|
Post by itchin4answers on Jul 27, 2012 2:12:26 GMT -5
I'd had enough with everything today, won't go into detail. I did write to my doctor about the Ciprol - asking if he was aware it had a black box warning and that Ciprol had an extremely bad name in USA. I mentioned my living nightmare with regards to fibers, spikes, shards, darts coming from my skin. I said my lower legs were terrible. Anyway, I got a reply - advice is "Ciprol to be used with caution ie. no sport".
Oh poop, that means no playing AFL football every weekend, no Netball, no softball....what will I do with myself?
The communication between, not only health care providers, but between everyone is soooo exhausting. Now what am I to believe?
Well I cracked it this afternoon and took a Ciprol, adding "I'll go back on these pills in the hope they kill me quicker!"
This isn't fun is it people?....I know you know that....
Love itchin
|
|
|
Post by amyfye on Jul 27, 2012 4:10:13 GMT -5
Ive not taken Cipro in a while, in fact I think the last time I did take it I broke out in a rash and the doc wrote no Cipro on chart. Im pretty sure that is what is was. The docs tried so many things when this first started ,it's hard to remember.I was going to 2 doctors, one a FNP (she's better than some of the real docs) in my hometown and another doc in the town where I work, a convenience thing. This doc in the town where I work prescribed my pain meds.I've been seeing him about 4 yrs. I'm pretty sure he's been dishonest with me on several occasions and he was really strange. A year ago he told me he had to give me a drug test, no problem, took, passed, and continued on. Last week, when I went to him, he said my Insurance company required a drug test, (the insurance co??)Anyone heard of this?I can see the government maybe but the Insurance Co.?He also told me one time that the Ins. Co. reguired me to take an antiinflamatory if I took pain meds. Also has told me to try a certain anti depressant and it would never cost me over 20 bucks. I'm now paying almost 50 bucks a month. Anyway, I must have failed the drug test, because I received a letter yesterday stating he could no longer treat me due to a violation in our contract. Contract? No copy of drug screen, no explination, just that he could no longer treat me and he wished me well in the future . He has NO ClUE. I suppose if I had ever mentioned the M word he would have said the Ins Co. reguires you to be institutionalized. He got really mad and acted nasty, almost made me cry when I took him blood work the Family Nurse Practioner had ordered. Again he said the Ins.'Co. Wouldnt allow me to see two docs. Yes communication with health cate providers is exhausting.That statement is what prompted me to respond to this. I have no idea what showed up in this drug screen. He dindn't have the courtesy to share that info. I take absolutely nothing not prescribed for me. I don't smoke pot. I know I am going to suffer greatly trying to work in pain. I have the joint pain associated with the M disease, have degenerative disk disease, with at least 6 bone spurs (from last MRI), osteoarthritis rheumatoid arthritis, a fractured ebow, a fractured toe, and DAMN BUGS, FIBERS AND METAL SPECKS eating me alive. Maybe I am Bloody crazy!!!!
|
|
|
Post by Lynn on Jul 27, 2012 5:34:23 GMT -5
Hi Amyfye
By law they have to let you have those records. Call the office and find out how to collect those records. Call the lab even and find out how to collect those records. Man a clean drug test; that Dr. could be in big trouble for turning you away under false pretense.
I was so naive when I went in for my cholesterol and other blood work there was the word meth on the lab test. That was when I was being treated for Scabies. I had no clue what Meth on the lab work meant until I came here and realized he may have checked me for drugs without me even knowing it. I just never ever would suspect a Dr. would think I was doing any drugs when my family had to harass me to take Tylonal or any medication because I have a phobia of all drugs.
Its so insane when you rarely take over the counter medicine. It takes you a year to get brave enough to take a prescription medicine and your husband has to hold your hand because your afraid the side effects will kill you. You rarely drink alcohol and your Dr. knows all this and then behind your back test you for drugs. It just does not make sense and hurts my feeling when I trusted him to help me find out what was wrong.
So sorry your Dr. is such a dung head to forget his job to help you and no guts to say I can not figure it out I give up you might try someone else. Stupid stuck up Doctor.
Hugs In Light Lynn/TorpedoLynn
|
|
|
Post by itchin4answers on Jul 27, 2012 22:07:25 GMT -5
I've decided not to take the Ciprol, my son heard me saying that to myself and chimed in "if you keep taking those antibiotics they are going to kill you".
|
|
|
Post by itchin4answers on Jul 28, 2012 22:53:01 GMT -5
This video is from 2008 - no doubt you guys have seen, and are very aware.
|
|
|
Post by amyfye on Jul 28, 2012 22:55:02 GMT -5
Many things will kill us if we get to much iin us. I'm not sure that the cyprol will kill us, but pretty sure Morgelons will. It certainly sometimes makes me wish I were dead.
|
|
|
Post by itchin4answers on Jul 28, 2012 23:57:14 GMT -5
Many things will kill us if we get to much iin us. I'm not sure that the cyprol will kill us, but pretty sure Morgelons will. It certainly sometimes makes me wish I were dead. No, but my point is that the Ciprol has damaged my lower legs and I had written to my doctor reporting swelling and pain, and I was advised not to play sport? This is when one can see that this is an endless plague, what to believe, what not to believe. I don't want to take any medication to treat what I have, I will let this disease runs it course. It is obvious by the out right ignoring of my Morgellons symptoms when I write to my doctor. I say I am living a nightmare and I am told to avoid sport. Someone hit me on the head with a mallet please, no I'm not crazy, it's the rest of this world.
|
|
|
Post by itchin4answers on Jul 29, 2012 3:06:04 GMT -5
You know, I really can not stand myself when I start complaining! please forgive me, I am sure the good Lord gave me a kick in the pants after reading my last post.
I know there are good doctors and researchers trying to figure this out, and that is what makes me so angry - ALL this needs to go main stream.
I know my doctor cares, gosh if I were in his shoes I'd be useless because I would probably get too emotionally involved.
This really is a hopeless situation, and the missing key is good media, surely...
|
|
|
Post by scabdraggr on Jul 30, 2012 11:29:27 GMT -5
I went to the feed and seed store where i purchased the fenbendazole 10% dewormer for horses.Safeguard brand in a 25 gram tube,brought back my life.One tube lasts for 3 days or 4,depending on a person's size.i went through two tubes of this and then took a couple of days off.I also purchased 4 tubes of the Equimax that has praziquantel 14% and ivermectin 1.78% inside one tube.I also got the strongyid dewormer called pyrantel in a tube by safeguard.This needs to be taken with the equimax dewormer for it to work best. One tube of the equimax lasts for 5 days when taken with the pyrantel pamoate. I now have no symptoms,ocassionally a small spot will start to appear but a bit of toothpaste stops it in it's tracks.My life is almost normal these days but after this sickness there's a bit of PTSD that is permanently in place. Anyone that doesn't think the anthelmentics work needs to try this and then watch the comode after a visit or two.big surprises as some excreet as much as 16 lbs of parasites over a few weeks.I have videos of what happens,the last to do this was a nurse supervisor.
|
|
|
Post by Lynn on Jul 30, 2012 11:50:49 GMT -5
Hi Scabdaraggr
So glad that you got part of this defeated. I sure wish I could get away with your protocol, but I know it would kill me because I am so sensitive to medicine even over the counter medicine. I have to try to do it all as natural as I can. Even then I have to be careful.
Could you link those cleanse videos for viewing please. I hear what you are saying and have always been suspicious for many years of what was in my gut. Back when first getting symptoms over 8 yrs ago. I had a harden area of the upper colon that extended a little past my body fat. Harden swollen area. I did two really strong colon cleanse the wrong way which is really dangerous and can kill you. I am darn lucky. During those colon cleanses the tough area would soften a little and start slowly traveling right then left, right and left till over half way down the colon. The cleanse would be over after 2 weeks and it would slowly go back up right left, right, left till it sat again next to my stomach. I can twist when tummy is full of liquid and force fluid through the swollen area from my stomach into my intestines. Lots of bubbling and gurgling as it is pressed through. I have to really chew my food or else suffer because it will not pass through. A colon clean will move that mass and things are working normal until I stop. I permanently take colon enhancers and the minute I do not take enough that area acts up.
I think eventually when I solve that problem I can really kick the rest of what is left of this dang disease.
In Light Lynn/TorpedoLynn
|
|
|
Post by scabdraggr on Jul 30, 2012 20:23:20 GMT -5
TL,you ae absolutely correct.I have sat in on intestinal surgery before.They won't allow me to any more but the chief of surgery asked me how I knew about certain things that tests didn't show up as being positive but the CT scan that I asked for saved my son in laws life.While we were waiting in the er a phone rang from the hamper where it had fell from a previous patient.It was someone I knew as we were neighbors a few years back.She was crying on her phone to me and said that the er drs told her she was crazy and was picking holes in her skin.While outside there were two more cases and two more people from families came over and said their family members had the same issues. It's the same at wal mart pharmacy lines,prison convict lines,old folks homes and the list goes on.Maybe I need some blinders.I even stopped fopr fresh veggies but the lady had sores all over and an extended abdomen along with brain fog.What is happening?
|
|
|
Post by scabdraggr on Jul 30, 2012 20:25:27 GMT -5
TL,would you please PM me some info about why you are so sick with some things that they block your ability to treat yourself properly?
|
|
|
Post by Lynn on Jul 31, 2012 1:10:54 GMT -5
Hi Scabdagr
So cool you got to sit in on that surgery. Was it because it was a family member they allowed you in or part of your work? I woke up during one very short surgery. My second hip operation when I was 14. After 4 months in a body cast it was time to take the pins out which held the new pieced together hip made from carved areas of my pelvis. I woke up and was unable to move or speak. I saw the pins in the tweezers in the Dr.s hand dripping my blood on me and then someone bent over me and looked into my face and said Uh Oh and they must have turned on the juice and I was out again. lol.
In Light Lynn/TorpedoLynn
|
|
|
Post by itchin4answers on Aug 1, 2012 6:50:43 GMT -5
Haha - laughing at my post...as I said I annoy me.
My GP suggested I rub some cream into my right knee to see if it would help with pain. Stupid me, I didn't realise but my knee cap was so painful because of the blue black critters. I hope that's the reason, staying off the Ciprol come what may. I don't want anything the doctors are peddling because they do not know what they are treating, do they.
|
|
|
Post by itchin4answers on Aug 1, 2012 7:39:51 GMT -5
Hi scrap,
If you or anyone has a list of wormer tablets, that will not harm, that have helped others please let me know.
I had forgotten to mention, I got my blood results. I didn't get a hard copy, the doctor showed me quickly on the computer screen. Everything (bloods) are glowingly normal. That scares me, two people in my family who have the most terrible cancers their blood tests always come back normal.
itchin
|
|
|
Post by scabdraggr on Aug 2, 2012 22:11:11 GMT -5
no tablets. Why do you ask for that form of the meds.I sent you a pm with all details,did you recieve it.I can repost this cocktail formula.First all who are intertested need to check the posts on this at this site. morgellonssupport.com/ The ladies there talking, that I have helped treat for this disease, have reclaimed their lives. It's very interesting what they have to say.
|
|
|
Post by scabdraggr on Aug 2, 2012 22:20:21 GMT -5
TL,one of my good friends is the COO of a hospital group.My other friend is an anesthesiologist, along with CEO of the hospital.I give them pics on a chip to view but we do not discuss anything,that's their way and mine with them. This thread has been quite an interesting one especially about the bugs or no bugs.I have some insight on this because of the pics that I have colected but no definite answers about all the ids.There is a lot to understand.I understand a lot,just not enough. A file with some interesting pics is being readied for photobucket.Most of the pics will be about this topic here, about the things that bite, tickle and kill.
|
|
|
Post by itchin4answers on Aug 2, 2012 23:45:55 GMT -5
no tablets. Why do you ask for that form of the meds.I sent you a pm with all details,did you recieve it.I can repost this cocktail formula.First all who are intertested need to check the posts on this at this site. morgellonssupport.com/ The ladies there talking, that I have helped treat for this disease, have reclaimed their lives. It's very interesting what they have to say. Hi scrap, I do not know anything about this medication - that is why I said tablets. Is this what I need to buy? tinyurl.com/c7dtwntI got your pm, though can not put my hands on now. I do recall what you wrote down confused me, sorry, as I said this a new ball game for me - these meds that is. Can I take Ivermectin with the above? If so I will ask Dr Mayne to prescribe. Non of my Morgellons symptoms are being addressed, let alone acknowledged. Nice I got a mention in Dr Mayne's presentation, but that's all I am - a research blimp. He never put a dermascope to my skin, he was only interested in active lesions. I am getting very very annoyed about the lack of interest, effort and caring from this person. Have I had Morgellons too long? noted 1998 as the onset. If this doctor and any other want to nut this out LOOK - again I have been denied of that. Do I want to fly interstate again...no, because I know it won't be worth it. He needs to fly down here like his butt is on fire. I do not say I know all about this disease, I sure don't. I really thought he was going to help me. He needs to see how this monster can stealth it's little heart out over years and years. My eyebrows are a show to be seen. The fibers run along my eyebrows just below the skin, sulphur gel will goo the skin allowing it to come to the surface. Fine clear hair like fibers flick out fly at the mirror, other fibers fly out with blood and then flick up because it was lay just beneath my skin and is attached to my scalp. Thank you for your assistance with this scrap. itchin www.youtube.com/watch?v=de229bOArDE
|
|
|
Post by Lynn on Aug 3, 2012 1:56:12 GMT -5
Hi Scabdaggar
I just saw your post and hit the link. Reading up on what is talked about and looking up the meds you describe. I really doubt I can do any meds my sensitivity is that bad. I will mull it over, but please do not be offended if I back down from it. Thank you for your post and info. It is much appreciated.
In Light Lynn/TorpedoLynn
|
|
|
Post by scabdraggr on Aug 4, 2012 18:18:29 GMT -5
Itchin,start with the fenbendazole 10%,take a dose twicwe per day and there are 6 doses per tue in the fenbendazole. The pyrantel pamoate is to be taken with the praziquantel 14%,ivermectin 1.78%.Take the pyrantel in the morning and the praziver mix in the afternoon.The 10gm tube of praziquantel has 6 doses so about a weeks worth with 1.5 grams being a dose. The pyrantel pamoate makes the iver and prazi much more affective. Do two tubes worth of the fenbendazole,about twoweeks and then swithch to the praz ivermectin mix for twoweeks.Start over after the prazi withthe fenben and do the same for another month.If you become stressed and can't bear to take anymore,then take a few days off but no more than 5 days off. Eat lots of ice cream,for severtal reasons,the lifeform hates milk and the bowels need to be super loose as no plug can be allowed to develop.Forced diahrrea is a plus when attempting to free up the parasitic mess. Many that i work with with these meds have lost 16lbs or more of parasitic material,within a six week period. many strange things occur during this time of treatment. You can and will heal if the instructions are followed.
|
|