morgs run from. Here's the link if you're interested in trying it... www.ayurvediccenter.com/shop/index.php?main_page=advanced_search_result&search_in_description=1&zenid=51nfqqu08dqk90tganed5lp4e6&keyword=toothpasteScroll down to the original licorice toothpaste... that's what I use. I also get relief from rinsing with warm salt water. As far as the Salt and C protocol, I did the NAC along with 1000 mg. of Vit C for awhile and it seemed to help. But I found that morgs becomes immune to something after taking it for awhile... so I started switiching everything up each week. I went into my "stuffed full of stuff" supplements cabinet and randomly pulled a combo of things out and took them for a week. Then I wouldn't take anything at all the following week, then another random combo the next week and so on and so on. Actually, that was the beginning of my taking back control of this thing... I called it my "shock and awe" protocol! But like I said, now I don't take anything at all except every now and then I take Hyssop or liquid minerals... or whatever I feel like pulling out of the old hat! For the most part tho, I fight this thing with what's left of my mind... and that's what's working the best for me to date! We all find different ways tho... but always know we love you and we're always gonna be here to support you in any way we can. You're not alone anymore babe... big hugs ~~ bannanny
|
|
|
Post by 22122agin on Nov 16, 2010 22:40:53 GMT -5
Hi Summer, Glad you found your way here to post. I have been here since 2006 but under another posting name. I took two years off to try and process the information on the board and what I should do to improve my condition. I find new things on my own all the time to make my life better. I never had lesions but immense crawling and things hatching out of my scalp. I got that undercontrol by having my composites fillings in my teeth (those white ones) replaced with biocompatable materials according to my Clifford compatibility testing and coloring my hair. My teeth I was on my way to losing until I found a good dentist who was not interested in making money off of me. He recommended a product called Quick Breeze that you screw on the bathroom sink after taking off the strainer assembly. It is a mega water pik that because of its strength, I have reversed most of my damage with twice a day use. I am amazed and so was my dentist as to the turn around. You can use it more than that if you want. I certainly recommend that if you want to save your teeth. You can get it on Amazon. Some say and some don't that there is a Lyme connection of why some of us are suseptible and some are not to Morgs. To find out it necessitates going to a Lyme literate doctor who uses the Igenix type tests not the generic kind you get at PPO's, HMO's and the regular GP. I am lyme positive but cannot afford the treatment so I did on my own Teasel extract. See Lady Barbara's site by google for information. www.ladybarbara.net/There are some nice people on this board and lots of stuff about what we have tried and done and all. You can check out support and supplements. The Teasel helped with the exhaustion and brain fog. You are welcome to PM me at any time. 22122
|
|
|
Post by summer on Nov 17, 2010 19:42:15 GMT -5
Thanks, all.
22122...I used an Ultrasonic toothbrush for a while. I think it helped, but it was clumsy for me, so I stopped using it. An excuse? Probably.
And I agree, Bannanny, that a little ignorning this can go a long way. Most days just ignoring is my best medicine....until I look in the mirror and see stuff all over my face.
I'm so happy to have found this forum. I wish none of us had this wretched illness, but it helps so much not to feel alone with it.
|
|
|
Post by summer on Nov 17, 2010 19:43:13 GMT -5
Oh...and what's a PM?
|
|
|
Post by ANTHILL on Nov 17, 2010 21:07:39 GMT -5
PM = private messages it's sorta like a forum mail box you can send and receive messages to and from members At the top of the web-page when you are logged in you will see this : Hey, summer, you have 1 messages, 1 is new. Click on the orange part and it will take you to your in-box
|
|
|
Post by summer on Nov 19, 2010 17:16:20 GMT -5
Hi, Antihill. When I hit that button, I don't see anything. I can't see the message.
|
|
|
Post by ANTHILL on Nov 20, 2010 2:00:28 GMT -5
Hi, Antihill. When I hit that button, I don't see anything. I can't see the message. Hi summer Which button ? The one at the vary tip-top of the webpage---the real button Or the one that lookes like the button thats not a button in my post to you? Don't worry well get it sorted out
|
|
|
Post by bannanny on Nov 20, 2010 14:42:50 GMT -5
After you click on where it says how many messages you have summer, you have to scroll down to see them. Then click on the message itself just like you click on a thread to open it up. Hope that helps!
big hugs ~~ bannanny
|
|