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Post by aherah on May 24, 2006 10:42:27 GMT -5
This thread is dedicated to the deconstruction of twisted arguments made to discredit people with Morgellons disease. If you come across such an argument, or a misinterpretation of a quote taken from this site, please feel free to post it along with the site from which it came. Together, we'll tear their delusional, self-righteous butts up! ;D Kisses , Aherah
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Post by aherah on May 24, 2006 13:02:46 GMT -5
Here's a good place to start: My claims, backed up herein: 1. The fibers are environmental and unrelated to any illness 2. Morgellons is not a distinct disease 3. "Sufferers" have a mixed variety of physical and mental illnesses. Stated by our friend, Margellons at morgellonswatch.blogspot.com/2006/04/fibers-are-everywhere.htmlI'll post/comment as I find the time. It is already clear to me that Margellons has ample time to spare. One would think he has nothing else going on in his life. Odd, eh? I wonder how he makes his money. Will work on this more as time permits. Aherah
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Post by skytroll on May 24, 2006 13:11:52 GMT -5
1. The fibers could be environmental, but, there seems to be something inorganic and organic about them. They seem to be seeded. The illness is caused by the invasion into our bodies. It resembles the original Morgellons, which for all we know could have been precursors to other pandemics, the rooster of the pandemic.
2. Morgellons is a distinct disease, it has many manifestations. It destroys or skin and that is paramount, it is both old and new. It cannot be classified in the medical paradigms of Western Medicine. It has morphing tendencies.
3. I believe we have a variety of physical symptoms, but none is mental.
Keep em coming Aherah.
skytroll
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Post by slinker on May 25, 2006 2:07:08 GMT -5
One could argue that exasperation from constantly being told we are delusional could manifest itself mentally. Same with the fatigue and lack of sleep due to the constant "crawling" sensations.
I believe Morg's has very dire mental circumstances due to out of control symptoms and a lack of sympathy from the medical establishment. But these mental symptoms come after the initial Morg's development, not before. Anyone up for 3 straight days because of "bug crawling" sensations will likely exhibit mental duress, but I challenge ANYONE without Morg's to hold up sanely under those circumstances.
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Post by Lynne on May 25, 2006 9:15:40 GMT -5
QUOTE:[glow=red,2,300]I'll post/comment as I find the time. It is already clear to me that Margellons has ample time to spare. One would think he has nothing else going on in his life. Odd, eh? I wonder how he makes his money. [/glow]QUOTE
I cant believe you could say something so mean.
Have you ever been really sick with something?
Many of us can not work at all, or can only work part time due to this disease. And if you had painfull/itchy lesions all over your body that fetched stares from people how happy would you be?
How come you have time to come on here and say that.? Why do you care?, If you dont have this disease? I can at least understand people suffering to be involved here but what is your agenda?
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Post by Lynne on May 25, 2006 9:18:41 GMT -5
I mean the person who said the above, not you aherah. Sorry
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Post by aherah on May 25, 2006 9:28:26 GMT -5
Oops Lynn, I realize that I need a way to distinguish my words from those we're analyzing. For now on, I'll put their words in white/mine yellow. Lynn, the last paragraph is me talking. He stole a quote from me, but he didn't even do a good job of mocking it! I may not even have to defend myself; it appears others had done a good enough of a job. That's part of my point, he's not as good of an arguer as he would have himself believe. I only wish I had more time to really go at it.
Take Care, Aherah
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Post by Pasko on May 25, 2006 10:21:04 GMT -5
Here\'s an interesting argument, that Morgellons is not DOP tinyurl.com/pa2zvInteresting picture.
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Post by aherah on May 25, 2006 11:23:19 GMT -5
Hey Pasko,
Ya know, it is an interesting picture. Among the things I find interesting is that most of those involved in the discussion are incarnations of Margellons. He's talking to himself!!! I also see that he continues to make assumptions about those suffering with this disease. He continues to search for reasonable explanations, blaming the sufferer for their affliction. I for one sure as hell don't want this thing, but, you see, he thinks he knows me. People are placed in neat little boxes with tidy labels that makes the world an easier place to understand. I can believe that people with Morgellons have other "normal" dermatological conditions. Hell, we all still get the flu too and that's not Morgellons. What makes this disease unique is that most dermatological conditions aren't accompanied by the sensations we have; you know, the kind that keep you sleep deprived as slinker pointed-out. And then there is the "textile" fibers that keep appearing after we've washed our bodies in our clean showers. Those are really hard to dismiss.
Pay attention Margellons, I've got a story for you: about March last year, my mother was telling me that, like you, perhaps the fibers are not as bad as I thought. Perhaps I was getting sucked-into the almighty "power of persuasion" through this board. As she was telling me this, I got itchy. I put some lotion or cream on my legs (as my doctor recommended for my dry skin) and I began to scratch as she talked. While scratching, my nails became full with some stuff, I looked, and sure enough blue fuzz was trapped under my nails. In addition, I had turned the excess lotion on my legs blue! At that point, I asked my mother, "mom, is this a creation of my imagination too?" She looked and said, "oh, (my name), I'm so sorry." I had scraped so much crap out of my legs, I had to wipe it onto a paper towel. The substance on the towel was dark blue. My mother never finished that conversation. She never questioned me again. I suppose she's just as "crazy" as me, eh? Margellons, there is no way you can believe that story and still think that I am sane; it's too much for you, too much that can't be explained. If the fibers are textile, then I'm turning into a blue-cotton producing machine. I have to admit, that is one of those moments that you just never forget...the irony.
I have recently discovered that there isn't a person in my family that doesn't believe me. Even my hardened, thoroughly conservative father has confessed to me that he knows this is real. He remembers when I first saw the fibers, when I was really sick, and I assumed they were asbestos and that I had been having an allergic reaction to it. Oh how I wish that had been the case! I so want this thing to be over for me and all of the others on this board. Asbestos I can live with, uncertainty is much more difficult.
In any case, Margellons, you may be feeling sympathetic toward me, but you either have to call me crazy, or you have to say this is real. We already know the route most doctors take. It's the easier one, that's for sure. If this is for real, as I know it is, imagine the damage that is being done and has been done since Ekbom. It's really pretty massive. It's really pretty tragic.
C'est la vie,
Take Care, Aherah
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Post by Pasko on May 25, 2006 11:48:47 GMT -5
Aherah, you yourself said that all of your symptoms except the fibers could be explained by Cysticercosis.
Now, you have actually observed fibers extruding from your skin, but suppose someone else actually had Cysticercosis, and they found some fibers on their skin, is it not plausible that they might mistakenly then think they have Mogellons?
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Post by Carrie♥ on May 25, 2006 12:10:09 GMT -5
Aherah...I recognize and appreciate your plight. But it is useless...they will never get it until they are hit over the head with it as us. When you present something valid they dance around it avoiding the issues. Now I see they are changing their tune more and more to the note that we do have disease's that have been misdiagnosed. If that is truly the case they need to be beating up on the hundreds upon hundreds of Doctors that we've seen over the years that have misdiagnosed us and have allowed the misdiagnosis to destroy our life. I've been to at least ten-twelve Doctors...which one should be held accountable!? And when is it time to throw in the towel to stop looking from Doctor to Doctor? It's a never ending battle with them...forget them. Our time will come...no doubt about it. They've got they're views out there for the planet to see...I can't wait to see them pull their heads and tails in when this gets nailed!
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Post by aherah on May 25, 2006 12:23:53 GMT -5
Yes, absolutely. People who self-diagnose can be wrong. Doctors can be wrong too, especially when they don't try to investigate what might be going on. Why aren't people being tested for these other conditions? None of the doctors I've approached have investigated anything, at all. Apparently we error when using the word "fibers" though they seem to be very relevant to what's going on with us. If this is a textile fiber issue, then we must be textile fiber magnets. How is this happening? Maybe cysticercosis is a condition with fibers but nobody knew. I don't know. All I can claim to know is that I am not delusional, my mother is not delusional, my girlfriend who stopped by one day and saw the stuff come out of my son is not delusional, etc. So, I know that I have swelling, intermittent rashes, fuzzballs, and neurological issues. I sense that these problems are related, for instance, my scalp itches, and I feel dizzy. Yes, I think it is related. I didn't go to medical school, so it makes it much more difficult for me to speculate.
Some people who think they have Morgellons may be wrong. They may have another condition. Likewise, some people who think they have Lupus or any variety of other illness may actually have Morgellons. How do any of us ever find out when nobody is doing the work to figure it out? I've said before that I thought that people are basically good. They may also be basically lazy. Dop offers doctors, the CDC, the NIH an excuse to remain that way.
Have to go, Aherah
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Post by g whiz on May 25, 2006 18:03:23 GMT -5
Your body's electrical systems are obviously out of whack. Normally a human body has a negative charge. It takes 12, 000 volts in order to feel a shock from static electricity. A body is easily charged to 15, 000 volts, just by walking across a carpetet room. Ordinary household dust also has a negative charge, and it should be repelled by the body, not attracted. Computer and television screen normally have a positive charge. They both attract dust like a magnet. The walls of your house also have a positive charge. They also attract the negatively charged dust, but not to the degree that is accomplished by a cathode ray tube. When the body's electrical system goes positive, dust and fiber is drawn into the pores and impacted. Then when a negative charge returns, it is repelled outward. It appears that some of you have an electrical problem in your bodies. This can also accout for the strange behaviour of your hair, giving it a lifelike appearance. Many industrial fibers contain dyes. The body's enzymes can dissolve them, causing the seemingly mysterious blue liquid on your skin.
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Post by little g on May 25, 2006 19:57:41 GMT -5
Rational Probabilities
Electrolyte imbalance from inadequate water consumption Probable iron deficiency
Result: Dry itchy skin Leg shaving (which removes a couple of layers of epidermis) Result: breached integrity of the protective layer of skin Next result: clothing dye and fibers appear Saturate dry skin with lotion = keep breaching the integrity of the skin so that it can't perform its job of keeping things that don't belong in it out
Any other symptoms are from something else and a doctor needs to consulted.
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Post by little g again on May 25, 2006 20:17:15 GMT -5
Where did the unfounded belief originate that most dermatological conditions don't produce skin crawling sensations that prevent sleep? Would anyone volunteer where that idea came from, because it is false.
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Post by aherah on May 25, 2006 20:26:09 GMT -5
Re: electrolyte imbalances. You may be totally right. I hadn't ruled-out that this isn't even an infectious disease, I just know it looks that way since my kids have it too. I was dehydrated; I was nursing. I don't know anything about body-charges, and I'm quite certain no doctor was going to concern his/herself with that. I wouldn't know how to check for this nor how to fix it. That might also explain why the meth users are getting what sounds like Morgellons--they're dehydrated and messing-up their electrolytes. Who knows?
Sorry if I was wrong about the derm thing. I think there are many derms that think "delusional" when we start talking of the sensations though. Maybe they don't all know it's common.
I've asked you what your interest is here little g. Let me just tell you that this is my interest here--to present my symptoms to somebody who might have an inkling as to what's going on. Thanks for thinking.
Bye for now, Aherah
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