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Post by in tokyo on Apr 6, 2006 22:14:41 GMT -5
Hi I've tried a couple searches, and can't find a place where we've compared our blood test results. Is there already a thread for this?
Anyway, it might be useful. Here are mine:
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Post by in tokyo on Apr 6, 2006 22:33:43 GMT -5
Oops! pushed return- It posted.
Continuing, here are mine:
Antinuclear Antigen (ANA): High, Positive- this shows a number of auto-immune disorders, lupus, arthritis, etc [160] Double-stranded DNA- Negative (this is used to confirm lupus- but, oh, morgellons isn't lupus?) Homogeneous: High [160] White blood cells: low (through multiple tests) [3.9] Red blood cells: high [5.02] Lymphocyte: above high (through multiple tests) [53] MCV: low [83.9] NEUTR: below low average [39.5] Ch-E: below lowest average [3301] r-GTP: below lowest average [12] T-cho: below lowest average [123] T-G: much below lowest average [36] UA: low [3.5]
The numbers listed after are Japanese measurement results. Perhaps a cc system? I'll need to clarify that.
The rest of the CBC tests are within normal range: have had complete work done 3 times in the past 3 months. I've tried researching if anything is significant about the abnormal results above. Anybody have any input? Want to compare? Other than Morgellons, my health is (was) great. I'm curious what our CBC results are showing? Is there a pattern? I got sick with Morgellons in November, 2005. Results listed above are from January through March.
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Post by to Tokyo on Apr 6, 2006 23:27:30 GMT -5
Hi Tokyo,
Positive ANAs do show up in the Morgies. This was on the Morgellons websiite at one time, but they have since simplified the website text.
It used to say: "A higher-than-expected frequency of elevated speckled or homogeneous pattern ANA" was seen in this group of patients, something like that.
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Post by in tokyo on Apr 7, 2006 0:12:35 GMT -5
Oh- Thanks, Guest, I wish their website still said that, because that could be our key to getting some kind of credibility with doctors when our CBC's are 'normal.' My doctor saw elevated ANA, tested for lupus, and considers problem solved at negative lupus test.
I just found this on the Mast Cell Disease CU thread, (good thread, thanks!) regarding ANA/ antigens:
"Mast cells fire in response to antigens (invaders, real or perceived) that come into your body either by contact (skin), inhalation or digestion. Antigens are also produced within the body by other factors, such as inflammation or systemic illnesses such as cancer, thyroid disease or lupus. "
It seems like doctors rely so much on initial CBC that we need a way to point at one of those variables, and say "This indicates Morgellons." Otherwise, they won't give us the serious tests we need, or schedule us with specialists. [[ It takes more patience and hand-holding to work with doctors than 4 year olds. I just feel I'm back in the classroom when I visit these guys! I know the answer, but I have to guide them with Big Hints to a point of them being able to suggest it. 4 year olds with medical degrees! God help us all. ]]
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Post by hamberger today on Apr 7, 2006 0:30:11 GMT -5
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