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Post by sammy on Aug 8, 2006 22:14:10 GMT -5
Don't post much, read. Keep me also
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Post by See Jane Crawl on Aug 8, 2006 23:51:35 GMT -5
Me & Chicken Little Alive (in more ways than one!) & Active. Please don't delete us!
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jimaz
New Member
Posts: 9
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Post by jimaz on Aug 9, 2006 1:00:18 GMT -5
having connection/laptop problems but checking when i can. hope i'm not deleted. thx. jimaz
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Post by nashvilleannie on Aug 9, 2006 2:53:44 GMT -5
Please do not delete me.Still alive thanks to you guys and God.
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Post by abbienormal on Aug 9, 2006 3:23:41 GMT -5
Please don't delete me. I think I registered twice once as abbienormal1026 and then as abbienormal. I wish to stay on as abbienormal.
I thank each and every person for their contribution to this board. I don't post but hope to in the future.
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Post by scavenger on Aug 9, 2006 7:42:59 GMT -5
Please don't delete me, I follow this board as often as I can.
My girlfriend is still suffering with this dreadful disease and the dreadful medical system in this country.
A big thanks to Dr. Wymore!
C'mon CDC, hurry up, people are suffering horribly!
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Post by susie6 on Aug 9, 2006 9:30:52 GMT -5
I'm still here, just don't post often but read a lot. Need this place.
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Post by solana58 on Aug 9, 2006 14:19:44 GMT -5
Keep me in please.....and thanks for all you do.
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muka
New Member
Posts: 1
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Post by muka on Aug 9, 2006 14:35:36 GMT -5
Please keep me on your list. Just trying to learn what I can cause someone I love has this disease.
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riva
New Member
Posts: 47
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Post by riva on Aug 9, 2006 21:20:53 GMT -5
Hello Kerry and everyone This is another Aussie speaking-years ago i posted a bit on the NUSPA site as Skye (HI Debbie!) Have difficulties with computers but trying to stay in touch. Affected with all the said symptoms since '99 Regards Riva
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Post by critterclog on Aug 9, 2006 23:03:30 GMT -5
Add me to your list of "actives". Thank you for the support and information you have provided for all of us. Critterclog
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Post by debbie on Aug 10, 2006 9:18:12 GMT -5
Hi there Skye....
I'll never get used to Riva.........lol
What's happening with you lately, sent me a pm or email me if you like..... Love to hear from you.....
wishing you all well...... debbie
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Post by debbie on Aug 10, 2006 9:20:49 GMT -5
It's so nice to see a lot of people speak out, who probably never really say boo....
I don't post much these days, but do read... and its nice to meet you all, just wish it was under better circumstances.......
Wishing you all an itch free day.... as I sit here & dab with my tea tree oil.....
take care.....
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Post by socalsandy on Aug 10, 2006 9:26:49 GMT -5
Hey socalsandy here. Don't delete me , I am a sufferer 12 years, until you guys and this wonderful place, thought I was nuts ! love Sandra
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Post by Susan on Aug 10, 2006 11:14:16 GMT -5
Hi Kerry,
I've been here from the beginning and will be here till the end. Love you all Your Pal in Tennessee Susan
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Post by Administration on Aug 10, 2006 12:00:24 GMT -5
Ok. This is totally confusing.. What I "thought" was the issue here was anyone with AOL, couldnt register and had to get a yahoo account or something like that.. but Im looking in the members area and see where some who do have AOL.. are indeed active members... making this even more confusing to me.. Worse yet... Im seeing people literally registered a dozen times.. all under similiar nics with same email.. so Im looking to see which account they are posting at.. and yet notice they are posting at 3 or 4...LOL.. So Im trying to figure this out somehow so we dont have hundreds and hundreds of pages of members..with at least 100 pages of peoples accounts who arent even active or in use... This is way confusing... It may end up impossible to get everything organized.. but Im going to try my best... If you are registered like 10 times and are using 4 different accounts... try and pick one and stay with it so its easier when I go thru this.. Uggh... Thanks... Kerry
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Post by westside on Aug 10, 2006 19:50:57 GMT -5
Kerry I registered w/ MRF 2 years ago and at that time tried to register here....have AOL so did not work Then when Betsy was collecting signatures for her letter to the CDC i was so desperate to add my name that i tried to register again(i used name"nycrud") again....due to AOL i did not receive activation #. Then....my boyfriend explained to me how i could easily create a yahoo e-mail address to finally get registered(not being computer saavy i thought i needed to cxl AOL and sign up w/ and pay a new internet provider!) So i registered as"ouchnyc". Under that name i p.m.'ed my info to Betsy and exchanged a couple more p.m.'s w/ her. Then, suddenly, i could no longer access with "ouchnyc"(message said my acct had been deactivated or disabled or something?) I was confused as to why such a thing would happen. I then....on another yahoo acct registered as "westside". Looking through the membership list i see all 3(nycrud,ouchnyc and westside) on the list....and it says they are active?? So...you may delete 2 of these from the list. I'd prefer to use "ouchnyc" if that one can be re-enabled/activated?? If not i can stay w/ "westside". I had assumed when my acct was activated via the newly created yahoo e-mail address,that i would have to go to Yahoo first to then get to Lymebusters but....from my AOL screen i hit the icon i had created to shortcut to this site....get here,and sign on! So it seems you cannot send activation #'s to AOL people...it filters them out or something? But...once you get a # and activate your account....you can go to Lymebusters from AOL. I am sorry that i have been a reader and not a contributor. I always mean to tell"my story" but Brain Fog and just the general cognitive impairment this disease has wrought always renders me unable! When the site was down for that bit of time a was grief stricken. I am all alone with this and the people here are the only thing that keeps me going. I am the flight attendant who appeared(briefly)in the WB11ny tv newscast segment on Morgellon's. I will tell "my story" someday. Just as i will someday write the letter to all 7 of the Dr.s who treated me so dismissively and reduced me to dosing myself w/ dog meds!!!! Grrrrr!!! I write this letter to the MD's in my head constantly....it's a good one....and would fill them w/ shame(if they are capable of feeling such?!) My undying gratitude to all of you here for keeping me going.... for all of the helpful hints you share for dealing w/ this nightmare! My incredulous admiration to those of you who(despite your own pain,fear,brain fog etc) keep plugging away with the endless research to try to find the answer to this! Thank You!!!
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leighann
Full Member
Morgellon's - The point where Nature and Man collide...
Posts: 158
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Post by leighann on Aug 10, 2006 21:37:50 GMT -5
Hello Everyone!! Been real busy keeping my Mom out of the hospital. I have not left everyone, just trying to regain focus and stay healthy myself. Noticed my neighbor from South Alabama was quoted in the PrimeTime feature last night!! Way to go Pat! Love you all, storming bad here, gotta run. Leigh Ann Cofield Florence, Alabama
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edron
New Member
Posts: 1
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Post by edron on Aug 10, 2006 22:16:39 GMT -5
Hi Kerry-Sory I haven't posted prior to this--I've been living--in what I thought was "MY" own private diagnosed "delusional" bipolar-self-mutilating "hell! If I had not found this sight when I did--I'm 99% sure I wouldn't be here today--I know now we will all beat this nightmare--if we remain positive and VOCAL!! Though I appreciate the CDC has at least agrees to LOOK into it--I think the media coverage has been lame--"candy coated" --almost as if they're not allowed to report too much at this time--which makes me even more embarrassed after family and friends view the broadcasts--they look atg me as if I've embellished it for sympathy--I haven't--and I've never looked for pity, sym pathy or handouts--this sight has given me strength--hope--comfort!!!!!!!!!!!!!!!! THANK YOU ALL--AND YOU'RE ALL IN MY PRAYERS--STAY STRONG!!!! BYE FOR NOW!!! EDRON
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Post by azbugsy on Aug 10, 2006 23:41:30 GMT -5
Hi Kerry, Azbugsy here, present, not accountable, but planning to remain long enough to bug a few more ....... Trying not to let the windshield win. azbugsy
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