Post by ppy18 on Dec 8, 2011 12:24:36 GMT -5
I've been feeling kinda bummed lately with the holidays coming on and the weather turning bad. i start feeling a little bit isolated and alone this time of year. i so desperately want my old life back. i miss my friends and i miss the way i used to relate to my family and i miss the old me. as hard as it is at times just to get out of bed i know that i still have a lot to be grateful for. i know that I'm far luckier than a lot of my fellow morgies because i have never had to deal with some of the more horrific symptoms that some of you deal with. i am horribly scarred, but that i can live with. the incessant crawling and biting sensations that many of you live with is far more than i could personally deal with. i have faced the heartbreak and humiliation of a doctors rejection but I'm enough of a harda s s to give as well as i get. still i know how much it hurts. i have been supported every step of the way by my family and it has made all the difference in the world. i wonder how much of a difference it would have made for Karen stern. i went over some old post the other day and was particularly struck by the thread regarding the CDC study started by suebe. she was so happy that they were finally going to help us way back in 2007......... god bless you suebe. god bless josh and dillion and karen and cheri. god bless eliott and roberta and glenda and all who have been lost to this nightmare. god bless you all who suffer every day with it. but i also want to say thank you too. I'm grateful to cindy casey, randy wymore, mary lieto, ginger savely, trisha springfield, rafael stricker without whom we would surely be lost today. thanks to sidney and carrie and frisky and sabrina who have talked me down when i needed it and who have provided humor where it was called for and hope even when it seemed hopeless. so many people who have personally touched my heart will go unrecognized here but i love you one and all. those who come to LB just to read please consider taking the time to thank those who have helped you along the way. no matter how strong they may seem this has been a difficult journey for all involved. cindy casey you inspire me. i know that the pain you suffer is magnified so greatly by the loss of Charles and i can only guess at the loneliness that comes from your loss of identity as a person. you are so much more than Morgellons disease. so to you i ask "whats for dinner?" knowing that you will get it. stay strong kid
peace to all
kelly
peace to all
kelly