fm5
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Post by fm5 on Feb 16, 2005 13:01:07 GMT -5
I was listening to Coast to Coast last night and heard Mary speak about Morgellon's disease. In my opinion, I believe, Morgellon's disease could be caused by a new type of rug glue substance or rug substance that is toxic to many people. The reason why I mention this is because I had almost every symptom of Morgellon's disease while working in a building I used to work in. I used to get the feeling of bugs crawling up my legs, the "web like" feelings on my legs, joint pain, and brain fog. I, too, (like many suffering from this disease) was asked by the nurse in the building if I had a phobia towards bugs - or was basically treated like I was "crazy". What I went through while working this building was beyond belief. The worst being that at night there were many times when I could not stop itching myself for more than about 2 minutes. And there were times when I just "spaced out" at work - there were many instances where I would be talking with someone and then just stand there and think "what was I going to say to this person"? There were also instances in which it also actually felt like someone was jabbing me with needles. Also, I would like to mention, there were other workers there with the same symptoms as me. At the time I was working in this building, they were installing new carpeting throughout the building and I believe, without a doubt this was the cause. I believe this because I worked in this same building as a temp for many months prior to them laying the carpet and never had a problem until this carpet was installed. I went to a dermatologist who told me simply to "get out of that building". I took his advice and did so. It did take about 4-5 months for those horrific symptoms to end but it was a very long ordeal to me. It is interesting because I still have a credit union membership in that building and go there to visit once in a while, and sure enough, within 15-20 minutes of being in that building, I will immediately get the same symptoms back. I truly, without a doubt, feel that new glue substances and new carpet substances should be fully investigated here. Thanks for hearing me out.
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fm5
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Post by fm5 on Feb 16, 2005 14:05:31 GMT -5
One thing I do want to mention. For the longest time I believed without a doubt that my condition was caused by bugs as I felt like bugs were crawling on my legs, etc. BUT I WAS TOTALLY WRONG. One must remember that breathing in and being exposed to toxic substances (such as rug fibers or rug glues) can have the same effect on one's skin as if bugs were crawling on it.
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Post by Susan on Feb 16, 2005 14:12:00 GMT -5
Hi fm5, sorry you are suffering. I have never been around rug glue. It is my opinion that this is spread skin to skin contact. people to people, pets to people, and people to pets.
My Symptoms... So many... Burning, sunburn tint to my skin. itchy/biting/ stinging/crawling/ tingling, red bumps/hives like/trails like rash under the skin.skin weeping/oozing/sticky sometimes in patches sometimes all over comes and goes. Sweats, chills, fluish, sever fatigue, deep joint and muscle pain. blurred vision,sensitive to light burning tingling in and around eyes. Itchy hair, hair loss, sinus involvement, mouth burning, sores, drooling, gritting teeth, cough, congested breathing, heart pain, liver pain, stomach upset, diarrhea, bloating, I have this head to toe, burning/sticky/tingling hands and feet. (Kind of like athletes foot sensation,) foggy thoughts. dizzy spells. Big increase in dust like stuff but not dust in my car, house. Relief... Haven't really found any, I got this in Sept. 2001 I have had this 3 years. I live in Tennessee, there are others in my family and community that has this now. my dog Foxy has this. Doctors and Vets Don't have a clue.
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fm5
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Post by fm5 on Feb 16, 2005 14:25:44 GMT -5
Hi fm5, sorry you are suffering. I have never been around rug glue. It is my opinion that this is spread skin to skin contact. people to people, pets to people, and people to pets. Hi Susan! You mention that you have never been around rug glue. Malls, stores, other people's homes, our own cars, etc. have rugs installed. I just happen to believe 100% that my symptoms were caused by either the rug glue used in my place of work or the rug fibers themselves. I believe that they were very very toxic to me (and in fact others) there. I just believe that there should be an investigation done on rug fibers and rug glues. And again, even though it felt like "bugs crawling on my skin" they were not bugs, but my own body's allergic response to a toxin that I came into contact with either by inhalation or skin contact. I believe it was probably more by inhalation of these substances as it took my body about 4-5 months to be free from my symptoms. I have never been a highly allergic person ever in my life, and I NEVER experienced anywhere else what I experienced in that building since. In fact, I have been free from these symptoms for years. Again, when I go back to this building to go to my credit union, the symptoms come back within 15-20 minutes of exposure. Just something for others to consider.
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linda
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Post by linda on Feb 16, 2005 14:27:51 GMT -5
I also believe that I got this from a large building in SF that had been refurbished. It wasn't the carpet glue, that I'm sure of. Perhaps it was something in the carpet. Read this guy's perspective: www.safe2use.com/pests/scabies/gettingridof/030.htmHe believes that it may be causes by wormlike parasites that are brought here from China in textiles. Read around the board a bit. You may change your mind about the glue. Do you still have any symptoms? My symptoms got better, but never went away. Everything resurfaced once I had kids. It is in my body and it is contagious. Good Luck, Linda
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fm5
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Post by fm5 on Feb 16, 2005 14:47:26 GMT -5
Do you still have any symptoms? My symptoms got better, but never went away. Everything resurfaced once I had kids. It is in my body and it is contagious. Good Luck, Linda No, again, when my doctor told me to "get out of the building" I did so. That was about 10 years ago. Again, it took about 4-5 months for my body to "clear of the symptoms". (I personally believe there was a very toxic substance either in the rug itself or the glue that I was highly allergic to and which entered my system by inhalation.) Again, I thought it was a parasite, but it was not. It was my own body's strange allergic reaction. Also, I want to mention that the FDA (or whoever does this type of work) should fully investigate and trial any "new types of glues or fibers" before a rug company can sell them to be installed in buildings where employees are exposed to them on a daily basis.
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linda
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Post by linda on Feb 16, 2005 15:19:17 GMT -5
I glad to hear that you have recovered from the glue parasitism. Did they ever look at the fibers from your skin? Did the fibers match the carpet's fibers? How do the carpet and the glue work together to create this phenomena?
I quit my job when I realized that something in the building was making me sick. As far as I know, I am the only person who was getting sick in this manner. I continued to see fibers and have mild symptoms since I left over thirteen years ago. My kids haven't been exposed to any carpet glues. All of them have fibers, itchiness, stomach issues, ADD/ADHD, and sensations of bugs crawling on them. How might the carpet glue from the builiding I worked in thirteen years ago be affecting them?
Just curious, Linda
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fm5
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Post by fm5 on Feb 16, 2005 16:24:10 GMT -5
Linda, to your questions:
No, the doctor just took blood work. He examined the "bites or marks" on my skin but did not take samples of it and told me my best avenue was to leave the building. And I took his advice. Now, remember this was 10 years ago. I am not sure that Morgellons was even known at that point.
There were definitely others I worked with that had the same symptoms as me. Believe me, the whole situation infuriated me because since it was a work environment many felt "unable or unwilling" to come forth and put in a formal complaint either out of embarassment or of losing their jobs.
As far as your other question goes, I can only make a few conjectures:
Most of us are exposed to carpets or carpet glues in many areas - malls, stores, our cars, other homes, work place, etc. Again, I mention this solely because of the fact that even when I go back to this building on occasion to go to my credit union, I get my symptoms back within 15-20 minutes of being exposed so I don't even believe one has to be exposed for lengthy periods of time to this.
Another opinion of mine is that carpet manufacturers or carpet glue manufacturers may have (within the last 10-20 years) come out with a material that is highly toxic to many people and this material may very well be rampant in many different areas and most don't even know it.
And, again, my symptoms "carried themselves and lasted outside of the office setting" - so one could be in a toxic environment, leave it, and still have symptoms from it - particularly if those toxins are inhaled.
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linda
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Post by linda on Feb 16, 2005 19:28:09 GMT -5
Still, this doesn't address the contagious element. My husband, my mother-ini-law, the list goes on. They've been around carpet glue and all types of carpet before, but they didn't get sick with fibers until they spent some time around me. The fibers coming from our skin are not synthetic. I do not believe that carpet fibers could come out of ones skin--if you inhaled them, they'd come out in your poop. The pores in the skin couldn't handle carpet fibers--they're too big. Then there are the other things we see. The bugs. The bug parts. Nope, no carpet fibers. I read one story in which an elderly couple seemed to be having excessive dust/scabies/skin fiber issues, and they determined that it was due to a fiberglass problem in their home. www.sustainableenterprises.com/fin/Health/dna.htmThe world is abound with theories that are far more plausable than the one I put forth. Nonetheless, the carpet/glue fiber theory does not jive with what I've experienced and continue to experience. Still, I'm happy to hear that you are better. I was once too. I don't know what happened to change it. Bye, Linda
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fm5
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Post by fm5 on Feb 17, 2005 17:42:13 GMT -5
The fibers coming from our skin are not synthetic. I do not believe that carpet fibers could come out of ones skin--if you inhaled them, they'd come out in your poop. The pores in the skin couldn't handle carpet fibers--they're too big. Then there are the other things we see. The bugs. The bug parts. Nope, no carpet fibers. I read one story in which an elderly couple seemed to be having excessive dust/scabies/skin fiber issues, and they determined that it was due to a fiberglass problem in their home. www.sustainableenterprises.com/fin/Health/dna.htmFrom Mary's description on Coast to Coast, I believe she mentioned that not all Morgellons victims have the "issue that comes out of their skin pores". Also, I believe she said that they didn't know exactly what this type of substance was in many cases. It's interesting that you mention about fiber glass, because I remember also describing to others that my symptoms often felt like I was "laying in fiber glass at times". The other thing I want to bring up is the fact that I am very suspicious of "clusters of areas" where many people in a given vicinity have morgellons. It makes me want to believe that perhaps it might have something to do with toxicity in that area. Perhaps a chemical plant, etc. in the vicinity. If I knew where that carpeting was produced or where the glues used in that carperting were produced, I would personally make sure that I didn't live within a 100 mile radious of such a plant. Again, the most interesting factor I could say about my ordeal was that I believed all the time, I was being infested by "bugs" when it was my body's own immune response to the toxins in the carpeting. You have to remember I was breathing this stuff in on a daily basis - it was in my lungs, my circulatory system, etc.
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linda
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Post by linda on Feb 17, 2005 17:49:04 GMT -5
As I said before, I could have settled on a theory like that if this thing hadn't infected my kids and reinfected me. The buggy sensations are in my back right now, I feel them wiggle. No, not glue. Not for me anyways.
But if it helps you to sleep at night...
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fm5
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Post by fm5 on Feb 17, 2005 17:53:41 GMT -5
Oh yeah, one other thing I really want to point out is that in my case I can honestly say that I am 99.9999% sure my symptoms were due to either the carpet fibers or carpet glue at work.
Why? 1. Because of the fact that I temped in this same building for months prior to the carpet being laid and didn't have the symptoms at that time. It was only when they started installing the carpet that the symptoms appeared.
2. Upon my doctor's urging, I left that building. It took about 4-5 months for my symptoms to clear. And I haven't had the symptoms since.
3. When I go to that same building on occasion to visit my credit union, within 15-20 minutes I start feeling symptoms again.
This is not made up folks!
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linda
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Post by linda on Feb 17, 2005 19:08:44 GMT -5
I'll say this much, I can believe that toxins and environmental pollutants can wake this thing up.
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Post by Charley on Feb 17, 2005 19:31:16 GMT -5
I have been taking in this story, and I do understand where you are coming from fm5. I have pondered the fact that I may have had a fungal allergy in my last house due to the mould etc. I have lots of allergies since the onset, so I got tested for mould but rather disappointingly my allergy levels to common moulds were low. I do agree it can be allergies in some cases, and lyme neuroborreliosis in other cases, but I have to point out that some people have bugs visibly crawling out their skin. I am in contact with a lovely lady called Yvonne at the moment. She has thrips laying eggs in her skin, living in her sinuses and getting everywhere. She saw a bug pop out of her skin last night that was the size of a small ladybird (not sure if you have those in the US but it is about the size of a very large tick). She doesn't know if she has Lyme or not, but undoubtedly has insects in her skin. She has been ill for 22 years with CFIDS and systemic candidiasis. I would love my problem to be a delusion that will go away with treatment for Lyme, or an allergy, but I can't put it down to that in all honesty. My dog caught it at the same time. I have to confess that we did lay wooden flooring before this happened, but it was glue-free. It locked together without glue and we laid it ourselves. Formaldehyde would have been the only problem, but definitely not glue. I appreciate you telling your story as I am sure that it will help someone, but I just wanted to say that some people have identified the insects bothering them with entomology and it is real. The sad thing is that we can't help ourselves if nobody will look into it. There are very real reason why we are suffering, and we don't know why aside from the fact that many of us have Lyme disease. I am sure the key lies in the disease somewhere. I know that insects are more attracted to those with blood diseases - specifically Lyme and malaria, but the real reason seems more complicated than that. However, you do provide a voice of reason in stating that there can sometimes be an organic cause in health human beings. I just want you to know that that doesn't explain all of it by far.
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Post by jodyann52 on Feb 17, 2005 19:55:28 GMT -5
Hi fm5, sorry you are suffering. I have never been around rug glue. It is my opinion that this is spread skin to skin contact. people to people, pets to people, and people to pets. My Symptoms... So many... Burning, sunburn tint to my skin. itchy/biting/ stinging/crawling/ tingling, red bumps/hives like/trails like rash under the skin.skin weeping/oozing/sticky sometimes in patches sometimes all over comes and goes. Sweats, chills, fluish, sever fatigue, deep joint and muscle pain. blurred vision,sensitive to light burning tingling in and around eyes. Itchy hair, hair loss, sinus involvement, mouth burning, sores, drooling, gritting teeth, cough, congested breathing, heart pain, liver pain, stomach upset, diarrhea, bloating, I have this head to toe, burning/sticky/tingling hands and feet. (Kind of like athletes foot sensation,) foggy thoughts. dizzy spells. Big increase in dust like stuff but not dust in my car, house. Relief... Haven't really found any, I got this in Sept. 2001 I have had this 3 years. I live in Tennessee, there are others in my family and community that has this now. my dog Foxy has this. Doctors and Vets Don't have a clue.
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Post by jodyann52 on Feb 17, 2005 20:13:27 GMT -5
susan....mine is the same as yours. i'm in va. how in the world could a dr. not help us. i'm so sad i think my granddaughter has it ,we took her to the dr. he said it was a virus, she had a tick on her about 4 weeks ago. she was on antibotics, but as soon as she was off she got the rash. it is gone now but i see her itching around her eyes, nose, ears, i have to watch her. she want stay with no one else. all i can do is pray. i just cant give up my family. but my mom is 90yrs old she lives down near tenn.i dont get to see her. and im sad about that. i tell her that will get it.she said that she didn't care but i know better.i dont want any one to get this. so i have said enought. just needed to talk to someone.
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Post by pattiecakes on Feb 17, 2005 21:10:33 GMT -5
Mine all started with ticks ticks ticks. I got bit and got the itch. I have had it for 2 years tho and no-one in my family has it. They are all over me too. My kids always hug and rub their legs up against mine. The doctor originally thought it was a co-infection called bartonella that has red lines that look like stretch marks and itchy bumps and lesions but I dont know for sure. All I know is I am miserable and nothing is helping . Actually steroids (oral prednisone) did help alot but it just keeps comming back. Im on oral anti-biotics and praying that it will help and with the other treatments outlined here I will at least get it under control pattiecake
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motomom
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"When you reach the end of your rope, tie a knot and hang on!" Thomas Jefferson
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Post by motomom on Feb 17, 2005 22:10:45 GMT -5
My story begins with sores on my hands... I was thinking it must be mosquito bites from the Lake but by Christmas I am wearing gloves for 2 reasons- I then began taking pictures because something was wrong with me 5 hospital visits later because my fever gets so high my toes split open I am finally referred to an infectious disease specialist [oh ya, after the emergency room nurse asks me if I am a needle drug abuser... after the look of shock and me screaming "Are you kidding me?" THEN I was referred to a infectious disease Dr. who took 12 vials of blood and basically told me I have Fibromyalgia and a staph infection I spent 6 months on a very strong antibiotic and the skin problem is clear but other things keep flaring up, like joint pain etc... I could go on and on but I feel dwelling on it makes me feel worse! I just felt it was important to tell my story in case it might help... I had a few theories but now I truly see how it is spread skin to skin... My Wiemariner has lesions, and alpaca... Also, hyperbarics treatment helps, vitamin c!!!!]
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Post by adapted on Feb 17, 2005 23:13:49 GMT -5
Hi! I'm new here and just found this forum after the "Coast-to-Coast" broadcast. After being onboard for a couple of days, it seems that this general board gets more posts than the morgellons board. As I was beginning, I posted most of my stuff there. I greatly appreciate anyone reading any of my posts, but specifically, I'd like to know if anyone could check out the one titled, "Dead Bugs/Live Bugs" and see if they can relate. Thank you.
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Pete
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Post by Pete on Feb 18, 2005 1:34:08 GMT -5
Hi Everyone,
These organisms get irritated by certain stimuli, eg Nix (permethrin), sudden exposure to decreased temperature, and also in my case exposure to the fine alfalfa dust when I handle Alfalfa (Lucerne) bales for my horses. So, I am sure the carpets, fibers or glues are not the source/cause of the infection but the triggers that activate the organism to move and become noticed.
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