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Post by Gwen "sunnyand7777" Simmons RN on Feb 6, 2013 19:43:11 GMT -5
Celebrate: This message just released. Please read and go to link . a very ... Sunny (Gwen) =================================== Evidence Mounting that Morgellons Disease is an Emerging Infectious Illness, Contrary to CDC Report Latest Scientific Findings Announced by The Charles E. Holman Foundation Show that a Spirochete is Associated with Controversial Disease READ MORE HERE: tinyurl.com/aayrv7l---------- Hello, Great strides are being made in the Morgellons arena! Hats off to Marianne Middelveen, Raphael Stricker, Peter Mayne, Douglas Kahn and Eva Sapi and the incredible students of Eva's...Divya Burugo and Akhilia Poruri. For those of you who attended the Boston ILADS meeting and heard Eva's students present their findings on biofilms, you understand the potential of these young fresh minds. Their presentations were a favorite of mine second only to Marianne Middelveen's talk at ILADS 2012. I think that one of the most exciting aspects of this new research on Morgellons is the fact that it proves persistent spirochetal infection! It also serves to prove that the current two tiered testing methods for Lyme Disease leave a whole lot to be desired! Spirochetes are easily detected in the dermatological samples from Morgellons patients! This is huge! How could the CDC have missed this in their 5 year, $400,000 plus investigation of Morgellons Disease? One reason for starters...might be because they selected patients by searching the word "delusional" in electronic medical records kept by an HMO which we had warned Morgellons patients not to subject themselves to. Another reason is because they relied upon the ELISA and the Western Blot to rule out spirochetal infection! Yet, another reason is that the CDC declined any input from the clinicians and scientists who are seeing these patients in their clinics and working on solving this mystery. The CEHF has provided a very modest amt of funding to these researchers who are bringing us answers because we struggle for funding in a world where the CDC and NIH has done their best to silence us about this tragic illness which has driven many patients to suicide. For decades, Morgellons patients have been labelled as delusional and forced to take powerful and dangerous antipsychotics. They not only lose their health, but lose their jobs, their homes, the support of their families and friends; they lose custody of their children and eventually lose hope. This has caused far too many to lose their desire to live and the result has been a large number of suicides associated with Morgellons Disease, a spirochetal infection which could have been treated early if only physicians would listen to their patients and look at the evidence. I am extremely excited and feel that we are turning some major corners in moving the huge mountains and making the world a better place for those who suffer from Lyme/Morgellons. I want to thank all of you for supporting us along this journey to realization that Morgellons Disease is a serious spirochetal infection that warrants long term antibiotic treatment! Please read the press release that went out today as well as the paper which is hot off the press as of January 28, 2013 from the esteemed F1000 Research! Please consider attending our conference on April 13 and 14, 2013 in Austin, Texas and hear more from these amazing Morgellons researchers! Please share these amazing strides with the Morgellons patients which many of you are seeing in your practices! It is with great enthusiasm and pride that I bring you this joyous news today. Cindy Casey Holman, RN Executive Director The Charles E. Holman Foundation www.thecehf.org
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Post by Lynn on Feb 6, 2013 21:40:32 GMT -5
Hi Sunny
Thank you. This post was wonderful and made me cry.
In Light Lynn/TorpedoLynn
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Post by Gwen "sunnyand7777" Simmons RN on Feb 6, 2013 23:26:54 GMT -5
Me Too ... tears of joy!!! :')
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Post by toni on Feb 7, 2013 13:14:54 GMT -5
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Post by violet on Feb 7, 2013 13:18:32 GMT -5
It really is something, isn't it, Toni Sue!! REAL, athentic research is happening, and it's bound to increase!!
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Post by toni on Feb 7, 2013 13:59:12 GMT -5
Violet, yes..and I sure can't wait till the others (medical) communities gets this eye-opener too.
I mean to have (solid proof) - instead of being told we are self inflicting, well now they'll ALL see that there's nothing delusional about spirochetes. Oh, this is just so great.
It will be pretty interesting down the road too in how CDC will handle the flack about spending 600K and said they found nothing.
Hope they get investigated, because that 600K didn't just disappear, and they sure didn't do their utmost diligence with that money either in their investigation.
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Post by violet on Feb 7, 2013 14:14:39 GMT -5
Violet, yes..and I sure can't wait till the others (medical) communities gets this eye-opener too. I mean to have (solid proof) - instead of being told we are self inflicting, well now they'll ALL see that there's nothing delusional about spirochetes. Oh, this is just so great. It will be pretty interesting down the road too in how CDC will handle the flack about spending 600K and said they found nothing. Hope they get investigated, because that 600K didn't just disappear, and they sure didn't do their utmost diligence with that money either in their investigation. From the little I understand about the CDCs investigation, it was to gain some basic information epidemiologically, which is what is usually (if not always) done first before more advanced laboratory-type research. It really is obvious that they must have planned not to have significant outcomes by the way they chose their study subjects, thus ensuring that no further research would be done... At least it seems that way. Another worry is whether the finding of spirochetes is a part of our condition, or a strong causative factor. There is so much more in our skin that is unexplained, like the calcium coating many of the fibers have shown under the microscope, and the little metal flecks that when scoped look like little man-made metal machines. And the glitter-like things, the hexagons. Weird, weird, weird.
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Post by toni on Feb 7, 2013 16:24:26 GMT -5
Violet, yes..and I sure can't wait till the others (medical) communities gets this eye-opener too. I mean to have (solid proof) - instead of being told we are self inflicting, well now they'll ALL see that there's nothing delusional about spirochetes. Oh, this is just so great. It will be pretty interesting down the road too in how CDC will handle the flack about spending 600K and said they found nothing. Hope they get investigated, because that 600K didn't just disappear, and they sure didn't do their utmost diligence with that money either in their investigation. From the little I understand about the CDCs investigation, it was to gain some basic information epidemiologically, which is what is usually (if not always) done first before more advanced laboratory-type research. It really is obvious that they must have planned not to have significant outcomes by the way they chose their study subjects, thus ensuring that no further research would be done... At least it seems that way. Another worry is whether the finding of spirochetes is a part of our condition, or a strong causative factor. There is so much more in our skin that is unexplained, like the calcium coating many of the fibers have shown under the microscope, and the little metal flecks that when scoped look like little man-made metal machines. And the glitter-like things, the hexagons. Weird, weird, weird. Yes, I totally agree. I'm so glad the lid is being opened (this time) with something in hand.
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Post by ginna898 on Feb 9, 2013 15:49:34 GMT -5
So we all have Lyme? f1000research.com/articles/2-25/v1"Like BDD, MD filaments are produced by epithelial cells and stem from the stratum basale and from the root sheath of hair follicles, thus providing evidence that the filaments are cellular in origin3,4. Furthermore, immunohistochemical and histological staining has demonstrated that these filaments have a collagen as well as a keratin component5,17. Like cattle with BDD, patients with MD also produce antibodies reactive to Borrelia burgdorferi antigens18. Multisystemic symptoms resembling Lyme disease also imply a possible spirochetal etiology for MD1–3,18,19. The frequent clinical diagnosis of Lyme disease and coinfecting tick-borne pathogens in MD patients suggests a multifactorial etiology and possible vectoring by ticks1–3,18,19. " and here: www.mdjunction.com/forums/morgellons-disease-discussions/general-support/136833-morgellons-and-lymeDated from 2008 " I am a doc who treats Lyme. I have seen some Morgellons patients. This is a difficult disease. As far as I can tell Dr. Ray Stricker in San Francisco is the best Morgellons doc in the country. He told me its easy to an expert when no one knows what the disease is. All Morgellons patients appear to also have Lyme disease. Agressive treatment of Lyme is essential. The addition of Diflucan, an antifungal plus Ivermectin an anti-parasitc which target micro fillaria seems to be the best treatment protocol. I was on the Lyme forum and thought I would throw in my two cents here. If anyone has any other effective treatments post a comment. Thanks. I am a family doctor in Germantown Maryland. I have been treating Lyme for several years and have treated between 500 and 1000 patients. I am learning all the time. I don't claim to have all the answers. I answer questions because I want to help people. Everything about this disease is controversial. I want to write a book which will be a patient guide to Lyme, so questions from patients are helpful to me. " --------------------- Would it be beneficial for Lyme and Morgellons to fight together so we can get medical care covered by our insurance? Right now, Insurance doesn't believe Lyme but hoping this will help both Lymies and Morgies by making collective forces against those agencies/insurance companies that are denying us proper treatment. Thank you for this update.
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Post by Carrie♥ on Feb 23, 2013 11:58:47 GMT -5
Hi Everyone!
Yes I'm becoming more and more convinced that Morgs is Lyme. Thanks for posting this Gwen.
I just recently watched Under Our Skin on Netflix about Lyme. I had no idea it was as bad as it is out there.
While I don't feel my old Morgs I do wonder if I have a compromised immune system and am considering adding some natural Lyme meds to my daily ritual. I'm taking Oregano Oil again, thinking about adding Samento and Banderol to that.
What are y'all taking naturally for Lyme?
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Post by simone on Feb 23, 2013 14:05:40 GMT -5
Yes I believe we all have lyme. The first couple of yrs. I showed little systoms of lyme. I thought it was just the morgs and put off taking the lyme test...didn't think I had lyme. In my 3 rd I started to feel more symtoms and finally took the test. A neg. according to the IDSA and CDC standards and Canada which follows them. But scored on 2 bands (41 and 83\93). Good to get the lyme test so Md's or Nd's can start treating you if you go this way. Starting my treatment again (complications on first time) and with an anitbiotics,antiparasitic and endless supplements ... I hardly feel them right now Yeah!! But getting back to Gwen's post....this is great news, Thank you Dr. Stricker and your team
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Post by homeworld on Mar 6, 2013 15:52:43 GMT -5
..connection between spirochetes and morgellons.. well..why not. Seems the little bugs are showing up..just about everywhere. ...seems that most everyone's peridontal tissue [gums] are loaded with them..if there is even the slightest inflammation/bleeding gums. ................................ ...a paper on the "journal of neuroinflammation" site about the connection between spirochetes....lyme...alzheimers. www.jneuroinflammation.com/content/8/1/90...the .pdf version is much easier to read... www.jneuroinflammation.com/content/pdf/1742-2094-8-90.pdf. .......all this in additon to the knowledge that the spirochetes cause heart damage. ...one wonders about the "brain fog" as it applies to the mOrg afflicted... .......a result of bad neurochemicals generated by the mOrg.. that might be resolved if the mOrg are routed.. or.. is the brain fog a more permanent phenomena...destroyed brain cells courtesy of the spirochetes..as posited by the paper? [...so much good news these days....and now... "brain eating spirochetes"..]
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Post by ginna898 on Mar 9, 2013 15:41:13 GMT -5
..connection between spirochetes and morgellons.. well..why not. Seems the little bugs are showing up..just about everywhere. ...seems that most everyone's peridontal tissue [gums] are loaded with them..if there is even the slightest inflammation/bleeding gums. ................................ ...a paper on the "journal of neuroinflammation" site about the connection between spirochetes....lyme...alzheimers. www.jneuroinflammation.com/content/8/1/90...the .pdf version is much easier to read... www.jneuroinflammation.com/content/pdf/1742-2094-8-90.pdf. .......all this in additon to the knowledge that the spirochetes cause heart damage. ...one wonders about the "brain fog" as it applies to the mOrg afflicted... .......a result of bad neurochemicals generated by the mOrg.. that might be resolved if the mOrg are routed.. or.. is the brain fog a more permanent phenomena...destroyed brain cells courtesy of the spirochetes..as posited by the paper? [...so much good news these days....and now... "brain eating spirochetes"..] Heart Damage from Spirochetes certainly helps explain all the numerous deaths in people who are not making it to old age anymore and have sudden heart 'death' .................. Routine Doctor exams do not check people for any kind of spirochete infection. Symptoms are just brushed off and older blood tests are used for evaluation which will not FIND spirochetes and people are not getting treatment.
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Post by simone on Mar 16, 2013 21:03:26 GMT -5
Two times I was a work and thought I was having a heart attack but when they checked me they found nothing.... it was the lyme. Other symtoms I ignored like a on-going cough that lasted a couple of years,hair loss floaters in eyes. Now it all makes sense that lyme was involved. Yes Brain fog is a lyme symtom and people mention that in the movie Under our skin. I urge everyone to watch (Under our Skin).
I know of a person who just months ago got morgs and now is positive for lyme too. I wish I knew this when I first got it, but it's good for new ones to know this. Like I said before... in the first couple yrs.. I didn't think I had lyme and I didn't bother to check into the symtoms.
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Post by Baraka Obam on Mar 16, 2013 22:36:34 GMT -5
What exactly does the Lyme positive mean, it means very little as far as diagnosing us.
I wish it ment more.
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