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Post by Gwen "sunnyand7777" Simmons RN on Jan 29, 2013 3:54:23 GMT -5
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Post by Lynn on Jan 29, 2013 12:34:53 GMT -5
Hi Sunny
So very cool and can hardly wait to copy the pages and mail them to my mom. She has supported me most of the time through my ordeal and I know she is unsure at times. This will be the icing on the cake for her to have real documented medical knowledge and feel more sure. Oh it feels like Christmas. I hope this is a sign of direction for things to come in solving this mess.
In Light Lynn/TorpedoLynn
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Post by violet on Jan 29, 2013 14:12:08 GMT -5
Hi, Sunny. Thanks for sending this, but it doesn't take me anywhere...? Could be my system. I wonder if you would please confirm the site address above? Thanks so. much
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Post by violet on Jan 29, 2013 16:01:17 GMT -5
Hi, Sunny. Thanks for sending this, but it doesn't take me anywhere...? Could be my system. I wonder if you would please confirm the site address above? Thanks so. much I did find it through this site address, though: 10.3410_f1000research.2-25.v1_20130128 HOW EXCITING, as to recognition of an identified etiological agent in our condition! But how discouraging (at least for now) that it doesn't seem to be affected by antibiotics, and it is very proliferative within our bodies (which of course we all know). But verifying it's a real medical condition is foundational to starting research to find controls/treatments!! I sent the article to my former boss who is now Chair of Medicine at the University of San Francisco, explaining that one of the largest groups of morgellons sufferers seems to be in San Francisco (as well as Florida and Texas) (but that victims have reported in from all over our country and world-wide). He has said in the past that he hasn't had any patients present with morgs symptoms, but I'm thinking that since he's chair of medicine there, it's something that maybe he could eventually share with all the physicians, or at least he can keep alert to noticing any mention of morgellons in all the medical journals he receives. :-) The more we can share this research article (even though not yet peer-reviewed), the better as far as getting the info out where it may count, eventually. Wheeeeeee!!!!!!!!
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Post by Lynn on Jan 29, 2013 16:49:56 GMT -5
Hi Violet
Does this mean you worked in Dr. office of his? Did you notice any patients go through that you might think may have had Morgellons? I wonder how many just keep silent about some of the things because they know they are going to be diagnosed as crazy so they just tell about the things that will not sound crazy to a Dr.
In Light Lynn/TorpedoLynn
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Post by Baraka Obam on Jan 29, 2013 17:36:50 GMT -5
If you look at the paper you will see it has not been PEER REVIEWED up until it is PEER REVIEWED, its like actually like a guess. That's not my idea that is the fact of the matter. If their Peers have the same finding maybe more will be done, but do not forget this, our disease is very prevalent in much of the population, some are dying and others have a pimple on the end of their nose, still both have it. If this is found to be true by researchers it can go both ways, after it is found to be a fact all eyes will be on this fact, very little to nothing will be done about the disease after the SO CALLED ANSWER to the reason for our issues. There may be a search for a symptom drug, will there be a search for a cure. BIG PHARMACEUTICAL has a huge stake in this, if the answer is found to our most grievous issues, Lesions, itching, organ failure, eye problems, skin problems, hair falling out, there will be a HUGE reduction in the need for the symptom drugs on TV I have a funny feeling if people are treated for SO CALLED MORGELLONS they will be cured of their other symptoms. I do not guess at this I have had near every issue everyone has had here, OVER TIME, we are the same, our condition is the same, the question is are all of us susceptible to every symptom, is one body stronger than another in some way, does genetics play a part in this disease we face. What are the reasons it attacks does it have a time frame, our ages are a very good indicator of this.. There are so many other variables, water, eating habits, types of food, exercise, chemical exposure, work exposure, sex type, sexual contact, environmental, AGE, if you contracted or were born with this disease, so many variables. This SPIROCHETE could actually be a hybrid of syphilis and Lyme, who knows, with the overuse of antibiotics the game keeps changing, If you look at the spirochete in the picture you may imagine the fiber in our issue, they just seem to be sort of the same stuff only larger in thickness(girth) and broken off into pieces. Because I was in a military sex playground, I know exactly what was going on there and Know also all the men I can get in contact with are sick that I was stationed with, I am quite sure they all have this. Could it have been generated (MUTATED) adapted from syphilis and be unavailable to diagnosis, yes it could. One other thing, the one aspect of this disease that the article below speaks about, the walking problems, go to a VA hospital, none of them walk normal. scienceblogs.com/whitecoatunderground/2009/05/06/syphilis-the-king-of-spiroch/
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Post by violet on Jan 29, 2013 19:32:56 GMT -5
If you look at the paper you will see it has not been PEER REVIEWED up until it is PEER REVIEWED, its like actually like a guess. Yes--that is exactly right, B. Since another research article that I think had been peer reviewed on this subject was published in the F1000 not too long ago and stated on the site as being in the top 2% of articles recommended to be read, I'm thinking the members mayl be very interested in reading this follow-up, even though not yet peer reviewed, especially with the detail of how the research was carried out.]That's not my idea that is the fact of the matter. If their Peers have the same finding maybe more will be done, but do not forget this, our disease is very prevalent in much of the population, some are dying and others have a pimple on the end of their nose, still both have it. Yes. Epidemiological studies are sorely needed and might be a first step in a serious university government-funded research project re morgellons.If that ever happens, it may be a long way off, though, as hard as government research money is to get.If this is found to be true by researchers it can go both ways, after it is found to be a fact all eyes will be on this fact, very little to nothing will be done about the disease after the SO CALLED ANSWER to the reason for our issues. There may be a search for a symptom drug, will there be a search for a cure. BIG PHARMACEUTICAL has a huge stake in this, if the answer is found to our most grievous issues, Lesions, itching, organ failure, eye problems, skin problems, hair falling out, there will be a HUGE reduction in the need for the symptom drugs on TV I have a funny feeling if people are treated for SO CALLED MORGELLONS they will be cured of their other symptoms. Yep! Surely could be. So we can maybe expect a war with big pharm, huh?Unfortunately.I do not guess at this I have had near every issue everyone has had here, OVER TIME, we are the same, our condition is the same, the question is are all of us susceptible to every symptom, is one body stronger than another in some way, does genetics play a part in this disease we face. What are the reasons it attacks does it have a time frame, our ages are a very good indicator of this.. There are so many other variables, water, eating habits, types of food, exercise, chemical exposure, work exposure, sex type, sexual contact, environmental, AGE, if you contracted or were born with this disease, so many variables. Yes, again, sir. And again--epidemiological studies done better than the one through Kaiser would help with these issues. However, there is no downplaying what the research has found and that it is a huge step toward confirmation of our disorder (hopefully). That has to happen before research takes off in a big way.This SPIROCHETE could actually be a hybrid of syphilis and Lyme, who knows, with the overuse of antibiotics the game keeps changing, I think I read in the article (correct me if this is not the case) that they found this was not syphillis.If you look at the spirochete in the picture you may imagine the fiber in our issue, they just seem to be sort of the same stuff only larger in thickness(girth) and broken off into pieces. Because I was in a military sex playground, I know exactly what was going on there and Know also all the men I can get in contact with are sick that I was stationed with, I am quite sure they all have this. Could it have been generated (MUTATED) adapted from syphilis and be unavailable to diagnosis, yes it could. Anything's possible. Gosh, B, I know you are the "questioner" whose purpose is to keep us all on our toes, but can't you let in a little hope from what the research has found?One other thing, the one aspect of this disease that the article below speaks about, the walking problems, go to a VA hospital, none of them walk normal. I missed that point. What did the article say about walking?scienceblogs.com/whitecoatunderground/2009/05/06/syphilis-the-king-of-spiroch/ Will read this.
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Post by violet on Jan 29, 2013 19:59:00 GMT -5
Hi Violet Does this mean you worked in Dr. office of his? Did you notice any patients go through that you might think may have had Morgellons? I wonder how many just keep silent about some of the things because they know they are going to be diagnosed as crazy so they just tell about the things that will not sound crazy to a Dr. In Light Lynn/TorpedoLynn Hi, Lynn. Yes, but it was not a clinical office. He was director of a large, collaborative epidemiological research center at Johns Hopkins, and the research was focused mainly on heart and kidney disease, socio-economic and minority access to care, outcomes to care, epidemiological clinical research training, and more that I can't remember since having been retired for the past two years.* I didn't notice anyone that I would think may have had morgellons, but I did share the little information that was available at that time on morgellons with my boss and several other of the physician/professor/research members of the Center. They are such a fine, fine group of people--some of the hardest working and most successful people I've ever seen in my life, and at the same time very down to earth and approachable. I saw some of their names in the Faculty of 1000 members list. And I think you are right in your thinking of people keeping quiet if they do have this stuff. Embarrassed or unknowing as to what it is that they have, too. I've had this a long time, and I didn't know for several years that it was something other than ingrown hair. Violet *I have to share something that was so funny (but so terribly embarrassing) that I did after my dental appt. yesterday. I told the dentist as I was getting out of the chair that I had a weird question I wanted to ask him, and he said he'd be happy to talk with me in his office. So about a minute later I arrived in his office and sat down, and he said something like, "Yes, how can I help you?" I was perplexed and said something like, "Pardon me?" He fumbled a little and then said I had a question I wanted to ask him. I said something like, "I did?" I didn't even remember I had asked to talk with him. I laughed--to lighten the embarrassment--and then on my way out told the receptionist what I had done, and we both laughed. On the drive home I finally remembered what my question was that I wanted to ask the dentist: "Where does the material for our fillings come from?" I wanted to hear if it was from China... It was a morgs question! Hee-hee! See what retirement does???!!!!
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Post by Baraka Obam on Jan 29, 2013 21:34:11 GMT -5
THEY DID NOT SAY THERE WAS NO SYPHILIS spirochetes INVOLVED.
What bothers me about their search is it is based on one type of search, that search being common aspects of LYME disease.
When they take samples from the lesions they say that the indication is not that of Syphilis as there ARE spirochetes in the wound, in syphilis chankers there supposedly is no spirochetes in the chanker, lesion, wound or very little spirochetes.
My feeling is this, what if they are dismissing the advancement of the syphilis derived from the overuse of antibiotics.
I have a funny, a very funny feeling they are missing the boat because they have not taken other possibility's into account.
It is my contention they will find a mutation in the future, a kind of NON A, NON B, TYPE ISSUE.
Or It will not be a spirochetes of a certain genera, a mix of types or a totally morphed completely undetectable issue.
Why do I imagine such a thing, because I know where this issue started, it started for me in a military sex haven, you guys are lucky I remember where it started, it sheds light on what type of spirochetes it could possibly be.
The most common type in this instant was syphilis, although I have had a many syphilis tests that are negative this could be just as I said a genera of spirochetes mutated by the extreme use of antibiotics in this military sexual playground that is not normal and can not easily be identified.
A good example is Hepatitis A, B, C, before C was found it was actually called ( Non A, Non B), D, and E .
Before genera's of hepatitis were found you just had one genus, HEPATITIS. Its nice they are looking into our disease, they are making their money off of us, also if I had the ability's they have and the opportunity to use the diagnostic equipment man I would never sleep.
Its not just that I have the disease anymore this fascinates me, it fascinates me like the scientist that drank H-Pylori to prove that ulcers and 98% of stomach problems are caused by the bacteria.
I can not prove any of what I say, still the indicators of me being one of the oldest KNOWN victims and my situation at the time points to another kind of spirochete.
I do believe that the future will prove my suspicions correct in some way, or many ways.
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Post by ginna898 on Feb 1, 2013 0:51:24 GMT -5
If Keratin / abnormal protein formation is involved... here is a video from Europe where they say that they did find a bad protein in GMO food. They said it was fed to cow (and the first study Marianne Middleton did was on sick cows who eat GMO food) . Inadequate nutrition clearly can cause disease. Messing with proteins too can be a huge problem as pointed out in this video. They said where they are in Europe, their foods are labeled, but in USA, more people are exposed to this BAD Protein that has been proven and found in GMO Food. They are not going to stop the plants, instead they are gonna maybe put a retro warning of some sort. This made the news in Europe........ Did anyone see it broadcast anywhere in the United States? Or since are news is 'basically owned', we can only get what they 'allow' us to see. www.youtube.com/watch?v=AsMg2Sc1nSE
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