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Post by prevenge on Oct 30, 2006 15:48:25 GMT -5
Is the teenage boy from the ABC special the only person to have committed suicide because of the struggle with Morgellons? Or are there more?
-M
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Post by cindycasey on Oct 30, 2006 16:38:55 GMT -5
Prevenge,
Unfortunately there are several more. Some have intentionally OD'd but many have accidentally overdosed while trying to rid themselves of this misery with multiple medications.
At More Jamm there was a memorial service for those than are no longer in the ranks of helping fight this battle. It was so very touching.
This is one thing that keeps me working on this and supporting patients in any way I can day and night. I do not want this to happen to one more person.
Cindy
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Post by Sidney on Oct 30, 2006 18:24:02 GMT -5
I know three on the Memorial list were suicides, all males.
I had compiled a list of fifteen names as I recall, and wonder how many more were added. Cindy, if you know, please say so.
Not morbid curiosity, just would like to know how many deaths, but not blaming the disease for the deaths at all.....
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Post by justhanginin on Oct 30, 2006 19:01:56 GMT -5
Prevenge, The conscious decision to continue living with this disease is very difficult. I have somewhat of a support system and am getting treatment that controlls the symptoms, and it is still difficult. Like Cindy I do everything within my power to offer moral support to everyone here and share info on what is working for me. There are just so many ways this disease can bring us down, IF we let it. I am grateful for the ones who can research for information. I wish I had that ability. Some of us can only try to comfort others and lift their spirits when they need it. We all do what we can to help each other through , and we will pull through if we don't give up.
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Post by mymiracle on Oct 31, 2006 7:34:59 GMT -5
offcourse there are more....
i was close this morning
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Post by skeeter on Oct 31, 2006 9:08:05 GMT -5
It's doubtful we'll ever know the true scope of the deaths from this disease. It may not say Morgellons on the DC but I'm betting there are tons of deaths as a result of complications, not to mention by the sufferers' own hands.
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Post by beckybailey on Oct 31, 2006 15:55:21 GMT -5
There was another newspaper article some months ago about a man in California that committed suicide, then his fiance' began having the symptoms.
mymiracle, have you seen my advice? If not please send me a pm.
My faith has given me the strength to never "go there" again, but I will never forget how awful it felt for the first time in my life to not want to be here another minute. Reading out loud from the bible gave me strength to move mountains. I want to do anything I can to get you past this. Managing this scourge is the only way to survive the suicidal tendencies. You really have to jump all over it, and get it under control. I have done just that, with the good Lord carrying me along the way.
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Post by prevenge on Oct 31, 2006 16:00:33 GMT -5
its almost as if the "intentional design" of this disease, paired with the WIDESPREAD attitude that doctors give toward it...
is purposely created to push people to suicidal thoughts.
I can't think of a more perfect way.
-M
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Post by dc10801 on Nov 1, 2006 16:34:44 GMT -5
I'm sure there are more unreported than reported with these symptoms, not everyone finds sites like this. The number not registered with morgellons.com far exceeds those registered. So the same would probably be true for suicides.
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Post by jeff on Nov 1, 2006 17:27:38 GMT -5
anybody who commites suicide cause of this affliction is stupid...comn...stand up and fight...there are poeple who got it worse...at least we have hope...how stupid what if they find the cure next week....next month...you should value life
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jimaz
New Member
Posts: 9
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Post by jimaz on Nov 2, 2006 0:00:08 GMT -5
give me a break. i'd like to think if anyone could be non-judgemental and understanding of someone suffering and their unfortunate choice of dealing w/it, that would be us. it amazes me how anyone that's experienced this nightmare can say something so ignorant and unfeeling. i've had this for over 13 yrs. i've got news for ya jeff, there won't be a cure next week. and i damn sure have no plans of spending another 13 yrs like the last(or worse). do you really think that by the time someone commits suicide they've never "stood up and fought"?? i guess some of us are pretty weak huh? it's just a tragic situation. but for those who stay positive there's always hope.
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Post by Sidney on Nov 2, 2006 0:15:12 GMT -5
Thanks, Jimaz. I feel the same way. I've fought it fifteen years and am really sick of the fight. I've fought hard. Most every day is a test in endurance and acceptance.
The first year I thought well, I'll be fine by Thanksgiving, then it was by Christmas, then into the second year I thought by my birthday, by Easter, by 4th of July, and on and on and on ad infinitum.
With wackos like Dr. Koo, Journal articles such as the one in the derm journal and all the other opposition we're up against it's not always easy to believe the truth will be known and we'll be treated and cured.
Jeff, I AM happy you are so optimistic, but try living with it more than a decade then let us know if you still feel hopeful.
I sincerely hope you remain optimistic and continue to encourage others.
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Post by jeff on Nov 3, 2006 10:27:23 GMT -5
ive had this for 4 years....I will remain hopefull till the day I die. It is my only option. Once you give up hope. You have played right into the devils trap...If you commit suicide you should better be 100 % confident that there no god....Most reliegions describe suicide as a sin...this is gods life not yours to take. I personally believe suicide is also giving up on god..You are lacking faith that whatever your belief you have to believe that faith is what keeps us going...faith has got me here to this better place. good luck to ya...I dont believe it is being insensitve to speak out against suicide...I believe it is just the oppisite. I believe I am caring about you...there is hope...there is a lot of hope...you should feel comfort in the fact that 5000 others have this.amd that by that fact alone you are far far better off that if you were the only one.
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Post by cindycasey on Nov 3, 2006 11:19:31 GMT -5
Jeff,
I agree with you on this one. In my many years as a nurse I have taken care of lots of intentional ODs. Often times I would have a patient in the next bed on life support desperately waiting for an organ transplant. I think that suicide is a selfish way to go. For people that do want to commit suicide...they should first consider making themselves an organ donor because so many others want desperately to live.
Cindy
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Post by Sidney on Nov 3, 2006 13:02:04 GMT -5
I did the organ donor thing years ago. If there's anything left of value then please take it.
I do believe in God. I also believe in assisted suicide. Oregon and Alaska allow it as I recall, and no, I'm not interested in moving to either state.
There's also the Hemlock Society.
I do have hope, faith, and I am so grateful for all the good that has come our way fighting this disease, as well as a wonderful husband, healthy children, healthy grandchildren and everything that is GOOD, including the good people who suffer along with me.
I had it three years before being connected with others with the same symptoms. I know full well the horror of being alone with it and while misery does indeed love company, that's not the reason I'm grateful for each person who contributes and shares. Only a fellow sufferer can even begin to understand what this is like.
It may be an old face, but it's the only one I have and it's being destroyed while people like Dr. Koo call us delusional. Those words are beyond insulting, but they are only words, so screw them and the Jackasses they rode in on.
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Post by l46cheetah on Nov 3, 2006 13:13:16 GMT -5
Jeff, To tell you the truth when I read what you wrote about being stupid I was sort of shocked but honestly it snapped me out of feeling sorry for myself ( was having a moment, I'm sure everyone on this board can relate) If I said that I have not mentally gone to that deep dark black hole...that would be a lie. Point is I don't ever want to go to that deep dark black hole ever again. To understand the devastation that something like that would put on my loved ones is way more for me to bare than this illness and I see that now but I didn't when I was in the black hole. I had to sit there for a bit to figure out the pain I would be leaving behind. My kids and grankids would have to think about that every day. I really can not explain how those rational thoughts came to me but they did. Digging out is the hardest. Maybe it was due to my faith and love for my Lord, maybe it was due to the love I have for my kids and grandkids. Hey, it could have been one of the many phone calls I recieved from others inflicted with this illness and my dear friends checking on me or maybe I logged into this board and someone reached out to me. All of the above I am sure. Nonetheless, we all go through hard times and some days are better than others and this is a stale parrallel but I sort of look at it like this... when you quit smoking....and you have cravings...if you wait a few minutes the craving passes...sort of the same with suicide. If you can just not act on the emotion at that moment. All I am saying is there is not one person that is walking in anothers shoes..not fully.... even though we are all struggling with this horrible illness. So my action today is to reach out to anyone that is feeling like they want to commit suicide and either PM me and I will give you my personal e-mail or I will call you or you can call me. I cannot make this more clear! REACH OUT !!! Please make a call or send an e-mail even if it is not to me......... at least somebody !! I am not here to judge either way but here to help....Love and Light, Laur
I I
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Post by belikewater on Nov 3, 2006 14:25:09 GMT -5
Well, I don't believe in "g*d" as such and quit using the authoritarian excuse for doing things or blaiming others. However, in the Buddhist tradition, suffering is a part of every existence whether you are in hell or an animal or human or even a 'god'. You can't get away by doing yourself in. You have to change your mind about what suffering is and use it for benefit. Bless us all.
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Post by prevenge on Nov 3, 2006 14:27:29 GMT -5
Jeff, I agree with you on this one. In my many years as a nurse I have taken care of lots of intentional ODs. Often times I would have a patient in the next bed on life support desperately waiting for an organ transplant. I think that suicide is a selfish way to go. For people that do want to commit suicide...they should first consider making themselves an organ donor because so many others want desperately to live. Cindy whats more selfish, mercifully relieving yourself of a life of mental and physical torture, or donating fiber infested organs to an unsuspecting recipient and spreading the chaotic pain and dispair of this affliction? also, selfishness is not always a bad thing. i've been a very giving and kind and unselfish person my entire life. faith in dietic ideas to me, is believing something someone told you, on that premise alone. religion to me, is merely mass behavior control. to indoctrinate the populace into a story that includes promises of imaginary punishment or reward depoending upon their behavior during their life. believe me, without these institutions, i think our species would have had a much more chaotic experience in the past, but there comes a time when the collective conciousness of the world may realize that we are all one, and the sum of our conciousness, after a massive spiritual awakening is equal to the idea of god. so i don't make my descisions based off of popularly held mythological supersticions, but if you hav faith in something that brings you hope and happiness, then I think that is a positive thing. i was just curious about the suicide rate among morgellons sufferers. I'm not contemplating it, nor do i have a vast amount of pity for myself. It would be a logical descision on my part if ever, not an emotional, faith based one. And logic has always prevented me from it. I need to be here to take care of my parents when they are old, because they gave so much to me in my life. I also would hurt so many people and cause more pain by doing it, so while not saying it's selfish because of that, i think because it would cause more pain than it would relieve, I wouldn't go through with it. though when the disease is at its worst, mentally and physically, the thought of"turning everything off" is inviting. that "turn off" can just be sleep though. -M
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Post by See Jane Crawl on Nov 3, 2006 14:38:13 GMT -5
Prevenge Wrote:
Holy Crap Prevenge! ~ You really opened a huge can of worms (no pun intended!) with that statement. Both my daughter & myself are listed as organ donors. I guess I should change our status until a cure is found for this. I wonder if the organ donation people do testing of any sort on the organs before the recipient receives the organs?
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Post by belikewater on Nov 3, 2006 14:45:13 GMT -5
I also wonder how many of us have received donated blood in the last 20 years or so? can one get Lyme or Morgellons from a blood donation?
How many of us have donated blood?
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