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Post by Harry on Jan 14, 2013 15:41:09 GMT -5
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Post by dc10801 on Jan 15, 2013 1:36:07 GMT -5
3 years as a patient no big difference except a visit and an rx for abx every month. Wouldn't stand up for me during a disability hearing, promised to for months and strung me and my advocate along. When push came to shove about a week before my hearing and after my advocate quit she made up a report saying I was fine (even though treating me with abx for 3 years).
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Post by Baraka Obam on Jan 15, 2013 4:10:48 GMT -5
I may have met you in Tampa at a Morgellons meeting are you that very tall fellow.
I see your from Clearwater so I wonder, the doctor stabbed you in the back, what a scum queen.
Here is a idea, you need to contact Dragonfly on MDR she has gotten help and social security under MORGELLONS, do not take no for an answer, if you can not work you need to appeal.
She may be able to direct you to a good lawyer, doctor and help.
I can not believe this DOCTOR UPPAL did this to you.
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Post by Lynn on Jan 15, 2013 11:39:02 GMT -5
Hi dc10
I wonder if she was not really allowed to treat you with the med for so long and her neck was on the line. She lied her way out of it. To bad she did not confide in you if that was the case. Maybe someone scared her not to admitting to anyone not even you that the med should not have been used long term?? Just a thought. That would also keep her from admitting she had been treating you period because they would fire questions on what treatments. Again under the gun. I can kind of see the Dr.s side but there is NO excuse for not telling you she found she could not defend you without hanging herself. My Dr. who tried to get me several times to admit I was delusional and seek mental help. Even though angry at him I still think he is a good Dr. To axe him I would also have to axe many family members who tell me to keep my crazies to myself. It feels like Columbus day and we know the world is round yet no one else can see it. Hopefully the truth will be seen and excepted by all one day. Just like HIV and Lyme's.
Very sorry you went through all that. There are guide lines on what fits under the criteria of disability and you may need a new Dr. to help you find that. Like the chronic fatigue and joint pain. The UN-healing sores which might be considered fungal. I was real picky when stuck with Kaiser in. and the Dr. said my non healing scared over pumps on the backs of my upper legs were fungal. They were like Nickle size volcano's and would open up and be real sore and the close over with hard skin.
My second oldest son was born with a condition were his body liked to grow fungus's. The Dr. told me he would have to see a dermatologist to figure out what steroid he would need to live on for the rest of his life. I happen to be in contact with two people at work who had the same condition and the skin pigmentation on their body was disappearing and one had hands that looked like raw pieces of meant. My son had little white pustules in on the soft areas of the body and his hand would peel and his fingers would split open so deep that blood would run out. It was so painful he could not even hold a pencil in school. I went to the library and discovered how dangerous steroids were and could envision my little boy becoming a teenager with a enlarged heart, damaged liver and hands that look like raw meat and half his skin pigmentation missing.
I was worried and talking to co-workers when a distributor for a product that oxygenates the blood asked me to try some KM and not a copy cat which has warnings on the label. Real KM has no warning. I worried it might harm the kid because he also had light asthma and for some reason I knew it might mean he was more suseptable to all foods. It just made sense to me that would go in hand. So I tried it on myself a few times with no bad results and then gave him a little and each day increased it till he was able to take a dose for his age an weight. In two weeks he was clean and healthy. I had only been brave enough to give him two doses of the Steroids which was a pack and it worked you up to a full dose and worked you back down from that one full dose. Then switched him to the KM and it irked me the Dr. had it sitting all around his office and was a distributor himself. He sold it to old folks as a dietary supplement.
When the dermatolagist called to find out why I would not bring in my kid they demanded to know why when the situation was a serious one for him and I explained I healed him and they said impossible that he would have it all his life. Apparently they never meant anyone cured from his condition. I told them over phone about KM and they said must be dangerous how dare you read the ingredients the state demands warning labels on products and mine had none and she was very ready to make mince meat out of KM because she knew it had to be dangerous. I read to her all the ingredients and also told her the man who invented Del Monte vegetable freezing methods for frozen vegetable invented the KM a herbal formula for his own personal use when his kids decided to market it. She was so wowed that she said you could drink the whole bottle and it would be no different the gorging out on all the vegetables in the frig. Now I do not believe that part because you do not want to over oxygenate the blood. Too much of anything can be bad.
Then she told me that the two steroids I gave him before quitting and switching him to KM. That the two steroids cleared him up and that was a good sign, but if I did not bring him in or put him back on that package I would see it come back. Well it did not, but later. A year later I went through a divorce and no money and ran out of KM and it slowly did start up on his hands again and I found another distributor who had no air conditioning and the product was so warm it was crystallizing. I had my son chug the stuff in the car on the way home and two days later it was gone again. A couple of years on the product solved the problem and he has not taken KM again and never had the fungus take over his body again.
Not sure why I went into this other story but it is worth the info. I really hope you keep trying to get your disability. It would be great if you could talk to those who did win their case and if that does not work then find someone who is good at meeting that criteria for what falls under disability. Get it that way. The world is so messed up that over 10 years ago when I applied for disability I had to fight 2 years for it. I was born without a hip socket and had surgery at age one and I have deformed bones and I was told if I was an alcoholic I could get disability with no problem, but because I had been born with a physical deformity all my life I was having to fight for it. That is pretty messed up and so emotionally draining and here you are with a disease that can easily deplete you emotionally and now you have to fight for what you really don't want but have to and they want to knock you down. Not a fun ride. My sympathy pains for you run deep and hope and pray you succeed.
I have talked your eye balls right out of your head so I will stop here.
In Light Lynn/TorpedoLynn
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Post by Baraka Obam on Jan 15, 2013 12:26:09 GMT -5
lynn, any doctor that can not see we are ill does not belong doing business, any doctor that trys to force us to say we are crazy needs to be, thrown under the bus, they are not good doctors.
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Post by Lynn on Jan 15, 2013 18:08:11 GMT -5
Hi Baraka
You might be right and I do remember feeling that way. I just forgive and forget to easily at times or the right times. I try to chalk it up to human error. I think all Dr.s are lacking when they do not bother to include herbal medicine along with their synthetic creations.
In Light Lynn/TorpedoLynn
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Post by Baraka Obam on Jan 16, 2013 2:03:31 GMT -5
We have been taught to accept so many things that are wrong.
We have even been taught to protect what is wrong under the guise of tolerence.
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Post by Harry on Feb 6, 2013 16:22:35 GMT -5
hey Guy's love yáll,..so dc you're saying Dr. Uppal messed up your disability?, that bites sorry to hear that
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