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Post by pdidit on Sept 13, 2011 22:26:57 GMT -5
THANK YOU BERT FOR BRINGING THIS INFO TO US! research effort is studying our condition as is asking for volunteers. Goto parasiticneurotoxins.org/ and read the 2 papers published so far. There, you can find the registration form to be in the study. That same form is attached here. I hope you will apply to be in the study. Bert McDaniel, P.E. cell 817-705-6344 www.MorgoneGel.comlove Pdidit
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Post by Acacian Immolation on Sept 13, 2011 22:43:01 GMT -5
don't see anything having to do with Harvard on that site. Did the guy studying it go to harvard once
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Post by freakydeak on Sept 14, 2011 2:50:30 GMT -5
Pdidit, thanks so much for bring this to out attention. I'm ready to go, donate my bod, let em stick things up, & down me as long as they don't fool around, if ya know what I mean, & the are gentle, kind,& nice looken is OK. I'd be cool if it were in Dallas for me, cause fog brain can drive there easy, I'll call tomorrow. Are any other girls signing up that like me? I'll drive from Austin if we have to go somewhere, or pick you up on the way. Hope I didn't read this wrong. Blessings.
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Post by itchin4answers on Sept 14, 2011 4:37:34 GMT -5
Freaky, when you call ask them if they will pay my air fare. I'm sure I would be another great specimen. Without any negative feelings towards Dr Alphonsus Ekwerike & his associates, I do have some concerns. Why change the name of the disease & then keep changing it? THE NEUROTOXIC SPONGI FIBROUS PARASITIC NEUROTOXIC SPONGI-FIBROUS (NSF) RESEARCH STUDY Morgellon's Disease? Neurotoxic SpongiFibrous Study SYSTEMIC TOXICITY: Unknown but infected candidates show various osteo-neuro-muscular conditions like pain, redness of skin, tingling, burning, crawling sensation with accompanying boils, blisters, ulcerative wounds, mood swings / emotional distress, etc. I have never heard the term "osteo-neuro-muscular" & I was a medical typist. "conditions like pain"...credible documents wouldn't use a holding/joining word such as "like" which is most often spoken, rather than written. I don't like this part. I can't really explain why, but I think because I feel they're just not sincere. OUR PHILOSOPHY: Anything that disturbs the mind is sickness. Until the solution is given or found, the mind will not have peace & will transcend to societal disturbance & low productive contribution to the nation. Let us neglect not those that have this condition because we do not have it or do not understand it. Every life is precious and every brain should rent sense to this for it is worth working for. Let every scientist feel the urge now, to fight this condition & free our people.” I did a google search on Neurotoxic Spongi Fibrous Parasitic & all searches relate to the same people. The websites were created in 2011 & there are many grammatical errors through out the website. I don't know what really "makes" a credible website, meaning I think these websites (below), which are all the same people are a little unprofessional looking. You be the judge, but I'd like to know if maybe I'm looking too hard, or being too harsh on others. I just don't have a good feel about it, that's all. www.sciencemedicineresearch.org/id13.htmltheneuronetwork.com/profile/DrAlphonsusEkwerikeThank you itchin
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Post by ctbarb on Sept 14, 2011 9:51:36 GMT -5
Thank you pdidit for your comments. Here is a link to his profile...and it brings up many questions to me as well. This gentleman is from Nigeria, which is highly suspect, since many of the world's scams are initiated here... tinyurl.com/6l4kcrhAlso there is no real evidence that his attendance at Harvard or any of the other medical facilities are verified on his sites other than what is printed. The lack of professionalism may be due to his translation to the English language...however, a scientist usually does not mix science with religion...as he does on his site. Just my opinion...my gut says stay away! Blessings, CTBarb
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Post by pdidit on Sept 14, 2011 10:15:12 GMT -5
Hi all, I share the same concerns and questions as you you guys about credentials and have written them for more specifics-i.e who will be involved in the research etc? But nonetheless, even though a healthy skepticism is essential and naturally we are cynical with what we have been through, I am very excited that a scientist would want to take this on and get a 'team' of other specialists and scientists involved from all over the world--I believe this guy, a fellow sufferer Bert, got this scientist's attention. I believe this is what we need and don't mind that he is 'coining' this disease another term. I think we need another name for it, because in my mind, while this may or may not be the origin of this disease, there are clearly parasites involved-- not just toxins [but toxins from the actual pathogens themselves?] or nanotechnology. I too have questions about his area of his expertise, since he has his hands in a lot of different research. For example he just discovered something new about an asteroid in space? " Dr.Alphonsus Ekwerike Discovers A New Main Belt Asteriod 2010TL78--posted on a Nasa site?" All said, I am open since really, [at least at this point until we know more] for I think it is a great opportunity for finding more pieces of the puzzle. At the very least, this Dr. seems very sympathetic to our plight and takes interest in finding the answers. So even though I was just sent this info in an email, I have already sent in the 'inquiry' form and am additionally writing them via email to ask further questions. From my viewpoint, what other options do we have at this point with exception to a lyme protocol? Spinning our wheels on different products and switching this around when this becomes no longer effective? While I have seen improvement in some areas in what I have done so far, other areas I have not. This has been encouraging of late, but it has taken me years to get to a different level of wellness. Layer after layer, this continued to be sloughed off, with each layer bringing a new list of symptoms. Most doctors are guessing just like we are and haven't a clue as to the disease process and progression. Is this lyme related or another opportunistic secondary illness? Some get better with antibiotics/antifungals, and some don't. Why is this? Not breaking down the biofilm with enzymes and EDTA etc first? Not addressing agrobacteria? How does nanotechnology play into this disease? Does an insect collect these 'artifacts' as well as other chemicals, environmental contaminants for their nutrient supply or are they just 'carriers'? Then there are some who say they never had the insects--I do not understand this, unless they are in a better immune status and have kept this from progressing--I would shout hallelujah to the heavens above, if I could get rid of these white things that fly off of my head. This is clearly alive and thriving within my scalp, ears. with symptoms of biting, stinging, inflammation etc and is not dandruff--shake my sweater in the sun and you see them fly off of this too; photograph my skin and there they reside, all florescent white. So there is a lot to be learned--the similarities as well as the variables-- as we know. Seems this Dr. is recruiting other scientists too so while I am ready to go Freaky! and would be happy to meet you there, unfortunately, I don't think this is going to happen anytime soon--much to set up. I hope I am wrong. All in all, I think we need to look on the bright side in that if some scientist [from Nigeria--who I took as a good sign in that he is most certainly familiar with parasitic infections] takes an interest--and yes, we should ask questions but also be grateful that somebody wants to help us. Perhaps I am being naive. But hopefully at the very least, if this study materializes, it will bring more awareness to this disease, if not more answers! More Info: Research Director Dr.Alphonsus Ekwerike Research Director at Sciencemedicine Research/Tropical Pharmedic Research Institute. Sciencemedicine Research/Tropical Pharmedic Research Institute. Research industry August 2003 – Present (8 years 2 months) Neuroendocrinological Research and studies on tropical diseases like Malaria,Typhoid Fever,HIV/AIDs,etc.I innovate devices , procedures and pharm drugs to better lives.Invented Brain Fun Squatemetry to diagnose and treat cognitive disorders. www.linkedin.com/pub/dr-alphonsus-ekwerike/a/77b/6b6 This link that itchin also found, gives a photo down toward the end of the page, with it captioned underneath: Dr.Ekwerike Studying at Harvard Medical Sch.Boston.MA www.sciencemedicineresearch.org/Guess that doesn't mean he graduated from there, but it certainly gives a bit more credibility Love Pdidit
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Post by bannanny on Sept 14, 2011 11:15:08 GMT -5
Thanks for the info pdidit... but I'm staying away from everything and anything until the CDC releases their final reports. Why? Cuz until thy do, we aren't gonna get anywhere. Unfortunately, it takes them finally stating this is an actual disease for it to be treated in any way. Hope that makes sense, duh!
love you girl ~~ bannanny
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Post by itchin4answers on Sept 14, 2011 17:20:30 GMT -5
pdidit, I really do hope they get back to you & we can find out what this research is all about. I tend to agree with bannanny though. Love itchin
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Post by freakydeak on Sept 15, 2011 21:18:24 GMT -5
Yikes, never mind, I ain't going. I'm presently totally miserable, so I was quick to jump the gun. All the negatives seem to outweigh the positives regarding this. And, when anything relating to mental is ever brought up, it makes my skin crawl.
This guy seems to be spreading himself too thin, being that his primary interest is the brain, but I am most grateful he is looking into morgellons. Give him a bravo, & a putter's clap. I wonder what determined his interest.
Did you get the impression he most likely got a government loan for this project? Well, I did, but think they weren't too generous when it came to funding.
Neurotoxic Spongi-Fibrous Parasitic Disorder - hum, a control freak?? he wants to give his own identity to the disease? It's too complicated just now. He must still say he's talking about morgellons.
Obviously he can't afford a secretary yet because of the typo errors. He didn't put a period after one of his sentences. OMG, I didn't realize how bad it was. I'm not impressed. He doesn't even know about spellcheck.
Seems like a great guy to want to get involved in this, or else he may foresee the big bucks if he could come up with anything.
I'm with y'all on this.
Love ya, freaky
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Post by pdidit on Sept 15, 2011 21:33:21 GMT -5
Hi guys...I understand everyone's apprehension, but I certainly am not waiting around for the CDC anymore. To me, this was a joke of a study anyway. What could they possibly determine on 350,000 dollars anyway? And then my understanding is that they turned everything over to the US armed forces pathology division. Right?
In reference to the scientist offering to help--they just sent me something already, however I will do more follow up before finally committing--this Bert McDaniels [sp?] is a fellow Morgs guy and he has been instrumental in getting this scientist involved. I think i will give him a call as well as a new contact number in the email I was sent. Below is the response that I have already gotten from them--there are lots of grammatical errors and the info is vague. I would never send money either, before finding out more details and getting a sense of the guy who is heading up the team, requesting specific names...can't work with the response: 'other researchers are from different cities" --that doesn't fly with me. Will keep everyone posted, if interested.
Dear Ms. Shannon, Thank you for your interest in he study. To participate as a candidate, you are qualified if you have this disorder and can send us your health medical history, which will not be returned or be seen by other people except the researcher. To participate as a Supporter and a Sponsor, you will be expected to give us donation of cash or materials to carry out the study. Note: All Donations are entitled to 501 (c) 3 IRS TAX EXEMPT. The current sponcers of this study are: Morgelons suffers Morgone Gel Company and the General Public A team of researchers from Science Medical Research and American Academy of Primary Care are involved in this research. Our research members live in different cities. While we wait for a reply, please see the attached form that you will need to fill out. Kindly feel free to contact me. Thank You, Resource Officer Rosie Duran 214-810-8710 Dear Ms. Shannon, Here are some questions that need to be answered, please answered to the best of your knowledge. 1.What did your Doctor tell you this condition is?_____________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ 2.Do you give any information concerning any parasite aligned with this condition?__________________________ _______________________________________________________________________________________________ _______________________________________________________________________________________________ 3.Do you have any other conditions?_______________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ 4. What exact diagnose were you given?____________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ 5. Do you think your condition gets better in the cold or hot weather?____________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ 6. When did you know about this disease and where were you? Can I get specific places?____________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ 7.Is there any person in you family, workplace, or environment that can have this condition?__________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________
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Post by ladybug on Sept 15, 2011 21:43:48 GMT -5
The enrollment form out on that web site asks for a lot of data that could also be used in identity theft. Please be careful. I mean, why would they need to know the "No of Divorces" ??
You can go to whois.net, or use a whois service at any Domain Name Registrar website, and find out a little more about the ownership of any domain name. This is some of what whois.net reports for that site's domain name:
Domain ID:D162995385-LROR Domain Name:PARASITICNEUROTOXINS.ORG Created On:09-Aug-2011 04:50:53 UTC Last Updated On:09-Aug-2011 04:50:54 UTC Expiration Date:09-Aug-2013 04:50:53 UTC
If I am understanding this correctly, the domain was set up very recently.
All that being said, I am ecstatic if any medical or scientific person would look into our condition.
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Post by itchin4answers on Sept 16, 2011 0:19:30 GMT -5
"To participate as a Supporter and a Sponsor, you will be expected to give us donation of cash or materials to carry out the study".
Red flag!... be very careful.
itchin
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Post by dc10801 on Sept 16, 2011 0:31:16 GMT -5
"To participate as a Supporter and a Sponsor, you will be expected to give us donation of cash or materials to carry out the study".
Red flag!... be very careful. itchin Why is that a red flag? They aren't asking participants to fork over cash, only those wishing to be listed as sponsors and supporters. I don't know of many studies where researchers use their own cash.
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Post by itchin4answers on Sept 16, 2011 1:41:22 GMT -5
"To participate as a Supporter and a Sponsor, you will be expected to give us donation of cash or materials to carry out the study".
Red flag!... be very careful. itchin Why is that a red flag? They aren't asking participants to fork over cash, only those wishing to be listed as sponsors and supporters. I don't know of many studies where researchers use their own cash. I'm sorry I read it wrong.
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Post by pdidit on Sept 16, 2011 7:19:25 GMT -5
This radio show is on apparently today ? and has Bert on as a guest speaker about Morgellons. While he is promoting his Morgone Gel I am sure, I think he intends to discuss this study. For those of you not familiar with Morgone Gel, I think it is a sulphur based gel that Bert [has morgellons too] took to the Texas Conference [held in 2010] and he apparently has heard some good feedback after people tried it. I cannot comment on this Gel and don't know much about it but have heard he is a great guy. I thought if anyone else would be interested in the radio show, you could tune in: A radio program originating from California has asked me to be on their Morgellons program this Friday at 5:30 Texas time. I hope you will tune in using the link. I hope to talk about the new research I started in Dallas. parasiticneurotoxins.org/ Bert McDaniel, P.E. cell 817-705-6344 www.MorgoneGel.com
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Post by pdidit on Sept 16, 2011 7:38:06 GMT -5
Oops, Sorry --checked this and think this interview was last week. I wrote Bert for more info, how he connected with this scientist etc. and will relay what he tells me--
love Pdidit
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Post by toni on Sept 16, 2011 8:19:10 GMT -5
BB,
Just a question, as I hope you see this.
(BB) remember back in 2006 you'd told me about a traveling tropical disease (doc or nurse)? Do you remember if this that person? They were here in the states for a little while, then he'd gone back to Nigeria.
It might help here on this link about "who this person is". And then again, this person may not even be who I'm thinking it is.
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Post by bb on Sept 17, 2011 7:10:32 GMT -5
Toni,
The African Parasite Specialist that diagnosed me with many of the normal parasites we all have, is Dr. Hammad A. Ibraheem. He only comes to New York to visit his family, and does some work doing analysis for doctors while he is here. He told my doctor he had seen one patient with morgs and had no clue what it is. That pretty much scared the hell out of me.
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Post by toni on Sept 17, 2011 8:22:50 GMT -5
Toni, The African Parasite Specialist that diagnosed me with many of the normal parasites we all have, is Dr. Hammad A. Ibraheem. He only comes to New York to visit his family, and does some work doing analysis for doctors while he is here. He told my doctor he had seen one patient with morgs and had no clue what it is. That pretty much scared the hell out of me. BB, Thank you for your help there with that question I had. The subject here on the thread 'rang some distant bells' ...and I was hoping you could help, and you did (thanks) And that is also very scary what that doc told you too.
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Post by pdidit on Sept 17, 2011 10:01:07 GMT -5
Hi BB and Toni--
We should bookmark this guy's name--why couldn't we all petition this parasitologist with hopes that by asking for his help, that he would take an interest and contribute to this Texas study and/or be involved in some way?
Any thoughts? xxoo Patti
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