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Post by ppy18 on Apr 23, 2013 12:37:09 GMT -5
I can't find a copy of the original report the mayo clinic released about DP that was released about 18 to 24 months ago. I can't remember if it specifically mentioned morgellons or not but was aimed at us. anyway the paper I read concluded that we were crazy but the very last paragraph stated that the 20 specimens that had been submitted to a lab for analysis contained insect pieces and/or plant material. I was so mad when I read that cause they are confirming what we have been saying.....WTF. anyway I need to find that paper not the cleaned up version i'm finding on the net now. anybody save a copy? also does anybody remember an NIH paper that said morgies had a chromosome deficiency? I don't remember hearing about this but recently someone mentioned that it had been on the website briefly before being removed. anybody got a copy of that? would love to use it in an information packet i'm putting together to send out. can anybody give an old lady some help?
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Post by awareseattle on Apr 23, 2013 13:31:18 GMT -5
Worrying about the CDC is a waste of time - they will not help. Just focus on strengthening your immune system.
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Post by ppy18 on Apr 23, 2013 14:12:57 GMT -5
dude I've been around this block many many times in the last eight years. I don't need any advice about the cdc but I appreciate your concern. I am putting this together for something else that I won't comment on in this forum...........too many trolls and all, you understand. so...........can anyone help with with the articles and skip the advice. thanks so much
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Post by morghunter on Apr 23, 2013 15:48:20 GMT -5
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Post by lostintime on Apr 23, 2013 17:49:57 GMT -5
Am I missing something? I do not see any question from ppy18 about the CDC. Wake up before you comment. ppy18 I too have issues with the mayo clinic and would like to find that paper as well. I kinda remember the doctors name that wrote it was Dr Davis or something like that.
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Post by lostintime on Apr 23, 2013 20:20:27 GMT -5
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Post by awareseattle on Apr 24, 2013 4:06:48 GMT -5
dude I've been around this block many many times in the last eight years. I don't need any advice about the cdc but I appreciate your concern. I am putting this together for something else that I won't comment on in this forum...........too many trolls and all, you understand. so...........can anyone help with with the articles and skip the advice. thanks so much that's excellent - good work.
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Post by lostintime on Apr 24, 2013 4:19:17 GMT -5
I guess I am irritated because this board is just useless. I’m not trying to reprimand anyone but was pointing out how topics get off topic and go nowhere. Sometimes I see people change the subject right off the bat so a conversation never gets started. . I wasn’t even addressing you at the time.
I am really tired and need sleep. Try to post my mission statement so everyone will know why I come here If your interested. Nite.
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Post by awareseattle on Apr 24, 2013 4:40:57 GMT -5
Oh! lol I see I typed CDC and meant to type Mayo Clinic. Unintentional.
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Post by awareseattle on Apr 24, 2013 4:42:32 GMT -5
I guess I am irritated because this board is just useless. I’m not trying to reprimand anyone but was pointing out how topics get off topic and go nowhere. Sometimes I see people change the subject right off the bat so a conversation never gets started. . I wasn’t even addressing you at the time. I am really tired and need sleep. Try to post my mission statement so everyone will know why I come here If your interested. Nite. Yes, it (appears) that this forum is not moderated right now. It is possible that no one has time for that job.
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Post by threader on Apr 24, 2013 8:22:48 GMT -5
Yes, O.P., the Mayo Clinic doesn't seem so proud of their conclusions about Morgellons anymore. The Mayo Clinic webpage on Morgellons- www.mayoclinic.com/health/morgellons-disease/sn00043 no longer mentions their own recent multi-year study. Instead, they cleverly shift all the onus of delusional claims onto the CDC study. Yes, it was Mark Davis, MD, and I will look for this Mayo publication later today when I'm on the scholar databases; it is still around there.
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Post by awareseattle on Apr 24, 2013 15:31:25 GMT -5
I went to Mayo Clinic in Minnesota in 2001 about two health problems I had at the time, and they were no more skilled at diagnosing or solving a problem than a standard GP doctor, in my experience. They have a lot more money to buy equipment and staff, but that is about it. They answer to the same authorities as any other doctor or medical group.
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Post by threader on Apr 24, 2013 20:11:46 GMT -5
Edit: I think the study you refer to is the one lostintime gave a link to (second link)- Delusional Infestation, Including Delusions of Parasitosis- Results of Histologic Examination of Skin Biopsy and Patient-Provided Skin Specimens archderm.jamanetwork.com/article.aspx?articleid=1105158Here is the abstract to another study they published around the same time that deals with DOP: Delusional infestation is typically comorbid with other psychiatric diagnoses: Review of 54 patients receiving psychiatric evaluation at Mayo Clinic. Authors: Hylwa, Sara A., College of Medicine, Mayo Clinic, Rochester, MN, US Foster, Ashley A., College of Medicine, Mayo Clinic, Rochester, MN, US Bury, Jessica E., College of Medicine, Mayo Clinic, Rochester, MN, US Davis, Mark D. P., Department of Dermatology, Mayo Clinic, Rochester, MN, US Pittelkow, Mark R., Department of Dermatology, Mayo Clinic, Rochester, MN, US Bostwick, J. Michael, Departments of Psychiatry and Psychology, Mayo Clinic, Rochester, MN, US, bostwick.john@mayo.edu Address: Bostwick, J. Michael, Department of Psychiatry and Psychology, Mayo Clinic 200 First St. SW, Rochester, MN, US, 55905, bostwick.john@mayo.edu Source: Psychosomatics: Journal of Consultation Liaison Psychiatry, Vol 53(3), May-Jun, 2012. pp. 258-265. Page Count: 8 Publisher: Netherlands: Elsevier Science. Other Publishers: US: American Psychiatric Assn ISSN: 1545-7206 (Electronic) 0033-3182 (Print) Language: English Keywords: delusional infestation, comorbidity, psychiatric diagnosis, psychiatric evaluation, diagnosis Abstract: Objective: Delusional infestation, which encompasses both delusions of parasitosis and delusions of infestation with inanimate objects (sometimes called Morgellons disease), has been said to represent a distinct and encapsulated delusion, that is, a stand-alone diagnosis. Anecdotally, we have observed that patients with delusional infestation often have one or more psychiatric comorbid conditions and that delusional infestation should not be regarded as a stand-alone diagnosis. The purpose of this study was to identify whether patients with delusional infestation have psychiatric comorbid conditions. We therefore identified patients who had been formally evaluated in the Department of Psychiatry during their visit to Mayo Clinic. Method: We retrospectively searched for and reviewed the cases of all patients with delusional infestation seen from 2001 through 2007 at Mayo Clinic, Rochester, Minnesota, and who underwent psychiatric evaluation. The diagnoses resulting from psychiatric evaluation were analyzed. Results: During the 7-year study period, 109 patients seen for delusional infestation at Mayo Clinic were referred to the Department of Psychiatry, 54 (50%) of whom actually followed through with psychiatric consultation. Of these 54 patients, 40 (74%) received additional active psychiatric diagnoses; 14 patients (26%) had delusional infestation alone. Abnormal personality traits were rarely documented. Conclusions: Most patients with delusional infestation have multiple coexisting or underlying psychiatric disorders. Therefore, evaluation by a psychiatrist, when possible, is advised for all patients with delusional infestation. (PsycINFO Database Record (c) 2012 APA, all rights reserved)
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Post by lostintime on Apr 26, 2013 1:03:03 GMT -5
I just went to the current mayo clinic page on morgellons. Noticed that it was authored by "Mayo Clinic Staff"
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Post by ppy18 on May 3, 2013 10:28:31 GMT -5
as far as I can tell the original is no longer available. the new version is cleaned up and says nothing about finding plant material and insects in the 20 specimens submitted for lab analysis. it does mention one pubic louse but the original mentioned insects not believed to parasatize humans plus mentioning the pubic louse. if you look at the wording of the paragraph it says that they found only the louse known to be a human parasite but glosses over whether any bugs not thought to parasitize humans were found. the original paper intimated that they did.
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Post by Baraka Obam on May 5, 2013 7:31:55 GMT -5
I have never seen bugs on me or any other Morgellons person I have met.
The doctors in this country have not seen the bugs, and nobody here can show pictures of our common bug.
I have many times (more than I would like to admit)asked for these pictures but the masses say NO.
So where are the easily seen bugs?
Here is your number 2.
Seeing bugs is easy to say, but why do doctors insist they can not see them.
Could this post be one to stir the pot, this is my opinion and the Doctors of America and the lack of picture results of those that say they have bugs.
I wonder if we are wrong, I hear bees, maybe its just the sirens song calling me to my reward or is it just tinnitus.
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Post by Baraka Obam on May 5, 2013 20:29:20 GMT -5
I did not say humans are excluded from being infested with parasites.
I had a parasite in a fiber thing in my urine.
It took years to find just one after spending every morning and evening looking at feces, urine, blood.
I could never find another and must assume the life cycle either ends inside the body or was a fluke.
Get it, fluke, anyway there were several of the fiber things with noting inside them in my urine and I always wondered if it was just another growth from morgellons.
The one video you show, that had alot of nothing I was able to see and say, THATS A WORM.
The other on the other hand is a bug a woman took pictures of that she says fell out of her hair, do any of you have this same bug? I do not,
There is only one parasite that has come out of my skin, a demodex and they are like in most everyone they say, ugly critters.
For any of these to be causing the kind of itching I went through, there would be so many of them that they could have thrown me out of my bed, they would have ate every pice of flesh off of my body, if bugs were causing this massive amount of itching you would see them very well.
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Post by ppy18 on May 10, 2013 10:02:58 GMT -5
the point barak is that they are not easy to see. that's why I want a copy of the original paper. only 20 specimens were analyzed by a lab according to the report and of those 20 both bugs and plant material were reported to have been found. if a derm looks at the specimen and doesn't know what he is looking for/at then he certainly can't report on them. how about the cdc study. did an entomologist or a lab specializing in parasitic identification look at the specimens? not hardly buddy. they don't want to see them. but yes, bugs were found in the national pediculosis /Oklahoma dept of health study in which colembola were identified in 19 0f 20 participants and 0 were identified in the control group. lots of reports of colembola infestation of humans. go to the NPA websight to see for yourself. the NPA study was reported to the CDC who of course refused to acknowledge it.
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Post by ppy18 on May 10, 2013 10:09:18 GMT -5
barak are you suggesting that my post was designed to stir the pot? well for f u c k s sake somebody needs to stir the pot and if you think that's what my post was intended for than i'm happy to let you continue being an idiot. been around a long time fella and I can assure you that I don't waste time playing games nor dealing with the likes of you. I don't post here very much anymore for this very reason. I was desperate enough to get my hands on the original report to take a chance but...... thanks to those who honestly are here to make a difference not float conspiracy theories sign me agent Kelly pickens fbi bug patrol
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Post by ppy18 on May 10, 2013 10:22:05 GMT -5
one last thing barak. we probably don't all share a common bug as bugs are partial to different climates and geographical areas. also there are, I believe, over 3000 different types of collembola identified as of right now with many more not yet classified so it would be unlikely that we would all share just one particular type. you've been around long enough to have heard all this right? so why play stupid? could you be a troll sent here to stir the pot? more likely just ignorant and unable to think outside of a very tiny box.
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