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Post by betsy on Jan 25, 2006 21:19:02 GMT -5
I just read a strand with more theories. Feeling not so well today, my reaction was--- I want a real medical answer. I want a real team of medical researchers. I want a lab dedicated to examining my samples, your samples. I want what we grew up thinking was normal. Go to the doctor and get a good answer about our health condition.
I think our time is best spent finding thoses people who will help us. We are not researchers or lab people or doctors or news anchors, or congressmen or senators or celebrities or millionaires or the guys who work the cube puzzle in 15 seconds.
We have a big problem. We need to get the proper help. If this is man-made or not, , it needs to be researched and studied. We need to open big doors and get helpl
If it can be cured, then I want the remedy. All of this is not too much to ask. People walk the streets daily who have these simple rights.
I suggest we start making the noise of an orchestra--a group knowing their individual roles and working together to create according to a predetermined plan--a plan we participate in making together.
Southcity has given us some suggestions. There is room in these suggestions for each person to approach it individually according to their own resources, skills, ills and time constraints. That is one approach and it is a positive start.
I further propose that we have monthly goals. These goals are to reach out and get the help we need. I believe we probably will never find out on our own. We did not cause this problem. It is not a natural outcropping of the way God created the world to be. Something has gone amiss accidentally or deliberately. We need help solving such a great problem.
Working together- My first suggestion is ---Everyone who believes in the power of prayer --please pray for your own healing and the healing of everyone here. If we all pray tonight, we will begin in themost important place to be heard. If you miss it tonight, please pray at your first reading of this.
My second proposal is for everyone who feels they can, to write a short note to CDC asking for help in getting a diagnosis, lab tests, research, doctors, researchers, scientists,etc. This goal colud be for the next week or maybe two.
Then we need to back away for a month and find another worthy ear--all focusing together as an an orchestra, a band, an army--accomplishing much together.
Meanwhile, thank you to everyone who has spent hours researching and presenting theories and sites of information. Perhaps we need a fixed category called "research ideas--could it be this?"
I am also very appreciative to have this site provided by Morgellons Foundation. At the same time, I would like to know what is happening with the single, volunteer researcher. If we had available funds, could we have more than one volunteer, part-time researcher? Could we raise those funds? This is in addition to all the research help we are asking to be provided by CDC or any other letters that will fit and get the job rolling.
That's my sugestion for now. I realize there are some areas where I could play the devil's advocate to my own posting. No one is forced to believe that group prayer is a start. No one is forced to think a letter to the CDC might help. No one is required to do anything. However, with the effort of many the pyramids were raised.
Betsy
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Post by 2hojo on Jan 25, 2006 21:47:49 GMT -5
I am trying to get Ca. people to UCLA if we can do that it's a start
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Post by Brian on Jan 25, 2006 21:54:05 GMT -5
I'm going to tell you why that won't work...for us ..>Which I've tried to get US/THEM to do till I was blue in the face. Although we are a solid unit with a purpose...we have no solidarity as ONE.
Point in reason......check the profiles of those who are members... As yourself included
Does it show who they are ?
Does it show where they are?
As long as some of us are afraid to be seen or heard...out in public..we just don;t have that type of solidarity to MARCH forward...at least I haven't seen it yet. Before that can happenj as you state.... we must become a group like the AMERICAN LEGION Or MADD OR LULAC Or in other words...organized with a statue of reason for our cause Until some of us hide behind UNDISCLOSED where it ask for sex ,age,location... I don't believe we have the clout to do such with any meaning....Maybe in time...maybe later on when the time is too late to matter...will we be of one...but as it is we don't have enough of us who are willing to take a stand and actually be seen or counted! But maybe some day.....someday sooner rather than later I hope. But your thought on the idea to do such is aplauded! Shall we shed our masks and reveal our true intent?
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Post by skytroll on Jan 25, 2006 21:55:00 GMT -5
Way to go hojo,
U of M won't cooperate here, but, maybe University of Chicago would? Have to check that out.
Infectious Disease guy in Detroit wants more information on Morgellons.
Plan to call him.
Betsy, good ideas. Prayers, letters to all medical groups. etc. Let's go for it folks. IF we can get research teams we might get further Individual researchers are too easily pegged as targets.
But, if we have any and all researchers we find, link with Morgellons, then we have a system.
Skytroll
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Post by curry on Jan 26, 2006 2:13:29 GMT -5
bks27...I liked your thoughts on this subject. Carrie
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Post by specuelatin on Jan 26, 2006 2:52:54 GMT -5
just my way of thinking.. but wellness and relief NOW is more necessary and helpful than wellness after 5 or 10 years of researchers applying for government grants and creating studies...
I even tried the grin and bear it plan for awhile and I guess that worked for everyone else's benefit in my life..
Lately I have told them all, I won't pretend for them that I have the strength to carry on and that everything will be all right because there is not a grain of truth in that unless I push for some answers by me myself NOW and find away back to real work, etc. otherwise that will be the end of spec.
I will not be causing my family infection by sharing quarters and I've got no way to support myself after school loans run out (soon) so, I have to be at a point of wellness where where I can atleast earn my keep, even though I am alone here, and mykeep is my own if you get the picture.
getting well NOW is all that matters because I think I see the end of the road up ahead and I am hoping to extend that a few years. Don't let my talk scare you, but it is reality that we all have just so long before we die.
I have made my life a lot more bearable since I have been using this website and getting a lot of information and experiences from others here willing to share.. including their theories.
Someone here just might come up with the answer and I for one would sure not want to dissuade them. I am in support of all theories to be posted here for consideration.
The other goals outlined are fine, but do some research on how long it takes to get something accomplished.
How many years and what amount of litigation took place before handicapped parking became available?
Lyme disease identified in what year, though known about for how long, and recognized by how many societies as serious and yet what do sufferers have.. 30 years after Old Lyme Conn., and all those kids with juvenile arthritis and we have about 4 congressmen trying to get 100 million bill passed in the year of Katrina. good luck senators and Reps.
So, I don't think we will be getting what we would like in the immediate. The public might be "yuck I don't want that" but they are just not that afraid of "fibers". they think "so, how bad can it be.. I have psoriasis... or something that bugs me.." You don't have your skin deterioriating to death in a week's time.. You don't have an active cancer.. At the same time, they have bird flu scare jammed down their throat, war in iraq, jammed.. How much attention do you think a letter writing campaign will do? Not saying it is not worth while.. everything has to start somewhere, but time is valuable, some have healed from treatments they have shared here on the board.. NOW is very important.
So, PLEASE everyone reading and trying out stuff and working on persuading anyone, knocking on doors and talking to anyone, and every avenue.., research by anyone interested.. that is the way to go.
sorry for rambling and am not discouraging anyone from organizing "a Plan", but in all fairness, each of us has to take care of ourself and our situation.
and please no one worry about spec, it is not a cry for help, just a reality, I do have a semi-plan to keep limping along, if I have to beg and plead with the disability office to help me find work of some sort.. and get my degree and all that.. and I do plan to further get this health situation under control. I do see a pine box pop into my mind as my next home and don't want to get in.
I appreciate all who post here and all efforts made.
spec
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Post by Leigh Ann on Jan 26, 2006 10:35:27 GMT -5
As far as a plan, I suggested on one of the other posts that we start on our home turf level, gather all the folks we can from each state, then maybe someone can represent each state within the Morgellon's Foundation, or outside that organization. Either way, we can bring together a rep from each state to carry the voice of us all to the people who will listen. I would also like to see find a sympathetic voice to lobby for us in D.C. But then you are back to funds. I am a paralegal and have access to methods of preparing political action community documents, then maybe we could apply for grants etc. BUT again, before we can get to that point, we have to form an organized network from each state to one source. I, for one am willing to spearhead the group from Alabama and try to pull the sufferers from the Heart of Dixie into the open.
I'm also considering class action. I have a law firm in mind that has the resources to order tests, get experts testimony, etc. Since I'm a guest, I'm not sure if I can start a thread for Alabama names, but maybe one of you can start one for each state, pinned to the top of the home page. Is this something of interest to anyone?
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Post by Skytroll as guest on Jan 26, 2006 11:26:32 GMT -5
Leigh Ann,
I like that idea and we did start once a while back. The problem is the coverup of this. If we follow the video work, then keep the letters going, meanwhile push harder with some activism of this disease and related (LYmes) and hit the states first, then we may get somewhere. Look at states issues on where they harbor these Level 3 and 4 bioweapon sites and start the activism there. The states are who license doctors. If we go for the local health departments and push them as far as we can legally, then go higher.
If someone in each state could take Souths letter, and send links of everything that pertains including morgellon's site, lymebusters, and biology on line and unknownskin disease, and smurf's site as reference, and just keep pounding, it has to break loose. If we become more aggressive on this issue, the squeaky wheel will be heard. But, we need to go after NIH and the CDC and hold them accountable. This is a separate issue from other government issues. This is a health crisis, and if it is never addressed by the medical people in the first place, it will never get anywhere. This is how I am sending letters to medical institutions, societies, gov, local health head in state, awareness needs to be out there and then the secrecy of only the elite being treated will be out in the open. The division of the lucky and the damned.
Well, dang if I am going to be included with the dam....ed. We are all equal in God's eyes. No one is above us or below us, but, that in this sad world is what is happening. I become so discouraged sometimes, but, pray that you will be led to the right places to reveal this. This is our calling right now. That is the way I see it.
So, praying for our healing, while digging and finding the rowboat that we are given will give us the means of transportation. Then we need to pray for the correct direction and pray for the people who know of this to come forward, whistleblowers, there are many folks working in these fields that know of this, and pray that they will come forward. Pray that if this president is concerned about our well-being that he will address this. Pray for your governors, your congressmen/women and senators and medical heads that they will address this in a short time. Many things have been addressed by CDC in a short amount of time.
If more attention was put to diseases and their CAUSES whether accidents or intentional, then the media will have done their jobs. The media needs to be held accountable, also.
They are withholding information from us. We need to dig for it. We are laypeople. But, never give up. We are doing this for our children, for ourselves. We are tired, but, pray for stength to make a difference in how information is distributed to us, the people.
So, come on folks get with Leigh Ann here and lets get something moving out there in the public. Let's create a barroom brawl, if we have to. But, let's draw attention to this, one way or another. Think of ways we can make this happen.
We have enough information, enough suffering, enough crying, enough pain, enough degradation by the medical community, it is now time to demand investigation, BIG TIME, into this.
If we jam the offices of our congressmen both democrat and republican and our health folks, then we will have done our jobs, meanwhile look for activist sites on those fighting this and finding ways to overcome this onslaught of biosynthesis, by genetic altering, because we know that is where all the NIH money is going. Private science farms need to be held accountable too as should universities working with bioweapon labs. Universities are think tanks, not the bioweapon labs, they only want the latest to kill. And to house this on their campuses is disgraceful and down right unethical, and deadly.
skytroll
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Post by Brian on Jan 26, 2006 12:07:24 GMT -5
BUMPITY BUMP BUMP ! BUMP !
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Post by skytroll on Jan 26, 2006 12:10:59 GMT -5
bks27,
a little kick in the butt for all of us. Thank you for bringing this to our back doors. Now, it is the universities we really need to hold accountable. After all, they are teaching our kids and the future is being reshaped by those who educate. We need to hold them accountable too.
skytroll
skytroll
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Post by Brian on Jan 26, 2006 12:58:06 GMT -5
" keep knocking on the door...till you finally kick the darn thing IN ! " by Bum Phillips during the LUV YA BLUE ERA Someone will surely hear us ....just don't call me Shirley
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Post by Leigh Ann on Jan 26, 2006 14:12:07 GMT -5
I agree that this is a separate issue than other governmental ones, however, the CDC has to answer to SOMEBODY...Since we have had no luck begging the CDC et al. to do something, then lets take it to the next level, over their heads so to speak. That is what I always do when I don't get the results I want. I just start climbing the ladder until you bump somebody's butt that has the authority to give me what I want...The government should say, "Shame on you CDC and NIH...ignoring all those people who asked for your help. Now they are BOTHERING ME!!" In other words, the high ups don't want to be bothered with something that is SUPPOSED to be taken care of by someone else (usually). Ok, if they are still into trying to cover this up, then they should have to answer as to WHY they don't order the CDC to begin a special investigation into this.
This is in every way political. That's why a political action committee would be able to put pressure on our representatives to look into this. Just think, there may be someone we find who has their eye on the Attorney General's position. What better way to further their political clout than being the one responsible for bringing this to light! I know this will require a lot of guts, determination and prayers, however, I too feel that we have enough information, testimony, video, pics, and other supporting documentation to support our argument. I believe the efforts of all of you who have been afflicted with this for some time now, have a pretty good handle of what this is all about. We know the symptoms, what works, what doesn't, what helps, etc. Now lets take this information and DO something with it. The timing would not have been right before as there were still so many unanswered questions and unknowns. Now it's different. I think the time is now ripe for action.
Everyone has the power to get the results you're after, you just have to know what MOTIVATES the person/organization etc. you need results from!
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Post by skytroll on Jan 26, 2006 14:25:14 GMT -5
Okay, how do we do that? How do we find where their motivation comes from?
Money? Research dollars? education? status? power? ahhhhhhhhhmmmmmmmm
more thinking like Sherlock, heh
You go there now, LA Never thought of looking at it that way.
I say BOLDNESS, DIRECT CONTACT, SO PUT TOGETHER YOUR OWN PERSONAL PACKETS, LIKE LADYCOP DID AND HEAD OUT WITH YOUR WEAPONS OF DOCUMENTS. SO, WE NEED TO BE INVESTIGATORS, A CIA FOR MORGELLONS? AN FBI WITH THE RULE OF LAW?
THE MSI The Morgellon Sufferer Investigation
haaaaaaaahhhaaaaaaaaaaaaaI think I am a little burned out.............
skytroll
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Post by Brian on Jan 26, 2006 15:08:13 GMT -5
we are all a little burned out..... but its like a prisoner with a tin cup.......... we have to just keep clanking away....... sooner or later someones going to get fed up with noise......
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leighann
Full Member
Morgellon's - The point where Nature and Man collide...
Posts: 158
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Post by leighann on Jan 26, 2006 15:12:25 GMT -5
No doubt you are burned out. My heart goes out to all of you. That's why, again, there needs to be someone in charge at the state level as "Keeper of the Information Arsenal" who has the energy to pick up the ball and run with the amazing amount of ground work you guys have done to date. I am healthy, but my Mother and both my sisters are very sick... They have improved recently but you know how it is. I can't see them as I have somehow missed the bullet. They all got sick at the same time after I moved out of the house. My Mom and one sister first then, my other sister when she stayed over the weekend to help take care of them. I haven't gone in the house and when I get things from them, I use gloves and mask. It's horrible for me to have to talk to my mother through the door... I know how exhausting this disease is honestly, those with active outbreaks cannot afford the stress of it all. Even those who are not active right now can't afford the risk to the immune system. That's what keeps me going back to a law firm who can take this thing and start turning over rocks and knocking on doors until knuckles bleed. Remember Erin Brockovich ? (however it's spelled) Don't worry, THEIR motivation would be as Lyle Lovett sings, "M-O-N-E-Yyyyy". What say you about the law firm angle? Let THEM organize and present the evidence to the right audience. And assign someone from each state as watchdog to keep tabs on the progress
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Post by Brian on Jan 26, 2006 17:18:19 GMT -5
;)Leighann..... Are you able to point us in the right direction? Do we go to our counties' court house and register whats the 1st step state chapters are too large to begin with whats the fee if any for registering who else knows how to to this ? it it like filing a DBA ?
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leighann
Full Member
Morgellon's - The point where Nature and Man collide...
Posts: 158
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Post by leighann on Jan 26, 2006 18:40:39 GMT -5
Which method are you referring? Hiring a law firm to pursue a class action or form non-profit PAC's? If we are talking about a law firm, we just talk them into taking the case and they do all the commercials, ads, recruiting etc to get as many people as they can and then file suit and request for qualification of "a class". We can designate amongst ourselves who should be our voice from each state with which the law firm can communicate. In huge litigation issues like this, you have many levels but mostly deal with the Federal Court where the wrongdoing is first believed to have occured. Then it can become a national claim covering all plaintiffs in different states. But as far as doing anything in this scenerio, once we give the documents to the law firm, it will only be a matter of providing them the info they need.
Now as far as a PAC, I will have to check into how it would work Federally, but yes, you pretty much prepare the paperwork and file it with the probate court of the local county and with the Secretary of State of that state. This would require a lot more work, organization and formality involved. There are filing fees involved and you have to have officers, sort of like a corporation or LLC. BUT don't quote me until I have time to refresh my memory. We could be "THE PEOPLES FRONT OF JUDEA" oops that's Monty Python......THE UNITED PEOPLES FR.....no......OH! How about THE THREADS OF THE RED WHITE AND BLUE!!! I doubt they would see the irony....or how about PEEEYU, Parasites Entangled in Engineering Episode Yields Unrest....ok, we'll have to work on that one...hee hee. Any lawyers here among us?
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Post by Brian on Jan 26, 2006 19:10:54 GMT -5
I'm all for it....kepp us / me tuned in I can even help with organizing funding With this group as a whole Been doing such with the D A V for rides to the Veterans hospital
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guest
New Member
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Post by guest on Jan 26, 2006 19:43:42 GMT -5
who are we suing and for what?
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Post by Brian on Jan 26, 2006 19:53:56 GMT -5
people that are negligent......the CDC.....Docs ...people that arn't well read on this disease but would rather diagnose dop than offer true help....I would suppose
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