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Post by questionhair on Jun 22, 2006 15:43:03 GMT -5
Metta: Your history is fascinating. We need to keep these stories for reference via one of Spec's organized threads. Metta, you've got my admiration for sheer toughness. I don't think I could have survived what you've been through.
And to DOCP and Patti2, I didn't know about EPM & Arabians and TBs. I need to read about EPM. I have those breeds here too, so forewarned is forearmed . . .
With appreciation,
QH
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Post by DOCP on Jun 22, 2006 16:05:59 GMT -5
Tonie - Absolutely! The whole complex and antioxidents. Which ones do you take? I take Goji or Gac juice, POM-Blueberry juice, And a juice that combos grape seed, mangosteen, noni, cherry and blueberry. I drink a lot of green tea but I swear it's all sugar. I chew that green tea gum. Okay... this correspondance has been good for me since I haven't been consistant with this lately. I needed to be reminded. I know it works yet... I take so much as it is... and there's so many things spinning around in brain... or I should say... spinning my brain around, that the simplest thing like tkaing a vitamin that I know helps, is forgotton.
Oh - one other thing I've noticed can sometimes have a pretty immediate effect (noticable) is plain'ol Calcium/Magnesium. If I take one or two... it can mellow me out a bit, edge off irritability a little, who knows... could be placebo effect. But if it works... what's the diff?
Measles? I thought that happend in the dark ages. Really? That's supposed to be pretty awful for all who go it if memory serves. Head to toe painful rash? High fever? What is "tripled" ? <--- oh do you mean 3 x's severe? Yer lucky! I supposed it has to be going around since that's what MMR shots are for. I think? I barely paid attn back then. And you are very lucky to have energy now. I am VERY jelous. Please share what you take if you have a moment. Please and Thank you.
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Post by belikewater on Jun 22, 2006 16:11:49 GMT -5
In my reading on Lyme disease, aspartame (Nutrasweet) is not good to take. Maybe it feeds the bug or has further neurological effects.
The mention of horses brought back some memory of when I was looking into homeopathic treatments for small pox after 9-11. I remembered something about a disease in horses that occurred when small pox was diagnosed in a community. The horse disease is called 'malanders'. The homeopaths were able to make a homeopathic remedy out of 'horse grease'(?), which cured the humans of the small pox.
" ...epidemic puts aside, at one stroke, the idea of indefinite, imaginary, or placebo effects from use of the medicine.
Later, Boenninghausen, one of Hahnemann’s most able and early students, describes his discovery of the similarity between smallpox (in people) and malanders (in horses).(2) He noticed that when smallpox would appear in an area, the horses would also show the disease of malanders — that these two diseases appeared together. So, because Thuya was considered to be the specific remedy for this problem in horses, Boenninghausen tried it in smallpox in people and found it to be very effective in treatment. He carried this one step further, giving the remedy to members of the same household of the patient ill with smallpox and found it prevented the disease with every person it was used.(3) ..."
Homeopathic Thuya and or 'malandrinin' might be worth looking into. Thuya is from the arborvite tree.
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Post by Metta on Jun 22, 2006 17:10:57 GMT -5
I think for me God knew I could handle this.. and I have looked at this scientifically from the very beginning- so that helped me to survive. I just Have to say this again too-- Everything I say & or write on here is the Truth! And since this all was so freakin bizarre from the get-go I began to tape record All the Dr's when I saw them! Also getting & keeping all my medical records, as well as photographing my lesion's & the other's in my life too-- one of the people with this Unknown was dx with scleroderma/morphea.. she had-has the brown-apple-jelly looking mass under one of her breasts that a Dr. did a biopsy on, that bastard didn't just do a biopsy he cut a Big line on her breast- I have photo's of that too! the sore's on her, dr's also didn't know what they were! And out came the yellow fluid with a black fiber in it. In the beginning like so many do, I, you look for the source of this Unknown-- Geez many of you who own animals especially those of you talking about owning horse's with the dx of so many things, right there can be the answer's! When trying to pinpoint this for me, one other thing that happened was this-- I had been going to this small grocery store owned by Palestinians.. it had a Horrible smell in there, and Knew that smell from growing up in a small town in Iowa-- it smelled like dead mice! It was the only place you could pay the phone bill at-- it made me so sick, next time I went in there wearing a mask, and the owner approached me, and was so distraught, so I told him I would call the Health dept. and did.. they didn't come, and it took many months & phone calls until they finally showed up, finding that Under this store was thousands of dead rats & mice-- now could I have inhaled some kind of Hantavirus? Maybe?? Or could this have been bioterrorism? Funny thing that I went in there with a friend after they cleaned up the problem, and the owner made his whole family come and meet me--"The lady who saved their store" and he introduced his son to me, his name--"Jihad" This was about a month after 9/11. BUT.. I will NEVER know if this is what happened, why? cuz ironically all three of these foreign owned supermarkets (called St.Louis supermarket's) were torched! According to the bomb & arson squad in St.Louis, the fires were set by the owner's for the insurance money. Who knows if thatis true or not?? I will never know?? Yes this whole thing has been a real nightmare! And if I hadn't have had all of this Really happen I'd probably not have believed it myself either! And why I just HAD to record, and document this all! Sooo many time's it did feel like I had Encepholitis too.. my brain would fry!! After the times I have a rough go of it and have lot's of fiber's exiting me later in the month I would see those fungus-gnats-or?? flying around, and I would swear that they did come from me. Who's to say they did, or didn't? I would have No problem having a Dr. put me in a sterile environment for a month and have them check me everyday for the fiber's that have Never ever stopped exiting me! I know for a fact that the long term abx the LLMD had me on did save me, but they did NOT stop the fiber's from growing and exiting! Not even the Ketoconazole I was on. Well I have taken up enough space on here--- Metta
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Post by belikewater on Jun 22, 2006 18:42:43 GMT -5
Mi g*d, this whole thing is so bazarre, I burst into hysterical, laughing of disbelief right here in the Internet cafe. Who would ever believe this? I believe you all because here I am in the stew with you. Man, when they say it's all a learning experience...No sh*t, Sherlock! Good luck to us. I'd like to give the CDC a great big hug right about now, heh, heh, heh ...
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Post by grsue on Jun 22, 2006 20:20:22 GMT -5
Patricia1- VErrry interesting. The horses don't seem to know where their hooves are and get wobbly. no kidding? THAT is EXACTLY the first symptom I had when I came down with encephalitis/ meningitis!!I didn't feel well-but I had to go collect the neighbor's mail. As I walked, there and back, I could not tell where the ground was. I would exert different pressure to push my feet down as I walked, and it was like the ground was a cloud and my feet would just simply push through.-Everything seemed unreal. Then I got a phone call, and I recall just loosing energy and sliding down the wall to the floor. Ya' don't suppose that was it? They did 5 spinal taps in ER- 5-like one is more than enough, ever. Each one wasn't clear, or had blood in it. They gave up and just admitted me. Thanks for that info. Of course, after three days of being so sick, I thought I could die, the Dr. Said, "Well, we don't really know what it is, maybe it's not meningitis-it's just the flu," and sent me home, WITH a fever of over 103. That's the truth.--Go, Get well at home.
QH- you're right. It WILL take a scientist to say what it is because the Dr.s do not like it, even if I ask about having a blood test for fungus, or bacteria, --ie-don't try to help them figure it out!
I took your suggestion, today, and I poured a bottle of Hydrogen Peroxide down each drain and closed them for a bit. Thank you. A very inexpensive thing to try.
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Post by bannanny on Jun 22, 2006 22:05:30 GMT -5
I've had horses and worked with them my entire life, but now with my spinal disease, I can't do it any longer, which breaks my heart. I do live in an area with grazing cattle and sheep now tho.
We also have all the vectors there can be.....mice, squirrels, gophers, rabbits, quail, ravens, coyotes, snakes, and yep....we have alot of teeny tiny gnats. The little suckers swarm you at times.
I've noticed these long single web strands everywhere outside that run across the ground, and when I disturb them, all of a sudden you see the tiniest of tiny white fly looking things all over. I've gone out with a large piece of tape but just can't catch them with it! I keep trying, and when I do get one, if I don't fold the tape quickly it falls off the tape, and it's gone! And with the wind blowing like it does you just get fed up trying. But with it getting so hot now and the wind letting up, there should be more of them and I'm gonna try again. I don't know if it's some sort of gnat or what, but it's got something to do with all these web strands I think. I forgot, we also have alot of springtails and bees. The bees love this thing that's on us, whatever it is.
We also have a huge problem here with flying red ants. Last year before summer, I had to get on the roof and with my spinal problems, it was a long slow process of finally reaching the cooler!! But I HAD to......you do anything when it reaches 115 degrees! The flying ants were getting thru the honeycomb filters and coming thru the vent, so I had to clean it out. As soon as I started spraying bleach, those same single strand webs started appearing everywhere across the roof and were flying from the electric and phone wires going from the roof to the pole, and I saw the same "white flies" all over. It was very scary cuz all of a sudden they were everywhere! I was flippin out up there! So, the possibilities are definitely endless, but this phorid (sp?) fly could be one of them. And I think there are certain combinations of things reacting in similar yet different ways with whatever the actual cause of morgies is. I'd say that's why our environments are causing the differences we have with this disease.
Oooops, gotta go listen to Cliff and greema!!!!!!!!!!!!
Luv ya's ~~~bannanny
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Post by Administration on Jun 22, 2006 22:36:09 GMT -5
Metta.. Remember at one time we all had those damn gnats.. I think someone called them fungus gnats altho they did look like gnats.. but some were larger and that strange orangish color.. Hell.. they were even here right after that exterminator kept coming here claiming he sprayed with stuff that nothing could possibly survive.. Remember? They would actually swarm at us in the group.. liks even tho others were in the house.. these buggers were attracted to only us?? I still wonder about fleas.. bedbugs.. all those things back then.. It still crosses my mind what we said... "a parasite of a parasite" maybe.. The years go by Metta eh? Cant believe we are all still here.. all still waiting.. I thought for sure when the Lyme came into the mix.. it would lead us to the answer.. yet here we still are.. Its just unbelievable.. And ya know what I think about this crap.. dont know how to think otherwise.. I still say.. its not normal.. all these people complaining of the same things..people now all over the world I think.. and the Government is so worried about terrorism.. yet here we are with something.. it could be infectious.. contagious? No one even knows.. and now with all the media coverage and still.. nothing is being done? Why hasnt the Government jumped on this?? It hasnt crossed their minds that this might be bioterrorism? Not even worth looking into? Just too much... You know what I think.. because any other thing they would have been on top of this years ago when we caused such a ruckus.. I still think they are ignoring this because they must already know what it is... No way this many people.. this much time and they still do nothing.. Yet we are under this terror alert all this time? No way.. doesnt make sense and never will.. Im glad you decided to post here Metta. Your story is surely one that everyone needs to hear... Kerry
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Post by Mrs. Monk on Jun 23, 2006 16:27:41 GMT -5
I'm glad you're back too Metta. This is a Support forum and you are one of the best at helping and giving support. Nice to see you, you've been missed!
Mrs. Monk
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Post by tonie on Jun 23, 2006 18:08:00 GMT -5
DOCP,
Hi, gosh, I'll list the things I take as you were wondering, it's alot.
But I am a vitamin nut as you'll see. haha
And oh, I don't have the "measles" but with all the lesions from Morgellons, that's what I meant - I look like I've got a triple case of them. It's terrible my 100-200 spots, seriously. I'm a good feeding ground I guess.
Grapefruit seed extract in juice Grape seed extract Mangosteen juice Aloe vera juice 4 oz horsetail Niacin and a biotin - always together for hair Bromelain 1-2x week Papaya L-Lysine White Willow bark Pumpkin oil Saw Palmetto (great to keep androgens balanced) Vit C Vit E Pantothenic Acid Super B-Complex Borage oil Flax Vegies 4 life Zinc Calcium Soya Lecithin Lecithin
I actually take more, but not regularly, just here and there (when I think of them) but these to me are most important that I consistently take daily for years.
I'm popping pills it seems all day long, but I drink tons of water too, like average 1.5 gallons a day.
But yes, my energy hasn't changed, (knock on wood)
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Post by patricia1 on Jun 23, 2006 22:52:59 GMT -5
Hi! I've been dealing with some major problems at home. I don't think my husband and I are going to make thru this together. He dosent understand whats happening to me - nor does he want or try to understand. Its so hard to deal with everything, I don't care about life anymore, no one likes me anyway. So sorry for the pity party but thanks for letting me get it off my chest! grsue, back pain(spinalcord), difficulty walking, muscle atrophy have been a big part of many problems. Before I became sick, would feel so sorry for my horse and just cry whatching her deterioate and fall to the ground. The upside to this is she did recover somewhat - She still has EPM and has the good and bad days, sorta like us. Its so wierd, now , I laugh to myself, how much Riley(horse) and I look and act alike ( not that I look like a horse, but the debiliating part!) I hope all is well for you! QH, DOCP - reason for saying TB's and Arab,s are more susceptible is that really most horses-any and all breeds - have or are positive with the parasite, EPM. Performance horses such as TB's and Arab's(race horses), older, immune deficient horses and younger horses are prone to the full blown infection of EPM due to STRESS - stress is one of the main factors in triggering infection,disease in the performance and young horse, the older horse because their immune system is not as strong. I hope that help! Everyone else thank you for the great info. Hope everyone is well!!
Thank you, Patti2
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Post by tonie on Jun 24, 2006 11:17:41 GMT -5
Patricia1,
I just read your post here, and please know I'm "not" meaning to get into your business, I only want to possibly give you some "food for thought" that's all. But your post both got me "bothered" at your husband, (cause I understand that type of ignorance) and I saw what it's doing to you.
But then I realized your husband or anyone for that matter can say as they chose, because they are no better or less than anyone else. And he sure has no "special powers", so please don't think he really does possess something none of us have.
So your words in your post have got me 'having a need' to say SOMETHING. Okay?
And I sure hope you don't take this the wrong way, just know, that I know what you mean, and I'm only responding to what you'd said, and I do know it's not my business, but ...because you posted it, it's out there, and me being me...hahha I can't help myself from responding.
NO MATTER what ANYONE says about YOU, these I feel are the most important words I can say, and you can think about them or not, of course that is totally up to you.
NO ONE person, or PEOPLE make you you. YOU are your own person, and whether or not your husband "believes" in you or not, the bottom line is it's not YOUR problem. That is "their" or "his" problem. You did not come into the world "with" him, and you will not leave this world "with" him either.
Don't allow him to control your mind, he is NOT GOD. So if him in his not understanding your pain and health problems is what is causing the tension so greatly between the two of you, and it's to the point of destroying you...well, then it is time to let go of the thoughts and negative engergy he is trying to put upon you.
That kind of negative energy is worse than the Morgellons itself. Your immune, your body, your mind, your YOU, needs all YOU can give it, and positive thoughts of your health is of greatest importance, not anyone's negative germs.
So I'm NOT saying let "him" go, what I AM saying or trying to relay to you is one thing, don't allow any human being that much control over your mind. They are not God. Whatever he may say, the ultimate truth there is...IT DOESN'T MATTER. It really doesn't.
People are sooooo allowed to say what they want, we ALL have that right. Now in him NOT being supportive, well...you may see him now in a different and realistic light, and that is now your truth, in WHO HE really is, but as for allowing him to destroy you, he is no one, only one of us who live on this planet, and that is what you can let bounce off, because they are only words, and words don't control one's mind.
So if I can give you one "piece of food for thought" that is be true to you, and know you are strong, and be so thankful to God that you are you, and allow no one God's power, because only when we allow another human to "play" God do their words truly affect us, otherwise it's only his words, which in this world, is all they are - and absolutely nothing more.
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Post by Metta on Jun 24, 2006 14:47:15 GMT -5
Patricia2--- We have gone this route before with other's whose family member's didn't believe in them either. Here's more food for thought-- Have in you the past Ever been caught by your husband lieing? have you in the past been a Whiner, or a person who was always sick? If you can answer NO to these questions, then why? Why in the hell would your husband all of a sudden Not believe you? Were you in the habit of making up stories about being sick before? or about anything? You really do Not have to prove anything to anyone.. the truth is you only need to let him know that something is making you sick! And as I have said over & over, the possibilities are endless as to what this is! Sooo if you have been an honest person/wife, then your husband needs to be reminded of this! Quote from Willie Nelsons' character in the movie 'Thief' with James Caan-- "Lie to No-one, if they're someone youcare about then you'd ruin it with a lie; If they're not, well then who the 'F' are they anyway you got to lie to?" If you do not have the support you need from him or other's in your life, just come on here, vent, rant & rave.. trust me-- we know how you feel, what you are going thru and we KNOW you are not crazy or delusional! Try & see if he wants to help you find the answer's, or involve him if he doesn't understand this... and if he wants nothing to do with this, well then so be it.. Stand strong in what you really know is the truth! That something somehow got in you, and is making you sick, and making weird fibers come out of you! Look at yourself in the mirror, and tel yourself "I am Not wrong!" This is also time for you to take a look around at your life too-- make sure you are not neglecting him, or other's, and or your home-life. We know how consumed one get's with this, and it can become quite an obsession! Live your life, and wait for the answers to come to you! There are other's who have the knowledge, time, & equipment who are trying to find the answer's for us, so let them do their jobs! If you need support, come on here to this Family on LymeBusters! Good luck--and know there are other's who care, and understand what you feel like, and are going thru! Metta
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