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Post by awareseattle on Dec 10, 2010 17:07:21 GMT -5
I know that none of us probably have the answer to this so it is pure speculation: Are doctors, scientists, and others who are likely "in the know" given an antidote against Morgellons that stops it from replicating inside their bodies? I'm thinking there must be something to protect them (other than their big paychecks). Are there any doctors that have come down with Morgellons fibers and gels pouring out of their skin?
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Post by imblownaway on Dec 10, 2010 21:41:49 GMT -5
Dr. Greg Smith.
Doctors aren't being told anything. They are in the dark just like us.
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Post by awareseattle on Dec 11, 2010 1:25:23 GMT -5
Dr. Greg Smith. Doctors aren't being told anything. They are in the dark just like us. The ones that use microscopes to look at human tissue - I wonder what they do when they see fibers and the other odd components?
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Post by bessie on Dec 11, 2010 19:56:58 GMT -5
seattle - I can think of about a half dozen MDs who have this. I started seeing an MD about 2 1/2 years ago who agreed to work with me on my "problem". Of course, the office staff knew the issue. When I had blood drawn her nurse told me a story. She said when she was in training years ago, she did a rotation and decided to look at a patient's urine under a microscope. There were tiny red fibers in it, and so she called the doc over to look. He told her she must have contaminated the specimen. She knew she had not, but had never heard of Morgellons (might have been before it was so-called). Anyway, she never forgot that and always wondered what that was about. Someone in our support group had a kidney stint removed and the PA who did it expressed "shock" at the condition of the stint (I guess it had stuff all over it). I would guess it went into the hazmat trash. So I guess the answer is "whaaaa....oh, nevermind".
Bessie
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Post by awareseattle on Dec 11, 2010 22:06:29 GMT -5
seattle - I can think of about a half dozen MDs who have this. I started seeing an MD about 2 1/2 years ago who agreed to work with me on my "problem". Of course, the office staff knew the issue. When I had blood drawn her nurse told me a story. She said when she was in training years ago, she did a rotation and decided to look at a patient's urine under a microscope. There were tiny red fibers in it, and so she called the doc over to look. He told her she must have contaminated the specimen. She knew she had not, but had never heard of Morgellons (might have been before it was so-called). Anyway, she never forgot that and always wondered what that was about. Someone in our support group had a kidney stint removed and the PA who did it expressed "shock" at the condition of the stint (I guess it had stuff all over it). I would guess it went into the hazmat trash. So I guess the answer is "whaaaa....oh, nevermind". Bessie Hi Bessie, I bet that happens everyday somewhere. Doctors and other scientists with Morgellons should form an alliance and work towards figuring it out.
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Post by toni on Dec 12, 2010 8:30:07 GMT -5
Dr. Greg Smith. Doctors aren't being told anything. They are in the dark just like us. I sure agree. They're probably just like us too in the searching and trying all kinds of things to rid it too.
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Post by bannanny on Dec 12, 2010 16:01:48 GMT -5
Dr. Matthews has it too... and continues to try and find the answers.
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Post by ibzahp on Dec 12, 2010 20:16:57 GMT -5
Bless the doctors that have this and the ones who don't but are trying to figure it out. The other ones (the vast majority) are too afraid to question anything outside of the box. It is sad that the ones who try to help us must watch their backs and they put their livlihoods at risk.
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Post by morgellonsmoe1 on Dec 14, 2010 22:57:24 GMT -5
Many Doctors have contracted Morgellons at first cause of disbelief. Thinking we were just crazy and catching it cause they were convinced we had nothing... so no gloves or Any sanitary things were done.
My doctor has been a great guy for going on 4 years now . The last time I saw him his hands looked like morgellons sores . He insisted he was "bitten " we know the bitting sensations . No biting insects were around! it was colder then its been in decades here in SC . So I just nodded my head and said Ohhhhhh .. He had gained so much lbs his lab coat wouldnt button ( I noted this but said nothing cause there is nothing he nor I can do He has it .. but he is treating me and another so he knows what to do when the insanity hits and not loose his licence ) .. Oh how I hate this illness !!
I now feel what doctors have for this whole thing . All they can do is nod their head and say ohhh I see .
What else can a human do theres no published treatment for morgellons and No medical text or school has it on a lesson
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Post by awareseattle on Dec 15, 2010 1:49:36 GMT -5
Many Doctors have contracted Morgellons at first cause of disbelief. Thinking we were just crazy and catching it cause they were convinced we had nothing... so no gloves or Any sanitary things were done. My doctor has been a great guy for going on 4 years now . The last time I saw him his hands looked like morgellons sores . He insisted he was "bitten " we know the bitting sensations . No biting insects were around! it was colder then its been in decades here in SC . So I just nodded my head and said Ohhhhhh .. He had gained so much lbs his lab coat wouldnt button ( I noted this but said nothing cause there is nothing he nor I can do He has it .. but he is treating me and another so he knows what to do when the insanity hits and not loose his licence ) .. Oh how I hate this illness !! I now feel what doctors have for this whole thing . All they can do is nod their head and say ohhh I see . What else can a human do theres no published treatment for morgellons and No medical text or school has it on a lesson True I can imagine a doctor who has morgellons would be in the same boat as everyone else. What else can they do? They can begin by not diagnosing their patients as delusional. But they don't do that so it is hard to strike a note of sympathy for their situation. (This applies to most but not all doctors of course.)
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Post by bannanny on Dec 15, 2010 11:15:19 GMT -5
I don't see how it can continue to go on the way it has with the delusional diagnosis... too many people are suffering now and the numbers continue to grow. I remember when I first found LB there were only 200 something people registered at MRF... and look at the numbers now!
So the way I see it, eventually those who really CAN help (like those affiliated with the government and CDC) will be stricken one day... or members of their families will be. That's when I figure things will really start to change.
hugs ~~ bannanny
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Post by morgellonsmoe1 on Jan 4, 2011 16:04:49 GMT -5
Umm my Doctor DX me with Morgellons not delusions .. cause I walked in like an interview and showed him my skin under an 30X handheld microscope .. I told him I needed 1000 mg of Tetracycline per day to stay in remission . He loves the strange stuff and has always been professional for 5 years now.
I do say if not for the antidepressant I was on I would have seemed NUTS , cause the first year or two with this is HELL . So when interviewing a GP to be your doctor GET TO A NORMAL state and don't talk about what you think this is .. just bring your microscope and show him/her the fibers saying I hope you like weired stuff .. while showing him a fiber under your skin then say cause I have morgellons and I hope you will work with me treating my symptoms cause theres nothing known about this , just ( bring the symptoms sheet from morgellons.org ) this sir ( showing him the ONE SHEET of symptoms
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Post by awareseattle on Jan 4, 2011 21:56:53 GMT -5
Umm my Doctor DX me with Morgellons not delusions .. cause I walked in like an interview and showed him my skin under an 30X handheld microscope .. I told him I needed 1000 mg of Tetracycline per day to stay in remission . He loves the strange stuff and has always been professional for 5 years now. I do say if not for the antidepressant I was on I would have seemed NUTS , cause the first year or two with this is HELL . So when interviewing a GP to be your doctor GET TO A NORMAL state and don't talk about what you think this is .. just bring your microscope and show him/her the fibers saying I hope you like weired stuff .. while showing him a fiber under your skin then say cause I have morgellons and I hope you will work with me treating my symptoms cause theres nothing known about this , just ( bring the symptoms sheet from morgellons.org ) this sir ( showing him the ONE SHEET of symptoms morgellonsmoe1, I believe 90% of all doctors or more would diagnose you as delusional parasitosis for bringing in a microscope! You were just very lucky to have a doctor who would even prescribe antibiotics for you. Did you read the doctor's notes that he wrote in the medical records for that visit? You might be surprised. They usually don't TELL you they are diagnosing you as DOP, probably because they don't want to waste time arguing about it because they know it is wrong. etc.
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Post by ibzahp on Jan 5, 2011 11:08:55 GMT -5
I was treated by a doctor who knew I had Morgellons. But I am poor and could not continue to pay her fees out of pocket. Now I am getting sick again where I had been making progress. Doctors who treat us go through something similar to the buzzsaw for Journalists. Journalists who are seen as too far out there (Like ones who would write about us for example) are shunned by their colleagues and their writings are rarely published.Insurance companies don't have to pay for an illness that does not have a research based, established treatment protocal and they refuse to pay for our treatments. Given the state of the nation I doubt this will change anytime soon without a fight. We have to fight back and be prepared for a long and protracted battle. I wish it were different but I don't see giving up as an option.
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Post by bannanny on Jan 5, 2011 15:15:07 GMT -5
I think most doctors are aware of morgs by now... but not only is there nothing published on it yet, there's not gonna be a cure either. Sorry, but that's the conclusion I've come to and why I fight to stay positive and as happy as I can be with what I DO have in my life. Not easy... but doable.
love ya's ~~ bannanny
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Post by awareseattle on Jan 6, 2011 8:22:43 GMT -5
I think most doctors are aware of morgs by now... but not only is there nothing published on it yet, there's not gonna be a cure either. Sorry, but that's the conclusion I've come to and why I fight to stay positive and as happy as I can be with what I DO have in my life. Not easy... but doable. love ya's ~~ bannanny Exactly, bannanny - how could doctors miss the boat on this one? Only an idiot with blinders on, who is working as a doctor, could miss morgellons both on their patients and in the world, since people are loudly complaining about it and since it has been studied on the internet for years now.
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Post by toni on Jan 6, 2011 9:41:59 GMT -5
You know what else I think, that a doctor isn't going to let their patients know (if they're infected)...as that would damage their business - and it's just not the norm for the doctor to tell his patients all about his/her health. IF I didn't have morgellons, and I heard my doctor had it, I'd find another. That's the truth. I also try and put myself in the doctors head thinking IF I knew or heard of a newly emerging disease/infection, would I really just spend 100's of thousands of dollars of my own money trying to figure it out? And that answer is no. I'd wait too on CDC to do their job. I'm sure doctors years ago, when they saw HIV/AIDS patients, and tried whatever they tried, they didn't go all out investing their money to try and discover what it was either. We just imho feel they should be more attentive because it is us "infected"...but the doctor realistically can't or isn't going to go full boar in searching for answers, and hiring scientists etc, to learn about a new unexplained infection in a few patients he/she sees that says they have Morgs. To me that seems unrealistic to expect any doctor to do that. I mean we would "like for them to"...but it's not realistic imho. Thank goodness for the people that have gotten involved is all I can say!
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Post by awareseattle on Jan 6, 2011 12:07:13 GMT -5
You know what else I think, that a doctor isn't going to let their patients know (if they're infected)...as that would damage their business - and it's just not the norm for the doctor to tell his patients all about his/her health. IF I didn't have morgellons, and I heard my doctor had it, I'd find another. That's the truth. I also try and put myself in the doctors head thinking IF I knew or heard of a newly emerging disease/infection, would I really just spend 100's of thousands of dollars of my own money trying to figure it out? And that answer is no. I'd wait too on CDC to do their job. I'm sure doctors years ago, when they saw HIV/AIDS patients, and tried whatever they tried, they didn't go all out investing their money to try and discover what it was either. We just imho feel they should be more attentive because it is us "infected"...but the doctor realistically can't or isn't going to go full boar in searching for answers, and hiring scientists etc, to learn about a new unexplained infection in a few patients he/she sees that says they have Morgs. To me that seems unrealistic to expect any doctor to do that. I mean we would "like for them to"...but it's not realistic imho. Thank goodness for the people that have gotten involved is all I can say! Hi Toni- True, doctors can't be expected to spend time and money researching Morgellons. And much appreciation to those who actually have invested time and money researching Morgellons. However, the doctors who jump to a DOP diagnosis (for whatever real reason) seem to be reaching over the fence and trying to discredit the patient when he/she requests specific information and help on Morgellons. The need to discredit the patient is what makes them suspect to me - otherwise they would just write "unknown problem blah blah" or refer the patient to someone else without the need to diagnose the patient delusional.
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Post by toni on Jan 6, 2011 12:34:31 GMT -5
Awares, yes, I agree with you all the way.
Believe me, ((( I can't say what I'd of liked to do, or rather LOVED to do to the docs that said I needed a psychiatrist))).
Inside me, to the core, there really aren't words to describe to the depths of the extreme disappointment and dispair and helplessness, and anger and humiliation that THOSE DOP words cut me to the marrow - as I'm sure we all know how they felt when we heard that insantity of them telling us we're DOP.
(See, the display of the patients actions and words) "ARE" what labeled us that (((( according to the AMA or CDC in what their books say, that they all follow))).
That is what desperately needs changed. The "stupid reasons they legally can say those words, DOP to anyone expressing the book symptoms that are harmonious to the patients actions".
All of these DOP labels thrown around so friviously by many doctors, is absolutely no way in my book different than in the days of witch hunts. It's absolute insanity on the doctors part to not at least do a skin culture when he can see sores.
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Post by awareseattle on Jan 6, 2011 13:18:18 GMT -5
Your doctor told you to your face that you're DOP? Two doctors didn't tell me verbally - I had to get the med records later and read it for myself. And both of them ran tests - a swap test and 2 biopsies - but I still got DOP's. Running the tests makes them money so I'm sure most of them still run tests that come back as nothing showing up. The reality is that many doctors probably know somewhat what it is, but have no clue how to treat it. But then it comes back to - why don't they fake it and try to treat it and most likely fail but at least they can bill the patient, etc. None of it adds up or is normal.
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