|
Post by teller on May 16, 2011 19:26:54 GMT -5
Bearer of bad news. I got a Google alert a while ago from Reuters Health - but this ain't the peer-reviewed journal publication the CDC promised us, is it???!!! tinyurl.com/434b3ufIt was published today May 16, 2011 on WebMD News tinyurl.com/3njwalqand in the 'peer-reviewd' Archives of Dermatology tinyurl.com/3zs6myo
|
|
|
Post by xiblanque on May 16, 2011 19:53:40 GMT -5
Outrageous and Unbelievable!!! I don't know if I am more angry or sad. either way... It paints us all in a horrible light. Xib
Actually I'm more angry, especially having read this...
This condition is the bane of many dermatologists’ existence, says Bruce Strober, MD,
what about us?
|
|
|
Post by toni on May 16, 2011 20:17:22 GMT -5
www.cnn.com/2011/HEALTH/05/16/skin.infestation.delusion/index.html?hpt=C2I'd seen this one, and all I can say is they just don't stop TWISTING the facts...these "free lance writers" are that desperate for a story, and in the process, yes, they're making us look real bad. (I'm biting my tongue) off practically. But...we see they're basing their "opinions" on material between 2001-2007. And the "REAL" study still has not yet been released. Just posted the right link now, had emailed the other link to myself to read later.
|
|
|
Post by sheredelight on May 16, 2011 20:19:53 GMT -5
Well what else could we expect form these buffons.... Mind you they cant or wont think outside the square... Lets face it ,all they use is the text books, and like good Little slave droids do as their told, why simple ,one word 'MONEY" I dont know whats wrong with me lately but I'm sure ANGRY, as all get out .. ...sorry people
|
|
|
Post by itchin4answers on May 16, 2011 20:26:59 GMT -5
So now we have "invisible bug syndrome" - outrageous, laughable (not). Honest to God I could cry. I HAVE taken all their poison pills (psychiatric medication). The Dermatology & Psychiatric community are a bunch of half wits, brown nosing!! In a word - DISGUSTED!!!!
|
|
|
Post by xiblanque on May 16, 2011 20:40:08 GMT -5
So I am wondering now if there are viable lawsuits WE can bring against the Derms that are using the words "Delusional" or any words that diagnose mental illness. If this diagnosis is being made, isn't there a comprehensive checklist (battery of tests) that the dermatologist MUST follow... I am not even certain that derms can make a psychological diagnosis. Sheredelight.... sometimes Anger is the appropriate response! Xib
|
|
|
Post by headbee on May 16, 2011 21:00:43 GMT -5
Can they not look at the blood evidence and the link to Lymes!!!
|
|
|
Post by ruth on May 16, 2011 21:10:22 GMT -5
as i believe M is from nanotechnology and specifically quantum dots
THEY have truly invented delusion of parasitosis.................
because the scientists now make them to stay lit.... to appear as a phosphor............
no more blinking and therefore no more proof of it's existance..........
courtesy of dr. koo
|
|
|
Post by ginna898 on May 17, 2011 2:09:49 GMT -5
Thank you Teller for bringing this to everyone's attention. Agree with you Ruth and also want to add that IMO - - Morgellons Disease -- may possibly be pointing the public into the direction of "CLASIFIED" Information if this Mayo Study ends up being considered "official/factual" and taken seriously. Personally, I most definitely do not understand ANY reasoning behind how it can ever be considered "official/factual" given the particulars gleamed from the article as to the procedures and most obvious severe and complete careless organization with BOTH the "study" and the most deplorable irresponsible sudden press release of Mayo's completely negative findings. I will be writing the author of this particular article: www.reuters.com/article/2011/05/1....E74F6YR20110516In order to find out just exactly WHEN this CDC quotes below were actually said/quoted thereby qualifying these articles as nothing more than "OLD News" quotes vs it being any sort of "New News". Excerpt:
While there are no published estimates of how common delusional infestation is, the CDC has been researching that question, as well as what type of people tend to report symptoms.
Researchers there prefer the term "unexplained dermopathy."
2nd Excerpt:
"It is an unexplained and debilitating illness of unknown cause," a CDC spokesperson told Reuters Health. "We recognize that...healthcare providers are perplexed and frustrated" and patients and their families are suffering, the spokesperson added."Toni, Thank-you for pointing out that these recent news articles are truly not the CDC study reports which translates into the fact that there certainly is still hope!
|
|
|
Post by itchin4answers on May 17, 2011 3:39:22 GMT -5
Hello ginna898, thank you for your post & for saying you will be writing to the author of that particular article.
I too liked what Toni said.
cheers - itchin
|
|
|
Post by ginna898 on May 17, 2011 4:10:22 GMT -5
archderm.ama-assn.org/cgi/content/abstract/archdermatol.2011.114v1?maxtoshow=&hits=10&RESULTFORMAT=&fulltext=delusional+infestation&searchid=1&FIRSTINDEX=0&resourcetype=HWCIT------------------------------------ Author Affiliations: Visiting Medical Professional for Research, Department of Dermatology (Ms Hylwa), Mayo Medical School, College of Medicine (Dr Bury), and Departments of Dermatology (Drs Davis and Pittelkow) and Psychiatry and Psychology (Dr Bostwick), Mayo Clinic, Rochester, Minnesota. ----------------------------------- Michael Bostwick, an associate professor of psychiatry at Mayo, says he told a gathering of dermatologists not long ago that they should stop running from Morgellons patients. "I got hissed out of the room," he says. "I think the best thing to say is that people are having an experience, and it's not explained. And people look for explanations. Separating the narrative truth, the stories people tell to explain what's going on, from the biological truth seems to be the challenge of this condition . . . The skin and the brain are derived from the same tissue. It seems completely plausible to me that brain and body and skin could all be related." ------------------------------------ The above Posted by Charolette (Tue Jan 22, 2008) on a morgellons forum and what Dr. Bostwick from Mayo said then. www.canlyme.com/forum/viewtopic.php?p=29238&sid=b849ec230c4fbe35589197e53fd2dd8a
|
|
|
Post by ginna898 on May 17, 2011 4:36:50 GMT -5
Davis and Pittelkow are no strangers to Lesions/Systemic disease/Lymphatic system. (although not the Author, they were involved) Beware because article has rather graphic photographs: archderm.ama-assn.org/cgi/reprint/145/7/801.pdfAccepted for Publication: December 12, 2008. Correspondence: Roger H. Weenig, MD, Department of Dermatology, Mayo Clinic, 200 First St SW, Rochester, MN 55905 (Weenig.Roger@mayo.edu). Author Contributions: Dr Weenig had full access to all of the data in the study and takes responsibility for the integrity of the data and the accuracy of the data analysis. Study concept and design: Weenig, Comfere, Gibson, and Davis. Acquisition of data: Weenig and AlonsoLlamazares. Analysis and interpretation of data: Weenig, Comfere, Gibson, Alonso-Llamazares, Davis, Pittelkow, and el-Azhary. Drafting of the manuscript: Weenig and elAzhary. Critical revision of the manuscript for important intellectual content: Weenig, Comfere, Gibson, Alonso Llamaza Davis, Pittelkow, and el-Azhary. Administrative, technical, and material support: Weenig and Davis. Study supervision: Alonso-Llamazares. Financial Disclosure: None reported
|
|
|
Post by ginna898 on May 17, 2011 5:12:49 GMT -5
www.mayoclinic.org/bio/10015183.html(have to scroll down page to read information on him) Mark R. Pittelkow, M.D.Location: Minnesota Primary Appointment: Dermatology Joint Appointment: Biochemistry M.D. Mayo Medical School M.S. – Biological Sciences Northwestern University B.A. – Biological Sciences, with honors Northwestern University Interests: Psoriasis, cutaneous T-cell lymphoma ( mycosis fungoides/S�zary syndrome), lymphomatoid papulosis and other lymphoproliferative disorders, ichthyoses, disorders of cornification, genodermatoses, connective tissue diseases, cutaneous carcinoma, melanoma, disorders of pigmentation, livedoid vasculitis, leg ulcers and cutaneous ulcerations
|
|
|
Post by kammy on May 17, 2011 7:11:21 GMT -5
Of course, our condition can't be real! This is all about making sure we have less and less RIGHTS in the near future, we HAVE to be presumed as 'crazy' for certain situations to be enforced. Think about it.
|
|
|
Post by toni on May 17, 2011 7:55:08 GMT -5
Most of the "general population" who sees those deceiving articles about Morgellons, won't read this last sentence as is in this specific article. The last sentence says:
A strength of the study was the objective evidence of the histologic analyses, while a limitation was its retrospective design.[glow=red,2,300]And that simply means: Apply To Past Events[/glow] So for the "general public out there" that don't have Morgellons, or IF there's any doctors out there that have ANY COMPREHENSION at all - they'll clearly see this study is so not completed, and that PAST has absolutely nothing to do with current or present. This imho is no different than an article being written today and stating AIDS is not real, if the writers of a story used OLD information before current results are in. It's sheer idiotcy for any of these doctors to base anything on "incomplete or currently under study" results. It's all premature....so it means nothing. But what it does mean (imho) is someone or several people out there haven't got enough sense to realize "how ridiculous it is to even resurrect old information, and try and make it today's information, when it's clearly obvious from CDC that the new information hasn't even yet been released. www.medpagetoday.com/Dermatology/GeneralDermatology/26503(see the very last sentence in this) as that explains it all. Last but not least: That Dr. KooK (I mean Dr Koo) that's also mentioned in these articles, he talked about DOP in regards to Morgellons WAY BACK in 2006 before CDC ever took this on. He did the "look before he leaped" thing - as did many doctors. Because they'll see, and we'll see the mud in their faces as ( I do believe our day will come). See how these "free lance" writers are talking sooooo yesterday's news? That makes them pretty backwards actually. Because they've put together "stories" based on OLD OLD information...and brought it forth today. That doesn't even make sense. www.thecehf.org/smith-web-snippets-morgellons-disease.html
|
|
|
Post by toni on May 17, 2011 9:14:25 GMT -5
|
|
|
Post by ginna898 on May 17, 2011 13:00:21 GMT -5
I'd sure like to know who is responsible for this onslaught of old news and NOT from one source but numerous.
Who ordered a press release on this? and Why did so many news affiliates jointly believe it was even newsworthy? CBS CNN LA Times Reuters Web MD TopNews United States Wall Street Journal Blog An infestation that begins in the mind Chicago Tribune - Melissa Healy - 12 hours ago Self-described sufferers of Morgellons disease say their skin is infested with mysterious parasites, and they demanded a government study. The Mayo Clinic concludes the symptoms are often delusional. By Melissa Healy, Los Angeles Times They complain of ... Health Buzz: Patients May Suffer From Delusional Infestations U.S. News & World Report - Angela Haupt - 2 hours ago
MedIndia - Kathy Jones - 2 hours ago Study Says Patients May Be Delusional Toward Skin Infestation SmartAboutHealth - 6 hours ago Objective evidence of skin infestation lacking in patients with diagnosis of ... EurekAlert (press release) - 21 hours ago Bugs and Worms in Patients' Heads, Not the Skin MedPage Today - Nancy Walsh - 21 hours ago Skin Biopsy Doesn't Aid Diagnosis of Delusional Infestation Skin and Allergy News Digital Network - Mary Ann Moon - 21 hours ago Is That Itching All In Your Mind? RedOrbit - 27 minutes ago An infestation that begins in the mind WSBT-TV - Melissa Healy - 31 minutes ago Delusional Bug Creepy Crawler Syndrome: Morgellons Disease Related? Medical News Today - Sy Kraft - 1 hour ago An infestation that begins in the mind Fox 13 Now - Salt Lake City - Melissa Healy - 3 hours ago Symptoms of Morgellons disease are called 'delusional parasitosis' The Republic - Melissa Healy - 11 hours ago Imaginary bugs flummox dermatologists News-Medical.net - Ananya Mandal - 13 hours ago Skin Infestation a Delusion, Study Says Health.com - Anne Harding - 20 hours ago (all these and more in within 24 hours) WTH?See the full onslaught: tinyurl.com/3o46yyvnews.google.com/news/story?gl=us&pz=1&cf=all&ned=us&hl=en&q=morgellons&ncl=dQFOJHjZERoS5jMVBCzIA2WpzFNlM&cf=all&scoring=d As if it were a "planned attack" aimed at discrediting morgellons.This below courtesy of CBS from only 8 minutes ago ---- and they are not done yet! --- more are added every time the "NEWS" is Googled about morgellons. Morgellons disease? Itchy skin illness all in the head, study says CBS News - Ryan Jaslow - 8 minutes ago That's what doctors are saying about people with Morgellons disease, who claim to be infested with mysterious parasites that trigger itching, rashes, ...
|
|
|
Post by xiblanque on May 17, 2011 13:05:21 GMT -5
Wow... Such an avalanche of dis-information. What an obvious cover-up. That would be all of us covered up by this white-washing and deliberate snow job. xib
|
|
|
Post by toni on May 17, 2011 13:07:00 GMT -5
My guess why ALL of these "internet sites made this the major topic of news is because":
Yesterday quote:
The study was published in the May 16 issue of Archives of Dermatology.
New "archived" articles get flagged by these ambulance chasers (the FREE-lancers) on the internet.
|
|
|
Post by ginna898 on May 17, 2011 13:13:07 GMT -5
Why on Earth would the Mayo suddenly decided to post their study now of all times?
Morgellons Disease Deemed 'Delusional Parasitosis' by Mayo Clinic Gather.com - Kimberly Ripley - 27 minutes ago
Morgellons disease sufferers have formed intricate internet networks--a slew of forums dedicated to helping one another survive their maladies. Now the Mayo Clinic has announced that these people are in fact suffering from delusional parasitosis ...
---------------------------------------------
The "average person" is absolutely not going to "understand it" accurately. This situation does NOTHING for "family matters" which are already strained for so many of us.
|
|