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Post by Harry on Feb 4, 2011 4:12:45 GMT -5
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Post by Harry on Feb 4, 2011 13:51:59 GMT -5
I started this new thread because, I thought that folk's that don't know my posting might not be aware of it & miss it,. if I messed up,.Sorry
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Post by bannanny on Feb 5, 2011 12:14:18 GMT -5
You didn't mess up Harry... and thank you for posting the info!!!
You might wanna be sure and "bump" the thread up again on the 10th in case it goes to the 2nd page by then. That way, everyone will know to listen on the day it actually happens!
love ya ~~ bannanny
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Post by Harry on Feb 11, 2011 19:20:21 GMT -5
You didn't mess up Harry... and thank you for posting the info!!! You might wanna be sure and "bump" the thread up again on the 10th in case it goes to the 2nd page by then. That way, everyone will know to listen on the day it actually happens! love ya ~~ bannanny Thanks Bannanny you the best,..heirs something new,what ya think?? Looking for victims of Morgellons for a study. I am a researcher who will be working with another researcher there would be NO COST to the participants. They would need digital cameras and the ability to download pictures of the rash on a daily basis . This product has been used to clear up severe cases of MRSA and is a topical treatment. If interested respond to this syte or my site with a message. Carol Fisch, Microbiology Background , Stealth Pathogen Research, Lyme victim, Advocate, Activist and Victim Regular email is To be in the study Bobbyjoe you need active lesions, adigital camera and the ability to download pictures into the computer na ddo a daily log. I would need email info. Phone number and talk with you. then dr. Phippils would send you the topical medication to try free of charge of course. We just want to see if it will work on Morgellons as it does wonders with MRSA. ..This was a message on my facebook page.
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Post by Harry on Feb 11, 2011 22:56:02 GMT -5
to Home Page Florida Lyme Support Gulf Coast Lyme Disease Support Group Chronic Borreliosis Complex and Neuroendocrine System Disorders By Carol Fisch Adjunct Professor Emeritus, Microbiology, Immunology, Parasitology, Proficient in Stealth Pathogens, Advocate, Activist and Victim Most medical professionals, when speaking of Lyme disease, are typically referring to an outdated and over-simplified version of the disease that was once taught and believed that the main causative agent being dealt with was the borrelia spirochete. We now know there are many agents involved. Borreliosis Complex for Lyme disease is a better term than just Lyme disease. We now know there are many agents involved and much neuroendocrine involvement due to not only Borrelia, but viral activity and damage to the Methylation cycle (KREBS CYCLE). It is so good to see the two groups learning from one another. Initially the group of Lyme researchers was looking at only Borrelia the causative agent for Lyme disease but as time went on they discovered many other agents. The CFIDS doctors were looking at damage to the Methylation cycle, Diastolic Heart Dysfunction and so much more in their research endeavors. It appears one group was looking for the AGENTS and the other was looking for the DAMAGE. It is so gratifying to me not only a researcher but a victim of these issues to see the two groups coming together. There are researchers in the Lyme community and in the CFS/Fibro Community who are looking at all the above and below issues. I prefer the name Neuroendocrine System disorders to CFS as this is what happens to all of the victims regardless of the diagnosis: Much needed change is slow in all research but the two groups are coming together and sharing their findings. We will all benefit from this cooperation. Not all patients with a CFS diagnosis have Borrelia (Lyme) Complex but as you can see from below, many of us share some of the causes and some of the damage. Some on the Lyme disease side believed the organisms to be the only problem. Some of the CFS/Fibro side felt -and many still do- that if the damage is corrected, the infections may go away on their own. We have a long way to go but in working together hopefully we can come up with answers that help all of us to live healthier and more productive lives. A simple explanation of Lyme disease is not possible, as Lyme disease is not a simple disease. It is not just an infection with Borrelia burgdorferi, the causative agent of Lyme disease. We are dealing with an illness complicated by multiple infectious agents, many of them being immune suppressive. The immune system has difficulty in detecting the organisms due to multiple factors, pleomorphism (Changing its morphology in order to survive is one of its best tricks). From the moment it gets into the body, it has the ability to lock itself into our own DNA proteins. When hit by anything that might threaten, it can go into Cell Wall Deficient (CWD) stages or into the Cyst stage, a very protective stage. An activated immune system, where the body is trying to find an enemy and can't, leads to reactivation of Herpes Virus 1 through 6 and auto-immuneissues. Many patients given a diagnosis of CFIDS, Fibromyalgia, Gulf War Illness or Neuroborreliosis Complex (Lyme disease) are dealing with a very complex organism that causes multiple damage to the host. It is indeed a very complex organism within itself. Borrelia burgdorferi is one of the players in Neuroborreolosis Complex. It has 132 lipoproteins, genes and more genetic material than any other bacteria. Ninety percent of the genes are not related to any other bacteria, perhaps making it the most complex organism known. Syphilis, by comparison, has 22 lipoproteins in its genetic make-up, making it look like a wimpy cousin of Borrelia burgdorferi in comparison. Some of the other NeuroSystemic infections, Chronic Fatigue, Fibromyalgia, Systemic Lupus Erythematosus, Schlerdoma, Pneumonia, Bronchitis, Inflammatory Bowel Disease, Kikuchis Johnson syndrome, MS, ALS, and Parkinsons and most likely many more have been found to harbor many of these infections that are very capable of being stealth pathogens. - Mycoplasma fermentans (Incognitos strain and various other strains. - Human Herpes Virus-6a (HHV-6a) a very immune-suppressive virus found in Neuroendocrine Disorder, Lyme, HIV, CFS as well as others. -Chlamydia pneumonia (Chronic Chlamydia pneumonia). Charles Stratton, M.D. out of Vanderbilt University has come up with a protocol to deal with this very complex pleomorphic infection that is present in so many patients with the various diagnoses. His protocol can be found at www.cpnhelp.orgOther pathogens found: -Mycoplasma pneumonia -Mycoplasma hominis -Ureaplasma urealyticum -Mycoplasma penetrans -Borrelia burgdorferi (Chronic Late Stage Lyme) and may also trigger Fibromyalgia -Brucellosis (Chronic Brucellosis) Rickettsia Diseases: -Rickettesia ricketessi -Coxiella burnetii (Qfever,"Post-Q-Fever fatigue Syndrome") Staphylococcus and Streptococcus Viruses: -Epstein- Barr Virus (EBV) reactivation -Cytomegalovirus (CMV) reactivation -Coxackie B Virus (1-6) chronic Coxackie infection which may cause/trigger CFS, Myalgias and other diseases). Parvovirus B-19 (Chronic Parvovirus infection "may cause/trigger Fibromyalgia/ CFS, arthralgia, arthritis. Hepatitis C (Chronic Hepatitis C" may cause/trigger Post-Polio Syndrome non-Paralytic Polio," Chronic inflammatory muscle disease, Fibromyalgia/ CFS). A simple explanation does not give the complexities of the many organisms or the diseases and complications they cause. Lita Mattman, Ph.D. and Alan Macdonald, M.D., Ph.D. are studying the pleomorphic stages of many organisms. I studied under Dr. Mattman... The studies and live photos show the organism's ability to evade detection by anti-microbials, and the patient’s own immune system; again, leading to auto-immune issues, among other things, in many of us. Physicians on both coasts, California and Connecticut, have found many of these same organisms in blood-sucking insects. There may be others we are not aware of as yet. Eva Sapi , Ph.D of the University of New Haven Dept. of Biology and Environmental Science, found many of the pathogens in ticks on the east coast that were found on the west coast. The bottom line is that many of us are dealing with an immune system that has been driven into Humeral Immunity (overdrive) and stays activated, due to the inability to find and destroy the enemy within and the neuroendocrine damage that results. Again, as both groups work together, sharing information and research, we will hope for a better future for all who suffer from Neuroendocrine Disorders. Carol Fisch Links: Touching My Family's Lives.....A story of Lyme disease in Michigan Expert Interview Series: Carol Fisch (LDRD Membership Required) Expert Interview Series: Carol Fisch - Part 2 (LDRD Membership Required) Additional Information
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Post by 22122agin on Feb 12, 2011 1:51:31 GMT -5
Thanks so much, Harry, for putting this information up. I sent someone to Dr. Mattman's clinic about 10 years ago who contracted Lyme after reading about her work with Lyme in Alternative Medicine Digest. I have Chronic Lyme and did not get that help and so appreciate someone out there like Dr. Carol Fisch and her point of view. I also have CFS and have spent a number of years in treatment with one such point of view of many that if you have Lyme, then you have no Glutathione. It is not so easy, once this is gone due to Lyme evidentally to make a "zero" a number that wants to stay around without getting rid of the Lyme but some Whey products do help. Then most Lyme patients have Morgellons symtoms according to my doctor, an expert in the field. Where do we start? Some work on one aspect and others on another. It all has meaning, though
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Post by Harry on Feb 12, 2011 15:52:43 GMT -5
surly......221,.she approached me on my Facebook page,.so I thought folk's might know her,.& you do 221?? she's in Florida & is doing a study on a topicals for Morgellons,.my lesions now are small & few,.you also need a digital camera to take periodic picture's of results. glad I could help,.sure thing 221,.thanks for the Glutathione information. take care & hugs. P.S. if your interested she needs 4 people. I will give you her email address in confidence. Harry
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Post by 22122agin on Feb 12, 2011 17:07:40 GMT -5
I don't have any lesions, Harry, just crawling that comes and goes depending what I treat it with. So camera would be a waste for me. Often I forget what worked as I will use them in series to rid the crawling. I know you think it never goes away, but I am actually free of crawling if Iam careful of certain things but unfortunately I forget to be careful. I only know of Dr. Mattman but not personally and don't know if the other doctor but I do know now, thanks to you. Hopefully she is friends with Trisha Springsteen who is also in Florida.
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Post by Harry on Feb 13, 2011 13:53:15 GMT -5
Thank you 221,.I just talked with Carol Fisch,.she sounds extremely educated in her area of study. I am looking for 4 people that would like to be involved in this cost free study. I told her I would do this as a pleaser,.she is looking to only help people & not in this for Money,. if you have or know someone that has active lesions Please let me know Via PM. Sincerely: Harry
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Post by bannanny on Feb 13, 2011 16:48:41 GMT -5
That's too cool Harry... I got that info in an email today myself and thought she sounded like a really great person! It's always wonderful when someone wants to try and help who knows about all this scientific stuff. I'd get involved, but I don't have open lesions either. Never have... but I know there's lots of folks here who do so you shouldn't have any problem finding them! Good luck and keep us updated ok?
big hugs ~~ bannanny
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Post by Harry on Feb 13, 2011 17:30:42 GMT -5
That's too cool Harry... I got that info in an email today myself and thought she sounded like a really great person! It's always wonderful when someone wants to try and help who knows about all this scientific stuff. I'd get involved, but I don't have open lesions either. Never have... but I know there's lots of folks here who do so you shouldn't have any problem finding them! Good luck and keep us updated ok? big hugs ~~ bannanny Thanks Bannanny,..Hmmm?? you got an Email on this you say?,.send me a pm Please,I would like to understand more & how did she email it to you,.or how did she get your email?? Thank you Bannanny Big hug .do you think I should start a new theard on this??
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Post by Harry on Feb 13, 2011 17:32:12 GMT -5
WHAT SHE POSTED ON FACEBOOK>>>>>> Carol Thorpe Fisch I have a background in Microbiology, Parasitology, Immunology and Stealth Pathogen Research, I am an Advocate, Activist and a Victim of Tick Born Illness. I want to work on a small group of patients along with a researcher who has been able to clear up MESA when nothing else would. I know how devistating Morgellons is... as I have seen people with it. They would need a digital camera and be able to download pictures daily into the computer for a while during the study- Participants confidenality assured by researcher.. You can go to my site to see that I am an advocate for all of us...Carol Fisch, Adjunct Professor Emeritus, Microbiology, Immunology, Parasitology, Stealth Pathogen Research, Advocate, Activist and Victim ...>>>Carol Thorpe Fisch I was not able to complete all I wanted to say the study would not cost the participants anything but their time..Also meant to type MRSA not MESA. If interested email me,. as we would like to get this study started soon. .....>>>>>>I WILL GIVE ANYONE HER EMAIL THAT WOULD LIKE TO PARTICIPATE. SINCERELY: Harry
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Post by bannanny on Feb 14, 2011 14:25:53 GMT -5
I got it in an email from Sid (she's a member here.) She always gets Morgellons Alerts from Google so it may be that's how she found it. This was what it said... Florida Lyme Support Gulf Coast Lyme Disease Support Group
Chronic Borreliosis Complex and Neuroendocrine System Disorders
By Carol Fisch Adjunct Professor Emeritus, Microbiology, Immunology, Parasitology, Proficient in Stealth Pathogens, Advocate, Activist and Victim
Most medical professionals, when speaking of Lyme disease, are typically referring to an outdated and over-simplified version of the disease that was once taught and believed that the main causative agent being dealt with was the borrelia spirochete. We now know there are many agents involved. Borreliosis Complex for Lyme disease is a better term than just Lyme disease. We now know there are many agents involved and much neuroendocrine involvement due to not only Borrelia, but viral activity and damage to the Methylation cycle (KREBS CYCLE). It is so good to see the two groups learning from one another. Initially the group of Lyme researchers was looking at only Borrelia the causative agent for Lyme disease but as time went on they discovered many other agents. The CFIDS doctors were looking at damage to the Methylation cycle, Diastolic Heart Dysfunction and so much more in their research endeavors. It appears one group was looking for the AGENTS and the other was looking for the DAMAGE. It is so gratifying to me not only a researcher but a victim of these issues to see the two groups coming together. There are researchers in the Lyme community and in the CFS/Fibro Community who are looking at all the above and below issues. I prefer the name Neuroendocrine System disorders to CFS as this is what happens to all of the victims regardless of the diagnosis: Much needed change is slow in all research but the two groups are coming together and sharing their findings. We will all benefit from this cooperation. Not all patients with a CFS diagnosis have Borrelia (Lyme) Complex but as you can see from below, many of us share some of the causes and some of the damage. Some on the Lyme disease side believed the organisms to be the only problem. Some of the CFS/Fibro side felt -and many still do- that if the damage is corrected, the infections may go away on their own. We have a long way to go but in working together hopefully we can come up with answers that help all of us to live healthier and more productive lives.
A simple explanation of Lyme disease is not possible, as Lyme disease is not a simple disease. It is not just an infection with Borrelia burgdorferi, the causative agent of Lyme disease. We are dealing with an illness complicated by multiple infectious agents, many of them being immune suppressive. The immune system has difficulty in detecting the organisms due to multiple factors, pleomorphism (Changing its morphology in order to survive is one of its best tricks). From the moment it gets into the body, it has the ability to lock itself into our own DNA proteins. When hit by anything that might threaten, it can go into Cell Wall Deficient (CWD) stages or into the Cyst stage, a very protective stage. An activated immune system, where the body is trying to find an enemy and can't, leads to reactivation of Herpes Virus 1 through 6 and auto-immuneissues.
Many patients given a diagnosis of CFIDS, Fibromyalgia, Gulf War Illness or Neuroborreliosis Complex (Lyme disease) are dealing with a very complex organism that causes multiple damage to the host. It is indeed a very complex organism within itself. Borrelia burgdorferi is one of the players in Neuroborreolosis Complex. It has 132 lipoproteins, genes and more genetic material than any other bacteria. Ninety percent of the genes are not related to any other bacteria, perhaps making it the most complex organism known. Syphilis, by comparison, has 22 lipoproteins in its genetic make-up, making it look like a wimpy cousin of Borrelia burgdorferi in comparison.
Some of the other NeuroSystemic infections, Chronic Fatigue, Fibromyalgia, Systemic Lupus Erythematosus, Schlerdoma, Pneumonia, Bronchitis, Inflammatory Bowel Disease, Kikuchis Johnson syndrome, MS, ALS, and Parkinsons and most likely many more have been found to harbor many of these infections that are very capable of being stealth pathogens.
- Mycoplasma fermentans (Incognitos strain and various other strains.
- Human Herpes Virus-6a (HHV-6a) a very immune-suppressive virus found in Neuroendocrine Disorder, Lyme, HIV, CFS as well as others.
-Chlamydia pneumonia (Chronic Chlamydia pneumonia). Charles Stratton, M.D. out of Vanderbilt University has come up with a protocol to deal with this very complex pleomorphic infection that is present in so many patients with the various diagnoses. His protocol can be found at www.cpnhelp.org
Other pathogens found: -Mycoplasma pneumonia -Mycoplasma hominis -Ureaplasma urealyticum -Mycoplasma penetrans -Borrelia burgdorferi (Chronic Late Stage Lyme) and may also trigger Fibromyalgia -Brucellosis (Chronic Brucellosis)
Rickettsia Diseases: -Rickettesia ricketessi -Coxiella burnetii (Qfever,"Post-Q-Fever fatigue Syndrome") Staphylococcus and Streptococcus
Viruses: -Epstein- Barr Virus (EBV) reactivation -Cytomegalovirus (CMV) reactivation -Coxackie B Virus (1-6) chronic Coxackie infection which may cause/trigger CFS, Myalgias and other diseases). Parvovirus B-19 (Chronic Parvovirus infection "may cause/trigger Fibromyalgia/ CFS, arthralgia, arthritis. Hepatitis C (Chronic Hepatitis C" may cause/trigger Post-Polio Syndrome non-Paralytic Polio," Chronic inflammatory muscle disease, Fibromyalgia/ CFS).
A simple explanation does not give the complexities of the many organisms or the diseases and complications they cause.
Lita Mattman, Ph.D. and Alan Macdonald, M.D., Ph.D. are studying the pleomorphic stages of many organisms. I studied under Dr. Mattman... The studies and live photos show the organism's ability to evade detection by anti-microbials, and the patient’s own immune system; again, leading to auto-immune issues, among other things, in many of us.
Physicians on both coasts, California and Connecticut, have found many of these same organisms in blood-sucking insects. There may be others we are not aware of as yet. Eva Sapi , Ph.D of the University of New Haven Dept. of Biology and Environmental Science, found many of the pathogens in ticks on the east coast that were found on the west coast. The bottom line is that many of us are dealing with an immune system that has been driven into Humeral Immunity (overdrive) and stays activated, due to the inability to find and destroy the enemy within and the neuroendocrine damage that results.
Again, as both groups work together, sharing information and research, we will hope for a better future for all who suffer from Neuroendocrine Disorders.
Carol Fisch Links:
Touching My Family's Lives.....A story of Lyme disease in Michigan Expert Interview Series: Carol Fisch (LDRD Membership Required)
Expert Interview Series: Carol Fisch - Part 2 (LDRD Membership Required)Hope that answers your questions! love ya ~~ bannanny
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Post by bannanny on Feb 14, 2011 14:28:26 GMT -5
Oooops... forgot to say that yes, I think you should start a new thread regarding Carol and her research Harry.
I also wanted to ask if you listened to Dr. Harper on the 10th? I missed it.
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Post by Harry on Feb 15, 2011 17:39:39 GMT -5
Oooops... forgot to say that yes, I think you should start a new thread regarding Carol and her research Harry. I also wanted to ask if you listened to Dr. Harper on the 10th? I missed it. hehehe love it Bannanny
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