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Post by ginna898 on Feb 15, 2012 13:03:41 GMT -5
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Post by toni on Feb 15, 2012 13:24:48 GMT -5
Oh my goodness.
This song originally by Metallica that I use to listen to all the time, just grabbed me to the BONE, I love this song that much.
That sure is the bottom line, because that's where it all begins.
Such an inspiring and empowering to the soul song. Thank you for posting that.
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Post by ginna898 on Feb 15, 2012 14:10:10 GMT -5
Heaven bent to take my hand
And lead me through the fire
Be the long awaited answer
To a long and painful fight Truth be told I've tried my best But somewhere along the way I got caught up in all there was to offer And the cost was so much more than I could bear Though I've tried, I've fallen... I have sunk so low I have messed up Better I should know So don't come round here And tell me I told you so... We all begin with good intent Love was raw and young We believed that we could change ourselves THe past could be undone But we carry on our backs the burden Time always reveals The lonely light of morning The wound that would not heal It's the bitter taste of losing everything That I have held so dear. I've fallen... I have sunk so low I have messed up Better I should know So don't come round here And tell me I told you so... Heaven bent to take my hand Nowhere left to turnI'm lost to those I thought were friends To everyone I know Oh they turned their heads embarassed Pretend that they don't see But it's one missed step You'll slip before you know it And there doesn't seem a way to be redeemed Though I've tried, I've fallen... I have sunk so low I have messed up Better I should know So don't come round here And tell me I told you so... -------------------------------- Her voice so deep ----
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Post by ginna898 on Feb 15, 2012 14:36:35 GMT -5
Paula sounds as if she is an Angel.......
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Post by itchin4answers on Feb 16, 2012 0:53:58 GMT -5
Loved the songs ginna, very moving.
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Post by ginna898 on Feb 16, 2012 12:20:53 GMT -5
Loved the songs ginna, very moving. Glad you enjoyed itchen!!
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Post by ginna898 on Feb 16, 2012 12:23:24 GMT -5
toni --
yes yes yes --- Metallica originally!!!!
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Post by itchin4answers on Feb 16, 2012 22:54:17 GMT -5
I wasn't sure where to post this info. and not wanting to draw attention, though wanting to let you all know.
After the Commonwealth Ombudsman receiving my formal complaint they took only 8 days to reply.
Here is their reply;
------------------------------------------------------------------------
8 February 2012
Dear Ms
Thank you for your complaint to the Ombudsman about the Department of Health and Ageing (the Department). This matter was referred to me for assessment.
You have told us that you have been suffering from Morgellons / Lyme disease for at least eight years. ln recent years, you have communicated with the Prime Minister, the Minister for Health, the Department (including the Office of Health Protection within the Department) and the National Health and Medical Research Council about this.
You have asked for our assistance to obtain a formal acknowledgement from the relevant authorities of Morgellons / Lyme disease; to receive compensation for pain and suffering and to alter your medical records. I have read your correspondence carefully. However, we cannot investigate your complaint.
This letter explains why.
Under the Ombudsman Act 1976,we can investigate complaints about actions or decisions that relate to a matter of administration taken by a Commonwealth Government department or agency. We examine processes and decision making, and if appropriate, can point out flaws in an agency's handling of a particular matter.
I have determined that the matters you have raised with us do not amount to a matter of administration that could be the subject of an investigation. We do not have any role in researching or diagnosing medical conditions and are not able provide advice or information to the relevant authorities on these issues. We are also not able to alter a person's medical records or provide compensation.
Quite simply, you have asked us to do something that we have no power to do. Therefore, we cannot investigate your complaint and I will close your file at this office. lf you have any questions about this letter, please call me on 1300 362 O7Z.
Yours sincerely
Senior Investigation Officer
----------------------------------------------------------------------------------
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Post by Lynn on Feb 16, 2012 23:46:26 GMT -5
Hi Itchen
They could help if they wanted too. Just passing the buck. They will regret it one day when more illness befalls more people including their own family. Sorry they did not help. Hugs to you.
In Light Lynn/TorpedoLynn
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Post by ginna898 on Feb 17, 2012 11:04:00 GMT -5
itchen
They twist things to find an excuse! very sorry about that letter to you
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Post by itchin4answers on Feb 17, 2012 18:56:35 GMT -5
Hi Lynn & ginna, Thanks for your comments. I am so over those people and didn't let that letter get to me this time. There is no understanding what so ever and never will be until those idiots get this disease.
Something good however, I have found a Lyme Literate Doctor and in 11 days I will be jumping on a aeroplane to go and see him interstate. I will finally get a diagnosis and hopefully some help.
Love itchin
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Post by ibzahp on Feb 18, 2012 1:48:42 GMT -5
Dianne elizabeth ithchen, bb Lynn thanks for all the great info when the truth surfaces these clueless delusionites are gonna have a ton of egg on their faces and may it be sooner than later-Rasmusson Rocks!
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Post by itchin4answers on Feb 21, 2012 18:24:30 GMT -5
Never opened myself this way And life is ours, we live it our way All these words I don't just say And nothing else matters, yeah
Trust I seek and I find in you Every day for us something new Open mind for a different view And nothing else matters
Never cared for things they say Never cared for games they play I never cared for what they do I never cared for what they know And I know, yeah yeah yeah
....and the original by Metallica
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Post by ginna898 on Feb 23, 2012 2:01:17 GMT -5
Never opened myself this way And life is ours, we live it our way All these words I don't just say And nothing else matters, yeah
Trust I seek and I find in you Every day for us something new Open mind for a different view And nothing else matters
Never cared for things they say Never cared for games they play I never cared for what they do I never cared for what they know And I know, yeah yeah yeah....and the original by Metallica Love that original Metallica version!
Thanks Itchen for posting!
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Post by Lynn on Feb 23, 2012 11:49:06 GMT -5
www.youtube.com/watch?v=bDKxUt9UkmUAppropriate song for me. I had a rough ride this past week. Came down with the flue Friday morning around 2ish a.m. Was dog sick for 2 days with a slightly stiff right hand and the pinky fingers first knuckle down in the hand was feeling a little inflamed. Weird. Sunday was my first day to eat a full meal. Eggs and toast and keep it down, but the hand flared big time and started to swell starting at that knuckle down in the hand. Monday I was bound for acute care with big time swelling. I could not hardly move fingers and I could not even close my hand even a little. The air touching my hand made it hurt. When I called the Dr. on call I had the soreness and stiffness work into my wrist fallowing down from the ground zero on that pinky knuckle down in my hand. The palm of my hand right were the knuckle is down in the hand was red like I had burnt my hand. Warm water made it feel burnt. Well while ill I had been trying to deal with the hand with cold packs which did nothing and when it blew up I switched to Epsom salt soaks which gave very little short term relief. By the time I arrived at the Kaiser Hospital the stiffness and soreness had worked up into my elbow fallowing from ground zero. While in the waiting room another flare up that felt like I was being burnt. I looked at the palm of my hand and the pinky finger grew a quick big blister and the knuckle down in the hand on that pinky finger grew two more blister. Then I watched at the blisters smoothed out into even swelling around the finger and knuckle in the hand. Now that heated flare up made the first knuckle on the pinky finger itself from the hand hurt and the pain went up into my arm pit and started hurting the lymphoid in the arm next to the arm pit, but not the ones below the arm pit. After each flare up the surrounding area gets a little itchy. I had not cute myself on anything, nor been bitten by anything so this was all very strange. It felt like there was a hot poison in that knuckle spreading out and causing havoc. Ex-rays and 6 vile's of blood later and pain pills to knock me unconscious. No damage to bones and 2 of the blood test came out abnormal. E.S.R. came out 48 suppose to be (0-30) C-Reative Protein 2.3 (<0.5-) To me that signs of infection. Dr.s do not know whats causing the inflammation and have not required to find out further. So I am on my own from here. To day is the first day I have been able to use the hand to type with little pain. Still swollen hand and still goes through heat waves like I have been seared with a hot iron. I notice some biting sensations last night and got out the 5x mag and could see little black specks in the spot of the bite sensation. Sometimes when I get a flare up from that baby knuckle in the hand I run a little mini fever. Get very chilled. Only one finger can close enough to touch the palm of my hand. The other fingers I can get about a half inch away or a little closer. I still have to baby the hand or it will start to hurt and swell again. In Light Lynn/TorpedoLynn p.s. Very weird that during the flue part I could not eat for two days and lost only 2 lbs. I tried to eat half a hamburger one night Sat. My mouth wanted it my stomach did not and could not. I gained back the 2 lbs from that half of hamburger which wanted to come back up and sat like a rock on the empty stomach. My next meal was Monday. Eggs and toast. Did much better and gained more weight. Later that afternoon I had 1/2 of a pint of ice cream. That was it for that day. Gained more weight. Tues-Wed Yogurt for breakfast, Broccoli salad for lunch. Pork chops and organic rice. Half of my food has been organic. Now weight more then when I was eating way more food before I got sick. The only difference has been I had backed off of all my supplements when too sick to eat. I have slowly tried to get back into some of my supplements. Still working on that. I drank some tea this morn and feel like throwing up.
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Post by ibzahp on Feb 23, 2012 13:36:59 GMT -5
Lynn-Sorry thats going on with your hand and stomache but really glad your starting to feel better! Good to be eating organic and avoiding the gmo nonsense. Are you running a fever? So funny i never have a fever since morgs. my temp stays at a lukewarm 97.2 or so. Hope your getting some sunshine and ginger tea as well as peppermint tea is nice for the tummy big hugs ibzahp
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Post by Lynn on Feb 23, 2012 17:32:50 GMT -5
Hi ibzahp
Thank you and hugs back to you.
Yes to the fever. Ran 100 on Friday. May have gotten higher, but I did not keep track. My husband did not leave the wand under the tongue long enough for temperature taking. Been running fevers off and on sense then but dwindling as my hand slowly gets better.
I had trouble with a low temperature years ago before the outbreak with bugs. During the years I had symptoms off and on. So I was coming down with this during those years when the temperature was too low. Mine also around the same numbers as yours and it would not matter how hard I exercised it would not get up to the 98.6. When really going cripple back then and the hip Dr. ordered swimming every day and stationary bike using right leg only. I cheated and would force my leg through hell on the tread mill. It would put me out of whack and super crippled in 30 min.s of fast pace walking. My Hip Dr. found out and chewed me out so the family took the tread mill away from me. But I was doing that to try and get my temperature up and could not.
I thought it was all thyroid related at the time including the stoke like episodes, loss of words, Fatigue, numbness in strange areas of body. Like my tongue would fall asleep if I rested in any position for very long. Same with hands and feet. Sensitivity to sun light big time and hearing changes. Like hearing under water. One time for a few seconds it was a echo in the cave with a buzz. I had all sorts of tiny sores on head and around ears that would not heal. Had fatty tumors removed and those surgery sites would not heal. I did have debre come off me on to the toilet seat and was cleaning the toilet seat after every use back then. I thought it was dry old age skin and being so heavy then when it changed to sand I thought it was my toilet paper.
Did you get any symptoms during the trouble with temperature phase started troubling you?
In Light Lynn/TorpedoLynn
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Post by ibzahp on Feb 23, 2012 19:00:34 GMT -5
Glad your hand is getting better! I sure admire your strong spirit. I think it takes courage to keep fighting this mess. The stuff you describe in the last paragraph, except the tumors are all familiar to me. I have been dealing with the low fever thing for many years now, before morgs (low thyroid). Since morgs tho even a mild fever is a rare occurence. Today and last night my ears have been plagued with stinging, wooshy and waxy. Think I'll send you a PM if thats ok?
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Post by ibzahp on Feb 23, 2012 19:11:32 GMT -5
Love th emusic and the message-so affirming and never heard before. Thanks for that Gina.
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