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Post by Gwen "sunnyand7777" Simmons RN on Feb 14, 2015 2:34:26 GMT -5
New, Major Peer-Reviewed Paper on Morgellons Disease out Feb 12, 2015 "Our study using multiple detection methods confirms that Morgellons disease is a true somatic illness associated with Borrelia spirochetes that cause Lyme disease. Further studies are needed to determine the optimal treatment for this spirochete-associated dermopathy." www.biomedcentral.com/1471-5945/15/1"Facts are stubborn things; and whatever may be our wishes, our inclinations, or the dictates of our passions, they cannot alter the state of facts and evidence." ~John Adams
... Sunny
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Post by Baraka Obam on Feb 14, 2015 3:46:59 GMT -5
Truly these people have a idea but it is convoluted, The article has too many duuuuuuuuuuhs in it to be that of a thinking researcher that has interviewed people AND LISTENED..
Such as the pictures of the people with lesions, if the lesions are in reach they have been dug by the person and if they are out of reach they are not in reach.
LESIONS do not itch from my experience.
Usually when the skin itches it has no sign of lesions as of yet.
In fact most skin that has lesions has little or no feeling, maybe they did not ask the people any questions, maybe they just assumed the answers.
When I see stuff like this I know the so called researchers are hap hazard, so what can you actually believe from them.
I love researchers, they taste good with salt and pepper!
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Post by threader on Feb 14, 2015 17:58:27 GMT -5
You're such a hater, BO.
The study was thorough and the paper is a proud example of how medical literature should be written. Compare it to the CDC paper, with it's improper English, bad math, and blatant use of word grouping to purport correlations unsupported by their data.
This new Morgellons paper does not suggest that the disease is limited to the skin, only that the skin one of the best symptom locations to observe and study MD. In fact, the study supports two of the views that you are constantly shouting about in here, BO. It documents the presence of Bb spirochetes in vaginal secretions, which is in line with your suspicions of MD as an STD. Secondly, it strongly denies the existence of bugs and parasites in lesion samples.
I applaud these researchers for their open minds and attention to history as they explore the connections between MD and syphilis. They are also paying attention to the lyme coinfections, and drawing parallels between BDD and MD.
With total respect, I offer only one constructive criticism for these researchers. The study fails to draw a correlation between Lyme Disease and Morgellons Disease epidemiology, and it does not describe the incidence of tick exposures among the participants. Though I have twisted over a dozen ticks out of my skin, and tested Igenex-positive for Bb, I still suspect that MD is very distinct from LD.
Thanks so much for posting Gwen. Someone should post this link at Curezone, too.
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Post by Baraka Obam on Feb 14, 2015 19:07:31 GMT -5
I am sorry to say, just because people agree with a few things I have SAID ALL ALONG, does not mean they hit the target. Just exactly what is it about my OBSERVATION that has piqued your interest enough to call me a hater. Oh, by the way, that is a black slang term are you black or are you a modernist using the slang of another race., another observation or would that be hate. It sounds sort of Dr Spock to me, merely a observation Captain Kirk!. Tell me please what is wrong with my observation and I will tell you EXACTLY why I have said it. I want the researcher to TOW THE LINE not blurb out B/S. THE ITCHING CAUSES LESIONS IS PURE B/S. I DO NOT CARE WHERE ON THE BODY THEY ARE. I CAN EASILY SHOW ON A SUBJECT THAT THESE ARE NOT JUST SKIN SPOTS, THEY ARE HIDDEN UNDERSKIN MASS, THAT HAS A DIRECT CONNECTION TO A BLOOD FEED LINE. IT IS BY NO MEANS A SURFACE OF THE SKIN RASH SORT OF ITEM AS THEY PORTRAY. If they spew one wrong assumption how do we know all is not B/S. You're such a hater, BO. The study was thorough and the paper is a proud example of how medical literature should be written. Compare it to the CDC paper, with it's improper English, bad math, and blatant use of word grouping to purport correlations unsupported by their data. This new Morgellons paper does not suggest that the disease is limited to the skin, only that the skin one of the best symptom locations to observe and study MD. In fact, the study supports two of the views that you are constantly shouting about in here, BO. It documents the presence of Bb spirochetes in vaginal secretions, which is in line with your suspicions of MD as an STD. Secondly, it strongly denies the existence of bugs and parasites in lesion samples. I applaud these researchers for their open minds and attention to history as they explore the connections between MD and syphilis. They are also paying attention to the lyme coinfections, and drawing parallels between BDD and MD. With total respect, I offer only one constructive criticism for these researchers. The study fails to draw a correlation between Lyme Disease and Morgellons Disease epidemiology, and it does not describe the incidence of tick exposures among the participants. Though I have twisted over a dozen ticks out of my skin, and tested Igenex-positive for Bb, I still suspect that MD is very distinct from LD. Thanks so much for posting Gwen. Someone should post this link at Curezone, too.
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Post by threader on Feb 14, 2015 23:43:11 GMT -5
New research paper:
( ) suggests that Morgellons Disease is primarily a skin disease ( ) states that lesions are the cause of itching in MD (x) is written by researchers who "tow the line" by presenting peer-reviewed research that demonstrates MD is not DOP, which is the first important baby step in MD recognition by doctors
We're a country of immigrant mutts, and my American English includes far blacker words than "hater". I used it since the rappers don't have a word for "poor reading comprehender".
FWIW I think the back lesions photo proves little, since I doubt that most people can't touch their entire back. Morg itches are severe, but they are generally relieved by removing the offending artifact. A sufferer would find a way to dig at the itch even if their fingers cannot do the work. Nevertheless, it's worth publishing as one of a thousand easily visible clues that MD is not DOP.
I don't think the paper is perfect. I believe that at certain stages, for some sufferers in some regions, bugs get very involved. But the authors properly did not rule out bug or parasite involvement - they merely noted their absence in the lesions they examined.
The clinical classification scheme seems primitive at best, since the accounts that I've read don't describe a condition that starts localized and gradually encompasses more of the body over time. I might be very mistaken in this, however, and I'd value your opinion on this aspect, Grandpa Obam.
I propose a scale based on the number of distinct symptoms, as well the frequency of fiber sheds/ itching sensations. I've gone from 40 symptoms to about 5, from itching every 5 seconds to every 15 minutes, and have had virtually no lesions throughout. I can generate a massive overnight migration of symptom locations with a couple of doses of anthelmintics.
As a whole, the paper is a valuable contribution that I'm very appreciative of. As usual, I agree with some of your observations BO, but I disapprove of the attitude you take towards the few professionals who are devoting their careers to helping us.
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Post by Baraka Obam on Feb 15, 2015 0:47:04 GMT -5
Short and sweet, giving people things to THINK about instead of swallowing the trash that's put out as truth, that's is exactly what I do.
If your like a seagull and grab anything that is thrown into the air as food, some day some rat will throw you a Alka-Seltzer.
I have been involved in this disease and its antics for 43 years, what it has shown me is a library of ailments STARTING with skin problems, itching and brain issues. The fact of the matter growths developed under my skin for 30 some years before exhibiting themselves on the surface of the skin as LESIONS.
This is NOT a skin disease as anyone knows that has it, brain clarity, vision, and a text book of symptoms make this disease hard to diagnose as doctors see the symptoms as a whole slew of different disease, not because of testing, totally by guessing.
THESE RESEARCHERS are very assuming.
I am NOT against good science but when people show up with poop on their breath I will not say it smells sweet, no matter how their feelings hurt, this is not a popularity contest.
This is not a dating site, its about a disease I know to be afflicting millions of people along with their NEWBORNS, so while the skin deep people enjoy their basking in the sun and the bug people scratch at their skin kids are being born damaged.
My story is real, it has played out in so many different ways, I know when I got this, I know where I got it, I have seen what it has done to others that were my mates, and my child born with it. I have had 43 years of it and when someone spits out B/S you stay quiet, NEVER
Hater LOL, REALLY.
I ask these so called researchers to tow the line, real researchers do not blurt out manufactured anything, what they said about the pictures and the lesions being caused by scratching when the person could reach a place to scratch and the ones that were out of reach were caused wholly by the disease, that is a crock, so what else is a crock, if you tell one misnomer how good is the rest of your information, there is more that is called into question in that article but the itching part is blatant and sounds as if they have never even met a person that suffers with lesions. GOT IT.
When George Bush senior said, read my lips, NO NEW TAXES. I looked around the room and said, that guy is a liar, he is gonna tax the crap out of us.
I FEEL ALL OF THIS TRASH SCIENCE CAN BE PUT TO REST WITH SOME SIMPLE FERTILIZED EGG TESTING, I GARANTEE THE CHICKENS BORN WITH THIS WILL NOT BE NORMAL. TAKE THE YELLOW FLUID AND OR BLOOD AND SHOOT IT INTO A NICE WARM EGG, PUT IT BACK INTO THE INCUBATOR AND CHECK IT TO SEE IF THERE IS ANYTHING SPECIAL HAPPENING THAT YOU CAN SEE WITH THE LIGHT AS IT DEVELOPS.
I WOULD BE WILLING TO DO THIS WITH ANOTHER PERSON AND PAY FOR ALL THE EQUIPMENT, WHAT IS FOUND MAY NOT BE PEER REVIEWED BUT IT MAY GIVE A REAL LOOK AT HOW THIS MESS DEVELOPS AND WHAT IT DOES TO NEWBORN CHICKS.
IT MAY NOT AFFECT THEM, WHO KNOWS A 100 THINGS COULD GO WRONG BUT I BELIEVE THIS IS VIRULENT ENOUGH TO DO ITS DIRTY WORK EVEN IN CHICKENS EGGS.
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Post by Baraka Obam on Feb 15, 2015 16:28:49 GMT -5
I really must thank you for bringing the failure of my understanding of the text, it is good you look out for my best interest as I would look at for yours. Thank you, when skin disease is mentioned I go cross eyed , steam comes out of my ears and my comprehension goes out the window..
Still there is the other mention of dug lesions, anyone that has talked with a sufferer knows they say these things just open, just because it is in reach of finernails, does not a lesion make.
Neither do I imagine that in the end Lyme disease is going to be the answer, we will see, but I would not go blowing Gabriel's trumpet as of yet.
I hope the disease is not sugar coated with assumption, then interest will wane.
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Post by threader on Feb 17, 2015 4:02:14 GMT -5
I really must thank you for bringing the failure of my understanding of the text, it is good you look out for my best interest as I would look at for yours. Thank you, when skin disease is mentioned I go cross eyed , steam comes out of my ears and my comprehension goes out the window.. Still there is the other mention of dug lesions, anyone that has talked with a sufferer knows they say these things just open, just because it is in reach of finernails, does not a lesion make. Neither do I imagine that in the end Lyme disease is going to be the answer, we will see, but I would not go blowing Gabriel's trumpet as of yet. I hope the disease is not sugar coated with assumption, then interest will wane. Yeah, it would be convenient for me to believe it is just another face of lyme, with my extensive tick history and Igenex-positive lyme result...But the skeptic in me is reminded that I've felt only few months of traditional lyme symptoms, but years of Morgellons symtpoms. I see very little correlation between lyme/tick hotspots and the sole, primitive epidemiological Morgellons study. Morgie anecdotes are rife with accounts of chemical exposures, drug use, exotic travel, casual sex, extreme weather events, etc., but I never see anyone else here post about tick encounters. I do think that these recent studies demonstrate the morganisms affinity for/ a relationship with borrelia. My very limited experience with mini-lesions has been that some itch, others don't. It's shameful that these researchers even need to waste their time with documenting evidence that MD is not DOP, when their other work (like deciphering the coloration and composition of fibers) is so exciting and important.
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Post by toni on Feb 17, 2015 10:44:31 GMT -5
Threader said: It's shameful that these researchers even need to waste their time with documenting evidence that MD is not DOP, when their other work (like deciphering the coloration and composition of fibers) is so exciting and important.
Toni says: Threader I SO AGREE with what you've said here....thank you!
And thank you to the researchers that have found what the fibers are, and that continuously work to show the reality of "Morgellons" and what's REALLY happening.
And thank you Sunny for relaying the info, it's greatly appreciated.
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Post by Baraka Obam on Feb 17, 2015 16:28:26 GMT -5
The issue of fiber proliferation is not what the fibers are made of, the question is this, WHY all the disease connected to fibrous developments and KILLING people are not being investigated as possibly one issue. WHY they are being listed as UNKNOWN. When you find fibers of this sort IN THE VEIN BLOOD, there has to be some very big questions going on, not a blanket statement, oh its just KERITIN. People, why is KERITIN FIBERS GROWING LIKE PLANT LIFE, how does it get into blood that should be filtered by the liver, how does it get into the urine that has a filter, why are the same fibril material that we have in our colon in our BLOOD. Why are all the disease of today connected to fibrous growths, name a disease, name one on the rise and I will show you a connection to fibrous material, fibrosis and possibly extreme itching. There are so many, if you look at them very closely you will see they are connected to our disease, do not imagine itching and lesions define this disease, they miss the target when they even assume such nonsense. medical-dictionary.thefreedictionary.com/proliferative+fibrosis
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Post by toni on Feb 17, 2015 17:16:52 GMT -5
The issue of fiber proliferation is not what the fibers are made of, the question is this, WHY all the disease connected to fibrous developments and KILLING people are not being investigated as possibly one issue. WHY they are being listed as UNKNOWN. When you find fibers of this sort IN THE VEIN BLOOD, there has to be some very big questions going on, not a blanket statement, oh its just KERITIN. People, why is KERITIN FIBERS GROWING LIKE PLANT LIFE, how does it get into blood that should be filtered by the liver, how does it get into the urine that has a filter, why are the same fibril material that we have in our colon in our BLOOD. Why are all the disease of today connected to fibrous growths, name a disease, name one on the rise and I will show you a connection to fibrous material, fibrosis and possibly extreme itching. There are so many, if you look at them very closely you will see they are connected to our disease, do not imagine itching and lesions define this disease, they miss the target when they even assume such nonsense. medical-dictionary.thefreedictionary.com/proliferative+fibrosis
Baraka,
I understand exactly what you're saying here.
Imho, I am looking at it all like this, not that "this is the way to see it"...just my opinion on what you've said.
Basically, *They* whomever, anyone looking at Morgs, "has to start somewhere" and the fibers "imho" are also a real place to start, since we all have that in common.
Also this lets us all know what they are, because it has been an issue. Who'd of thought we were that screwed up (inside our bodies) that we produce them? I mean that was always a viable probability, but...it's a scary place to go when you think about "what must be happening,....for that to happen". See, now we know, which is a good thing, because this helps us, help ourselves.
You, like all of us, probably wonder the same things about all the "fibrous this and that" diseases, etc...and seemingly "accelerated" EVERYTHING, which USE to happen "in the old days" when a body lived a long time, and now, is seeming to happen faster to the body. Heck, I can grow my hair a foot every few weeks. Tell me that's normal in any way shape or form. I get a cut from dicing foods, and the cut heals over 10X!!! IT'S ALL so messed up, because we're in it, smack dab "IN IT" with it, and for now, no escape. So the fact that the Charles Holman Foundation is STILL all over this, well, that's as good as air imho, and I sure don't see anyone else doing anything to discover what is happening here, and as far as I've read, this is great news, it's a giant step....that of course needs continued to the end.
Heck, the meat we eat...look at what it does to the chickens. I mean chicken parts ( in a package from the grocery store) look like it's cut up Ostrich, really they do! Not that I've ever seen Ostrich, but.. they're gigantic. So are the vegetables, HUGE, the bananas are practically over a foot long.
Everything is pumped full of GMO crap and antibiotics and "grow-fast drugs"...then.............. we eat it.
It HAS to be affecting us, and maybe that IS why (just my thoughts) why EVERYONE in the world seems to be having more health issues, and ....at a LOT earlier age.
My grand daughters "have health problems", and they're only in their teens, which the health problems started earlier in their lives. The same problems if you remember the articles on the "NY girls" how ( the government would not allow the parents the records) and they told the parents the girls were just 'stressed out''. BS on that, they're teens, and so are my grandkids, and there's none of that in the family history, nothing....just "OLD AGE" parts wearing out. And so have we all been teens, and when I was a teen like many of the rest of us here I'm sure if someone had a health issue, it was "RARE" ....but not today, as the new generations begin to grow, they're all "seeming to grow with serious problems".
And those of us "here now"....well, we too have slowly been developing "that similar crux" that you speak of Baraka, (which I agree about that part). It's that "Crux" whatever that is exactly...who knows, but something "we're all doing the same" just is not the right thing to do, and the only thing I can think of that you or I or people from all around the world do "in common"?, is eat. Otherwise, I can't see it. Because "as you speak lots about your " sexkapades" Baraka...I don't feel personally that's what's passing this around, because of all the animals too having (the same symptoms we have). That's why I feel it's 'more of what we're all eating" and because "foods ARE genetically tweaked" to make them grow faster - and when you implement that into "our being"...it's going to change the whole dynamics of how the body "should be operating", imho.
Talk about "improper folding of proteins".
Because IF (that didn't) work like that...then the "transfer or resistance" of antibiotics would be of no concern.
See...that's the part that (they) split hairs. And they keep saying the same thing over and over.
THEY say: Antibiotic resistance is becoming more prevalent, and why? Because "we're eating it" with every meal. Well, what about all the "implemented DNA's" - the "gene" etically modified food hahhahaa (oh, that doesn't do anything) ....right.............it only "does it to food". I don't think so. It's accelerating "our bodies" into hyper everything.
PS, I for one was one of many I'm sure that had (when I had lesions real bad) had intense itching from literally hundreds of lesions I went though, over and over every 2 weeks. I might as well have been tied on top of an ant hill with mosquitos because there's no way to even describe the intense itching. Yeah, intense is even an understatement for how bad the itching was. IF people "used the yog and milk mix" that part would definitely be eliminated, which IS why I share that "diddy" because I don't know how I kept from stepping out of my own skin....and today when I read about others itching so badly they're making scars, it just kills me, because I honestly tried everything (scripted and non scripted) to relieve that whole body itching experience of all those lesions that would just pop out on my skin...(which I think that was just debris my body was trying to rid it since it didn't belong) and when I say debris, I mean like "puss forms to rid a thorn" well...I think our body forms all kinds of everything extra doing all it can to rid it's genetically tweaked self).
Oh, another example...heels. Foot heels. You know how the callus builds up on a foot or hand when it's protecting itself? I mean "that's why it makes the callous", "all in the name of protection"... the "wearing" on the specific areas , but it's about protection the body does automatically.
In a "way" it seems like "because we're infected/contaminated" with something....the body inside is doing the same thing it does on the outside, it protects itself, or tries to. And in doing so, everything inside is "on alert and hyperdrive" so we're seeing "all kinds of goodies it makes when it's being attacked". Imho that is.
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Post by itchin4answers on Feb 17, 2015 17:53:25 GMT -5
Threader said: It's shameful that these researchers even need to waste their time with documenting evidence that MD is not DOP, when their other work (like deciphering the coloration and composition of fibers) is so exciting and important. Toni says: Threader I SO AGREE with what you've said here....thank you! And thank you to the researchers that have found what the fibers are, and that continuously work to show the reality of "Morgellons" and what's REALLY happening. And thank you Sunny for relaying the info, it's greatly appreciated. I so agree too and thank you for posting this research article. Scratching does not cause lesions from my experience. I was quoted as saying in my newspaper article that the scratching/itching causes the scarring because you scratch until the muck comes out. I don't know if that is what I actually said to the reporter back in 2009 because she did twist my story. I have to agree 100% with the comment on food toni, brilliant and spot on. I am still itching to this day, and only on the tops of both arms. My nails are short so I don't break the skin but I turn bright red. I can not help but think the itch is connected to my stomach issues. I am having an awful time finding a doctor that is not evasive. We saw a doctor the other day as my son had another skin flare. The right eye again but this time inflammation and itching on his belly button and his elbow right in the scar tissue were he had the operation for his shattered elbow almost 12 months ago. Let me tell you this child looked absolutely terrible. He is improving slowly on a heavy duty antibiotic. The doctor said a "bacteria" in his body was going to these areas and the Keflex last time did not knock the infection on the head. This is ALL so terribly worrying he is only 7 years old and things are getting worse so fast. I am worsening so fast and the only things I put in my body are filtered water, yes coffee!! food - which is now so very limited and everything makes me feel ill. Supplements are a massive issue because it seems to take all day for me to digest them. I am not even taking all that I am supposed to due the PAIN. The pain in my stomach, chest, ribs and back is an 8 to 9 on the pain scale and I told the doctor this. I asked him how long till the Nexium works, which was prescribed by a doctor last week; she never got out of her chair to palpate my abdomen NO ONE has!! I never got an answer about how long for the drug to work. The doctor remembered me from September when I went in with shingles and he said "you have Lyme don't you?". He had done some research and said he didn't think my stomach issue was an ulcer. He said that with Lyme something happens to the oesophagus, stomach and then paralysis and something about the nervous system. Well I can tell you that was not heart warming to hear and to be told "contact your Lyme doctor asap and bring your Skype appointment forward". I left the doctors office with really no answers for myself, a big band aid for my son and pain for myself which is really off the scale. We have to wait 2 weeks for our Skype appointment and to me this is not quick enough. Time is of the essence with disease and the damage can not be reversed. It is gut wrenching to realise you are truly on your own with this. Not everyone, depends where you live, how easy it is to see your doctor. Lyme sufferers from what I know need to regularly see a doctor, blood tests etc. My recent bloods are all normal other than elevated Eosinophil's. There IS something going on with me and it proves Morgellons IS more than a skin disease, the skin is the outward sign and for some I do believe the "end stage" of whatever this is.
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Post by Baraka Obam on Feb 17, 2015 17:58:37 GMT -5
What blows most of your contentions out of the water for me to imagine all of the aggravating circumstance, food, this and that, chemicals and trash.
I know when this got me, I was18 years old with NO issues, then all of a sudden, wham health was on a roller coaster ride, up down, skin issues, hair problems, brain fog, memory issues, and so many other things, SO MANY.
I knew there was no way I was the only lucky one, it had to attack others, the only problem, I looked for my EXACT symptoms in others at first, as we know, everyone does not have the same exact issues.
I do IMAGINE and IMAGINE is all I can do as I am not all knowing, that, many things can exacerbate this disease, chemical, drugs, whatever, still it is not the cause of our demise, ours is a disease, caught and harbored inside the human body, doing its worst damage over time.
The information I bring to this problem, is where it started , how it was spread and mutated.
Do not take this information lightly, you should be glad I am here to tell you where I was and how I feel this was transmitted to me.
The lists of issues suffered by your grand children, my child and all the veterans of the Vietnam War is the same disease, one they do not want to take responsibility for, who would fight their dammed wars.
Politicians should be the ones seeking all the glory from killing, we should arm them like gladiators and send them out into the arena, let common men, work, have familys, build a better world and sit at home with their loved ones.
Why are you going to hear the EXACT same thing out of me when the focus goes every which way, because without a laboratory I still know, when and where I was when I caught this, I also know the environment of that area, a sex haven for the military, the transfer and mutation of all the disease known to mankind a common and daily ocurance.
The simple problem, I have really not seen them try to find the pathogen, fertilized eggs will show that pathogen grow and compromise the life of the chicken to be born from that egg.
Maybe it can not be grown in a fertilized egg, but it is worth a try and the cost is NOTHING compared to all this hogwash they spew to what end, to no end.
Why, they do not have a start point, every investigation of any kind I know of trys to start at the original failure.
That failure in our case is the proliferation of a disease in the embryo's of to be born children.
We can not use children but we can use fertilized chicken eggs, no skin off anyone.
we may be able to watch through the shell of the egg and see the difference in development, then also we should be able to see the difference in morgellons, ADD, ADHD, AUTISTIC, BI POLAR and Alzheimer chickens and regular chickens.
I know this hidden disease is the cause of all of these issues, what once filled a small amount of insane asylums is now eating at our populations minds, was this disease part of war, was it made in a laboratory, or is it just the result of mans massive stupidity in the 20th and 21st century.
The problem that I have you can see is plane, I CAUGHT THIS, I KNOW WHEN AND WHERE I CAUGHT IT, I KNOW WHAT I WAS DOING WHEN I CAUGHT THIS, the soldiers of this era came home with a disease, one supposed of chemical exposer, their children and grand all had issues, my child has issues, my mates had issues, it is not NORMAL and it is not from chemicals, it is a disease and maybe by now in almost everyone in America today except the very old that have had no contact with fluids of others from the 1960s up.
I can not stop to think about other possible avenues when I KNOW my story closes the posibilitys, it would be different if my issues did not start off with the massive itching, if I would not have endured it I would not even think that we were connected in this disease.
Eat drink and be merry for tomorrow we die.
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Post by Baraka Obam on Feb 18, 2015 4:07:12 GMT -5
I wish I could put you all through what I have been through and then ask you to dispute what I say, you would be so passionate, you would not argue, we would be a force.
What I say is the truth and nothing but the truth.
The sad fact, you imagine things are not what I say they are, and that makes you oblivious to those that have endured, how in the world can you dismiss , this information was not free, it came with a lot of suffering, mental and physical.
I feel so sorry, now that there are others, the others are so ignorant, they dispute the beginning as told by one that faced the beginning.
My question, WHY. The doctors were first to dispute, now the people that face the same disease dispute its beginning, why, they want it to be what they want it to be.
SORRY, you caught this from sex, transfusion or birth..
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Post by threader on Feb 19, 2015 9:35:40 GMT -5
1. I had to laugh out loud. I can relate - I now have to clip my fingernails every 2-3 days. Do you mean that the cut heals 10x faster than you would expect them to?
2. I can't wrap my head around whether or not my dog has Morgs, or has just shown symptoms related to my fiber shedding. When my MD was bad he lost patches of fur, had terrible eye mucous, and would only come inside the house to eat since he itched terribly as soon as he entered. Now we sometimes make each other itch just a little bit (fraction of what once used to happen), and dry dog food causes him to lick his forelegs after eating. Otherwise, he is the healthiest 14-y.o. 70 lb. dog I know.
3. I like this idea for an explanation for many of the artifacts. But what about the fruiting bodies and quantum dots?
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Post by toni on Feb 19, 2015 11:34:26 GMT -5
Threader said: It's shameful that these researchers even need to waste their time with documenting evidence that MD is not DOP, when their other work (like deciphering the coloration and composition of fibers) is so exciting and important. Toni says: Threader I SO AGREE with what you've said here....thank you! And thank you to the researchers that have found what the fibers are, and that continuously work to show the reality of "Morgellons" and what's REALLY happening. And thank you Sunny for relaying the info, it's greatly appreciated. I so agree too and thank you for posting this research article. Scratching does not cause lesions from my experience. I was quoted as saying in my newspaper article that the scratching/itching causes the scarring because you scratch until the muck comes out. I don't know if that is what I actually said to the reporter back in 2009 because she did twist my story. I have to agree 100% with the comment on food toni, brilliant and spot on. I am still itching to this day, and only on the tops of both arms. My nails are short so I don't break the skin but I turn bright red. I can not help but think the itch is connected to my stomach issues. I am having an awful time finding a doctor that is not evasive. We saw a doctor the other day as my son had another skin flare. The right eye again but this time inflammation and itching on his belly button and his elbow right in the scar tissue were he had the operation for his shattered elbow almost 12 months ago. Let me tell you this child looked absolutely terrible. He is improving slowly on a heavy duty antibiotic. The doctor said a "bacteria" in his body was going to these areas and the Keflex last time did not knock the infection on the head. This is ALL so terribly worrying he is only 7 years old and things are getting worse so fast. I am worsening so fast and the only things I put in my body are filtered water, yes coffee!! food - which is now so very limited and everything makes me feel ill. Supplements are a massive issue because it seems to take all day for me to digest them. I am not even taking all that I am supposed to due the PAIN. The pain in my stomach, chest, ribs and back is an 8 to 9 on the pain scale and I told the doctor this. I asked him how long till the Nexium works, which was prescribed by a doctor last week; she never got out of her chair to palpate my abdomen NO ONE has!! I never got an answer about how long for the drug to work. The doctor remembered me from September when I went in with shingles and he said "you have Lyme don't you?". He had done some research and said he didn't think my stomach issue was an ulcer. He said that with Lyme something happens to the oesophagus, stomach and then paralysis and something about the nervous system. Well I can tell you that was not heart warming to hear and to be told "contact your Lyme doctor asap and bring your Skype appointment forward". I left the doctors office with really no answers for myself, a big band aid for my son and pain for myself which is really off the scale. We have to wait 2 weeks for our Skype appointment and to me this is not quick enough. Time is of the essence with disease and the damage can not be reversed. It is gut wrenching to realise you are truly on your own with this. Not everyone, depends where you live, how easy it is to see your doctor. Lyme sufferers from what I know need to regularly see a doctor, blood tests etc. My recent bloods are all normal other than elevated Eosinophil's. There IS something going on with me and it proves Morgellons IS more than a skin disease, the skin is the outward sign and for some I do believe the "end stage" of whatever this is. Hi Itchin, Very good post Itchin. Something I'd gone through too, (the stomach PAIN) like you've described, yep, an 8-9 on the richter pain scale, and a 10 is the trip to the hosp because it's the worst pain I've ever experienced, and I'm sorry you and your son are feeling that. I tried so many things every day, all day long, (and tried every antacid on the market), which I have scripted (many brands) of antacids because of prior GERD, but I had to finally stop drinking coffee, and stop eating tomatoes) which was a daily thing with me, because those are such acid makers in the stomach. I mean as soon as those hit the gut, the acid flows like Niagara Falls in the stomach (it felt like) and I believe it was dumping acid into my stomach (also when I'd skip a meal, or wait too long to eat). I tried everything though when I had an "attack", ice cream - which did work for a few days, eating apples or applesauce, that seemed to help, and drinking a 1/2 tsp of baking soda in a glass of water, everything to try and calm the acid, or stop it from doing it's thing. But, those were very short lived "treatments". I found getting into a hot shower, and allowing the hot (very very warm water) hit my stomach, THAT worked better than anything (for some reason). A heating pad did "not" work whatsoever. I guess it was the wet heat, and even Mr. Toni had gone through the "stomach thing", and finally he saw too that nothing helped "but" the hot shower hitting the stomach, or....lying down in a full tub of water, that works too. I don't know why "that did it", and then making sure that I eat "tiny" meals throughout the day, just even two bites of anything "inbetween meals"....just to (give the acid your stomach is making something to chew on) if you know what I mean. From my experience with the stomach, which I'm still in a precarious way, meaning that "I'm 100% conscience of my stomach the min I get up" I eat just a piece of toast, that's been working for weeks now, and no stomach problems. Personally, I'm not a breakfast eater, until at least 10am and I'm up at 4-5 am daily, but...I have to "go with my gut" no pun intended, hehe and give it something to chew on with it's acid production (as I look at early morning toast like medicine that insures my stomach from not killing me). The reason (that toast works or anything actually would) is....you've just got to put something in your tummy (because the acid is going to happen) so give it something to dissolve and work on, instead of the lining of your stomach. Another good thing about eating a few bites of anything during the day, *the in between meals* is....it will speed up your metabolism too, as long as you're semi active, which I'm sure you are, you'll not gain weight, it will burn off easier. Just make sure it's healthy "bites" in between any regular meals. And the vitamins...oh, I "backed off everything" vitamins, aspirins, anything that was an acid maker. You'll feel better in a while (I pray too) because that stomach pain I know is off the charts. Take care. PS, I too think something is going on inside us *not that Morgs is exclusively a skin condition at all* , and the itching "never caused the lesions" it's the junk pushing through the skin (which is actually pain) but we feel it as an "intense itch" so we scratch to no end, because that stuff is trying to "get out" of our skin. Then when a person scratches "deep enough"....that's what causes the scarring. A disturbance in the "melanocytes" - those are our "coloring cells". We can get a cuts that never form scars, ONLY because the melanocytes haven't been "disturbed"....but, if we hit that layer in our tissue, (deep wounds) or deep anything into the skin, then those coloring cells get all messed up, and the pigment is white that's left to heal the area that was torn up. The milk mix, is what "stopped" - completely stopped ALL itching for me and Mr Toni. The milk and yog mix doesn't stop Morgs, but...to rid any itch ...and help heal the lesions, OMG "that IS what worked for the both of us here"...as "nothing on Earth that we tried did work" to stop the itching. It's not as "yucky" as it seems to apply that. By the time it dries on the skin or (scalp) the itch is gone and as it dries on a sore, it also "absorbs the contents from within the wound", that was the other best part of using this odd ball concoction.
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Post by Baraka Obam on Feb 19, 2015 14:18:28 GMT -5
Mothers milk its the best.
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Post by toni on Feb 19, 2015 20:28:32 GMT -5
Oh BO, it wasn't Threader whose mentioned your sexkapades - it was I/Toni (that reiterated about your *sexkapades*). Don't act shy now, this is something you've wanted us all to hear about darn near on a daily basis since you've been here, how you've been with practically 1/2 the world's population. That doesn't scream "your're macho" that actually screams IF anyone has the odds stacked against them, it would be someone with that promiscuity. And that too is fact. Remember STD's? Well, it only seems logical and reasonable to not think that out of that many sexual encounters, you'd "not" get at least a few different varieties, now doesn't it? So, unless you were tested on a daily basis after ALL that sex, with all those gazillions of people, there's no way in this world, that you can decipher "when or what" you caught when and where.
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Post by itchin4answers on Feb 19, 2015 21:52:15 GMT -5
Hi toni,
Thank you so much for your post because it's been the best help to date. I did what you said as I had been feeling like toast, the problem was the toaster being packed in a box in the garage lol. So after reading your post first thing this morning I attempted the mess in the garage and struck gold with one toaster yay! I have to eat gluten dairy free so went and bought a loaf of bread. It's such a rip off, 15 tiny little slices that look like a dish washing sponge, $7. We're so ripped off for food.
The toast went down well thank you! and I know what you're saying about feeding that acid. It is a gnawing pain in my stomach and I feel empty. I love food, always have, and it's depressing when all the fun and pleasure is taken from food. There is so much pleasure in cooking too, but feeling like I have been puts a real dampener on things.
I feel better to know you too have and are experiencing this, and understandably a doctor that tells me something without telling me all is no help, it just causes anxiety for me.
The supplements are the biggest pain in the butt and I know the immune system has to work hard to break these down. Always thought it's counter productive but the way of the world is "take a pill" which I hate to do. I too have spent a lot of money on over the counter products for the stomach pain.
Hi Baraka,
I have been tested for H. Pylori blood and stool specimen and it said "negative", which I expected, though that doesn't mean to say I don't have it! The doctor said the other day he was going to organise a gastroscopy but then I would have to wait a while, but then he changed his mind and hand balled me back to my Lyme doctor.
I find it hard to fathom that as a doctor they can let a patient walk out without helping and not even suggesting relief for pain. I said to this doctor that it takes a lot to knock me off my feet, and he just looked at me. I said the pain is 8 to 9 and it put me in bed for the day and that just isn't me.
It's all a waste of food and oxygen trying to get these doctors to believe me. It is just like the Valium sager - my GP in Melbourne had no problems prescribing me 50 Valium because I did not abuse them. I had my medical file transferred to a medical clinic just around the corner and they have not even read it. The first doctor I saw said he could only give me 10 Valium because he didn't know me. Then the lady I saw the other week who prescribed Nexium said she was not authorised to prescribe me Valium but flogged me Imrest instead!! She offered for me to see a mental health counsellor for the withdrawal from Valium.
I am lucky I do not get addicted or have withdrawals. I've dropped the Valium just like that, besides one a night really is not a problem, well it wasn't. I did take the Imrest and I'm not sure what happened but I woke up with this horrible metallic taste in my mouth. Now it could have been the new drug (Imrest) upping the copper in me and it was just the day before my period and I totally lost the plot. I have copper toxicity issues and the Lyme doctor says I have to get off Levlen contraceptive pill. So I hope he addresses this too. It was an awful experience to feel the way I did for that day, I was in rage and could not settle. Then when my period comes I feel normal, just like that, amazing.
I'm not bothering to take the Imrest as I am sleeping a lot, and I sleep really well to these day. So I hope that continues.
I am still taking the Doxycycline 50mg a day soon going up to 100mg. I have religiously taken a probiotic, or numerous ones and these too are becoming hard to digest. I'm not sure but it seems to be the capsules, with the clear coating causing issues and/or the amount I take. So I've stopped all of them, to try to figure this out.
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Post by threader on Feb 20, 2015 2:36:15 GMT -5
I was the one that mentioned that your reading comprehension skills might be failing.
Caps button still works, I see.
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