Audrey
Junior Member
Posts: 59
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Post by Audrey on Nov 7, 2005 10:25:21 GMT -5
Hi All!
I've been told that Dr. Schwartz has changed course on his diagnosis of S. Maltophilia, and he thinks it is a worm! I find it hard to believe, but I would like someone to answer if they know about it. They said that people were not getting well with his protocol.
They also claim that he recommends Biltricide, 600 mg tablets (4), wait five hours and take four more. Repeat in a week.
I have been most interested in Dr. Schwart, although I have a wonderful Dr. who is treating me, and I trust him completely....part of his protocol is Bactrim DS.....which I can't tolerate.
Would like to hear from anyone that knows anything about this change in course.
Audrey
Anyone....know anything about this?
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Post by Mmeme on Nov 7, 2005 22:08:04 GMT -5
I've been on the Schwartz protocol since end of June,,,it's now November,,,I'm not cured but I will say I'm better,,,a little better but not where I'd hope to be,,,,,I hoped to be cured.
I tried to ignore that the crawling-----------------------all of the little pinches,,stings,,,invisible creatures,,,bugs, flies,,,worms or whatever that was moving,,,,,,,but always the moving didn't seem to be under the skin after the explanation given, but when you've suffered as we have you can only hope that YOU'RE wrong and the other person is right,,,,IE,,,that it is all in your mind DOP(haven't you guys wondered that for a split second,,,,then the crawl wakes you up to remind you that you're not imagining this) ,,,that it is just that your skin feels like it's crawling,,,that the fibers and things are not really alive,,,,that the people that itch in your presence are just itching normally,,etc etc etc,,,so I'm still very thankful for this regimen to have made me a little better and for my doctor listening to Schwartz about what it might be and working with me and not turning totally against the idea that IT IS SOMETHING really bothering my scalp, forehead, legs,,,eyes,,nose,,,bothering ME !!! BOTHERING US !! We're in this thing together.
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Audrey
Junior Member
Posts: 59
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Post by Audrey on Nov 8, 2005 17:00:54 GMT -5
Hi Mmeme:
You told it the way I would. I hacve been on another protocol.....treating lyme disease and morgellons. I am much better than I was; but when I wash my hair it seems to be worse. I have a great doctor, who is there for me and trying to help. That is half the battle, since I had to move out of state to find him. I still have major crawling when I washmy hair, and not just in my scalp. I hate to go out because I'm always brushing at my face, and I am afraid where they are going when I do.
I too grasped at Dr. Schwartz's protocol. Called him and it seemed feasible....no doctor would help me to implement his suggestions. The doctor I have now believes when you treat the Lyme you also treat the Morgellons and it will eventually be cleared up. I did wonder about DOP.....I went home from the doctors office determuned not to think it was a parasite, until I received my microscope and looked at the "things" crawling on me. Then I got angry, and decided to look ut of state and not stop until I find a doctor.
I am so happy to have found my doctor, and hope he will stay with me.......
Good Luck, and God Bless!
Love, Audrey
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Post by Newby on Nov 8, 2005 17:44:11 GMT -5
Unfortunately, I am allergic to sulfa drugs, so no Schwartz protocol for me. However, Mepron, Zithromax and now Rocephin are the abx's that I am on. After reading several posts, I added artemisinin, coloidal silver and sulfur (not sulfa -as in drugs). They have made me, actually, not miserable. Just realized this. As far as hair nasties are concerned, just a bit of relief. I posted before that quite by accident, when I was coloring my roots (hair), I discovered that the hair nasties hate Sebastian's Colorshines Cellophanes. When rinsing, they came out in droves. Mind you, I was my hair with every ting and often, but the Cellophanes has had the most positive effect. I also have a color that is lighter than my skin and use it on my face, neck, shoulders and nether regions. If you can avoid it, don't wash your hair in the shower, they seem to spread more quickly and widely when you do. I juice limes and have found that the juice makes the clear things visible and more solid for removal. Hair stuff hates lime juice as well. My final hair and body rinse is usually with an expensive Listerine knock off. Really helps.
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Post by ruth on Nov 9, 2005 10:50:15 GMT -5
i am much better on the schwartz protocol. i am glad he added the biltricide. who knows how many symbiotic pathogens there are.
remember the sulfur drug stops reproduction. all the others have to continue their life force untill they are gone. so far i know it's life force is over 11 months. some of the nematodes that were potentially spliced in could reach 20 year life span.
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Audrey
Junior Member
Posts: 59
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Post by Audrey on Nov 9, 2005 14:55:19 GMT -5
Hi Ruth:
Could I ask you if you definitely know about the biltricide, and if it is true Dr. Schwartz is prescribing it? As far as I know, it could be a rumor.
I can't tolerate the sulfur, and I am not sure it is an allergic reaction. I hade four hour of chills every day, fever, nausea, headache, etc. Sick as a dog....but I wondered if this what what they call herxing. I tried for three days, even on half doses......still very sick.
Would appreciate your answering the above...I'm very confused.
Audrey
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Post by ruth on Nov 10, 2005 14:07:35 GMT -5
audrey, the biltricide is true.
i called him. i told him i had already done the biltricide from dr. omar amin. it was ineffective. he said it is the same as the septra. it takes the larger amounts.
i am doing my second dose. i am excited. i have not been able to press in on my abdomen... forever. always looking 4-6 months pg. it is now very sore but less drum-like. i am hopeful.
God Bless ruth
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Audrey
Junior Member
Posts: 59
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Post by Audrey on Nov 10, 2005 19:42:47 GMT -5
Ruth: Good Luck. amd I wou;d very much ike to know how you do on it. Could you let me know.....and how much is a larger dose? Is it prescription?
I do hope you have success!
Audrey
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Post by freaky on Nov 12, 2005 0:58:26 GMT -5
I'm a little slow. Is sulfur the same as Septra? Is he still prescribing Septra? How much per day? Is that the drug that he's increasing the dosage on? Every night I pass out during dinner or do my best to stay awake, & it takes me forever to eat. Then I pass out. I always thought this was because of excess amounts of fluid, bacteria, & parasites in my head, & for some reason, eating caused a reaction. Does anyone have an opinion on this or think it may be due to something else? Appreciate any feedback. Thanks, freaky
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Post by ruth on Nov 12, 2005 12:30:15 GMT -5
i am now taking tmp/smz ds. 4 tabs daily avelox (800mg/d) or cipro (1000mg/d) biltricide 4800mg/d one day week
my abdominal bloating is down . my head is less pressure. this is since 2 biltricide tx.'s (so far).
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guest
New Member
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Post by guest on Nov 13, 2005 18:58:25 GMT -5
is he calling your doctor to get this medicine? How are we suppose to get this medicine? How many tablets in one day?
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Post by just me on Nov 14, 2005 10:08:32 GMT -5
freaky, in my case, i feel like passing out because i'm actually sitting still. i have to keep in perpetual motion. if i sit down at all and take a break......that's it for me.....i'm pretty much useless after that. my body and mind are sooooo tired that i'll either zone out (watching back to back episodes of "Everyone Loves Raymond" and "Seinfeld" on TBS) or fall asleep. i know it's not healthy to over do it, but i have to keep pushing myself in order to get things done.
this doesn't happen often, but the other night at the dinner table i said...(while eating)...."I'm still listening, I just need to rest my eyes for a while".
pitiful isn't it!?
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Audrey
Junior Member
Posts: 59
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Post by Audrey on Nov 14, 2005 21:11:50 GMT -5
Hey Just Me:
That sounds like me exactly. I am feeling so much better since I started biaxin which I understand helps the Lyme disease, but if I sit down, I fall asleep. I used to only be able to work 1/2 hour at a time, then take a rest....so guess I am getting better. I too am used to going, and keep going; and now I can do some of that, but I still have the extreme fatigue, especially in the a.m.
I can't take the sulfur drug. I know Schwartz recommends Septra DS; my Dr. gave me Bactrim DS....and that made me sick as a dog.
I hope you feel better every day.....I hope we all feel better every day infact.
God Bless:
Audrey
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Post by Angie on Nov 15, 2005 8:18:35 GMT -5
Audrey, some people have to start really slow with Bactrim. Like taking a half a pill for a few days and working your way up to the two DS pills a day (or whatever your dose was). many think they are sensitive to the drug when some are actually herxing because it works so well. Maybe you can try it again sometime but in smaller doses?
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Post by B Ross on Nov 18, 2005 0:24:30 GMT -5
I spokewith Dr. Schwartz in mid October and he mentioned biltricide at that time (600 min. taken 3 tablets POimmediately and 3 more tablets 5 hrs. later. Purpose -dewormer.
Note- I just looked up biltricide on internet (one source) and it mentioned pills could be broken according to weight of person taking pill. Of course this would have to be checked out with a doctor. However, I remember when I took stomotol (sp) as a dewormer, my doctor presribed according to weight. Perhaps this is the same situation. Also, I had a strong reaction to the Ivermectin (sp) or Stomotol (sp) in the form of breathing difficulties for about 1 hr after I took the 3 litle pills. On that basis, Iwouldn't personally rush out and take biltricide unless necessary due to my past "panting " to catch my breath. I am a smoker and perhaps this is why it affected my breathing so much. Hope some of this is helpful information. B. Ross (CA)
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guest
New Member
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Post by guest on Nov 18, 2005 19:26:25 GMT -5
Is anyone doing the full protocol? I was told septra, bitricide,dulfacan and damatous earth. Can anyone update this, as I am fixing to do the biltricide.
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Post by DR WHO on Nov 25, 2005 20:10:56 GMT -5
Just wondering. . . Who the heck is this Dr. Schwartz and where do you find his info. Is he a lyme specialist? Does he treat Morgellons? Sorry to be so out of the loop. Has anyone had success with his treatments?
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Post by floridagal1 on Nov 25, 2005 20:49:58 GMT -5
Dr. Schwartz may be found at www.healingresearch.org. He has unique background...really couldn't find the link to infectious disease as I checked him out. But, he is working on our problem and for that, I commend him. He originally claimed that the S. Maltophilia bacteria was the causal factor, possibly compounded by infestation by collembola. He says the S. Maltophilia can be vectored in by three possible means: lesion to lesion contact, a bug vector or through water (namely French bottled spring water.) He claims to have cultured the S. Maltophilia from one of his patients. In his book, he says that it is a resistant, manipulated strain...meaning genetically altered. His initial protocol called for high doses of Septra (sulphur) and Avelox (antibiotic). Recently however, he has concluded (probably as he saw his patients relapse after discontinuing the meds) that their is a worm involved and now is prescribing high doses of biltricide followed by Ivermectin. He did not mention the diflucan to me. He doubts that Lyme is involved and does not treat for that. He is not Lyme literate from what I gathered. He is very kind sounding and readily available by the numbers on the web site, should you care to contact him directly. He is willing to work with your doctor or will treat you in person for a price in Santa Fe. Hope this helps.
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Post by raskel on Nov 26, 2005 20:50:18 GMT -5
I am trying the Biltricide next week. I am taking 4 days off or work. I will report the results on my site.
I have already completed the first protocol and it did some good. I work a 40 hour work week doing physical labor and I also have my own business that I work 30 hours at home. Before all of this I could barley get out of bed for more then 30 minutes at a shot. Following the Biltricide is a day of Stromectol.
Randy
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kb
Full Member
Posts: 162
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Post by kb on Nov 27, 2005 0:42:06 GMT -5
Great Randy, let us know how it turns out. Happy herxing, although that sounds oxymoronic...I mean it in the best way!
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