Pardon me ... but... The CEHF has been active and supportive for about 6 yrs and is still going strong. They have helped raised $148,000.00 in the last 4 years alone for OSU-CHS -Center for the Investigation of Morgellons Disease (CIMD). Which brings me to another fact, both THE CEHF and OSU-CHS-CIMD are 501 (c) 3 non-profits. The CEHF is an all volunteer organization and nobody receives a salary or compensation for their time.
Here are a few more facts that may not be remembered:
The CEHF has managed to attract major professionals in the areas of Medicine, Microbiology, Parasitology, Veterinarian Microbiology, Dermatology, Immunology, Hematology, Psychiatry and Psychology, just to name a few. Take a look at their Board of Directors and Medical & Scientific Advisory Panels, if there is any doubt about this. The NADE (National Association of Disability Examiners) sent a request to THE CEHF to provide speakers for their annual convention. (These are THE ones that determine approval of Disability). Dr. Wymore and Ginger Savely volunteered and went at their own expense. The Annual Medical-Scientific Conference on Morgellons Disease, sponsored by The CEHF, is in it's 5th year and has attendance (medical professionals and patients, supporters, etc.) from all across the USA, Canada, Mexico and many European countries. The Fuji Television Network in Tokyo, Japan recognized The CEHF for it's service to the Morgellons community. They sent an award winning film crew (several times) to the USA to make a documentary about Morgellons Disease.
Here' more to refresh those fogged up brain cells:
...from
www.thecehf.org :
Who We Are
The Charles E. Holman Foundation is a grassroots activist organization that supports research, education, diagnosis and treatment of Morgellons Disease. Ultimately, we seek discovery of it's cause and cure.
Our Goals
We will raise awareness of Morgellons Disease by:
1. Educating the medical community
2. Raising funds for research
3. Creating a patient support system
4. Alerting local, state and federal health agencies
..And from
centernet.okstate.edu/morgellons/registration.cfm The Center for the Investigation of Morgellons Disease will facilitate successful research, treatment and an eventual cure for Morgellons Disease.
OSU-CHS physicians/researchers have physical evidence of Morgellons Disease:
Morgellons is not psychiatric in origin
Morgellons is an emergent disease
Tangible fibers are found in Morgellons lesions
The CIMD has three central goals: Research, Clinical, and Educational. (see
healthsciences.okstate.edu/morgellons/vision.cfm for details.)
OSU's - Center for the Investigation of Morgellons Disease Proposed Three Year Budgets
(see
thecehf.org/OSU-bdg1.htm for pdf of proposed budget)
...And Dr Wymore's interview concerning the recent CDC report:
www.krmg.com/news/news/local/local-researcher-looks-bizarre-medical-condition/nHWFf/ I am as sad about the MRF closing as anyone. I will forever be grateful for the strength and determination which Mary put forth to begin the Morgellons battle. Personally, I will always be thankful to Mary for "holding my hand" (via phone) on the worst night of my life, Christmas Eve, 2002. I remember that call and always will. But, these comments about having no one for advocacy and fund raising or support are hurtful and untrue and just plain wrong to say. I usually do not get upset that easily. Perhaps, some people were unaware of the work of The CEHF. That is why I have taken the time to write this.
Now more than ever the Morgellons community must stand strong and show a united force, one that will have to be reckoned with. Morgellons patients are not going to go quietly in the night. We will continue to fight for what is right, the recognition of Morgellons Disease. The CEHF is a leader in that battle. The MRF might have gotten things started, but the rest of us here are going to finish this and win or die trying! The CEHF is here to stay. Please, show them the appreciation and support that they deserve.
Sincerely,
Gwen "Sunny" Simmons