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Post by stupid smurf on Jan 17, 2006 20:05:55 GMT -5
London, Didn't you say you were from Dallas? I thought I saw you post a Medical City address, as a point of reference.
If so, have you been to Southwestern Medical Center? In particular to see Paul Southern?
Just curious.
Aplogies, if you have already posted this information.
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Post by slinker on Jan 17, 2006 21:17:27 GMT -5
I've been to Southwest Medical Center. They told me I probably caught something from the dog. Waste of effing time.
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Post by stupid smurf on Jan 17, 2006 21:32:26 GMT -5
Who did you see? They didn't tell me that, but they didn't figure it out before I ran out of money either.
Southern is supposedly one of the top in his field, in this area anyway. ID/TM.
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Post by slinker on Jan 17, 2006 21:37:32 GMT -5
If I can remember the doctor's name, I will PM it to you (we're not supposed to post doctors' names here). It was a miserable experience. The health dept here supposedly knows about this. They are bracing for the epidemic yet to come.
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Post by stupid smurf on Jan 17, 2006 21:46:01 GMT -5
If I can remember the doctor's name, I will PM it to you (we're not supposed to post doctors' names here). It was a miserable experience. The health dept here supposedly knows about this. They are bracing for the epidemic yet to come. Okay, oops. I thought we just weren't supposed to post their contact information. If you find it, please let me know. I'm still interested if London went there (or anyone else for that fact).
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Post by london2146 on Jan 17, 2006 22:03:05 GMT -5
no, no, no not southwest!!!!! Government funding and just this morning I found and saved a paper they did on Cuystic Fibrosis(sp?) something that TAMTAM was talking about. I was doing a google search for some words/statements with all these big-fancy chemicles in it and my eyes nearly popped out when one pdf paper appeared and had their (Southwestern Medical Center's) name and Dallas address. I will go back and look into it for you as well retrieve the addresses and ph. #'s. I also remember the words of my Doc( physicians assistant) that treats me. She was trying to think where I could go to get proper treatment, when she said> Now you could not go into a place like-say for instance :Southwetern because they are Gov't supported. Did not elaborate more than that. I hope this helps and I will get back with you.
London
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Post by slinker on Jan 17, 2006 22:03:29 GMT -5
I actually called them and they told me about getting a ton of calls about "scabies that won't respond to treatment." When I got this, I thought it was scabies, too. But it never responded to treatment. So, I called the Dept. of Health. That's when I found out about the numerous calls they've received. I told the woman I spoke to I had some doctors' appointments scheduled and I'd get back to her. A couple of DoPs and a "you caught something from the dog" later, and I never called her back because I couldn't get a diagnosis.
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Post by slinker on Jan 17, 2006 22:04:28 GMT -5
Called the health dept, not SWestern...
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Post by london2146 on Jan 17, 2006 22:07:33 GMT -5
Slinker,
That's just what I'm going to do- first thing in am! Pm me if you have anyadvice/info you'd like to pass my way.
London
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Post by slinker on Jan 17, 2006 22:10:47 GMT -5
I'm searching my files for the contact name I talked to. STand by...
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Post by stupid smurf on Jan 17, 2006 22:15:15 GMT -5
I'm searching my files for the contact name I talked to. STand by... donkey schin. Take your time and thanks.
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Post by slinker on Jan 17, 2006 22:19:53 GMT -5
I am unable to locate it. I'm at a friend's house, so I'll look more when I get home, but I think the woman's name was Carolyn or Caroline? Something like that....sorry.
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Post by stupid smurf on Jan 17, 2006 22:55:46 GMT -5
no, no, no not southwest!!!!! Government funding and just this morning I found and saved a paper they did on Cuystic Fibrosis(sp?) something that TAMTAM was talking about. I was doing a google search for some words/statements with all these big-fancy chemicles in it and my eyes nearly popped out when one pdf paper appeared and had their (Southwestern Medical Center's) name and Dallas address. I will go back and look into it for you as well retrieve the addresses and ph. #'s. I also remember the words of my Doc( physicians assistant) that treats me. She was trying to think where I could go to get proper treatment, when she said> Now you could not go into a place like-say for instance :Southwetern because they are Gov't supported. Did not elaborate more than that. I hope this helps and I will get back with you. London HUH? I went and paid cash. So I'm not sure what all of this government funding, limited access is about. They just required a referral. What are you saying? She was trying to warn you not to go because the government had your number? HUH? As to the rest, huh again? Sorry, if I haven't been keeping up but why do I care if they wrote a paper on CF? There must be 1000's of papers out there, regarding that subject. My brain hurts. *LOL. Anyway, it seems those that have been there haven't had much luck. Let us know what the health dept says.
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Post by london2146 on Jan 17, 2006 23:36:14 GMT -5
I dunno if you're talking to me or slinker. I never said a thing about them having my number ( if you were talking to Me) , nor did I say anything about access.
What I said was that my Doctor said they are linked to the Gov't ( funding for research I suppose) and that is not some place I'd be likely get help with any answers.-since I had told her that I believe the Gov't was in on this Morgellons illness.
As far as you not caring about "who wrote what" paper on CF: Okay, will not look it up,nor post it here for you.
I did ask you if you wanted me to post the hospitals addresses and phone #'s.
This pretty much summarizes what I thought you were requesting. Let me know if you indeed still want them. London
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Post by stupid smurf on Jan 18, 2006 0:36:51 GMT -5
I dunno if you're talking to me or slinker. I never said a thing about them having my number ( if you were talking to Me) , nor did I say anything about access. What I said was that my Doctor said they are linked to the Gov't ( funding for research I suppose) and that is not some place I'd be likely get help with any answers.-since I had told her that I believe the Gov't was in on this Morgellons illness. As far as you not caring about "who wrote what" paper on CF: Okay, will not look it up,nor post it here for you. I did ask you if you wanted me to post the hospitals addresses and phone #'s. This pretty much summarizes what I thought you were requesting. Let me know if you indeed still want them. London "Having your number" is an expression. IOW, I was asking if you thought you were going to have trouble because the government was involved. You seem to have expressed in the past that you were being monitored, or some such thing. Comments about riding on someone's wireless so you can get under the radar, etc. Coincidentally, I wouldn't post on a message board that you were going to pirate someone's ISP access. Not smart. But I digress.................... Personally, I don't buy into the whole government cover up thing, that's no secret. So that didn't make much sense to me. We all don't have the same thing. What I have will die eventually, given enough assault. I have personal empirical evidence, along with historical empirical evidence, to support that. It is very resistant, so the question becomes will the cure kill me first. But there are certainly enough other documented, and inferred, cases of recovery that lead me to believe it's not some big bad lab experiment gone bad. Maybe bio-pesticide, but that's another issue. But I digress, again.................. I didn't say I didn't care, but why would I care. Just FYI, I don't consider someone named "TamTam", that won't identify themselves, to be a credible scientific source. Any first year film student could generate a video of the same quality. I especially give this no credibility, when his treatment recommendations are things such as tea tree oil and sea salt, and someone else's protocol. Been there, done that. These treatments have been discussed a million times, in one form, or another. That's my prerogative, same as it is anyone else's that chooses to follow him. However, I did not have any idea why CF had anything to do with this disease. Hence, "why do I care?" as opposed to "I don't care". That's okay, I was mainly asking if you had been to Southwestern. I have my answer, which is: NO. Thanks, thats what I wanted to know.
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Post by slinker on Jan 19, 2006 13:16:03 GMT -5
a healthy dose of skepticism is necessary to people afflicted with our scourge. I'm finally functional again though worse for the wear. It doesn't get as bad as it used to for a tleast a month between flareups. I see that as progress. Once, I was obsessed with researching this thing. I basically set up a lab at my house. Posted findings and images here. but it drove me mad. last summer was the equivalent of hell for me. I don't fear death because I've already felt like I was "wormfood." But my obsession with discovery of this organism was just as unhealthy as the beast itself. There is something to the whole "mind over matter" attitude when dealing with it. When your mind goes, your environment becomes even more unhealthy. I am thankful for those who post everything they find because the info filtering/processing aspect of discovery is important. But the best way to feel better is to do improve your health, diet etc. I don't drink much now and try to remain productive. I used to be cool and now I'm a square, but I feel better and I'm mentally better prepared to deal with the flareups. I am also glad to know that the majority of the medical industry has other motives as priorities above our health. Remember: 4 out of 5 doctors really suck, Good luck finding the one.
Still haven't found that name, but I'll post when I do. I realize the state health dept is a government agency, but it's not federal and these people were freaked out by the number of calls. And remember, in this instance, I think underlings are more advantageous than a director or manager. IMO
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Post by questionhair1 on Jan 19, 2006 13:44:52 GMT -5
I agree about living life normally and choosing healthy behavior as important to tamping this down.
As for doctors and their "underlings" - I used to have a business where I had to deal with doctors a lot. Treating the staff with courtesy and respect got me in time and time again to see the doctors.
The young doctors were still energetic and positive, but some of the doctors in their 40s and 50s were obviously trapped in their profession and hated it. Maybe they were burned out. How many of us are doing the same type of work we did 10 years ago? 20 years ago?
One thing that is important in any dealings with doctors - recognize the staff as important people. Greet them by name when you can and always be sure to include them into a conversation - not talk past them like they are invisible. And, when you leave, be sure to wave or say goodbye to them.
Years ago, when I started my first jobs in secretarial work, the people who got past me to the bosses were the ones who treated me with courtesy. Remembering what it felt like to be treated rudely or politely has always stood me well in doing business with people.
People in doctors' offices know a lot that is going on - if you are going to leave documentation for the doctor, I'd try to have extra copies for a staff member or two - even if you have to leave it on the counter as you leave. People are curious and intelligent.
QH
PS: Of course, it is a lot easier to give advice than follow it. When I went to see the Dermatologist I was angry. I had sent my husband in first, to show the ID doctor that it wasn't my imagination. But, my happy-go-lucky, hard-working, big galoot of a guy had such pain in his voice when he called me after his appointment. I could hear how humiliating the experience was just from his voice and when he told me that they didn't believe him and "thought he was crazy" I was PO'd.
That is what drove me to searching the internet for an answer to these "microscopic non-dying mites or whatever-it-is." By the time I showed up for my appointment I was armed with printouts of the collembola study, a springtail found in sinks taped to a paper, along with an internet photo of a springtail in the exact position, furcula and all, and a printout about Morgellons. I walked in with an ATTITUDE and hair samples in various stages. My own advice above went totally out the window.
If I ever see a doctor again about this stuff - my plan is to be calm, rational, intelligent and friendly. No crying (ID doctor) and No attitude (Derm doctor)
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