susiq
Full Member
Posts: 103
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Post by susiq on Apr 8, 2013 23:20:26 GMT -5
Dear friends, I've been away for awhile, but it didn't take long to see what has been happening......the disinformation specialists have been hard at work! I've seen it happen before on a popular board (Biology Online) and we had a great thread with so much valuable info, some brilliant minds and really astounding theories based on new research. There was also good support for each other, caring and sharing. Then all of a sudden we were getting slammed by these "so called" new members who were supposed to be experts, disagreeing with everything and everyone. It became impossible to get an answer to even the simpliest question. Eventually, the thread was locked not allowing any new posts and no new threads with the subjects or Morgellans or the Fiber Disease were allowed. My theory is that we were getting too close to figuring out the mystery of this disease. So the powers that be decided to shut us down! DON'T LET THAT HAPPEN TO US HERE!! JUST DON'T READ THEIR POSTS!! They can type until their fingers turn blue but if no one reads their posts they can't do any harm.
I need you guys, I need your support, your knowledge, your advice, your prayers and your kindness. Let's be strong against the so called "hired guns" of the world!
Luv u guys, susiq
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Post by scabdraggr on Apr 9, 2013 16:39:55 GMT -5
Yes, Biology Online was great until the discreditors and jammers, controls destroyed it. It happens on Morgellon's Support Network, Morgellon's Disease reseach site, pics get destroyed, posts get lost and emails disappear. It's a disinformation war. Why are things this way? Is the truth so ugly and so wide reaching that it can't be spoken? No one will even attempt to give us medical care. Is the need so great now or maybe a bit later on, that it would bankrupt and shut down the economic systems? Will the truth be covered up for much longer? Will the problem be taken care of.
Open your eyes! Look around, what do you see that isn't right and as it is supposed to be? We are not ignorant, just a tad sick. We have been left to our own devises simply because of the magnitude of the problem.
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Post by lostintime on Apr 9, 2013 21:51:51 GMT -5
Hi Susig, I have the same issues here. It is impossible to carry a conversation on this board or any other board. I’m amazed that people can’t stay on topic, not even a little bit. For starters people don’t pay attention to the topic heading. Susiq, your post asking a question about your eyes is a perfect example. Scab you just took a word from my reply out of context and derailed the conversation, then bb went even further into zapping which has nothing to do with the question. I understand this disease causes cognitive problems but it would be nice to clean up this board a bit. When people take a subject off topic point it out. Nobody wants to come here anymore
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Post by Baraka Obam on Apr 10, 2013 1:41:42 GMT -5
I think many people do not like to debate the topics they bring up, they are totally engrossed in the idea that what is being said is true there is no other side to the subject, so the topic is undebatable. . They want it to be true, we all do, still there is just so many people that have tried so many things without results, everything you read on the internet is questionable, even so called scientific premise. It seems as time goes on less and less truth is needed to form a scientific discovery. This is a tragedy. I do not imagine I have seen a disinformation specialist come to this site, what would that sort of person post? What wouldn't people here believe it seems to me the threshold for proof of anything is quite low. It seems to be CURED all you have to do is get rid of lesions, if they go away you are cured. I had many whole years with little to no issues, I have had this 41 years now, lesions came on about 8 years ago, but all the other stuff was ongoing this and that, as I get older this and that are real health issues. Disinformation, please lets hear some comments on just exactly what that would be, I need to know so I will not fall for their grasping at the control of my mind. You know, I have seen but a few people come here to ridicule us, one put a sand spur picture on MDR and said (oh my god look what came out of my skin) instantly the believers came forth, oh I feel so sorry for you, what part of your body did it come out of, what do you think it is they asked, even after I posted that it was a sand spur and the poster was a heckler. There is a chance that someone would imagine that I had just stymied a scientific breakthrough that I was the disinformation specialist, certainly I am not, but if enough people said the sand spur was the cause of this disease for long enough there could be a witch hunt going on for me, that old black magic and angry crowd attacking. Here is a bit of levity and a very funny example of such a thing happening, even though this is a joke I am sure the people burned in Salem Massachusetts would not agree. www.youtube.com/watch?v=zrzMhU_4m-g If there are any real witches that have morgellons please forgive the video, it was not intended to harm. Here is another funny example. www.youtube.com/watch?v=MIaORknS1Dk&NR=1&feature=fvwpI just hope you all enjoy and laugh. What is not funny is when groups of people gang up on others because of a perceived threat, this happened on MDR when I first got there they were waiting for ALLISTER, I was ALLISTER no matter what I said. Then these same vigilanties formed a group to attack the newbys as they were all salspeople the minute they mentioned what they used, I was a sales person for mentioning GSE and HP35%. Oh well some times thats the mindset, get more than one shouting witch and its into the fire we go, thats why I choose a name similar to the presidents name I think it may be a crime to throw me into the fire because of the name.. I also choose the name to get attention brought to where we post, people googleing for Barak Obama spell it wrong and get (I AM BARAKA OBAM AND I HAVE WORMS) LOL
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Post by lostintime on Apr 10, 2013 1:44:45 GMT -5
Thank you lynn but how are you going to move the post's around? Do you moderate this board? By the way I did not say it was on this topic, read what I wrote.
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Post by bb on Apr 10, 2013 6:52:49 GMT -5
"then bb went even further into zapping which has nothing to do with the question."
f u, lostintime.
Zapping gets them out of your eyes. Period.
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Post by scabdraggr on Apr 10, 2013 7:51:34 GMT -5
LIT, what did I misconstrue and take out of context and then derail the thread? You are on the wrong thread as there is no reply here on this thread. please clarify!
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Post by Baraka Obam on Apr 10, 2013 9:58:45 GMT -5
"then bb went even further into zapping which has nothing to do with the question." f u. Zapping gets them out of your eyes. Period. BB I do not know what context you use FU as but if it means what I think it means certainley it is not allowed here. lostintime was just making a observation of the changing of thread topic. I will stoke up my zapper to see if I can find any positive results from it.
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Post by lostintime on Apr 10, 2013 17:32:03 GMT -5
“Phoretic mites but with a twist. I have yet to see a demodex mite from my body “
This is the statement I was referring too. As I wrote my comment to susiq and entered the word demodex I just knew somebody out there would take it out of context. Scab was trying to emply morgellons was not caused by demodex mites. I whole heartily agree that demodex mites do not have anything to do with morgellons. Everyone has demodex mites at some point in their life and most people live with them their whole life and don’t even know it. The ideology of the eye doctor was that if demodex become over infested in the eyelashes it can cause eye irritation. The treatment for this is to cleanse your eyelids with baby shampoo. Later in the post morghunter post about j & j no tears and scab gets back in the conversation to praise the suggestion. Scab you can debate your intentions but will let the readers decide.
Now for bb’s statement, .” Zapping is also very effective, though not a cure. I swear I could feel them coming from behind my eyes after zapping. It felt like a flea jumping inside my eye socket, heading toward the front. It seems they get in my eyes during the night, because I find them in the morning mostly in my eyelashes.”
While you did stay on the topic of eyes I never made the connection between zapping and susiq’s problem with her eyes. Although I don’t know all the science behind zapping I am pretty sure it is not a good idea to suggest to anyone using any kind of electrical currant to treat any eye problems. It seemed you were capitalizing on scabs comment and treatment of mites. My apology, I have cognitive issues too.
Now back to susiqs question of why people don’t post anymore. BB your reply demonstrates complete hostility and loss of self-control. I understand this completely as it happens to me on a daily basis but this is a great example why people don’t post anymore. All the people that suffer from morgellons are suffering from a long-term chronic illness. This chronic condition leads to depression and irritability. With this type of hostility and loss of control it is completely impossible to have a serious debate or conversation regarding morgellons disease. I am not singling you out on this bb, this relates to everybody. I was not trying to attack you or scab.
Here is some food for thought. When reading email, text or post, one must remember that you cannot hear tone of voice or see facial expressions. It is very easy to misinterpret the mindset of the person sending email or posting information. Much of the way you interpret information rests on how you feel when you read it. Ideology also plays a huge roll on the way you respond. I have been guilty of making these vary same mistakes but have worked on getting better. Hope everyone does the same.
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Post by scabdraggr on Apr 10, 2013 18:09:16 GMT -5
It's never easy, much love and compassion for everyone here.
I try to write as best as I know how and some times it's difficult to do a good job of projecting my thoughts. No harm done here!
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Post by lostintime on Apr 10, 2013 19:44:53 GMT -5
No worries, mine and your ideas run parallel often.
I think this statment from the Urban Tulsa Weekly sums it up for me. "However, Wymore no longer answers his phone in an effort to avoid lengthy and ultimately fruitless conversations with Morgellons sufferers. But he said he gets calls and responds every week to doctors" who take Morgellons seriously.
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Ayla
Full Member
Posts: 117
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Post by Ayla on Apr 11, 2013 11:20:12 GMT -5
I'm so with you lostintime. Find it completely frustrating the way threads become diluted. It drove me crazy on MDR and no matter how many times it would be suggested to get back on topic, it never happened. This goes on in all the forums.
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Post by Baraka Obam on Apr 11, 2013 12:32:51 GMT -5
If people want to post on the REAL subject of the thread they need to go back to the first and formost post, the thread topic.
The real thread topic here was dissinformation, shills trolls and the like, I have not seen any, as I said before, what would they say??? The disease is so far out what would be so strange to hear or imagine, LOL.
Following is the original thread post by suziq.
Dear friends, I've been away for awhile, but it didn't take long to see what has been happening......the disinformation specialists have been hard at work! I've seen it happen before on a popular board (Biology Online) and we had a great thread with so much valuable info, some brilliant minds and really astounding theories based on new research. There was also good support for each other, caring and sharing. Then all of a sudden we were getting slammed by these "so called" new members who were supposed to be experts, disagreeing with everything and everyone. It became impossible to get an answer to even the simpliest question. Eventually, the thread was locked not allowing any new posts and no new threads with the subjects or Morgellans or the Fiber Disease were allowed. My theory is that we were getting too close to figuring out the mystery of this disease. So the powers that be decided to shut us down! DON'T LET THAT HAPPEN TO US HERE!! JUST DON'T READ THEIR POSTS!! They can type until their fingers turn blue but if no one reads their posts they can't do any harm.
I need you guys, I need your support, your knowledge, your advice, your prayers and your kindness. Let's be strong against the so called "hired guns" of the world!
Luv u guys, susiq
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Post by lostintime on Apr 15, 2013 1:04:53 GMT -5
Misinformation can come in many forms. Posting all sorts of things that don’t have anything to do with Morgellons is one way. Trying to lead people to believe Morgellons really is another existing illness such as lyme disease or Delusions of parasitosis is another form. Continuing to post the names of profiteers or conspiracy theorist has been a long standing misinformation campaign. Yes even starting arguments can be considered a form of misinformation by way of distraction.
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Post by absurdlyhaywired on Apr 15, 2013 2:19:43 GMT -5
Evidently not all morgellons sufferers experience the "thick skin".
Some seem quite thin-skinned and defensive lately.
Come on everyone-It's never too late to live happily ever after.
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Post by itchin4answers on Apr 15, 2013 22:35:55 GMT -5
I've got the thick skin issues, literally. I reckon that's why I really struggle, you know my critters and fibers try to run the show and I don't like it.
I get scared of being judged by others. Some days I'm happy to post but then I get home start getting worried that people are judging me.
Yeah I'm sick with Lyme and Morgellons and I still can not find peace!!
I try to stay positive and focused on the good things - you know the boss upstairs does help at times - he just doesn't do home delivery of meals and such.
Anyway I'm digressing as one does and going off topic!! Sorry but I'm a L/M!
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Post by Baraka Obam on Apr 16, 2013 8:58:09 GMT -5
You know the clientel all over the internet has dropped off on this condition, I go to other sites that are literal ghost towns that were once full of posters and I do not post there. I actually wonder about this, have they some how burried the morgellons sites under some kind of internet shield. This really had me wondering when I could not easily bring up the MDR web site when the site was the most prolific postings online. How in the world would his site not come up when you post the word itching or for that matter morgellons when it was the top posted site on the matter. Misinformation can come in many forms. Posting all sorts of things that don’t have anything to do with Morgellons is one way. Trying to lead people to believe Morgellons really is another existing illness such as lyme disease or Delusions of parasitosis is another form. Continuing to post the names of profiteers or conspiracy theorist has been a long standing misinformation campaign. Yes even starting arguments can be considered a form of misinformation by way of distraction. Starting a argument here is basically having a different opinion that people can not imagine because their ideas are cast in stone. You know at one point I had to post I was (Baraka OBAM and I had worms ) why because people could not understand words. I would post that there is no proof as of yet that parasites or bugs are behind this issue we face today, this so called MORGELLONS. People would take this as a slap in their itchy face, they imagined I said bugs and Parasites play no part in the disease, or parasites are not the cause. Literally I do not know the cause of this disease, if I did I would be looking for a compound to eradicate or affect the growth of what I had found to be the cause. I have a pretty good idea what ever makes the fibers grow is behind it, then I can not even be positive of that. Still, we all have fibers, most every one of us itch, most of us have fibers if you do not think you have fibers your probably wrong, shave your neck in the back and put the stuff on a microscope, you will see the fibers. “People are often unreasonable and self-centered. Forgive them anyway. If you are kind, people may accuse you of ulterior motives. Be kind anyway. If you are honest, people may cheat you. Be honest anyway. If you find happiness, people may be jealous. Be happy anyway. The good you do today may be forgotten tomorrow. Do good anyway. Give the world the best you have and it may never be enough. Give your best anyway. For you see, in the end, it is between you and God. It was never between you and them anyway.” ¯ Mother Teresa
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Post by scabdraggr on Apr 17, 2013 6:07:17 GMT -5
Bo is the owner and administrator of this site, which is a setup for collecting our info. Goodbye friends and sufferers, once again we have been violated and denied proper understanding and compassion, this is journalistic RAPE by a long term perpetrator, that has been amongst us for too long. We need to flush the commode on him and this site of his! Goodbye all!
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Post by itchin4answers on Apr 18, 2013 20:39:20 GMT -5
Bo is the owner and administrator of this site, which is a setup for collecting our info. Goodbye friends and sufferers, once again we have been violated and denied proper understanding and compassion, this is journalistic RAPE by a long term perpetrator, that has been amongst us for too long. We need to flush the commode on him and this site of his! Goodbye all! Assumptionnoun 1. something taken for granted; a supposition: a correct assumption. Synonyms: presupposition; hypothesis, conjecture, guess, postulate, theory. 2. the act of taking for granted or supposing. Synonyms: presumption; presupposition. 3. the act of taking to or upon oneself. Synonyms: acceptance, shouldering. 4. the act of taking possession of something: the assumption of power. Synonyms: seizure, appropriation, usurpation, arrogation. 5. arrogance; presumption. Synonyms: presumptuousness; effrontery, forwardness, gall. Word story The word assumption is a great example of how a word can take on new dimensions of meaning over time, while staying true to some aspect of its original sense. Assumption has been in the language since the 13th century, and was initially confined to a specific ecclesiastical meaning in the Catholic Church. The Latin word on which it is based literally means “the action of being taken up or received,” and in English assumption referred to the taking up into heaven of the Virgin Mary. That meaning still exists today, and in all the meanings it has assumed since then, one can see the common thread running through them is the sense of taking. One early sense meant “arrogance,” as in this 1814 quote from Sir Walter Scott: “his usual air of haughty assumption.” Arrogance is a taking upon oneself a conviction of self-importance. Later senses arose having to do with the taking on of power or other responsibilities, as in “the assumption of command.” Probably the most common meaning of assumption in use today is for indicating a supposition, an estimate, a conjecture—that is, something taken for granted. And as any schoolkid knows, presuming to assume can be dangerous, leading us to make, as the saying goes, “an ASS of U and ME!”
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Post by itchin4answers on Apr 18, 2013 20:40:43 GMT -5
“People are often unreasonable and self-centered. Forgive them anyway. If you are kind, people may accuse you of ulterior motives. Be kind anyway. If you are honest, people may cheat you. Be honest anyway. If you find happiness, people may be jealous. Be happy anyway. The good you do today may be forgotten tomorrow. Do good anyway. Give the world the best you have and it may never be enough. Give your best anyway. For you see, in the end, it is between you and God. It was never between you and them anyway.” ¯ Mother Teresa
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