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Post by jj on Aug 21, 2006 16:08:21 GMT -5
~From the Morgellons Research Foundation~
Please call this number at CDC , for a pre-recorded message. You can leave a message if you choose. Morgellons hotline at CDC 404-718-1199 ... ~~m-0u0-m~~ ... JJ
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Post by Sidney on Aug 21, 2006 16:34:39 GMT -5
I hope this message will be pinned.
I also hope when folks leave a message it's civil and from the heart.
This is no time to scream and swear, tempting though it may be, but a time to behave in a rational, sincere, and adult manner.
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Post by ed on Aug 21, 2006 16:49:35 GMT -5
I hope this message will be pinned. I also hope when folks leave a message it's civil and from the heart. This is no time to scream and swear, tempting though it may be, but a time to behave in a rational, sincere, and adult manner. ah..........a voice of sound reasoning. Ed
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Post by betsy on Aug 22, 2006 0:32:36 GMT -5
I totally agree with Sidney.
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Post by life on Aug 22, 2006 18:25:29 GMT -5
I left a message with them -- all contact numbers and email, the name of my school where both I and another worker have this.
life
and I was VERY nice
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Post by jeff on Aug 22, 2006 23:38:36 GMT -5
I BEG YOU FOLKS PLEASE BE SANE....I KNOW WE ALL HAVE OUR CRAZY STORIES...BUT KEEP THEM TO YOUR SELF...I KNOW ITS TEMPING BUT PLEASE OUR SUCCESS WITH THE CDC MAY DEPEND ON IT................IF WE LEAVE MESSAGES ABOUT CHEM-TRAIL...GOVERNMENT COVERUPS...AND ALIENS INVADING...WE DONE............................WE WILL BE SCREWED......
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Post by lil on Aug 24, 2006 23:37:46 GMT -5
so its real?
cdc is really involved now?
oh myy god thank you...
im gonna take this number and i am gonna call it and give my doctor the telephone
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Post by jazzerciser1 on Aug 24, 2006 23:55:31 GMT -5
WOW I am shaking from head to toe left a short message. I could not have over done it (which is not the norm) i was too excited, shaken , just overcome with a feeling of anticipation, etc... but i offer my body as a tool for research. thanked them and left my contact info. Jazz i am still shaking is a good thing
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Post by lil on Aug 25, 2006 3:14:47 GMT -5
hehe i actually started cryin when i heard her say cdc and morgellons in the same sentence.... waaahhhahahahooow....
i cyried: im calling from sweden.. all i can say is: finally.. thank you..
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Post by imblownaway on Aug 25, 2006 8:51:31 GMT -5
They also have an email address.I know it is morgellonssndrome..cant remember the rest If you know it can you please post it here too. Im curious to know if anyone has gotten a response from them yet.
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Post by imblownaway on Aug 25, 2006 12:30:47 GMT -5
Allright I found it its morgellonssyndrome.cdc.gov. I emailed them pleading for help. We have alot riding on what these people come to a conclusion to. We need to keep telling them how sickwe are, How sick our children are. And how spreadable this is.Please keep writing and calling. But yes keep it sane.
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Post by beckybailey on Aug 25, 2006 17:06:32 GMT -5
I just called the number, and encourage everyone to do so. I was going to leave a message even though they have heard from me by email and snail mail. I was very nice, but I found myself telling them that their advice is erroneous because, until the doctors are informed that this is real, going to our local doctors is not going to do us any good.
I just realized what peeed me off before that peeed me off. The message also says that they don't have the facilities to evaluate any of us!
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Post by junebook on Aug 25, 2006 17:14:43 GMT -5
hehe i actually started cryin when i heard her say cdc and morgellons in the same sentence.... waaahhhahahahooow.... i cyried: im calling from sweden.. all i can say is: finally.. thank you.. LIL
* * * I'm bawling my eyes out just reading all these break-your-heart-in-two posts. Haven't even made my call yet. My deepest thanks to all who had a hand in this major step forward. And thank you God for listening and responsing to our endless prayers. God Bless us all.
PS: For three weeks now, I've experienced some of the worst symptoms ever. The tiniest of critters have invaded me--all of me. Many are constructed of the crystal threads, others look like miniature ice sculptors, others resemble the tiniest of reddish human fetuses in the fetal position. Lots of tiny white worms. Under the microscope their outer bodies resemble the texture of jellyfish. I find more every day. They gather (the tiniest of pinpricks) around every lesion, and within 48 hours they re-invade what were healing lesions. The stings are memorable. The once healing lesions become reinfected, red, and very painful--requiring frequent attention to cleaning and doctoring. EcoVie is helping. Every morning it feels and looks as if my abdomen has been sprinkled with salt crystals. Only God knows what they are. I found similar ones on my bedspread some weeks ago, but they were as large as the "reply" icon (blue circle white arrow). Almost impossible to shatter. Maybe this is what they call "Herxing?" By the way, what is herxing ? Other thaan ammonia is there anything else they dislike--that we can put on our bodies?
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cb
Full Member
Posts: 145
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Post by cb on Aug 25, 2006 18:01:56 GMT -5
Here are some question that the cdc might ask you . This is what i was ask . my full name . my state ,cityor town. were did my lesions frist start on my body ? Do i still have lesions . Does any one usle in my family have this . were did there lesions start on there body . my best contact number home phone or cell . I told them that i went on a vac where they had a flood and that where i frist got my lesion . I also told them i was getting better . take care god bless.
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Post by Sidney on Aug 25, 2006 19:43:56 GMT -5
tinyurl.com/jq6k4I haven't read all of this, but if they've only received 100 or so calls then we're not being effective....and I admit I haven't called, but will. This business of Dan Rusk saying they've taken about 100 "complaints" is total horse feathers, folks. "We" who suffer have been talking to the CDC about "this" as far back as the early to mid-90's. Hello, CDC? Do you people ever communicate among yourselves? Is your employee turnover so great that notes aren't taken or kept? No records of any kind? What is wrong with this picture? More on Morgellons WNEG - Toccoa,GA,USA ... a phone interview. Dan Rusk says they've taken about 100 complaints from people who say they have Morgellons symptoms. But, they ...
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Post by rickndebby on Aug 25, 2006 22:09:51 GMT -5
Hello Everyone...........This is GREAT NEWS.....The fact that the CDC has actually set up a "Hotline" is super.......I agree completely with those who are encouraging any and all messages to be "sane and polite"......I have to believe that we won't get anywhere by being rude and demanding.....It's not yet time for that.....Deb and I are going to call ASAP.....Best to everyone.......Rick of rickndebby
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Post by ebgbgms on Aug 27, 2006 8:35:48 GMT -5
Hi all, I called. Left my name, # state. Said my whole family has this and many others in Mo. I would do anything to help and Thanked them. I know Metta has called, but the rest of us in Mo. have to call so if passable they can see it is everywhere and Mo. is very significant. GOD BLESS US ALL, One more note--I am praying for the researchers on this CDC committee, as they will hear and hopefully see this disease be brave enough to tell the Truth and get us help. For our sake and theirs. Always, Glenda
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Post by godog on Aug 27, 2006 8:52:46 GMT -5
Yeah, I intend to call this week. I'm curious to hear it anyway.
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Post by imblownaway on Aug 28, 2006 11:54:32 GMT -5
I reseived a reply from the e-mail I sent. Same old form letter word for word of the recording so I wrote them back. Letting them know how urgent I felt this was and how bad we are suffering and how we cant get any proper medical treatment. Please keep writing and calling dont let them say they didnt hear from us. The standard letter is unacceptable to me because it stated we are to see our health care providers, and because it doesnt sya that any studies are being done at all. Its bullpoop.
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Post by tonie on Aug 28, 2006 13:14:54 GMT -5
I've left about a zillion messages over many months, and letters, and NEVER a reply.
Does this "voice mail" they have on here really go anywhere or is it only to buy more time?
Maybe if there were just some kind of "hint of light" I'd not be so skeptical...but it's looking like again...a pasifier.
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