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Post by Baraka Obam on Sept 10, 2015 4:31:02 GMT -5
WHAT!!!Alzheimer's passing trough a fluid, I can not believe my ears, here is where the real study is going on my friends, not in Joe Padunks laboratory. The real deal study is going on through Alzheimer's and hopefully the issues that children are facing from birth fetus infection brain issues, ADD, ADHD, AUTISM and BI-POLAR. Hopefully they will look to isolate the pathogen, do it, do it NOW. Why don't they use fertilized eggs to find the difference, there is no cost, if it does or docent work what's the risk. Either way, the pathogen is in our fluids all of them that I have seen. Nobody has to slap me on the back because I watched as these disease of elder and youth grew to epic proportions as I watched the issues of the skin grow. MY symptoms became common over the years on others skin. Yeah baby. Something as little as eczema, psoriasis, huge dander, dry skin, they are all connected and speak volumes. These researchers say that NONE of the test subject were genetically predisposed to Alzheimer's, what I suggest their assumption that DNA sequence is flawed, its the fact that they have a sequence that is flawed that predisposes them, its the fact that their parents were also carrying the pathogen that is able to mutate DNA. I do not contend, the fact, gene mutation is the correct stimulus for the development of Alzheimer's, their DNA may have been mutated by the disease, but it is the STEALTH pathogen causes not only gene mutation but also the Alzheimer's. Some of have seen in our microscopes the instant development of tubule's from out of nowhere, a very minute black speck will burst forth growth, some will say these formations are just cracks, this seems quite impossible when I have seen them form on a wet slide. I say the shape and habit of these formation leave drying cracks off the table and are a part of what they call a seed. It is not a seed it is a pathogen, our same pathogen. If one goes back to my original point that the children of so called Agent Orange have supposed Gene Mutation causing their issues. Is this a rush to blame DNA mutation for causing disease or does this disease really have a penchant for altering the sequence of DNA. On a good day, I may be perfectly correct, on a bad day completely wrong, but this is my contention from what I know and what they are saying. How much of what they say is the truth, then we know, still, with all of this study they know very little about Alzheimer's and all of the rest of the brain issues suffered by children today, they do believe they are finding similar traits. It seems quite possible that when they find the true culprit it will be ONE AND THE SAME as what we suffer from. The damage this has done to my mind is easy to feel and observe, most here know exactly what I mean, we do not have to guess that our memories are fleeting, our direction confused, we have to develop habits to replace memory. news.sciencemag.org/brain-behavior/2015/09/alzheimer-s-protein-contagiousYup
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Post by toni on Sept 10, 2015 10:19:25 GMT -5
Great article.
Yep, this is sickening, it's so scary!!!
Baraka, you said you're having memory "issues" that you can feel it.
What is it "if you don't mind" that you feel.
I've not noticed any memory problems or anything like that...which is why I am VERY curious what you mean.
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Post by Baraka Obam on Sept 10, 2015 13:12:47 GMT -5
Well Toni, seems I do not remember the question or how I feel, the words escape me, and what was I doing here anyway, what after all did I come here to do, I have said it many times before how I feel, many a member has also spoken on the same topic, so apparently you either do not read anything other members post or your forgetful. You do not, I guess, recall the mentioning of brain fog, you do not recall anyone mentioning memory loss, hmmmmm Doctor, I think what we have here, itz de classic case of CRS mixed with de Cat Claw Mental Disease, anyone what to give me a great big YA WHAT!!!Alzheimer's passing trough a fluid, I can not believe my ears, here is where the real study is going on my friends, not in Joe Padunks laboratory. The real deal study is going on through Alzheimer's and hopefully the issues that children are facing from birth fetus infection brain issues, ADD, ADHD, AUTISM and BI-POLAR. Hopefully they will look to isolate the pathogen, do it, do it NOW. Why don't they use fertilized eggs to find the difference, there is no cost, if it does or docent work what's the risk. Either way, the pathogen is in our fluids all of them that I have seen. Nobody has to slap me on the back because I watched as these disease of elder and youth grew to epic proportions as I watched the issues of the skin grow. MY symptoms became common over the years on others skin. Yeah baby. Something as little as eczema, psoriasis, huge dander, dry skin, they are all connected and speak volumes. These researchers say that NONE of the test subject were genetically predisposed to Alzheimer's, what I suggest their assumption that DNA sequence is flawed, its the fact that they have a sequence that is flawed that predisposes them, its the fact that their parents were also carrying the pathogen that is able to mutate DNA. I do not contend, the fact, gene mutation is the correct stimulus for the development of Alzheimer's, their DNA may have been mutated by the disease, but it is the STEALTH pathogen causes not only gene mutation but also the Alzheimer's. Some of have seen in our microscopes the instant development of tubule's from out of nowhere, a very minute black speck will burst forth growth, some will say these formations are just cracks, this seems quite impossible when I have seen them form on a wet slide. I say the shape and habit of these formation leave drying cracks off the table and are a part of what they call a seed. It is not a seed it is a pathogen, our same pathogen. If one goes back to my original point that the children of so called Agent Orange have supposed Gene Mutation causing their issues. Is this a rush to blame DNA mutation for causing disease or does this disease really have a penchant for altering the sequence of DNA. On a good day, I may be perfectly correct, on a bad day completely wrong, but this is my contention from what I know and what they are saying. How much of what they say is the truth, then we know, still, with all of this study they know very little about Alzheimer's and all of the rest of the brain issues suffered by children today, they do believe they are finding similar traits. It seems quite possible that when they find the true culprit it will be ONE AND THE SAME as what we suffer from. The damage this has done to my mind is easy to feel and observe, most here know exactly what I mean, we do not have to guess that our memories are fleeting, our direction confused, we have to develop habits to replace memory. news.sciencemag.org/brain-behavior/2015/09/alzheimer-s-protein-contagiousYup
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Post by toni on Sept 10, 2015 15:37:09 GMT -5
Well Toni, seems I do not remember the question or how I feel, the words escape me, and what was I doing here anyway, what after all did I come here to do, I have said it many times before how I feel, many a member has also spoken on the same topic, so apparently you either do not read anything other members post or your forgetful. You do not, I guess, recall the mentioning of brain fog, you do not recall anyone mentioning memory loss, hmmmmm Doctor, I think what we have here, itz de classic case of CRS mixed with de Cat Claw Mental Disease, anyone what to give me a great big YA WHAT!!!Alzheimer's passing trough a fluid, I can not believe my ears, here is where the real study is going on my friends, not in Joe Padunks laboratory. The real deal study is going on through Alzheimer's and hopefully the issues that children are facing from birth fetus infection brain issues, ADD, ADHD, AUTISM and BI-POLAR. Hopefully they will look to isolate the pathogen, do it, do it NOW. Why don't they use fertilized eggs to find the difference, there is no cost, if it does or docent work what's the risk. Either way, the pathogen is in our fluids all of them that I have seen. Nobody has to slap me on the back because I watched as these disease of elder and youth grew to epic proportions as I watched the issues of the skin grow. MY symptoms became common over the years on others skin. Yeah baby. Something as little as eczema, psoriasis, huge dander, dry skin, they are all connected and speak volumes. These researchers say that NONE of the test subject were genetically predisposed to Alzheimer's, what I suggest their assumption that DNA sequence is flawed, its the fact that they have a sequence that is flawed that predisposes them, its the fact that their parents were also carrying the pathogen that is able to mutate DNA. I do not contend, the fact, gene mutation is the correct stimulus for the development of Alzheimer's, their DNA may have been mutated by the disease, but it is the STEALTH pathogen causes not only gene mutation but also the Alzheimer's. Some of have seen in our microscopes the instant development of tubule's from out of nowhere, a very minute black speck will burst forth growth, some will say these formations are just cracks, this seems quite impossible when I have seen them form on a wet slide. I say the shape and habit of these formation leave drying cracks off the table and are a part of what they call a seed. It is not a seed it is a pathogen, our same pathogen. If one goes back to my original point that the children of so called Agent Orange have supposed Gene Mutation causing their issues. Is this a rush to blame DNA mutation for causing disease or does this disease really have a penchant for altering the sequence of DNA. On a good day, I may be perfectly correct, on a bad day completely wrong, but this is my contention from what I know and what they are saying. How much of what they say is the truth, then we know, still, with all of this study they know very little about Alzheimer's and all of the rest of the brain issues suffered by children today, they do believe they are finding similar traits. It seems quite possible that when they find the true culprit it will be ONE AND THE SAME as what we suffer from. The damage this has done to my mind is easy to feel and observe, most here know exactly what I mean, we do not have to guess that our memories are fleeting, our direction confused, we have to develop habits to replace memory. news.sciencemag.org/brain-behavior/2015/09/alzheimer-s-protein-contagiousYup
Ohhhhh Baraka,
Now I am saying it (you're wrong) on ALL your nonsense as USUAL in regards to me.
It's actually funny what YOU thought "my reasons were that I missed something", but moreso "interesting". Your reasons of thinking "I missed something" only show "how you are inside", because YOUR ONLY "reference" is of your own self in how YOU do things. So don't lay your ways on me as my reasons. Those would "be yours" only.
I wanted 'specifics' of what YOU FEEL. You're the one saying "about how you feel it". Your BRAIN FOG you said (imho are only words/labels) like "Restless Leg Syndrome"... I'd ASK the same thing of someone who had that too had they SAID: they feel their restless leg syndrome too. I'd want to understand since "we have this" thing upon us.
That way I'd KNOW "what they meant EXACTLY" not "just the label", like Brain Fog. That's a label. I am about "specifics".
REMEMBER? I'd just explained myself too, I "need/want/have to have" ( SPECIFICS ), as just verbs and nouns and labels don't cut the mustard in my book.
So no....I haven't forgotten anything, and IF I missed something you'd written it was ONLY because your verbiage was as crude as a pig, so like I also said before, when you talk like trash, I SKIP right over it all, and maybe somewhere in that was something you had to say, I don't know as I won't "sift" through to read decent or not. If any of your posts sound like trash talk, I just pass it over.
So, that must have been the case.
And, never mind that I've asked you anything.
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Post by itchin4answers on Sept 10, 2015 17:41:44 GMT -5
I am now to the point where I once thought the skin issues were the ultimate torture. Yes they certainly were, and still can plague me but not like they once did. I now say that the issues of the mind are sheer torture. I had pulled away from the internet of posting comments because of my mind issues. I could make a post and then for the next couple of days what I had written would play over and over and over in my mind. Questions to myself of did I sound ok? how will people read into what I just wrote? did I come across sounding like a loon? are people understanding me that I was once so highly functioning and trust me I dig my heels in try to rise above the plaguing mind issues. My brain can literally hurt at times trying to think. I have sat looking at the forum here for a long time before logging in, wondering if I can get across to you without not making sense. My short term memory is that bad that I can forget within a couple of minutes even a minute of deciding to do something. IF I get interrupted by someone when I have a task at hand I can completely lose my way. I can become very short tempered because once a multi tasker I want so much to be able to do that but can not. I get so upset with myself for my lazy brain, I beat up on myself, but I know I truly know deep down that my brain issues are not my fault. I am in a real bind right now, I don't want to make it sound so terrible that I will not rise above it, I will take it all in my stride. I am annoyed with myself that I didn't look into this particular drug before yet again putting my faith in a medical professional. I try not to spend my life living in conspiracy theories, even though I know too well most of it all is a rort with regards to our medical system. I did mention back in February I think that I was given a drug by a doctor who refused to give me Valium because this doctor said it was too addictive and told me take something else, which she prescribed for me. The drug Imrest being it's generic name and the drug name being Zopiclone. I was given this drug with no warnings at all. I never said I had insomnia, I said I used Valium at times if I needed help with sleeping and I never abused them. (which is true as my medical history shows)...though when I saw this doctor she did not then have my medical history. This doctor could have asked me some questions such as "do you suffer depression?", but no, no questions just "take this" and so that is what I did. I recall looking up "Imrest" back in February though my mental withdrawal and lack of wanting to read, and feeling like my brain hurts, well it was all too hard. If I had of put on my glasses to read the fine print on the box I would have found the name to look up and that being "Zopiclone". Back then in February it seemed healthy for my mind to not go reading things, and that is how it has been for me most of the year. I seem to deteriorate should I read into things. I do read some links that are posted here, but I try not to look too deep, and/or nothing makes sense and by the time I have read the article I could not for the life of me repeat back to you what it said or what it is about. Due to having some helpful professionals on the scene presently and my taking good care of myself I literally feel my mind wanting to be well, and my body is in park. What is causing this I wondered. Is it that I am detoxing and taking heavy duty herbs that cost an absolute fortune. I am happy to pay and try to be well, but now my demise of being on ZOPICLONE since February has left me in a state of mind that I have never been in before. So I finally read into Zopiclone because of my increased symptoms. I wondered are my symptoms a herx. I was in denial that my habitual behaviour of wanting this pill at bed time as sleep is an out from this madness, this living nightmare that no one wants to believe. So then I go to the doctors after finding out the name of the doctor that prescribed Zopiclone most unhappy saying "this is medical negligence and I have come back to this doctors clinic and had repeat prescriptions 7 times!"...if it weren't for the 7th doctor at that practice to tell me "YOU SHOULD NOT be taking this drug" which then lead my mind to take a couple of weeks to wake up to what could be happening to me. I have the common side effects without a doubt to the stage of driving me to complete despair and many of the less common side effects. I would think "is this how I have to feel to get well" (thinking my diet change and supplements was doing this, it could be too, but this drug has made it worse). en.wikipedia.org/wiki/ZopicloneThe out come with the doctor was for mental health to give me an urgent medication review. I can only guess that the doctor has read my medical file for him to put in this letter only yesterday that "I am well composed and calm, though I am delusional." The mental health person was really shocked with that saying to me "you are not delusional" and felt no psychiatric evaluation was needed. Though after speaking with the doctor he's changed his mind. So yup I have to have a psychiatric evaluation with a psychiatrist today. The biggest issue with all this is that the doctor has to put me on Valium to get me off Zopiclone!! Valium is what I asked for in the first place. I know pharmaceutical drugs can kill us, but see my mind issues and not looking into what I was taking. The effect of this drug took to me immediately with the foul metallic taste in my mouth the following morning after first taking, by the 3rd day of taking it I flipped out, but blamed my hormones. I told this mental health worker yesterday that I keep saying there is something wrong with my mind, do I have dementia what is happening to me. Agreed that I should not be on this drug. Now though the problem being I am back to being perceived as "delusional" oh goodness me I am even too scared about showing my newspaper article because my thinking is "they" will think that I don't have this disease, maybe Joni Mitchell does, but Gillian just likes to think she has. It's awful, it's mental torture and the damage that is continually being caused by professionals not believing me has worn so thin I've had it. I never speak of Morgellons to anyone, including medical professionals. I hope I don't have regrets and mind torture for writing this post. I really do have to vent and need support/validation from others that understand this agony. I do not mean harm to others when I complain about doctors, I am suffering like everyone else with this, so please do not think bad of me, I truly am doing the best I can. Wish me luck for today, and fingers crossed they don't force more damaging drugs on me because I would end up a vegetable and unable to function.
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Post by Baraka Obam on Sept 10, 2015 22:29:02 GMT -5
Thank you Gillian for expounding on the issue of the mind, it was on target, a perfect rendition of what many people reveal. When you talk to some you can you can even hear it in their voice. I was wondering how you were, now I know. The drugs do not seem to help us, only allow further torture. I tried antibiotic once again about 6 months ago in a hope that it may curtail the few issues I was facing, that was a mistake I had already been through. It seemed to awaken the mess and put it on alert. Hope things improve for you. I am now to the point where I once thought the skin issues were the ultimate torture. Yes they certainly were, and still can plague me but not like they once did. I now say that the issues of the mind are sheer torture. I had pulled away from the internet of posting comments because of my mind issues. I could make a post and then for the next couple of days what I had written would play over and over and over in my mind. Questions to myself of did I sound ok? how will people read into what I just wrote? did I come across sounding like a loon? are people understanding me that I was once so highly functioning and trust me I dig my heels in try to rise above the plaguing mind issues. My brain can literally hurt at times trying to think. I have sat looking at the forum here for a long time before logging in, wondering if I can get across to you without not making sense. My short term memory is that bad that I can forget within a couple of minutes even a minute of deciding to do something. IF I get interrupted by someone when I have a task at hand I can completely lose my way. I can become very short tempered because once a multi tasker I want so much to be able to do that but can not. I get so upset with myself for my lazy brain, I beat up on myself, but I know I truly know deep down that my brain issues are not my fault. I am in a real bind right now, I don't want to make it sound so terrible that I will not rise above it, I will take it all in my stride. I am annoyed with myself that I didn't look into this particular drug before yet again putting my faith in a medical professional. I try not to spend my life living in conspiracy theories, even though I know too well most of it all is a rort with regards to our medical system. I did mention back in February I think that I was given a drug by a doctor who refused to give me Valium because this doctor said it was too addictive and told me take something else, which she prescribed for me. The drug Imrest being it's generic name and the drug name being Zopiclone. I was given this drug with no warnings at all. I never said I had insomnia, I said I used Valium at times if I needed help with sleeping and I never abused them. (which is true as my medical history shows)...though when I saw this doctor she did not then have my medical history. This doctor could have asked me some questions such as "do you suffer depression?", but no, no questions just "take this" and so that is what I did. I recall looking up "Imrest" back in February though my mental withdrawal and lack of wanting to read, and feeling like my brain hurts, well it was all too hard. If I had of put on my glasses to read the fine print on the box I would have found the name to look up and that being "Zopiclone". Back then in February it seemed healthy for my mind to not go reading things, and that is how it has been for me most of the year. I seem to deteriorate should I read into things. I do read some links that are posted here, but I try not to look too deep, and/or nothing makes sense and by the time I have read the article I could not for the life of me repeat back to you what it said or what it is about. Due to having some helpful professionals on the scene presently and my taking good care of myself I literally feel my mind wanting to be well, and my body is in park. What is causing this I wondered. Is it that I am detoxing and taking heavy duty herbs that cost an absolute fortune. I am happy to pay and try to be well, but now my demise of being on ZOPICLONE since February has left me in a state of mind that I have never been in before. So I finally read into Zopiclone because of my increased symptoms. I wondered are my symptoms a herx. I was in denial that my habitual behaviour of wanting this pill at bed time as sleep is an out from this madness, this living nightmare that no one wants to believe. So then I go to the doctors after finding out the name of the doctor that prescribed Zopiclone most unhappy saying "this is medical negligence and I have come back to this doctors clinic and had repeat prescriptions 7 times!"...if it weren't for the 7th doctor at that practice to tell me "YOU SHOULD NOT be taking this drug" which then lead my mind to take a couple of weeks to wake up to what could be happening to me. I have the common side effects without a doubt to the stage of driving me to complete despair and many of the less common side effects. I would think "is this how I have to feel to get well" (thinking my diet change and supplements was doing this, it could be too, but this drug has made it worse). en.wikipedia.org/wiki/ZopicloneThe out come with the doctor was for mental health to give me an urgent medication review. I can only guess that the doctor has read my medical file for him to put in this letter only yesterday that "I am well composed and calm, though I am delusional." The mental health person was really shocked with that saying to me "you are not delusional" and felt no psychiatric evaluation was needed. Though after speaking with the doctor he's changed his mind. So yup I have to have a psychiatric evaluation with a psychiatrist today. The biggest issue with all this is that the doctor has to put me on Valium to get me off Zopiclone!! Valium is what I asked for in the first place. I know pharmaceutical drugs can kill us, but see my mind issues and not looking into what I was taking. The effect of this drug took to me immediately with the foul metallic taste in my mouth the following morning after first taking, by the 3rd day of taking it I flipped out, but blamed my hormones. I told this mental health worker yesterday that I keep saying there is something wrong with my mind, do I have dementia what is happening to me. Agreed that I should not be on this drug. Now though the problem being I am back to being perceived as "delusional" oh goodness me I am even too scared about showing my newspaper article because my thinking is "they" will think that I don't have this disease, maybe Joni Mitchell does, but Gillian just likes to think she has. It's awful, it's mental torture and the damage that is continually being caused by professionals not believing me has worn so thin I've had it. I never speak of Morgellons to anyone, including medical professionals. I hope I don't have regrets and mind torture for writing this post. I really do have to vent and need support/validation from others that understand this agony. I do not mean harm to others when I complain about doctors, I am suffering like everyone else with this, so please do not think bad of me, I truly am doing the best I can. Wish me luck for today, and fingers crossed they don't force more damaging drugs on me because I would end up a vegetable and unable to function.
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Post by toni on Sept 11, 2015 10:09:13 GMT -5
I am now to the point where I once thought the skin issues were the ultimate torture. Yes they certainly were, and still can plague me but not like they once did. I now say that the issues of the mind are sheer torture. I had pulled away from the internet of posting comments because of my mind issues. I could make a post and then for the next couple of days what I had written would play over and over and over in my mind. Questions to myself of did I sound ok? how will people read into what I just wrote? did I come across sounding like a loon? are people understanding me that I was once so highly functioning and trust me I dig my heels in try to rise above the plaguing mind issues. My brain can literally hurt at times trying to think. I have sat looking at the forum here for a long time before logging in, wondering if I can get across to you without not making sense. My short term memory is that bad that I can forget within a couple of minutes even a minute of deciding to do something. IF I get interrupted by someone when I have a task at hand I can completely lose my way. I can become very short tempered because once a multi tasker I want so much to be able to do that but can not. I get so upset with myself for my lazy brain, I beat up on myself, but I know I truly know deep down that my brain issues are not my fault. I am in a real bind right now, I don't want to make it sound so terrible that I will not rise above it, I will take it all in my stride. I am annoyed with myself that I didn't look into this particular drug before yet again putting my faith in a medical professional. I try not to spend my life living in conspiracy theories, even though I know too well most of it all is a rort with regards to our medical system. I did mention back in February I think that I was given a drug by a doctor who refused to give me Valium because this doctor said it was too addictive and told me take something else, which she prescribed for me. The drug Imrest being it's generic name and the drug name being Zopiclone. I was given this drug with no warnings at all. I never said I had insomnia, I said I used Valium at times if I needed help with sleeping and I never abused them. (which is true as my medical history shows)...though when I saw this doctor she did not then have my medical history. This doctor could have asked me some questions such as "do you suffer depression?", but no, no questions just "take this" and so that is what I did. I recall looking up "Imrest" back in February though my mental withdrawal and lack of wanting to read, and feeling like my brain hurts, well it was all too hard. If I had of put on my glasses to read the fine print on the box I would have found the name to look up and that being "Zopiclone". Back then in February it seemed healthy for my mind to not go reading things, and that is how it has been for me most of the year. I seem to deteriorate should I read into things. I do read some links that are posted here, but I try not to look too deep, and/or nothing makes sense and by the time I have read the article I could not for the life of me repeat back to you what it said or what it is about. Due to having some helpful professionals on the scene presently and my taking good care of myself I literally feel my mind wanting to be well, and my body is in park. What is causing this I wondered. Is it that I am detoxing and taking heavy duty herbs that cost an absolute fortune. I am happy to pay and try to be well, but now my demise of being on ZOPICLONE since February has left me in a state of mind that I have never been in before. So I finally read into Zopiclone because of my increased symptoms. I wondered are my symptoms a herx. I was in denial that my habitual behaviour of wanting this pill at bed time as sleep is an out from this madness, this living nightmare that no one wants to believe. So then I go to the doctors after finding out the name of the doctor that prescribed Zopiclone most unhappy saying "this is medical negligence and I have come back to this doctors clinic and had repeat prescriptions 7 times!"...if it weren't for the 7th doctor at that practice to tell me "YOU SHOULD NOT be taking this drug" which then lead my mind to take a couple of weeks to wake up to what could be happening to me. I have the common side effects without a doubt to the stage of driving me to complete despair and many of the less common side effects. I would think "is this how I have to feel to get well" (thinking my diet change and supplements was doing this, it could be too, but this drug has made it worse). en.wikipedia.org/wiki/ZopicloneThe out come with the doctor was for mental health to give me an urgent medication review. I can only guess that the doctor has read my medical file for him to put in this letter only yesterday that "I am well composed and calm, though I am delusional." The mental health person was really shocked with that saying to me "you are not delusional" and felt no psychiatric evaluation was needed. Though after speaking with the doctor he's changed his mind. So yup I have to have a psychiatric evaluation with a psychiatrist today. The biggest issue with all this is that the doctor has to put me on Valium to get me off Zopiclone!! Valium is what I asked for in the first place. I know pharmaceutical drugs can kill us, but see my mind issues and not looking into what I was taking. The effect of this drug took to me immediately with the foul metallic taste in my mouth the following morning after first taking, by the 3rd day of taking it I flipped out, but blamed my hormones. I told this mental health worker yesterday that I keep saying there is something wrong with my mind, do I have dementia what is happening to me. Agreed that I should not be on this drug. Now though the problem being I am back to being perceived as "delusional" oh goodness me I am even too scared about showing my newspaper article because my thinking is "they" will think that I don't have this disease, maybe Joni Mitchell does, but Gillian just likes to think she has. It's awful, it's mental torture and the damage that is continually being caused by professionals not believing me has worn so thin I've had it. I never speak of Morgellons to anyone, including medical professionals. I hope I don't have regrets and mind torture for writing this post. I really do have to vent and need support/validation from others that understand this agony. I do not mean harm to others when I complain about doctors, I am suffering like everyone else with this, so please do not think bad of me, I truly am doing the best I can. Wish me luck for today, and fingers crossed they don't force more damaging drugs on me because I would end up a vegetable and unable to function.
Hi Itchin,
What an excellent post you've written, and thank you. You're a strong woman, and I am praying for you too.
I certainly understand your dilemma with the doctors, as I also am not against doctors, just the ignorant ones that believe nothing new can come down the pike, and they lay that on their patients as it's our fault.
None of this is right or fair for any of us. I do agree with Baraka in that meds "might be" making the torture of Morgellons worse, and it's not that I know for sure by any means, it's the facet only that I've seen consistently over and over throughout the 10 years of my involvement, in that any mind altering meds seem to affect people in the worst ways. That part has been consistent. Who knows, maybe the "mix" of what we have going on in us, combined with "certain meds" really does another number on one. I don't know, but....(sitting in my seat only) which is far from the "being in it"....I've still seen it. People are having more problems and it "seems" and I say "seems" to be only with those who do take meds. I'm sure someday, when they realize what exactly morgs is, they'll see (that certain meds cause horrible adverse effects) which like everything else, time, trial, etc is what brings forth more knowledge about diseases and what meds help and what combinations of infections/diseases don't mix.
Heck, right now there's a simple antiparasitical out there that if a person has "a particular infection"...the proven anti'parasitical taken "under a specific infection" will cause a person to go blind. And in the medical world 'learning that fact' they must have flipped, but that fact was only realized "after it kept happening to people". And those poor people had and have to live now being
blind, all because "no one knew better". So we have to look at facts, even when the doctors aren't.
I hope your appt. goes well today. I can feel your fear just reading your post, as ANYONE would fear what's going to happen and the thoughts of what will they say.
Just know that a human is only a human...and I know your doctors are trying to help, but....they can't know everything in what something is going to do, when they don't know what is being done already (because of morgellons). Only time with patients and trying this and that, is what's going to cause the lines in the sand to be drawn. That's why the docs throwing all kinds of meds at people is "understandable from the doctors seat", BUT.....what really does that do to the patient? And maybe your experience and others with the same happening, they'll put it together in how it does have side effects that make this "particular infection/disease" not compatible with certain meds....as that's clear on this end to see, and they need to see it too even if they don't know what Morgs is exactly.
Maybe if you explain that to them, they'll understand that part, because I am here to say, 10 years of Morgs....and "people I've talked with over the years" the ones not having extra problems are the ones who aren't "completely following doctors advice as far as any mind altering meds go". There is nothing wrong with our minds.
This is real, and the doctors keep continuing to follow their books that are outdated. That is the problem.
Imho, this is the best time to ask God to hold your hand, because God will. And no human can take that place. God WILL give you strength today, and God will let you know you're okay, and you will be okay, because in the whole scheme of things, that is what matters. And when you fill your thoughts with our GREAT GOD - nothing then can touch you, because you're truly protected by the Mighty ONE.
If you feel anxious, try and turn your total attention to your Creator, and (speaking from another child of God) I feel that will help give you the security you so need and deserve to feel today, and every day.
Take care Gillian, we all care.
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Post by toni on Sept 12, 2015 20:28:18 GMT -5
Itchin,
I hope your appt. went well.
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Post by itchin4answers on Sept 13, 2015 16:48:14 GMT -5
Itchin, I hope your appt. went well. Good morning Toni, Thank you for your lovely post and kind words. My psychiatric evaluation didn't happen the other day. I did see the local doctor & asked about the delusional comment and he said "he never said I was, he was only repeating what he had read in my medical file". He was actually very understanding, saying Lyme is a multi systemic disease and goes to every part of the body. He said his concern was what had been happening to me whilst on Zopiclone ie. losing time & space in the middle of the night and trying to prepare lunch for my son! I can giggle now but it sure wasn't right. He said he is "hoping" that the psychiatrist has some insight into the effects of Lyme on the brain, particularly with chronic Lyme. I did take the newspaper article and showed him. As I said to him "did you read about me just in my medical history or the newspaper?". He said "the newspaper!" lol. I don't think he quite understood and I quickly put the article away and did say to him that to be labelled delusional when no one really understands this condition is so very damaging. I have a psych evaluation in the morning. I am feeling confident about it because I truly hope these people can get some understanding and particularly awareness about Lyme and Morgellons. I don't feel comfortable about taking research articles to show, it didn't help me 10 years ago! I will however take the information on the herbs I am taking. Hard to know what is a herx and what is a withdrawal. I am doing ok considering. I'll keep you posted and thanks again.
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Post by toni on Sept 14, 2015 11:34:17 GMT -5
Itchin, I hope your appt. went well. Good morning Toni, Thank you for your lovely post and kind words. My psychiatric evaluation didn't happen the other day. I did see the local doctor & asked about the delusional comment and he said "he never said I was, he was only repeating what he had read in my medical file". He was actually very understanding, saying Lyme is a multi systemic disease and goes to every part of the body. He said his concern was what had been happening to me whilst on Zopiclone ie. losing time & space in the middle of the night and trying to prepare lunch for my son! I can giggle now but it sure wasn't right. He said he is "hoping" that the psychiatrist has some insight into the effects of Lyme on the brain, particularly with chronic Lyme. I did take the newspaper article and showed him. As I said to him "did you read about me just in my medical history or the newspaper?". He said "the newspaper!" lol. I don't think he quite understood and I quickly put the article away and did say to him that to be labelled delusional when no one really understands this condition is so very damaging. I have a psych evaluation in the morning. I am feeling confident about it because I truly hope these people can get some understanding and particularly awareness about Lyme and Morgellons. I don't feel comfortable about taking research articles to show, it didn't help me 10 years ago! I will however take the information on the herbs I am taking. Hard to know what is a herx and what is a withdrawal. I am doing ok considering. I'll keep you posted and thanks again. Hi Itchin, I'm sure glad to hear for your sake your doc understands, and your (evaluation) here you said you've got this morn (not sure which morn), but....sooooo much more new info today (than 10 years ago), like Dr. Middelveen's articles, which (maybe) you can arm yourself with that too. That might help them see "what has been found" which no doctor can deny that, and the F-1000 paper. (just suggestions so no one EVER tries to say anything contradictory to the reality of this). Take care, and thank you for sharing.
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Post by itchin4answers on Sept 15, 2015 3:13:18 GMT -5
Good morning Toni, Thank you for your lovely post and kind words. My psychiatric evaluation didn't happen the other day. I did see the local doctor & asked about the delusional comment and he said "he never said I was, he was only repeating what he had read in my medical file". He was actually very understanding, saying Lyme is a multi systemic disease and goes to every part of the body. He said his concern was what had been happening to me whilst on Zopiclone ie. losing time & space in the middle of the night and trying to prepare lunch for my son! I can giggle now but it sure wasn't right. He said he is "hoping" that the psychiatrist has some insight into the effects of Lyme on the brain, particularly with chronic Lyme. I did take the newspaper article and showed him. As I said to him "did you read about me just in my medical history or the newspaper?". He said "the newspaper!" lol. I don't think he quite understood and I quickly put the article away and did say to him that to be labelled delusional when no one really understands this condition is so very damaging. I have a psych evaluation in the morning. I am feeling confident about it because I truly hope these people can get some understanding and particularly awareness about Lyme and Morgellons. I don't feel comfortable about taking research articles to show, it didn't help me 10 years ago! I will however take the information on the herbs I am taking. Hard to know what is a herx and what is a withdrawal. I am doing ok considering. I'll keep you posted and thanks again. Hi Itchin, I'm sure glad to hear for your sake your doc understands, and your (evaluation) here you said you've got this morn (not sure which morn), but....sooooo much more new info today (than 10 years ago), like Dr. Middelveen's articles, which (maybe) you can arm yourself with that too. That might help them see "what has been found" which no doctor can deny that, and the F-1000 paper. (just suggestions so no one EVER tries to say anything contradictory to the reality of this). Take care, and thank you for sharing. Happy to share toni, this is how we work things through. I did take the two articles you mentioned and the crisis workers I first spoke with said to give to the psychiatrist. These people had done some research already on Morgellons and they were so very respectful to me. My partner said to them he didn't believe in Morgellons until he saw what came out of my skin. I was asked if I had any lesions at the moment which I don't and then asked about the fibers. I said I had a long one come out of my face a couple of days ago. The question of skin sensations then came up, and I said I do understand you have to ask me those questions, but please understand Morgellons is not bugs under the skin. My complex condition by these people was taken seriously and they were very nice to me. My visit with the psychiatrist was only 10 minutes. I didn't get to give him the articles, it just wasn't going to happen. He was a nice man, said the medications are not the answer and said he tells all his patients this. This man told me what I and many other people are trying to achieve and struggle due to this disease. I have to find purpose in my life, thinking positive, be positive, do a hobby, look toward re education or a paid job. Sadly, the disease does get swept under the carpet and it still hasn't been addressed. We really are all on our own, of taking care of ourselves the best we can.
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Post by itchin4answers on Oct 16, 2015 23:17:12 GMT -5
Fungus found in brains raises Alzheimer's questionsParis (AFP) - Traces of fungus have been discovered in the brains of Alzheimer's sufferers, researchers said Thursday, relaunching the question: might the disease be caused by an infectious microbe? There is no conclusive evidence, but if the answer turns out to be "yes", it means Alzheimer's Disease (AD) may be targeted with antifungal treatment, a Spanish team reported in the journal Scientific Reports. news.yahoo.com/fungus-found-brains-raises-alzheimers-questions-145523778.html
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Post by Baraka Obam on Oct 17, 2015 10:48:10 GMT -5
Fungus found in brains raises Alzheimer's questionsParis (AFP) - Traces of fungus have been discovered in the brains of Alzheimer's sufferers, researchers said Thursday, relaunching the question: might the disease be caused by an infectious microbe? There is no conclusive evidence, but if the answer turns out to be "yes", it means Alzheimer's Disease (AD) may be targeted with antifungal treatment, a Spanish team reported in the journal Scientific Reports. news.yahoo.com/fungus-found-brains-raises-alzheimers-questions-145523778.html Thank you itchen. The study of these common brain issues Alsheimers, Autism, ADD, ADHD are the path to finding what causes our disease and the rise of disease in America today. It is connected. Good stuff, they are going to find out what causes AD and it will be the same thing we suffer from. I also believe that the pathogen can be transferred from our fluids, blood, saliva, yellow fluid the comes out of lesions to the egg of a chicken and hatched. I believe this will show the damage it does to their brains and other issues. I believe as the egg is incubated you will be able to see the difference between the eggs infected and eggs not infected by look through them with a bright light behind them. Although I am wondering if the high temperature needed to hatch eggs will destroy the entity, so, possibly try to reduce temperature in both infected eggs and uninfected eggs. Looking at the video I have provided go to 1.26 one minute twenty six seconds in the video, you can easily see the growth of tiny filaments when it gets to a clump of blood that gives of energy for it to grow, you can also see all along the lines of growth that any time it hits red blood cells it devours the red inside them and turns the cell walls black, you can also see at point some of the red cells have not been turned black because they have not been touched because this is fluid, the tube has come into contact with the red blood cells on the top of the fluid. Could this actually be the fugus, who knows. youtu.be/oSPqdR_ljk8
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Post by itchin4answers on Oct 23, 2015 19:22:20 GMT -5
A research paper that may change how we look at treating Alzheimers Disease has been published in Nature Scientific Reports that demonstrates fungal material (NB not Aspergillus species as yet) is present in brain tissue from Alzheimers patients, but not in the brains of healthy people. This is not the first time this has been suggested but now the evidence looks much more convincing. Pisa et. al. (Madrid, Spain) looked at brain tissue from 10 patients and found extensive evidence for the presence of fungal material. Previously it had been suggested that this was caused by the presence of a 'fungus'like' protein in these diseased brains rather than the presence of real fungi growth but this team have published images of what they have found that look compellingly like fungal structures - see green/blue structures in the attached image. www.aspergillus.org.uk/content/alzheimers-disease-and-fungi
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